Consumers’ Intentions to Adopt Blockchain-Based Personal Health Records and Data Sharing: Focus Group Study (Preprint)

Background Although researchers are giving increased attention to blockchain-based personal health records (PHRs) and data sharing, the majority of research focuses on technical design. Very little is known about health care consumers’ intentions to adopt the applications. Objective This study aims to explore the intentions and concerns of health care consumers regarding the adoption of blockchain-based personal health records and data sharing. Methods Three focus groups were conducted, in which 26 participants were shown a prototype of a user interface for a self-sovereign blockchain-based PHR system (ie, a system in which the individual owns, has custody of, and controls access to their personal health information) to be used for privacy and secure health data sharing. A microinterlocutor analysis of focus group transcriptions was performed to show a descriptive overview of participant responses. NVivo 12.0 was used to code the categories of the responses. Results Participants did not exhibit a substantial increase in their willingness to become owners of health data and share the data with third parties after the blockchain solution was introduced. Participants were concerned about the risks of losing private keys, the resulting difficulty in accessing care, and the irrevocability of data access on blockchain. They did, however, favor a blockchain-based PHR that incorporates a private key recovery system and offers a health wallet hosted by government or other positively perceived organizations. They were more inclined to share data via blockchain if the third party used the data for collective good and offered participants nonmonetary forms of compensation and if the access could be revoked from the third party. Conclusions Health care consumers were not strongly inclined to adopt blockchain-based PHRs and health data sharing. However, their intentions may increase when the concerns and recommendations demonstrated in this study are considered in application design.

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Exploring Type-and-Identity-Based Proxy Re-Encryption Scheme to Securely Manage Personal Health Records

International Journal of Computational Models and Algorithms in Medicine ◽

10.4018/jcmam.2010040101 ◽

2010 ◽

Vol 1 (2) ◽

pp. 1-21

Author(s):

Luan Ibraimi ◽

Qiang Tang ◽

Pieter Hartel ◽

Willem Jonker

Keyword(s):

Access Control ◽

Health Data ◽

Third Party ◽

Personal Health ◽

Encryption Scheme ◽

Health Records ◽

Web Based ◽

The Third ◽

Access Control Policies ◽

Identity Based

Commercial Web-based Personal-Health Record (PHR) systems can help patients to share their personal health records (PHRs) anytime from anywhere. PHRs are very sensitive data and an inappropriate disclosure may cause serious problems to an individual. Therefore commercial Web-based PHR systems have to ensure that the patient health data is secured using state-of-the-art mechanisms. In current commercial PHR systems, even though patients have the power to define the access control policy on who can access their data, patients have to trust entirely the access-control manager of the commercial PHR system to properly enforce these policies. Therefore patients hesitate to upload their health data to these systems as the data is processed unencrypted on untrusted platforms. Recent proposals on enforcing access control policies exploit the use of encryption techniques to enforce access control policies. In such systems, information is stored in an encrypted form by the third party and there is no need for an access control manager. This implies that data remains confidential even if the database maintained by the third party is compromised. In this paper we propose a new encryption technique called a type-and-identity-based proxy re-encryption scheme which is suitable to be used in the healthcare setting. The proposed scheme allows users (patients) to securely store their PHRs on commercial Web-based PHRs, and securely share their PHRs with other users (doctors).

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Exploring Type-and-Identity-Based Proxy Re-Encryption Scheme to Securely Manage Personal Health Records

Clinical Technologies ◽

10.4018/978-1-60960-561-2.ch211 ◽

2011 ◽

pp. 391-411 ◽

Cited By ~ 2

Author(s):

Luan Ibraimi ◽

Qiang Tang ◽

Pieter Hartel ◽

Willem Jonker

Keyword(s):

Access Control ◽

Health Data ◽

Personal Health Records ◽

Third Party ◽

Personal Health ◽

Encryption Scheme ◽

Web Based ◽

The Third ◽

Access Control Policies ◽

Identity Based

Commercial Web-based Personal-Health Record (PHR) systems can help patients to share their personal health records (PHRs) anytime from anywhere. PHRs are very sensitive data and an inappropriate disclosure may cause serious problems to an individual. Therefore commercial Web-based PHR systems have to ensure that the patient health data is secured using state-of-the-art mechanisms. In current commercial PHR systems, even though patients have the power to define the access control policy on who can access their data, patients have to trust entirely the access-control manager of the commercial PHR system to properly enforce these policies. Therefore patients hesitate to upload their health data to these systems as the data is processed unencrypted on untrusted platforms. Recent proposals on enforcing access control policies exploit the use of encryption techniques to enforce access control policies. In such systems, information is stored in an encrypted form by the third party and there is no need for an access control manager. This implies that data remains confidential even if the database maintained by the third party is compromised. In this paper we propose a new encryption technique called a type-and-identity-based proxy re-encryption scheme which is suitable to be used in the healthcare setting. The proposed scheme allows users (patients) to securely store their PHRs on commercial Web-based PHRs, and securely share their PHRs with other users (doctors).

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Exploring Type-and-Identity-Based Proxy Re-Encryption Scheme to Securely Manage Personal Health Records

Innovations in Data Methodologies and Computational Algorithms for Medical Applications ◽

10.4018/978-1-4666-0282-3.ch006 ◽

2012 ◽

pp. 73-93

Author(s):

Luan Ibraimi ◽

Qiang Tang ◽

Pieter Hartel ◽

Willem Jonker

Keyword(s):

Access Control ◽

Health Data ◽

Personal Health Records ◽

Third Party ◽

Personal Health ◽

Encryption Scheme ◽

Web Based ◽

The Third ◽

Access Control Policies ◽

Identity Based

Commercial Web-based Personal-Health Record (PHR) systems can help patients to share their personal health records (PHRs) anytime from anywhere. PHRs are very sensitive data and an inappropriate disclosure may cause serious problems to an individual. Therefore commercial Web-based PHR systems have to ensure that the patient health data is secured using state-of-the-art mechanisms. In current commercial PHR systems, even though patients have the power to define the access control policy on who can access their data, patients have to trust entirely the access-control manager of the commercial PHR system to properly enforce these policies. Therefore patients hesitate to upload their health data to these systems as the data is processed unencrypted on untrusted platforms. Recent proposals on enforcing access control policies exploit the use of encryption techniques to enforce access control policies. In such systems, information is stored in an encrypted form by the third party and there is no need for an access control manager. This implies that data remains confidential even if the database maintained by the third party is compromised. In this paper we propose a new encryption technique called a type-and-identity-based proxy re-encryption scheme which is suitable to be used in the healthcare setting. The proposed scheme allows users (patients) to securely store their PHRs on commercial Web-based PHRs, and securely share their PHRs with other users (doctors).

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Continuity of care in Ghana: the promise of smart-med

International Journal of Engineering & Technology ◽

10.14419/ijet.v3i4.3569 ◽

2014 ◽

Vol 3 (4) ◽

pp. 473

Author(s):

Henry Ogoe ◽

Odame Agyapong ◽

Fredrick Troas Lutterodt

Keyword(s):

Health Care ◽

Health Care Providers ◽

Continuity Of Care ◽

Medical Information ◽

Care Delivery ◽

Personal Health Records ◽

Personal Health ◽

Care Providers ◽

Health Records ◽

Fragmentation Of Care

Individuals tend to receive medical care from different health care providers as they drift from one location to another. Oftentimes, multiple providers operate disparate systems of managing patients medical records. These disparate systems, which are unable to share and/or exchange information, have the propensity to create fragmentation of care, which poses a serious threat to the realization of continuity of care in the Ghanaian health care delivery. Continuity of care, which is the ability to seamlessly access, update, and manage patients medical information as they visit multiple providers, is a crucial component of quality of care in any health delivery system. The current system of managing patients records in Ghanapaper-basedmakes continuity of care difficult to actualize. To this end, we have developed a smartcard based personal health records system, SMART-MED, which can effectively promote continuity of care in Ghana. SMART-MED is platform-independent; it can run as standalone or configured to plug into any Java-based electronic medical record system. Results of a lab simulation test suggest that it can effectively promote continuity of care through improved data security, support interoperability for disparate systems, and seamless access and update of patients health records. Keywords: Continuity of Care, Fragmentation of Care, Interoperability, Personal Health Records, Smartcard.

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Personal Health Records Status-Quo and Future Perspectives

Ubiquitous Health and Medical Informatics ◽

10.4018/978-1-61520-777-0.ch003 ◽

2010 ◽

pp. 43-63

Author(s):

Simon Y. Liu,

Keyword(s):

Health Care ◽

Health Information ◽

Personal Health Record ◽

Full Range ◽

Personal Health Records ◽

Controlled Vocabulary ◽

Care Process ◽

Personal Health ◽

Health Records ◽

Access To Health

Consumers, industry, and government have recently focused attention on the potential of personal health records to empower patients in the health care process, improve patient-provider relationships, facilitate patient access to health information, and improve the quality of health care. A Personal Health Record (PHR) is a private and secure digital record that is created, managed, and owned by an individual, and contains the owner’s relevant health information. The benefits of PHRs have not yet been widely realized due to several significant challenges in their adoption, including the need for privacy, security, and interoperability, and the lack of accepted standards. Although many players in the healthcare arena are beginning to offer partial solutions, none have adequately addressed the full range of challenges. The adoption of PHRs can be significantly accelerated by the development of Open Source software that enables an individual to collect, create, organize, and manage his or her own private and secure PHR, using a standardized format and controlled vocabulary.

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Making the Case for a P2P Personal Health Record

Information ◽

10.3390/info11110512 ◽

2020 ◽

Vol 11 (11) ◽

pp. 512

Author(s):

William Connor Horne ◽

Zina Ben Miled

Keyword(s):

Health Care ◽

Health Care Providers ◽

Medical Information ◽

Third Party ◽

Personal Health ◽

Health Record ◽

Care Providers ◽

Health Records ◽

Client Server ◽

Proposed Model

Improved health care services can benefit from a more seamless exchange of medical information between patients and health care providers. This exchange is especially important considering the increasing trends in mobility, comorbidity and outbreaks. However, current Electronic Health Records (EHR) tend to be institution-centric, often leaving the medical information of the patient fragmented and more importantly inaccessible to the patient for sharing with other health providers in a timely manner. Nearly a decade ago, several client–server models for personal health records (PHR) were proposed. The aim of these previous PHRs was to address data fragmentation issues. However, these models were not widely adopted by patients. This paper discusses the need for a new PHR model that can enhance the patient experience by making medical services more accessible. The aims of the proposed model are to (1) help patients maintain a complete lifelong health record, (2) facilitate timely communication and data sharing with health care providers from multiple institutions and (3) promote integration with advanced third-party services (e.g., risk prediction for chronic diseases) that require access to the patient’s health data. The proposed model is based on a Peer-to-Peer (P2P) network as opposed to the client–server architecture of the previous PHR models. This architecture consists of a central index server that manages the network and acts as a mediator, a peer client for patients and providers that allows them to manage health records and connect to the network, and a service client that enables third-party providers to offer services to the patients. This distributed architecture is essential since it promotes ownership of the health record by the patient instead of the health care institution. Moreover, it allows the patient to subscribe to an extended range of personalized e-health services.

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Use of electronic personal health records (PHRs) for complementary and alternative medicine (CAM) disclosure: Implications for integrative health care

Complementary Therapies in Medicine ◽

10.1016/j.ctim.2016.03.008 ◽

2016 ◽

Vol 26 ◽

pp. 108-116 ◽

Cited By ~ 3

Author(s):

Younsook Yeo ◽

Jisung Park ◽

Soonhee Roh ◽

Sue Levkoff

Keyword(s):

Health Care ◽

Alternative Medicine ◽

Complementary And Alternative Medicine ◽

Personal Health Records ◽

Personal Health ◽

Health Records ◽

Integrative Health ◽

Integrative Health Care ◽

Electronic Personal Health Records ◽

Complementary And Alternative

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Personal Health Records: New Means to Safely Handle Health Data?

Computer ◽

10.1109/mc.2012.285 ◽

2012 ◽

Vol 45 (11) ◽

pp. 27-33 ◽

Cited By ~ 22

Author(s):

Inmaculada Carrion Senor ◽

Jose Luis Fernandez Aleman ◽

Ambrosio Toval

Keyword(s):

Health Data ◽

Personal Health Records ◽

Personal Health ◽

Health Records

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Caderneta de saúde da criança: vigilância do crescimento e desenvolvimento infantil

Revista de Enfermagem UFPE on line ◽

10.5205/1981-8963-v12i12a236819p3445-3455-2018 ◽

2018 ◽

Vol 12 (12) ◽

pp. 3445

Author(s):

Talita Cristina Tomaz Silva ◽

Emília Gallindo Cursino ◽

Liliane Faria Da Silva

Keyword(s):

Health Care ◽

Primary Health Care ◽

Child Health ◽

Growth And Development ◽

Scientific Evidence ◽

Child Growth ◽

Personal Health Records ◽

Personal Health ◽

Health Records ◽

Primary Health

RESUMOObjetivo: analisar as evidências científicas quanto à utilização da Caderneta de Saúde da Criança pelos profissionais de saúde para a vigilância do crescimento e desenvolvimento infantil. Método: trata-se um estudo bibliográfico, tipo revisão integrativa, com buscas nas bases de dados LILACS e BDENF e na biblioteca virtual SCIELO, utilizando os Descritores em Ciências da Saúde; crescimento e desenvolvimento, atenção primária à saúde e registros de saúde pessoal, que foram cruzados com o descritor criança empregando-se o operador booleano and. Selecionaram-se 15 artigos publicados entre 2014 a 2018 e os resultados apresentam-se em forma de figura. Resultados: evidenciou-se, nos estudos, a precária utilização da CSC, que está relacionada à ausência e à fragilidade de registros, à dificuldade de os profissionais perceberem a relevância do preenchimento, ao conhecimento deficiente dos profissionais, à insuficiência de orientações às famílias, além da participação da família nesse processo. Conclusão: compromete-se, pela precariedade da utilização da CSC, a vigilância da saúde infantil por ser este o instrumento essencial para o acompanhamento do crescimento e do desenvolvimento da criança. Descritores: Crescimento e Desenvolvimento; Atenção Primária à Saúde; Registros de Saúde Pessoal; Criança; Atenção Integral à Saúde; Saúde da Criança.ABSTRACT Objective: to analyze the scientific evidence regarding the use of the Child Health Booklet by health professionals for the monitoring of child growth and development. Method: a bibliographical study, type integrative, with searches in LILACS and BDENF databases and in the SCIELO virtual library, using Descriptors in Health Sciences; growth and development, primary health care and personal health records, which were cross-referenced with the child descriptor employing the Boolean operator and. 15 articles published between 2014 and 2018 were selected and the results are presented in figure form. Results: the poor use of CHB was evidenced in the studies, which is related to the absence and fragility of records, the difficulty of professionals to perceive the relevance of filling, poor knowledge of professionals, insufficient guidance to families, besides the participation of the family in this process. Conclusion: due to the precarious nature of the use of CHB, it is committed to monitoring child health as this is the essential instrument for monitoring child growth and development. Descriptors: Growth and Development; Primary Health Care; Personal Health Records; Kid; Comprehensive Health Care; Child Health. RESUMEN Objetivo: analizar las evidencias científicas en cuanto a la utilización de la libreta de Salud del Niño por los profesionales de salud para la vigilancia del crecimiento y desarrollo infantil. Método: se trata de un estudio bibliográfico, tipo revisión integrativa, con búsquedas en las bases de datos LILACS y BDENF y en la biblioteca virtual SCIELO, utilizando los Descriptores en Ciencias de la Salud; crecimiento y desarrollo, atención primaria a la salud y registros de salud personal, que fueron cruzados con el descriptor niño empleándose el operador booleano and. Se seleccionaron 15 artículos publicados entre 2014 y 2018 y los resultados se presentan en forma de figura. Resultados: se evidenció, en los estudios, la precaria utilización de la CSC, que está relacionada a la ausencia y fragilidad de registros, a la dificultad de los profesionales percibir la relevancia del llenado, el conocimiento deficiente de los profesionales, la insuficiencia de orientaciones a las familias, además de la participación de la familia en ese proceso. Conclusión: se compromete, por la precariedad de la utilización de la CSC, la vigilancia de la salud infantil por ser éste el instrumento esencial para el acompañamiento del crecimiento y del desarrollo del niño. Descriptores: Crecimiento y Desarrollo; Atención Primaria a la Salud; Registros de Salud Personal; Niño; Atención Integral de Salud; Salud del Niño.

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