Personal Health Records Status-Quo and Future Perspectives

2010 ◽  
pp. 43-63
Author(s):  
Simon Y. Liu,
Keyword(s):  
Health Care ◽  
Health Information ◽  
Personal Health Record ◽  
Full Range ◽  
Personal Health Records ◽  
Controlled Vocabulary ◽  
Care Process ◽  
Personal Health ◽  
Health Records ◽  
Access To Health

Consumers, industry, and government have recently focused attention on the potential of personal health records to empower patients in the health care process, improve patient-provider relationships, facilitate patient access to health information, and improve the quality of health care. A Personal Health Record (PHR) is a private and secure digital record that is created, managed, and owned by an individual, and contains the owner’s relevant health information. The benefits of PHRs have not yet been widely realized due to several significant challenges in their adoption, including the need for privacy, security, and interoperability, and the lack of accepted standards. Although many players in the healthcare arena are beginning to offer partial solutions, none have adequately addressed the full range of challenges. The adoption of PHRs can be significantly accelerated by the development of Open Source software that enables an individual to collect, create, organize, and manage his or her own private and secure PHR, using a standardized format and controlled vocabulary.

Personal Health Records Systems Go Mobile

2011 ◽  
pp. 750-772
Author(s):  
Phillip Olla ◽  
Joseph Tan
Keyword(s):  
Health Information ◽  
Mobile Device ◽  
Personal Health Record ◽  
Personal Health Records ◽  
Personal Health ◽  
Health Record ◽  
Health Records ◽  
Extant Literature ◽  
The Past ◽  
Secure Environment

This chapter provides an overview of mobile personal health record (MPHR) systems. A Mobile personal health record is an eclectic application through which patients can access, manage, and share their health information from a mobile device in a private, confidential, and secure environment. Personal health records have evolved over the past three decades from a small card or booklet with immunizations recorded into fully functional mobile accessible portals, and it is the PHR evolution outside of the secure healthcare environment that is causing some concerns regarding privacy. Specifically, the chapter reviews the extant literature on critical evaluative components to be considered when assessing MPHR systems.

scholarly journals A pilot study to evaluate the magnitude of association of patient activation in HIV-infected veterans who use electronic personal health records

2014 ◽  
Author(s):  
Pierre-Cedric Crouch ◽  
Carol PhD, RN, FAAN Dawson Rose ◽  
Mallory I. Johnson ◽  
Susan Janson
Keyword(s):  
Health Care ◽  
Viral Load ◽  
Personal Health Record ◽  
Patient Activation ◽  
Personal Health Records ◽  
Personal Health ◽  
Health Record ◽  
Health Records ◽  
Electronic Personal Health Record ◽  
Electronic Personal Health Records

Background: The HITECH Act signed into law in 2009 requires hospitals to provide patients with electronic access to their health information through an electronic personal health record (ePHR) in order to receive Medicare/Medicaid incentive payments. Little is known about who uses these systems or the impact these systems will have on patient outcomes in HIV care. The health care empowerment model provides rationale for the hypothesis that knowledge from an electronic personal health record can lead to greater patient empowerment resulting in improved outcomes. Objective: To determine the patient characteristics and patient activation, empowerment, satisfaction, knowledge of their CD4, Viral Loads, and antiretroviral medication, and medication adherence outcomes associated with electronic personal health record use in Veterans living with HIV at the San Francisco VA Medical Center. Participants: HIV-Infected Veterans receiving care in a low volume HIV-clinic at the San Francisco VA Medical Center, divided into two groups of users and non-users of electronic personal health records. Methods: In-person surveys were completed either online or on paper and data abstraction was completed from medical records for current anti-retroviral therapy (ART), CD4 count, and plasma HIV-1 viral load. Measures: The measures included the Patient Activation Measure, Health Care Empowerment Inventory, ART adherence, provider satisfaction, current CD4 count, current plasma viral load, knowledge of current ART, knowledge of CD4 counts, and knowledge of viral load. Results: In all, 40 participants were recruited. The use of electronic personal health records was associated with significantly higher levels of patient activation and levels of patient satisfaction for getting timely appointments, care, and information. ePHR was also associated with greater proportions of undetectable plasma HIV-1 viral loads, of knowledge of current CD4 count, and of knowledge of current viral load. The two groups differed by race and computer access. There was no difference in the current CD4, provider satisfaction, Health Care Empowerment Inventory score, satisfaction with provider-patient communication, satisfaction with courteous and helpful staff, knowledge of ART, or ART adherence. Conclusions: The use of electronic personal health records is associated with positive clinical and behavioral characteristics. The use of these systems may play a role in improving the health of people with HIV. Larger studies are needed to further evaluate these associations.

scholarly journals Perceptions of Personal Health Records in Rural Primary Health Clinics in Canada – Patient Perspectives

2021 ◽  
Author(s):  
Leanne M Currie ◽  
Kathy Rush ◽  
Lindsay Burton ◽  
Mona Mattei ◽  
Matthias Görges
Keyword(s):  
Rural Communities ◽  
Personal Health Record ◽  
Personal Health Records ◽  
Care Process ◽  
Personal Health ◽  
Health Records ◽  
Healthcare Settings ◽  
Primary Health ◽  
Data Control ◽  
Data Content

Personal health records are increasingly being deployed in healthcare settings. In this study we explored patients’ perceptions of personal health records in a rural community in Canada where a primary health network is being deployed. A focus group was held and data were thematically analysed. All patients used technology on a regular basis. Themes included communication and information sharing, issues with access to prior health records, data content and data control and features and functions for continuity of care. Participants expressed desire to be owners of their own record, but described instances where they might be too ill to do so. Participants were hopeful that the functions of a personal health record might help to overcome frustrations with current fragmented information and open to using technologies as part of their care process. Personal health records are promising technologies to overcome fragmented care in rural communities.

Personal Health Records Systems Go Mobile

2010 ◽  
pp. 45-70
Author(s):  
Phillip Olla ◽  
Joseph Tan
Keyword(s):  
Health Information ◽  
Mobile Device ◽  
Personal Health Record ◽  
Personal Health Records ◽  
Personal Health ◽  
Health Record ◽  
Health Records ◽  
Extant Literature ◽  
The Past ◽  
Secure Environment

This chapter provides an overview of mobile personal health record (MPHR) systems. A Mobile personal health record is an eclectic application through which patients can access, manage, and share their health information from a mobile device in a private, confidential, and secure environment. Personal health records have evolved over the past three decades from a small card or booklet with immunizations recorded into fully functional mobile accessible portals, and it is the PHR evolution outside of the secure healthcare environment that is causing some concerns regarding privacy. Specifically, the chapter reviews the extant literature on critical evaluative components to be considered when assessing MPHR systems.

scholarly journals A pilot study to evaluate the magnitude of association of patient activation in HIV-infected veterans who use electronic personal health records

2014 ◽  
Author(s):  
Pierre-Cedric Crouch ◽  
Carol PhD, RN, FAAN Dawson Rose ◽  
Mallory I. Johnson ◽  
Susan Janson
Keyword(s):  
Health Care ◽  
Viral Load ◽  
Personal Health Record ◽  
Patient Activation ◽  
Personal Health Records ◽  
Personal Health ◽  
Health Record ◽  
Health Records ◽  
Electronic Personal Health Record ◽  
Electronic Personal Health Records

Background: The HITECH Act signed into law in 2009 requires hospitals to provide patients with electronic access to their health information through an electronic personal health record (ePHR) in order to receive Medicare/Medicaid incentive payments. Little is known about who uses these systems or the impact these systems will have on patient outcomes in HIV care. The health care empowerment model provides rationale for the hypothesis that knowledge from an electronic personal health record can lead to greater patient empowerment resulting in improved outcomes. Objective: To determine the patient characteristics and patient activation, empowerment, satisfaction, knowledge of their CD4, Viral Loads, and antiretroviral medication, and medication adherence outcomes associated with electronic personal health record use in Veterans living with HIV at the San Francisco VA Medical Center. Participants: HIV-Infected Veterans receiving care in a low volume HIV-clinic at the San Francisco VA Medical Center, divided into two groups of users and non-users of electronic personal health records. Methods: In-person surveys were completed either online or on paper and data abstraction was completed from medical records for current anti-retroviral therapy (ART), CD4 count, and plasma HIV-1 viral load. Measures: The measures included the Patient Activation Measure, Health Care Empowerment Inventory, ART adherence, provider satisfaction, current CD4 count, current plasma viral load, knowledge of current ART, knowledge of CD4 counts, and knowledge of viral load. Results: In all, 40 participants were recruited. The use of electronic personal health records was associated with significantly higher levels of patient activation and levels of patient satisfaction for getting timely appointments, care, and information. ePHR was also associated with greater proportions of undetectable plasma HIV-1 viral loads, of knowledge of current CD4 count, and of knowledge of current viral load. The two groups differed by race and computer access. There was no difference in the current CD4, provider satisfaction, Health Care Empowerment Inventory score, satisfaction with provider-patient communication, satisfaction with courteous and helpful staff, knowledge of ART, or ART adherence. Conclusions: The use of electronic personal health records is associated with positive clinical and behavioral characteristics. The use of these systems may play a role in improving the health of people with HIV. Larger studies are needed to further evaluate these associations.

scholarly journals Continuity of care in Ghana: the promise of smart-med

2014 ◽  
Vol 3 (4) ◽  
pp. 473
Author(s):  
Henry Ogoe ◽  
Odame Agyapong ◽  
Fredrick Troas Lutterodt
Keyword(s):  
Health Care ◽  
Health Care Providers ◽  
Continuity Of Care ◽  
Medical Information ◽  
Care Delivery ◽  
Personal Health Records ◽  
Personal Health ◽  
Care Providers ◽  
Health Records ◽  
Fragmentation Of Care

Individuals tend to receive medical care from different health care providers as they drift from one location to another. Oftentimes, multiple providers operate disparate systems of managing patients medical records. These disparate systems, which are unable to share and/or exchange information, have the propensity to create fragmentation of care, which poses a serious threat to the realization of continuity of care in the Ghanaian health care delivery. Continuity of care, which is the ability to seamlessly access, update, and manage patients medical information as they visit multiple providers, is a crucial component of quality of care in any health delivery system. The current system of managing patients records in Ghanapaper-basedmakes continuity of care difficult to actualize. To this end, we have developed a smartcard based personal health records system, SMART-MED, which can effectively promote continuity of care in Ghana. SMART-MED is platform-independent; it can run as standalone or configured to plug into any Java-based electronic medical record system. Results of a lab simulation test suggest that it can effectively promote continuity of care through improved data security, support interoperability for disparate systems, and seamless access and update of patients health records. Keywords: Continuity of Care, Fragmentation of Care, Interoperability, Personal Health Records, Smartcard.

Intention-Behavior Gap in the Use of Personal Health Records (PHRs)

2021 ◽  
Vol 13 (1) ◽  
pp. 18-35
Author(s):  
Younsook Yeo ◽  
Changsoo Sohn
Keyword(s):  
Health Information ◽  
Social Factors ◽  
Structural Equation ◽  
Personal Health Records ◽  
Equation Modeling ◽  
Future Research ◽  
Personal Health ◽  
Perceived Behavioral Control ◽  
Health Records ◽  
Actual Use

This paper examined an intention-behavior gap in individuals' personal health records (PHRs) adoption behaviors using Ajzen's theory of planned behavior (TPB) that incorporates social factors. Using structural equation modeling, the authors analyze the health information national trends survey data. The research found that all of the constructs, except for perceived behavioral control (PBC), shape intentions to use PHRs. However, PBC only predicts actual use. Individuals who have higher intentions tend to believe that healthcare providers should be able to share their patients' PHRs with other professionals and that scientists should be able to review de-identified patient PHRs. Individuals who perceive that a need exists for privacy control over their own health information tend to have higher intentions. The moderating social factors between intentions and actual behaviors are healthcare accessibility and being female, while education (positively) and employment (negatively) have significant relationships with actual use of, but not with intentions to use, PHRs. Future research needs to explicate why the moderating effect revolves around gender.

Consumer Support for Health Information Exchange and Personal Health Records: A Regional Health Information Organization Survey

2010 ◽  
Vol 36 (3) ◽  
pp. 1043-1052 ◽  
Author(s):  
Vaishali N. Patel ◽  
Rina V. Dhopeshwarkar ◽  
Alison Edwards ◽  
Yolanda Barrón ◽  
Jeffrey Sparenborg ◽  
...  
Keyword(s):  
Health Information ◽  
Information Exchange ◽  
Health Information Exchange ◽  
Personal Health Records ◽  
Information Organization ◽  
Personal Health ◽  
Regional Health ◽  
Health Records
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