scholarly journals Reducing Cancer Care Partner Burden: A User-Centered Design Approach for an mHealth App (Preprint)

2020 ◽  
Author(s):  
Ingrid Oakley-Girvan ◽  
Sharon Watkins Davis ◽  
Allison Kurian ◽  
Lisa G. Rosas ◽  
Jena Daniels ◽  
...  

BACKGROUND Informal care partners are essential partners in the delivery of complex cancer care services at home, and about 25% of those caring for cancer patients spend more than 40 hours a week providing services. Care partners frequently suffer psychological, behavioral, and physiological effects that can not only affect the patients’ mental and physical health, but also impair the care partners’ health. OBJECTIVE In this paper, we describe a user-centered design approach to build an mHealth smartphone app to provide support and resources to informal care partners while enabling them to remotely monitor the cancer survivor’s health for unanticipated adverse events, thereby reducing burden for clinical staff. METHODS An iterative information gathering process was conducted that included a) potential customer discussions with 138 people to assess health care value propositions and corresponding benefit modules; b) semi-structured interviews with clinicians (N=3), cancer patients (N=3) and care partners (N=3) to identify needs and interests, and; c) a 28-day beta iOS user testing with feasibility and acceptability feedback from 7 care partners in two geographically different academic cancer centers (Duke and Stanford). This study was registered on clinicaltrials.gov (NCT04018677). RESULTS The interviews conducted prior to developing the mHealth app prototype identified areas of consistency in responses between different stakeholder groups in terms of how the mobile app should work, as well as areas of difference. The beta test of the prototype indicated satisfaction with the app’s usability. Care partners preferred to focus primarily on the patient’s health and not their own, and regular surveys on the patient’s symptoms helped educate care partners and reduce their anxiety. CONCLUSIONS This study describes the user-centered design process and demonstrates the feasibility and acceptability of TOGETHERCareTM, an iOS smartphone app for informal cancer care partners. Larger studies, in various oncology populations, are needed to establish the efficacy of the app in reducing care partner burden and to facilitate critical remote monitoring CLINICALTRIAL




2021 ◽  
Author(s):  
Victoria Sanchez Antelo ◽  
Lucila Szwarc ◽  
Melisa Paolino ◽  
Diana Saimovici ◽  
Silvia Massaccesi ◽  
...  

BACKGROUND Human papillomavirus (HPV) testing detects sexually transmitted infection with oncogenic types of HPV. For many HPV-positive women, this result has negative connotations. It produces anxiety, fear of cancer or death, and disease denial. Face-to-face counseling could present many difficulties in its implementation but a counseling mobile-app could be practical and may help HPV-positive women reduce the psychosocial impact of the result, improve their knowledge on HPV and cervical cancer, and increase adherence to follow-up. OBJECTIVE This study aimed to understand HPV-tested women’s perceptions about an app as a tool to receive information and support to reduce the emotional impact of HPV-positive results. We investigated their preferences regarding app design, content, and framing. METHODS We conducted formative research based on a user-centered design approach. We carried out 29 individual online interviews with HPV-positive women aged 30 and over, and four focus groups with 19 women through a virtual platform. We shared a draft of the app's potential screens with a provisional label of the possible content, options menus, draft illustrations, and wording. This allowed us to give women understandable triggers to debate the concepts involved in each screen. The draft content and labels were developed drawing from the Health Belief Model (HBM) and Integrative Behavioral Model’s (IBM) variables and findings of mHealth literature. We used a focus group guide to generate data for the information architecture (i.e., how to organize contents into features). We carried out thematic analysis using constructs from the HBM and IBM to identify content preferences and turn them into app features. We used the RQDA package of R software for data processing. RESULTS We found that participants required more information regarding the procedures they had received, what HPV-positive means, what the causes of HPV are, and its consequences on their sexuality. The women mentioned fear of the disease and stated they had concerns and misconceptions, such as believing that HPV-positive is a synonym for cancer. They accepted the app as a tool to obtain information and to reduce fears related to HPV-positive results. They would use a mobile app under doctor or health authority recommendation. The women did not agree with the draft organization of screens and contents. They believed the app should first offer information on HPV and then provide customized content according to the users’ needs. The app should provide information via videos with experts and testimonies of other HPV-positive women and suggested a medical appointment reminder feature. The app should also offer information through illustrations, or infographics, but not pictures or solely text. CONCLUSIONS Providing information that meets women’s needs and counseling could be a method to reduce fears. A mobile-app seems to be an acceptable and suitable tool to help HPV-positive women. CLINICALTRIAL N/A



2018 ◽  
Author(s):  
Ingrid Oakley-Girvan ◽  
Sharon Davis ◽  
Dale G. O'Brien ◽  
Lidia Schapira ◽  
Allison W. Kurian ◽  
...  

BACKGROUND Both the National Cancer Institute (NCI) and the National Academy of Medicine have stressed the importance of survivorship care plans (SCP) for cancer survivors and discussed the significance of input from survivors and their advocates. However, there are many barriers to cancer care coordination and the creation of SCPs, including oncology staff time required to write them. Although survivors valued SCPs and liked them, few survivors or care partners report receiving survivorship information. Digital platforms can support cancer survivorship care by integrating with the existing Electronic Health Record and presenting information in a dynamic and user-friendly format that improves coordination and communication. OBJECTIVE In this paper, we describe including medical staff, survivors, and informal care partners in developing a user-centered design for TOGETHERCareTM, (Track Outcomes & Guidance, Technology for Health & Effective Resources for Care) a smartphone mobile app envisioned to provide critical functionality, including planning and sharing the SCP among survivors, physicians, and informal care partners. METHODS Two interviewers conducted a total of nine semi-structured interviews, including a convenience sample of three clinical staff who work with cancer survivors, three cancer survivors, and three informal care partners currently caring for cancer survivors. The interviews with Spanish-speaking survivors and care partners were conducted with a translator. Notes from the interviews were transcribed into a prepared template. The results were compiled and coded by two members of the team. RESULTS We identified areas of consistency in responses between the three different groups in terms of how the mobile app should work, as well as areas of difference. Additional suggestions for features for the mobile app are also presented. Clinical teams focused on the efficiency of using the app, and features that would improve follow-up visits with survivors. Survivors and care partners were more focused on features that would provide assistance with at-home medical tasks and activities of daily living. Although all three groups agreed that there is currently no systematic way for specialists to keep in touch with survivors once they have moved to community care, and that SCPs would be useful, they currently do not receive or provide a SCP. Survivors, care partners, and clinical staff all agreed that they have smartphones and that a mobile app including the ability to communicate between the different groups, along with other features would be welcome and useful. CONCLUSIONS The ubiquity of smartphones and mobile app use provides an opportunity to incorporate patient outcomes and make information and survivorship plans more readily available to informal care partners and cancer survivors. Clinical teams, cancer survivors, and informal care partners all responded positively to a variety of features that could improve the efficiency of cancer care coordination and rapidly improve SCP provision. CLINICALTRIAL None.



2021 ◽  
Author(s):  
Sunyoung Kim ◽  
Yunoh Park

BACKGROUND Indoor air pollution is a well-known risk factor that triggers and exacerbates asthma, the most common pediatric chronic disease. Using a mobile app to monitor indoor air quality could be promising in engaging children in keeping their indoor air quality clean and healthy as the basis of environmental secondary prevention for asthma management. No app is available, however, to allow children to monitor, assess, and improve their indoor air quality. OBJECTIVE The objective of this study is to design a mobile app that encourages children to engage in monitoring indoor air quality and tracking their asthma conditions through a user-centered, iterative design approach. METHODS We conducted a review of existing applications and two sets of semi-structured interviews with 12 children with asthma, through which we iteratively created prototypes and evaluated and revised them accordingly. RESULTS Participants raised a series of outstanding questions on the prototype features and content that described their needs and perspectives, which informed the final designs. Following the identified requirements and recommendations, we developed two versions of the app, AirBuddy for presenting concrete information for indoor air quality and AirPet for gamifying the practice of monitoring indoor air quality. CONCLUSIONS By following an iterative, user-centered design process, we developed two versions of an app to encourage children with asthma to monitor indoor air quality and track their asthma condition. The user-centered design approach revealed two crucial aspects that require deeper consideration when creating a child-friendly app, including balancing brevity and expressivity and the longitudinal effects of gamification. As a next step, we plan to conduct a longitudinal deployment study to evaluate the real-world effects of our apps.



2016 ◽  
Vol 3 (1) ◽  
pp. 62
Author(s):  
Rhomita Sari ◽  
Ema Utami ◽  
Armadyah Amborowati

Business Placement Center membantu mengelola website alumni dalam memenuhi kebutuhan alumni salah satunya memberikan informasi mengenai lowongan pekerjaan. Website Alumni Amikom sudah memberikan informasi mengenai lowongan pekerjaan. Namun website alumni masih perlu ditambahkan fitur-fitur menu penunjang dalam mempermudah pencarian informasi pekerjaan yang sesuai keinginan pengguna. Penggunaan metode User Centered Design untuk mempermudah pengguna dalam menggunakan fasilitas yang ada pada website ketika mencari informasi lowongan pekerjaan dan pengguna berperan penting dalam setiap proses UCD. Dengan pendekatan User Centered Design diharapkan dapat menghasilkan tampilan dan fungsionalitas yang maksimal pada rancangan sistem yang dibangun sehingga sesuai dengan kebutuhan pengguna. Metode penelitian yang dilakukan yaitu observasi, wawancara dan kuesioner untuk mengetahui kebutuhan pengguna. Analisis dan perancangan menggunakan pendekatan User Centered Design dan implementasi perancangan sistem. Hasil penelitiannya adalah pengguna merasa nyaman dengan tampilan antarmuka website yang sudah dibangun, informasi yang disajikan mudah dipahami dan fitur-fitur menu sudah berhasil berjalansesuai fungsi.Business Placement Center help manage the website for the needs of alumnus one of them is to provide information on a vacancy. The alumnus website’s provides information about job vacancy. The website still need the support to facilitate the searching all the features the work in accordance with what the use. The method of user centered design to make it easy for users in the use of the existing facilities at the website while searching for information a vacancy and users play an important role in any proses UCD. User Centered Design approach is expected to produce the interface and functionality maximal built in the system so that in accordance with the need of users. Research methodology was by observation, interviews and quesionnaires to find out the need of users. Analysis and design using UCD approach and implementation of the system. The results of research is users feel comfortable with a display interface of website which have been built, the information is easily understood and menu features has been successfully run a function.



2021 ◽  
Vol 13 (14) ◽  
pp. 7543
Author(s):  
Carla Pestana ◽  
Luísa Barros ◽  
Sabrina Scuri ◽  
Mary Barreto

The adoption of energy efficiency practices and increased penetration of renewable energy sources in the power system are estimated to play a key role in the decarbonization of the energy sector, helping reduce greenhouse gas emissions and ultimately fight climate change. To foster energy transition, energy education initiatives should primarily target the citizens and be designed adopting a User-Centered Design (UCD) approach and HCI methodologies. This paper describes how UCD/HCI can inform the design of citizens’ energy education initiatives by presenting a case study—the development of an information platform targeting Madeiran citizens. The article describes the design process, from ideation to prototype and validation. Methods used in each phase (card sorting, semi-structured interviews, brainstorming sessions, think-aloud protocol and surveys) are described. Results of each phase and how they have informed the following steps are presented, together with a detailed description of the resulting information platform and initial results in terms of acceptance and interaction with the system. Our initial results support the hypothesis that adopting an HCI perspective can nurture the development of energy education initiatives targeting citizens, bringing a user-centered approach to the design of such initiatives.



2021 ◽  
Author(s):  
Victoria Sanchez Antelo ◽  
Lucila Szwarc ◽  
Paula Frejdkes ◽  
Melisa Paolino ◽  
Diana Saimovici ◽  
...  




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