Feasibility of Using Electronic Health Records (EHR) for cascade monitoring and cost estimates in implementation science studies in the Adolescent Trials Network for HIV/AIDS Interventions (ATN) (Preprint)

2020 ◽  
Author(s):  
Tyra Dark ◽  
Kit N. Simpson ◽  
Sitaji Gurung ◽  
Amy L Pennar ◽  
Marshall Chew ◽  
...  

UNSTRUCTURED Objective. The proportion of youth living with HIV/AIDS (YLH) on ART and virally undetectable is low, highlighting significant challenges for reaching the Joint United Nations Program on HIV targets. Increased attention to measurement and monitoring of care engagement highlights a needed framework for assessing progress across the care continuum. To this end, the Cascade Monitoring (CM) study was designed to assess the feasibility of using electronic health records (EHR) for cascade related implementation science outcomes. Methods. EHR data was systematically obtained from multiple clinical sites and utilized to capture the CDC’s four continuum of care measures. Results. The use of EHR data works well for assessing patterns of completed visits. Sites with access to data management resources work more efficiently for CM study purposes. Conclusions. Site data management resources should be a part of the selection process when identifying site partners for clinical studies that plan to use EHR data.

2020 ◽  
pp. 181-196
Author(s):  
Gina S. Lovasi ◽  
Steve Melly

This chapter serves to highlight strategies and challenges in bringing together multiple types of geographically referenced data for urban health research, such as linkage of electronic health records to area-based characteristics. The discussion highlights practical considerations that arise in data management, as well as strategies safeguard confidentiality.


Author(s):  
John Loft ◽  
Diana Greene

Medical records are a type of administrative record with rich potential for research of behavioral health and health policy. Developments in electronic health records (EHR) can increase access to data contained in medical records but also present some unusual challenges for research. This presentation summarizes recent literature describing the use of EHR in research and identifies issues for consideration in the preparation of research design and protocols for data collection and preparation. The discussion is presented in a framework for evaluation of data quality and fitness for use.


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