scholarly journals A call to action: Antiracist patient engagement in adolescent and young adult oncology research and advocacy

2021 ◽  
Author(s):  
Christabel K Cheung ◽  
Reginald Tucker-Seeley ◽  
Simon Davies ◽  
Megan Gilman ◽  
Kimberly A Miller ◽  
...  

Amidst the concurrent global crises of coronavirus disease 2019 (COVID-19), uprisings against Anti-Black racism and police brutality, as well as anti-Asian racism and violence, the field of medicine found itself simultaneously called upon to respond as essential workers in the public health devastation of COVID-19, and as representatives of healthcare institutions wrought with the impacts of systemic racism. Clinicians, researchers, and advocates in adolescent and young adult (AYA) oncology, must come together in authentic activism to begin the work of creating structural change to advance antiracist approaches to patient engagement in AYA oncology research and advocacy. Critical review of existing practices is needed to ensure that ethical and effective research methods are employed when engaging with racial and ethnic minority AYA patients with cancer, who may be particularly vulnerable and exploited in the current context.

2011 ◽  
Vol 1 (4) ◽  
pp. 160-163 ◽  
Author(s):  
Kate E. Waimey ◽  
Angela D. Krausfeldt ◽  
Robert L. Taylor ◽  
Harlan D. Wallach ◽  
Teresa K. Woodruff, on behalf of the Oncofert

2010 ◽  
Vol 28 (32) ◽  
pp. 4858-4861 ◽  
Author(s):  
Brandon Hayes-Lattin ◽  
Beth Mathews-Bradshaw ◽  
Stuart Siegel

We outline here the essential elements of training for health care professionals who work with adolescent and young adult (AYA) patients with cancer. Research is emerging that a number of cancers manifest themselves differently in the AYA population, both in terms of biology and treatment response. In addition, there are a number of issues uniquely experienced by the AYA population that are critical for health care professionals working within AYA oncology (AYAO) to understand. The LIVESTRONG Young Adult Alliance, a Lance Armstrong Foundation program and a result of the Adolescent and Young Adult Oncology Progress Review Group cosponsored by the Lance Armstrong Foundation and the National Cancer Institute, assembled a group of experts representing relevant medical, psychosocial, and advocacy disciplines to create a blueprint for the training and development of health care professionals caring for AYA patients with cancer. The Alliance recommends that all health care professionals working in AYAO receive training that provides expertise in the following three critical areas: AYA-specific medical knowledge; care delivery specific to AYAs relative to pediatric and older adult populations; and competency in application and delivery of AYA-specific practical knowledge. These three areas should form the foundation for curricula and programs designed to train health care professionals caring for AYAO patients.


2019 ◽  
Vol 66 (5) ◽  
pp. e27608 ◽  
Author(s):  
Bryan A. Sisk ◽  
Kristin Canavera ◽  
Akshay Sharma ◽  
Justin N. Baker ◽  
Liza‐Marie Johnson

2019 ◽  
Vol 69 (6) ◽  
pp. 485-496 ◽  
Author(s):  
Allison G. Close ◽  
Alexandra Dreyzin ◽  
Kimberly D. Miller ◽  
Brittani K.N. Seynnaeve ◽  
Louis B. Rapkin

2020 ◽  
Vol 48 (1) ◽  
pp. 189-189
Author(s):  
Jenny Kingsley ◽  
Mallory Taylor ◽  
Krysta Barton ◽  
R Watson ◽  
Abby Rosenberg

2017 ◽  
Vol 1 (22) ◽  
pp. 1945-1958 ◽  
Author(s):  
Justine M. Kahn ◽  
Nmazuo W. Ozuah ◽  
Kieron Dunleavy ◽  
Tara O. Henderson ◽  
Kara Kelly ◽  
...  

Abstract Lymphomas are responsible for approximately 20% to 25% of annual cancer diagnoses in the adolescent and young adult (AYA) population. In 2006, the National Cancer Institute and the Lance Armstrong Foundation developed a joint Adolescent and Young Adult Oncology Progress Review Group (AYAO-PRG) to formally address the unique cancer burden of patients age 15 to 39 years. As part of their recommendations, the AYAO-PRG identified 5 imperatives for improving outcomes of AYAs with cancer. Broadly, the recommended areas of focus included research, awareness and education, investigational infrastructure, care delivery, and advocacy. In response to the challenges highlighted by the AYAO-PRG, the Lymphoma Research Foundation held the first AYA Lymphoma Research Foundation Symposium on 2 October 2015. At this symposium, clinicians and basic scientists from both pediatric and adult disciplines gave presentations describing the state of the science and proposed a collaborative research agenda built on the imperatives proposed by the AYAO-PRG. The following review presents an in-depth discussion of lymphoma management across pediatric and adult oncologic disciplines, focusing on Hodgkin lymphoma, mature B-cell lymphomas, and anaplastic large cell lymphoma.


Cancer ◽  
2015 ◽  
Vol 121 (15) ◽  
pp. 2529-2536 ◽  
Author(s):  
Devin Murphy ◽  
James L. Klosky ◽  
Damon R. Reed ◽  
Amanda M. Termuhlen ◽  
Susan V. Shannon ◽  
...  

Cancer ◽  
2015 ◽  
Vol 121 (19) ◽  
pp. 3499-3506 ◽  
Author(s):  
Margarett Shnorhavorian ◽  
Linda C. Harlan ◽  
Ashley Wilder Smith ◽  
Theresa H.M. Keegan ◽  
Charles F. Lynch ◽  
...  

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