scholarly journals Palliative care for cancer patients who experience self-perceived burden: suggestions from an qualitative study for bereaved family members

2012 ◽  
Vol 7 (1) ◽  
pp. 142-148
Author(s):  
Kazue Komura ◽  
Tatsuya Morita ◽  
Terukazu Akazawa ◽  
Makiko Sanjo ◽  
Satoru Tsuneto ◽  
...  
Keyword(s):  
Palliative Care ◽  
Qualitative Study ◽  
Cancer Patients ◽  
Family Members ◽  
Perceived Burden ◽  
Bereaved Family

Quality of death, rumination, and posttraumatic growth among bereaved family members of cancer patients in home palliative care

2017 ◽  
Vol 26 (12) ◽  
pp. 2168-2174 ◽  
Author(s):  
Kayo Hirooka ◽  
Hiroki Fukahori ◽  
Kanako Taku ◽  
Taisuke Togari ◽  
Asao Ogawa
Keyword(s):  
Palliative Care ◽  
Posttraumatic Growth ◽  
Cancer Patients ◽  
Family Members ◽  
Quality Of Death ◽  
Bereaved Family

Why are bereaved family members dissatisfied with specialised inpatient palliative care service? A nationwide qualitative study

2005 ◽  
Vol 19 (4) ◽  
pp. 319-327 ◽  
Author(s):  
Mariko Shiozaki ◽  
Tatsuya Morita ◽  
Kei Hirai ◽  
Yukihiro Sakaguchi ◽  
Satoru Tsuneto ◽  
...  
Keyword(s):  
Palliative Care ◽  
Qualitative Study ◽  
Care Service ◽  
Family Members ◽  
Palliative Care Service ◽  
Bereaved Family

Measuring the regret of bereaved family members regarding the decision to admit cancer patients to palliative care units

2008 ◽  
Vol 17 (9) ◽  
pp. 926-931 ◽  
Author(s):  
M. Shiozaki ◽  
K. Hirai ◽  
R. Dohke ◽  
T. Morita ◽  
M. Miyashita ◽  
...  
Keyword(s):  
Palliative Care ◽  
Cancer Patients ◽  
Family Members ◽  
Palliative Care Units ◽  
Bereaved Family

scholarly journals Self-Perceived Burden in Terminally Ill Cancer Patients: A Categorization of Care Strategies Based on Bereaved Family Members' Perspectives

2010 ◽  
Vol 40 (2) ◽  
pp. 224-234 ◽  
Author(s):  
Terukazu Akazawa ◽  
Tatsuo Akechi ◽  
Tatsuya Morita ◽  
Mitsunori Miyashita ◽  
Kazuki Sato ◽  
...  
Keyword(s):  
Cancer Patients ◽  
Family Members ◽  
Terminally Ill ◽  
Terminally Ill Cancer Patients ◽  
Perceived Burden ◽  
Bereaved Family

Late Referrals to Specialized Palliative Care Service in Japan

2005 ◽  
Vol 23 (12) ◽  
pp. 2637-2644 ◽  
Author(s):  
Tatsuya Morita ◽  
Tatsuo Akechi ◽  
Masayuki Ikenaga ◽  
Yoshiyuki Kizawa ◽  
Hiroyuki Kohara ◽  
...  
Keyword(s):  
Palliative Care ◽  
End Of Life Care ◽  
Response Rate ◽  
Care Service ◽  
Family Members ◽  
Palliative Care Service ◽  
Effective Response ◽  
Specialized Palliative Care ◽  
Palliative Care Units ◽  
Bereaved Family

Purpose To clarify the bereaved family's perceptions about the appropriateness of timing when physicians first referred patients to palliative care units, and to identify the factors contributing to family-perceived late referrals. Subjects and Methods A multicenter questionnaire survey was conducted on 630 bereaved family members of cancer patents who were admitted to palliative care units in Japan. A total of 318 responses were analyzed (effective response rate, 62%). Results Half of the bereaved family members regarded the timing of referrals to palliative care units as late or very late, while less than 5% of families reported early referrals (very late [19%, n = 59], late [30%, n = 96], appropriate [48%, n = 151], early [1.6%, n = 5], and very early [2.2%, n = 7]). Multiple regression analyses revealed that the independent determinants of family-perceived late referrals were: family belief before admission that palliative care shortens the patient's life, insufficient in-advance discussion about preferred end-of-life care between patients/families and physicians, families' insufficient preparation for changes of patient conditions, and hospital admission before referrals. Conclusion In Japan, the timing of referrals to palliative care units was late or very late from the families' perspectives. The independent determinants of family-perceived late referrals were: family misconception about palliative care, inadequate communication with physicians, and families' insufficient preparation for deterioration of patients' conditions. Systematic strategies to overcome these barriers would contribute to providing appropriate palliative care at all stages of cancer.

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