Measuring the regret of bereaved family members regarding the decision to admit cancer patients to palliative care units

2008 ◽  
Vol 17 (9) ◽  
pp. 926-931 ◽  
Author(s):  
M. Shiozaki ◽  
K. Hirai ◽  
R. Dohke ◽  
T. Morita ◽  
M. Miyashita ◽  
...  
Keyword(s):  
Palliative Care ◽  
Cancer Patients ◽  
Family Members ◽  
Palliative Care Units ◽  
Bereaved Family

Late Referrals to Specialized Palliative Care Service in Japan

2005 ◽  
Vol 23 (12) ◽  
pp. 2637-2644 ◽  
Author(s):  
Tatsuya Morita ◽  
Tatsuo Akechi ◽  
Masayuki Ikenaga ◽  
Yoshiyuki Kizawa ◽  
Hiroyuki Kohara ◽  
...  
Keyword(s):  
Palliative Care ◽  
End Of Life Care ◽  
Response Rate ◽  
Care Service ◽  
Family Members ◽  
Palliative Care Service ◽  
Effective Response ◽  
Specialized Palliative Care ◽  
Palliative Care Units ◽  
Bereaved Family

Purpose To clarify the bereaved family's perceptions about the appropriateness of timing when physicians first referred patients to palliative care units, and to identify the factors contributing to family-perceived late referrals. Subjects and Methods A multicenter questionnaire survey was conducted on 630 bereaved family members of cancer patents who were admitted to palliative care units in Japan. A total of 318 responses were analyzed (effective response rate, 62%). Results Half of the bereaved family members regarded the timing of referrals to palliative care units as late or very late, while less than 5% of families reported early referrals (very late [19%, n = 59], late [30%, n = 96], appropriate [48%, n = 151], early [1.6%, n = 5], and very early [2.2%, n = 7]). Multiple regression analyses revealed that the independent determinants of family-perceived late referrals were: family belief before admission that palliative care shortens the patient's life, insufficient in-advance discussion about preferred end-of-life care between patients/families and physicians, families' insufficient preparation for changes of patient conditions, and hospital admission before referrals. Conclusion In Japan, the timing of referrals to palliative care units was late or very late from the families' perspectives. The independent determinants of family-perceived late referrals were: family misconception about palliative care, inadequate communication with physicians, and families' insufficient preparation for deterioration of patients' conditions. Systematic strategies to overcome these barriers would contribute to providing appropriate palliative care at all stages of cancer.

scholarly journals Palliative care for cancer patients who experience self-perceived burden: suggestions from an qualitative study for bereaved family members

2012 ◽  
Vol 7 (1) ◽  
pp. 142-148
Author(s):  
Kazue Komura ◽  
Tatsuya Morita ◽  
Terukazu Akazawa ◽  
Makiko Sanjo ◽  
Satoru Tsuneto ◽  
...  
Keyword(s):  
Palliative Care ◽  
Qualitative Study ◽  
Cancer Patients ◽  
Family Members ◽  
Perceived Burden ◽  
Bereaved Family

Quality of death, rumination, and posttraumatic growth among bereaved family members of cancer patients in home palliative care

2017 ◽  
Vol 26 (12) ◽  
pp. 2168-2174 ◽  
Author(s):  
Kayo Hirooka ◽  
Hiroki Fukahori ◽  
Kanako Taku ◽  
Taisuke Togari ◽  
Asao Ogawa
Keyword(s):  
Palliative Care ◽  
Posttraumatic Growth ◽  
Cancer Patients ◽  
Family Members ◽  
Quality Of Death ◽  
Bereaved Family

Japanese Bereaved Family Members’ Perspectives of Palliative Care Units and Palliative Care

2015 ◽  
Vol 33 (5) ◽  
pp. 425-430 ◽  
Author(s):  
Satomi Kinoshita ◽  
Mitsunori Miyashita ◽  
Tatsuya Morita ◽  
Kazuki Sato ◽  
Ayaka Shoji ◽  
...  
Keyword(s):  
Palliative Care ◽  
Family Members ◽  
Palliative Care Units ◽  
Bereaved Family

scholarly journals Medical Staff’s Support for Family Members Who Verbally Communicate Feelings to Patients in Palliative Care Units: A Survey of Bereaved Family Members

2018 ◽  
Vol 13 (3) ◽  
pp. 263-271
Author(s):  
Kazuhiro Nakazato ◽  
Mariko Shiozaki ◽  
Kei Hirai ◽  
Tatsuya Morita ◽  
Ryuhei Tatara ◽  
...  
Keyword(s):  
Palliative Care ◽  
Family Members ◽  
Palliative Care Units ◽  
Bereaved Family

Are Bereaved Family Members Satisfied With Information Provision About Palliative Care Units in Japan?

2017 ◽  
Vol 35 (2) ◽  
pp. 275-283 ◽  
Author(s):  
Makiko Sanjo ◽  
Tatsuya Morita ◽  
Mitsunori Miyashita ◽  
Kazuki Sato ◽  
Kiyoko Kamibeppu ◽  
...  
Keyword(s):  
Palliative Care ◽  
Medical Staff ◽  
Family Members ◽  
Information Provision ◽  
Japanese Patients ◽  
Medical Treatments ◽  
Amount Of Information ◽  
Patients With Cancer ◽  
Palliative Care Units ◽  
Bereaved Family

This study clarified the evaluation of the information about palliative care units (PCUs) from the oncologists by the bereaved family members of Japanese patients with cancer at the time of their first referral. A multicenter questionnaire survey examining the amount, timing, and adequacy of information received about PCUs was conducted. Half of the respondents (N = 465, mean age = 60 years) were spouses. Findings showed that 55% of the respondents thought the amount of information was inadequate and 33% thought the timing of the information about PCU from the oncologist was inadequate. Greater perceived inadequacy of the amount of information was significantly associated with (1) obtaining information from other patients and/or family member who had no experience with PCUs and (2) not acquiring information about the availability of medical staff and medical treatments at PCUs. Greater perceived inadequacy of the timing of the information was significantly associated with acts by the oncologist and/or nurses, such as providing insufficient information or saying there is nothing more that can be done any longer; however, this was not significantly associated with the actual timing of the oncologists’ information. Medical staff should understand what information families desire and provide enough detail for patients to imagine accurately what time spent in a PCU would be like. Moreover, practitioners should strive to improve methods of communication and engagement after the information provision, rather than prioritizing the timing of the information.

Practices and evaluations of prognostic disclosure for Japanese cancer patients and their families from the family's point of view

2012 ◽  
Vol 11 (5) ◽  
pp. 383-388 ◽  
Author(s):  
Saran Yoshida ◽  
Mariko Shiozaki ◽  
Makiko Sanjo ◽  
Tatsuya Morita ◽  
Kei Hirai ◽  
...  
Keyword(s):  
Decision Making ◽  
Palliative Care ◽  
Family Members ◽  
Point Of View ◽  
Predominant Role ◽  
Face To Face ◽  
Patients With Cancer ◽  
Overall Evaluation ◽  
Palliative Care Units ◽  
Bereaved Family

AbstractObjective:The primary end points of this analysis were to explore 1) the practices of prognostic disclosure for patients with cancer and their family members in Japan, 2) the person who decided on the degree of prognosis communication, and 3) family evaluations of the type of prognostic disclosure.Method:Semistructured face-to-face interviews were conducted with 60 bereaved family members of patients with cancer who were admitted to palliative care units in Japan.Results:Twenty-five percent of patients and 75% of family members were informed of the predicted survival time of the patient. Thirty-eight percent of family members answered that they themselves decided on to what degree to communicate the prognosis to patients and 83% of them chose not to disclose to patients their prognosis or incurability. In the overall evaluation of prognosis communication, 30% of the participants said that they regretted or felt doubtful about the degree of prognostic disclosure to patients, whereas 37% said that they were satisfied with the degree of prognostic disclosure and 5% said that they had made a compromise. Both in the “prognostic disclosure” group and the “no disclosure” group, there were family members who said that they regretted or felt doubtful (27% and 31%, respectively) and family members who said that they were satisfied with the degree of disclosure (27% and 44%, respectively).Significance of results:In conclusion, family members assume the predominant role as the decision-making source regarding prognosis disclosure to patients, and they often even prevent prognostic disclosure to patients. From the perspective of family members, any one type of disclosure is not necessarily the most acceptable choice. Future surveys should explore the reasons why family members agree or disagree with prognostic disclosures to patients and factors correlated with family evaluations.

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