scholarly journals Special issue: Quality of life and family quality of life: Recent developments in research and application

2016 ◽  
Vol 41 (4) ◽  
pp. 277-278 ◽  
Author(s):  
Roy I. Brown ◽  
Alice Schippers
Keyword(s):  
Quality Of Life ◽  
Family Quality Of Life ◽  
Special Issue ◽  
Recent Developments

scholarly journals THE BACKGROUND AND DEVELOPMENT OF QUALITY OF LIFE AND FAMILY QUALITY OF LIFE: APPLYING RESEARCH, POLICY, AND PRACTICE TO INDIVIDUAL AND FAMILY LIVING

2018 ◽  
Vol 9 (4) ◽  
pp. 1-11
Author(s):  
Roy I. Brown ◽  
Alice Schippers
Keyword(s):  
Quality Of Life ◽  
Research Policy ◽  
The Other ◽  
Family Quality Of Life ◽  
Intellectual And Developmental Disabilities ◽  
Research Practice ◽  
Special Issue ◽  
Policy And Practice ◽  
Wide Range

This article introduces the concepts of quality of life and family quality of life and shows how they have developed in the field of intellectual and developmental disabilities in terms of concepts and principles. The article underscores the relevance of many of the principles and practices to a wide range of disabilities and challenges in the broad field of human development. Finally, the article provides an introduction to the other articles in this special issue, and considers their relationship to the broader areas of research, practice, and policy.

Family Environment, Sibling Relationship and Rivalry towards Quality of Life

2016 ◽  
Vol 1 (3) ◽  
Author(s):  
Rugayah Hashim ◽  
Hashim Ahmad
Keyword(s):  
Quality Of Life ◽  
Family Environment ◽  
Quantitative Research ◽  
Publishing House ◽  
Sibling Rivalry ◽  
Sibling Relationship ◽  
Family Quality Of Life ◽  
Research Approach ◽  
Economic Developments

Kinship, family composition and household dynamics among siblings are developed positively or negatively in early life right through adulthood. Hence, the purpose of this paper is highlight the importance of family environment in influencing sibling relationship, with emphasis on sibling rivalry. Determining the factors that contribute towards sibling competition is important in counselling and assisting individuals with family issues. From a quantitative research approach, the findings showed that sibling relationships are problematic and has led to jealousies and prejudices especially if parents take sides. Family ties depend on happy sibling interactions which indirectly affects socio-economic developments as social ills are resolved. In ameliorating these private and sensitive issues among family members, the holistic society will benefit psychologically and happiness as well as a better quality of life will be attained.© 2016. The Authors. Published for AMER ABRA by e-International Publishing House, Ltd., UK. Peer–review under responsibility of AMER (Association of Malaysian Environment-Behaviour Researchers), ABRA (Association of Behavioural Researchers on Asians) and cE-Bs (Centre for Environment-Behaviour Studies, Faculty of Architecture, Planning & Surveying, Universiti Teknologi MARA, Malaysia.Keywords: Sibling rivalry; family; quality of life; socio-economic impact

scholarly journals Family reported outcomes, an unmet need in the management of a patient's disease: appraisal of the literature

2021 ◽  
Vol 19 (1) ◽  
Author(s):  
R. Shah ◽  
F. M. Ali ◽  
A. Y. Finlay ◽  
M. S. Salek
Keyword(s):  
Quality Of Life ◽  
Family Members ◽  
Unmet Need ◽  
Reliability And Validity ◽  
Chronic Health Condition ◽  
Family Quality Of Life ◽  
Good Reliability ◽  
Huge Impact ◽  
The Impact

Abstract Background A person’s chronic health condition or disability can have a huge impact on the quality of life (QoL) of the whole family, but this important impact is often ignored. This literature review aims to understand the impact of patients' disease on family members across all medical specialities, and appraise existing generic and disease-specific family quality of life (QoL) measures. Methods The databases Medline, EMBASE, CINHAL, ASSIA, PsycINFO and Scopus were searched for original articles in English measuring the impact of health conditions on patients' family members/partner using a valid instrument. Results Of 114 articles screened, 86 met the inclusion criteria. They explored the impact of a relative's disease on 14,661 family members, mostly 'parents' or 'mothers', using 50 different instruments across 18 specialities including neurology, oncology and dermatology, in 33 countries including the USA, China and Australia. These studies revealed a huge impact of patients' illness on family members. An appraisal of family QoL instruments identified 48 instruments, 42 disease/speciality specific and six generic measures. Five of the six generics are aimed at carers of children, people with disability or restricted to chronic disease. The only generic instrument that measures the impact of any condition on family members across all specialities is the Family Reported Outcome Measure (FROM-16). Although most instruments demonstrated good reliability and validity, only 11 reported responsiveness and only one reported the minimal clinically important difference. Conclusions Family members' QoL is greatly impacted by a relative's condition. To support family members, there is a need for a generic tool that offers flexibility and brevity for use in clinical settings across all areas of medicine. FROM-16 could be the tool of choice, provided its robustness is demonstrated with further validation of its psychometric properties.

scholarly journals Editorial for the Special Issue on “Experiencing the City: The Relation between Urban Design and People’s Well-Being”

2021 ◽  
Vol 18 (5) ◽  
pp. 2485
Author(s):  
Minou Weijs-Perrée ◽  
Gamze Dane ◽  
Pauline van den Berg
Keyword(s):  
Quality Of Life ◽  
Urban Design ◽  
Well Being ◽  
Special Issue ◽  
The City

Urbanization brings major challenges with regard to livability and the health and quality of life of citizens [...]

Family quality of life in Nigeria

2011 ◽  
Vol 56 (1) ◽  
pp. 61-70 ◽  
Author(s):  
P. M. Ajuwon ◽  
I. Brown
Keyword(s):  
Quality Of Life ◽  
Family Quality Of Life

Dysphagia: implications for older people

2013 ◽  
Vol 24 (1) ◽  
pp. 41-57 ◽  
Author(s):  
N Miller ◽  
J Patterson
Keyword(s):  
Quality Of Life ◽  
Health Economic ◽  
Older People ◽  
Legal Issues ◽  
Validity And Reliability ◽  
Future Developments ◽  
Ongoing Work ◽  
Recent Developments ◽  
Management Of Dysphagia

SummaryDysphagia represents a salient concern in many conditions prevalent in older people. There are direct implications for morbidity and mortality. The importance of recognizing and managing dysphagia in hospital and the community also extends to psychosocial impact and quality of life, as well as health, economic and ethical-legal issues. This review outlines reasons for the importance of recognizing and treating dysphagia. It then proceeds to look at recent developments in our understanding of the nature, assessment and management of dysphagia in older people. Whilst there are well-established practices in assessment and management, ongoing work continues to challenge the validity and reliability of many methods. These concerns are covered and directions for future developments highlighted.

Rethinking FQoL: The Dynamic Interplay Between Individual and Family Quality of Life

2017 ◽  
Vol 14 (1) ◽  
pp. 31-38 ◽  
Author(s):  
Femke Boelsma ◽  
Irene Caubo-Damen ◽  
Alice Schippers ◽  
Menco Dane ◽  
Tineke A. Abma
Keyword(s):  
Quality Of Life ◽  
Family Quality Of Life ◽  
Dynamic Interplay

Translation and initial validation of the occupational balance questionnaire to Arabic—Occupational Balance Questionnaire-A

2021 ◽  
pp. 030802262110394
Author(s):  
Brightlin N Dhas ◽  
Petra Wagman ◽  
Firas A Marji ◽  
Carita Håkansson ◽  
Ricardo Carrasco
Keyword(s):  
Quality Of Life ◽  
Internal Consistency ◽  
Content Validity ◽  
Convergent Validity ◽  
Occupational Therapists ◽  
Health Indicators ◽  
Family Quality Of Life ◽  
Cognitive Debriefing ◽  
Arabic Speaking

Introduction Occupational balance (OB) is related to many health indicators, including quality of life. The Occupational Balance Questionnaire (OBQ11) was developed to measure OB, and to date, no Arabic translations of the questionnaire exist. The aim of the study was to describe the translation process of OBQ11 to Arabic and to evaluate its content validity, internal consistency, construct validity, and convergent validity. Methods OBQ11 was translated to Arabic (OBQ11-A) following standard guidelines. Content validity feedback was obtained from ten Arabic-speaking occupational therapists and in a cognitive debriefing with seven volunteers. In addition, OBQ11-A and the Family Quality of Life Survey-2006 were administered to 67 Arabic-speaking participants from a larger study about OB among parents. Results High level of agreement was found on the content of OBQ11-A from the occupational therapists. Cognitive debriefing interviews indicated that OBQ11-A was easy to understand. Cronbach’s alpha for the total OBQ11-A score was 0.864 indicating good internal consistency. Exploratory factor analysis showed acceptable factor loadings for all items. The total scores showed positive statistically significant associations with Family Quality of Life Scores ( r = 0.561, p < 0.001). Conclusions OBQ11-A may prove useful for assessing OB in Arabic-speaking populations. Further research is needed to establish its reliability.

“I Would Like to Have a Normal Brother but I’m Happy With the Brother That I Have”: A Pilot Study About Intellectual Disabilities and Family Quality of Life From the Perspective of Siblings

2021 ◽  
pp. 0192513X2110428
Author(s):  
Raquel A. Correia ◽  
Maria João Seabra-Santos
Keyword(s):  
Quality Of Life ◽  
Pilot Study ◽  
Intellectual Disabilities ◽  
Family Relationships ◽  
Leisure Activities ◽  
Well Being ◽  
Family Quality Of Life ◽  
Adult Sibling ◽  
The Disabled

The relationships between siblings are the most long-lasting in families. When one of the siblings is a person with intellectual disabilities (ID), this relationship assumes an even more important role since this brother/sister will most likely become the disabled individual’s main caregiver. This pilot study had two aims: to explore the experience as an adolescent or adult sibling of a person with ID and to understand the perceptions of these siblings about quality of life as a sibling and about family quality of life. In-depth interviews were conducted with six siblings. The results showed that the experience of a sibling is positive and the acceptance process is of extreme importance. The domains which, from the sibling perspective, contribute to family quality of life are as follows: Family relationships, Acceptance, Health, Influence of values, Financial well-being, Support from others, and Leisure activities. The implications of these findings for intervention are pointed out.

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