The Colour of Our Skin

2021 ◽  
Author(s):  
Heidi McKenzie
Keyword(s):  
Chronic Illness ◽  
Lived Experiences ◽  
Work In Progress

“The Colour of our Skin” is an aggregate collection of excerpts from a work in progress memoir that the author is writing about her Indo-Trinidadian Canadian immigrant father and their interconnected experiences of race, abuse and chronic illness. The vignettes in this essay are linked through their connection to the author's father's lived experiences of racism and his own expression of Afro-Asian racism.

scholarly journals Challenging Standard Concepts of ‘Humane’ Care through Relational Auto-Ethnography

2016 ◽  
Vol 4 (4) ◽  
pp. 168-175
Author(s):  
Alistair Niemeijer ◽  
Merel Visse
Keyword(s):  
Chronic Illness ◽  
Lived Experiences ◽  
Public Discourse ◽  
Illness Narratives ◽  
Good Care ◽  
Disability Narratives ◽  
Standard Ideal ◽  
Auto Ethnography ◽  
Care Practices ◽  
Relational Form

What is deemed ‘good’ or ‘humane’ care often seems to be underpinned by a standard ideal of an able-bodied, autonomous human being, which not only underlies those ‘social and professional structures within which narratives and decisions regarding various impairments are held’ (Ho, 2008), but also co-shapes these structures. This paper aims to explore how a relational form of auto-ethnography can promote good care. Rather than being based on and focused toward this standard ideal, it challenges ‘humanity’ by showing how illness narratives, public discourse, and policy are framed by ethical questions. It illustrates how normative ideas dictate policy and public discourse. It critically questions this constitutive power by shifting attention to the lived experiences of people with chronic illness and disability. By highlighting and reflecting together on the first author’s life with a chronic illness and his son’s disability, and thereby framing the narrative, it will be argued that, in order to improve care practices, personal illness and disability narratives and the way they interlock with public narrative and auto-ethnographic methodologies should be investigated.

scholarly journals Association Between Chronic Illness, Masculinity, and Well-Being in Older Black Men

2020 ◽  
Vol 4 (Supplement_1) ◽  
pp. 310-310
Author(s):  
Hana Young ◽  
Jessalyn Li ◽  
Darlingtina Esiaka
Keyword(s):  
Chronic Illness ◽  
Black Men ◽  
Lived Experiences ◽  
Behavioral Responses ◽  
Well Being ◽  
Physical And Mental Health ◽  
History Narratives ◽  
Aging Adults ◽  
Mental Well Being

Abstract Research suggests that living with a chronic illness has deleterious impacts on the well-being and quality of life of aging adults. Specifically, it opposes traditional masculine constructs in men and impacts their physical and mental health outcomes. In this study, we examined the lived experiences of Black men, aged 55 years and over, and diagnosed with chronic illness using life history narratives. Participants responded to open-ended questions such as “what aspects of living with illness do you find relatively difficult or easy?” and “what situations make you particularly aware of your illness?” Common themes that emerged from the participants’ responses were the performance of masculinity, fulfilling family duty and obligation, limited sexual encounters, and feelings of exclusion in one’s community. Additionally, participants stated that chronic illness impacts their mental well-being and triggers behavioral responses that exacerbate their ability to cope with the illness. Their responses highlight the conflict between traditional masculine expectations and the presence of chronic illness and illustrate the extent to which ‘manhood’ is a determinant of health even in older men. Our findings can inform the development of tools and interventions designed to improve the experience of well-being among Black men aging with chronic illness.

scholarly journals Creating a patient and community advisory committee at the Canadian Agency for Drugs and Technologies in Health

2021 ◽  
Vol 37 ◽  
Author(s):  
Sarah Berglas ◽  
Nadine Vautour ◽  
Daryl Bell
Keyword(s):  
Mental Illness ◽  
Chronic Illness ◽  
Health System ◽  
Advisory Committee ◽  
Lived Experiences ◽  
Publicly Funded ◽  
The Creation

Abstract In recognition of patients’ roles using, and contributing to, a publicly funded health system, the Canadian Agency for Drugs and Technologies in Health (CADTH) created a Patient and Community Advisory Committee. Twelve members bring lived experiences of chronic illness, progressive illness, mental illness, trauma, traveling long distances for treatment, and caregiving to an ill child, parent, or spouse. Members contribute their own insights and ideas but do not represent specific organizations or viewpoints. This paper explores how CADTH determined the committee's role, whether to have individuals or organizations as members, and how to recruit for diversity. The creation of this committee is changing how CADTH engages with patients.

“The pain is real”: A [modified] photovoice exploration of disability, chronic pain, and chronic illness (in)visibility

2021 ◽  
pp. 147332502110109
Author(s):  
Shanna K Kattari ◽  
Ramona Beltrán
Keyword(s):  
Chronic Pain ◽  
Chronic Illness ◽  
Social Workers ◽  
Lived Experiences ◽  
Marginalized Groups ◽  
Transportation Capacity ◽  
Professional Photographer ◽  
Photovoice Methodology

This study uses an innovative modification to Photovoice methodology to explore the lived experiences of people who have non-apparent disabilities, chronic pain and/or chronic illness. Responding to limitations to mobility, movement, transportation, capacity, and access, the project provided a series of studio sessions with a professional photographer, in which participants directed the content and quality of photographs documenting their experiences with disability, chronic pain and/or chronic illness. Four themes emerged from the images and writing: unfettered anger, challenging expectations, duality of reality, and resistance/resilience. Social workers can use these findings and arts-based methodology to help build community among marginalized groups.

Meridional Circulation, Turbulence, and Diffusion Processes in Stars

1976 ◽  
Vol 32 ◽  
pp. 109-116 ◽  
Author(s):  
S. Vauclair
Keyword(s):  
Convection Zone ◽  
Diffusion Processes ◽  
Meridional Circulation ◽  
Diffusion Time ◽  
Work In Progress ◽  
First Results ◽  
Stellar Envelopes ◽  
And Diffusion ◽  
Turbulence And Diffusion ◽  
Hr Diagram

This paper gives the first results of a work in progress, in collaboration with G. Michaud and G. Vauclair. It is a first attempt to compute the effects of meridional circulation and turbulence on diffusion processes in stellar envelopes. Computations have been made for a 2 Mʘstar, which lies in the Am - δ Scuti region of the HR diagram.Let us recall that in Am stars diffusion cannot occur between the two outer convection zones, contrary to what was assumed by Watson (1970, 1971) and Smith (1971), since they are linked by overshooting (Latour, 1972; Toomre et al., 1975). But diffusion may occur at the bottom of the second convection zone. According to Vauclair et al. (1974), the second convection zone, due to He II ionization, disappears after a time equal to the helium diffusion time, and then diffusion may happen at the bottom of the first convection zone, so that the arguments by Watson and Smith are preserved.

iPLEDGE Remains A Work in Progress

2007 ◽  
Vol 38 (3) ◽  
pp. 1-92
Author(s):  
CHRISTINE KILGORE
Keyword(s):  
Work In Progress
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