scholarly journals Interoperability Architecture of the ADLIFE Patient Empowerment Platform

2021 ◽  
Author(s):  
Gokce Banu Laleci Erturkmen ◽  
Mustafa Yuksel ◽  
Mert Baskaya ◽  
Bunyamin Sarigul ◽  
Alper Teoman ◽  
...  
Keyword(s):  
Chronic Disease ◽  
Disease Management ◽  
Chronic Disease Management ◽  
Long Term Care ◽  
Patient Empowerment ◽  
Disease Patient ◽  
Management Tools ◽  
Term Care ◽  
Hl7 Fhir

Chronic diseases introduce challenges for the patients to manage the changing requirements of the disease. Patient empowerment activities are a critical component to assist patients in their long-term care journey. In order to be effective, patient empowerment tools need to be well-integrated with the chronic disease management tools used at the clinical sites. This paper explores and analyzes the exploitation of HL7 FHIR to design and implement an interoperable patient empowerment platform that can be seamlessly integrated with external chronic disease management and Electronic Health Record (EHR) systems

Chronic disease management and dementia: a qualitative study of knowledge and needs of staff

2019 ◽  
Vol 25 (4) ◽  
pp. 359 ◽  
Author(s):  
Chelsea Baird ◽  
Marta H. Woolford ◽  
Carmel Young ◽  
Margaret Winbolt ◽  
Joseph Ibrahim
Keyword(s):  
Cognitive Impairment ◽  
Chronic Disease ◽  
Disease Management ◽  
Qualitative Study ◽  
Cognitive Abilities ◽  
Chronic Disease Management ◽  
Self Management ◽  
Semistructured Interviews ◽  
Management Approaches

Effective self-management is the cornerstone of chronic disease self-management. However, self-management of chronic disease in patients with comorbid dementia is particularly challenging. It is vital that clinicians, patients and carers work collaboratively to tailor self-management programs to each patient with dementia. This study aimed to identify barriers and facilitators of successful self-management in the context of cognitive impairment in order to optimise the capacity for self-management for persons with dementia (PWD). A qualitative study based on semistructured interviews was conducted in Victoria, Australia. Interviews were conducted with 12 people (employed in the ambulatory and dementia care sectors), representing six health services. Participants identified a healthcare system that is complex, not dementia friendly and not accommodating the needs of PWD who have comorbidities. Individual and systemic barriers contributed to ineffective self-management. Chronic disease support programs do not routinely undertake cognitive assessment or have guidelines for modified management approaches for those with cognitive impairment. Support needs to be long-term and requires a specialised skillset that recognises not only chronic disease management, but also the effect of cognition on self-management. Although formal guidelines are needed, care also needs to be tailored to individual cognitive abilities and deficits.

Role of empowerment and sense of community on online social health support group

2019 ◽  
Vol 32 (6) ◽  
pp. 1564-1590 ◽  
Author(s):  
Shwadhin Sharma ◽  
Anita Khadka
Keyword(s):  
Chronic Disease ◽  
Disease Management ◽  
Sense Of Community ◽  
Chronic Disease Management ◽  
Survey Design ◽  
Patient Empowerment ◽  
Social Health ◽  
Design Strategies ◽  
Content Type ◽  
Health Support

Purpose Drawing on the taxonomy of patient empowerment and a sense of community (SoC), the purpose of this paper is to analyze the factors that impact the intention of the individual to continue using online social health support community for their chronic disease management. Design/methodology/approach A survey design was used to collect the data from multiple online social health support groups related to chronic disease management. The survey yielded a total of 246 usable responses. Findings The primary findings from this study indicate that the informational support – not the nurturant support such as emotional, network, and esteem support – are the major types of support people are seeking from an online social health support community. This research also found that patient empowerment and SoC would positively impact their intention to continue using the online health community. Research limitations/implications This study utilized a survey design method may limit precision and realism. Also, there is the self-selection bias as the respondents self-selected themselves to take the survey. Practical implications The findings can help the community managers or webmasters to design strategies for the promotion and diffusion of online social health group among patient of chronic disease. Those strategies should focus on patient’s empowerment through action facilitating and social support and through creating a SoC. Originality/value An innovative research model integrates patient empowerment and a SoC to study patient’s chronic disease management through online social health groups to fill the existing research gap.

scholarly journals HIV as a chronic disease: Implications for long-term care at an AIDS-dedicated skilled nursing facility

2000 ◽  
Vol 77 (2) ◽  
pp. 187-203 ◽  
Author(s):  
Peter A. Selwyn ◽  
Joseph L. Goulet ◽  
Susan Molde ◽  
Janet Constantino ◽  
Kristopher P. Fennie ◽  
...  
Keyword(s):  
Chronic Disease ◽  
Long Term Care ◽  
Skilled Nursing Facility ◽  
Nursing Facility ◽  
Term Care ◽  
Skilled Nursing

scholarly journals Should endometriosis be managed within a chronic disease framework? An analysis of national policy documents

2018 ◽  
Vol 42 (6) ◽  
pp. 627 ◽  
Author(s):  
Rebecca O'Hara ◽  
Heather Rowe ◽  
Louise Roufeil ◽  
Jane Fisher
Keyword(s):  
Clinical Practice ◽  
Chronic Disease ◽  
Disease Management ◽  
Clinical Practice Guidelines ◽  
Practice Guidelines ◽  
Chronic Disease Management ◽  
Coordinated Care ◽  
Policy Documents ◽  
Consensus Statements

Objective The aim of this study was to determine whether endometriosis meets the definition for chronic disease in Australian policy documents. Methods A qualitative case study approach was used to thematically analyse the definitions contained in Australian chronic disease policy documents and technical reports. The key themes were then compared with descriptions of endometriosis in peer-reviewed literature, clinical practice guidelines and expert consensus statements. Results The search yielded 18 chronic disease documents that provided a definition or characteristics of chronic disease. The thematic analysis identified key elements of chronic diseases pertaining to onset, causation, duration, treatment, disease course and impact (individual and societal). A comparison with endometriosis descriptions indicated that endometriosis meets five of the six chronic disease key elements. Conclusion In Australia, long-term and complex conditions are managed within a chronic disease framework and include mechanisms such as chronic disease management plans (CDMPs) to assist with coordination and management of these conditions. Because endometriosis has most of the characteristics of chronic disease, it could potentially be reframed as a chronic disease in endometriosis clinical practice guidelines and consensus statements. Further, the use of CDMPs may provide a mechanism to promote individualised care and multidisciplinary management of this chronic, enigmatic and debilitating disease. What is known about the topic? In Australia, long-term complex diseases can be managed within a chronic disease framework that include mechanisms for coordinated care such as CDMPs and team care arrangements. Endometriosis is described as an inflammatory, progressive, relapsing and, for some women, debilitating condition, but is rarely described as a chronic disease in the clinical practice guidelines and consensus statements available in Australia. What does this paper add? Endometriosis shares most of the characteristics of a chronic disease so may benefit from chronic disease management systems such as CDMPs. What are the implications for practitioners? CDMPs may be a useful mechanism to coordinate and improve the effectiveness of care for women with endometriosis who experience sustained symptoms of endometriosis.

Drug-associated nutritional problems in older persons

2003 ◽  
Vol 13 (3) ◽  
pp. 183-193 ◽  
Author(s):  
Long Chau ◽  
Ranjit N Ratnaike
Keyword(s):  
Chronic Disease ◽  
Older People ◽  
Growth And Development ◽  
Older Persons ◽  
Long Term Care ◽  
Acute Hospital ◽  
Term Care ◽  
Micronutrient Intake ◽  
Institutionalized Older People

Nutrient inadequacies, especially in older persons, impact adversely on health, increasing the risk of acute and chronic disease and prolonging recovery from illness. Malnutrition is a condition due to an inadequate calorie and micronutrient intake that fails to meet the basic requirements for body maintenance, growth and development. Malnutrition often occurs in older people in acute hospital settings, among residents in nursing homes and in long-term care. Malnutrition in institutionalized older people is as high as 40–50%.

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