Role of empowerment and sense of community on online social health support group

2019 ◽  
Vol 32 (6) ◽  
pp. 1564-1590 ◽  
Author(s):  
Shwadhin Sharma ◽  
Anita Khadka
Keyword(s):  
Chronic Disease ◽  
Disease Management ◽  
Sense Of Community ◽  
Chronic Disease Management ◽  
Survey Design ◽  
Patient Empowerment ◽  
Social Health ◽  
Design Strategies ◽  
Content Type ◽  
Health Support

Purpose Drawing on the taxonomy of patient empowerment and a sense of community (SoC), the purpose of this paper is to analyze the factors that impact the intention of the individual to continue using online social health support community for their chronic disease management. Design/methodology/approach A survey design was used to collect the data from multiple online social health support groups related to chronic disease management. The survey yielded a total of 246 usable responses. Findings The primary findings from this study indicate that the informational support – not the nurturant support such as emotional, network, and esteem support – are the major types of support people are seeking from an online social health support community. This research also found that patient empowerment and SoC would positively impact their intention to continue using the online health community. Research limitations/implications This study utilized a survey design method may limit precision and realism. Also, there is the self-selection bias as the respondents self-selected themselves to take the survey. Practical implications The findings can help the community managers or webmasters to design strategies for the promotion and diffusion of online social health group among patient of chronic disease. Those strategies should focus on patient’s empowerment through action facilitating and social support and through creating a SoC. Originality/value An innovative research model integrates patient empowerment and a SoC to study patient’s chronic disease management through online social health groups to fill the existing research gap.

Need for patient-developed concepts of empowerment to rectify epistemic injustice and advance person-centred care

2020 ◽  
pp. medethics-2020-106558
Author(s):  
Brenda Bogaert
Keyword(s):  
Decision Making ◽  
Chronic Disease ◽  
Disease Management ◽  
Patient Participation ◽  
Chronic Disease Management ◽  
Patient Empowerment ◽  
Implementation Strategies ◽  
Active Role ◽  
Epistemic Injustice ◽  
The Ideal

The dominant discourse in chronic disease management centres on the ideal of person-centred healthcare, with an empowered patient taking an active role in decision-making with their healthcare provider. Despite these encouraging developments toward healthcare democracy, many person-centred conceptions of healthcare and programming continue to focus on the healthcare institution’s perspective and priorities. In these debates, the patient’s voice has largely been absent. This article takes the example of patient empowerment to show how the concept has been influenced by a variety of competing and shifting influences that have led to conceptualisations and programming designed for the patient, but developed without the patient. The framework of epistemic injustice is proposed to unravel the complexity of these omissions. The concept can be defined as a wrong done to someone specifically in their capacity as a knower. It occurs when a person is ignored or not believed due to a prejudice of some kind. It has been applied to healthcare in order to better understand barriers for patient participation and will be used to better understand the problems with current empowerment definitions and implementation strategies. The article will end by proposing some methodologies to facilitate patient-developed concepts of empowerment.

scholarly journals Interoperability Architecture of the ADLIFE Patient Empowerment Platform

2021 ◽  
Author(s):  
Gokce Banu Laleci Erturkmen ◽  
Mustafa Yuksel ◽  
Mert Baskaya ◽  
Bunyamin Sarigul ◽  
Alper Teoman ◽  
...  
Keyword(s):  
Chronic Disease ◽  
Disease Management ◽  
Chronic Disease Management ◽  
Long Term Care ◽  
Patient Empowerment ◽  
Disease Patient ◽  
Management Tools ◽  
Term Care ◽  
Hl7 Fhir

Chronic diseases introduce challenges for the patients to manage the changing requirements of the disease. Patient empowerment activities are a critical component to assist patients in their long-term care journey. In order to be effective, patient empowerment tools need to be well-integrated with the chronic disease management tools used at the clinical sites. This paper explores and analyzes the exploitation of HL7 FHIR to design and implement an interoperable patient empowerment platform that can be seamlessly integrated with external chronic disease management and Electronic Health Record (EHR) systems

Toward digital transformation in healthcare: a framework for remote monitoring adoption

2021 ◽  
Vol ahead-of-print (ahead-of-print) ◽  
Author(s):  
Daniele Binci ◽  
Gabriele Palozzi ◽  
Francesco Scafarto
Keyword(s):  
Chronic Disease ◽  
Disease Management ◽  
Remote Monitoring ◽  
Medical Staff ◽  
Chronic Disease Management ◽  
Digital Transformation ◽  
Healthcare Sector ◽  
Adoption Process ◽  
Content Type ◽  
The Impact

PurposeDigital transformation (DT) is a priority for the healthcare sector. In many countries, it is still considered in the early stages with an underestimation of its benefits and potentiality. Especially in Italy, little is known about the impact of digitalization – particularly of the Internet of Things (IoT) – on the healthcare sector, for example, in terms of clinician's jobs and patient's experience. Drawing from such premises, the paper aims to focus on an overlooked healthcare area related to the chronic heart diseases field and its relationship with DT. The authors aim at exploring and framing the main variables of remote Monitoring (RM) adoption as a specific archetype of healthcare digitalization, both on patients and medical staff level, by shedding some lights on its overall implementation.Design/methodology/approachThe authors empirically inquiry the RM adoption within the context of the Cardiology Department of the Casilino General Hospital of Rome. To answer our research question, the authors reconstruct the salient information by using induction-type reasoning, direct observation and interviewees with 12 key informants, as well as secondary sources analysis related to the hospital (internal documentation, presentations and technical reports).FindingsAccording to a socio-technical framework, the authors build a model composed of five main variables related to medical staff and patients. The authors classify such variables into an input-process-output (I-P-O) model. RM adoption driver represents the input; cultural digital divide, structure flexibility and reaction to change serve the process and finally, RM outcome stands for the output. All these factors, interacting together, contribute to understanding the RM adoption process for chronic disease management.Research limitations/implicationsThe authors' research presents two main limitations. The first one is related to using a qualitative method, which is less reliable in terms of replication and the interpretive role of researchers. The second limitation, connected to the first one, is related to the study's scale level, which focuses on a mono-centric consistent level of analysis.Practical implicationsThe paper offers a clear understanding of the RM attributes and a comprehensive view for improving the overall quality management of chronic diseases by suggesting that clinicians carefully evaluate both hard and soft variables when undertaking RM adoption decisions.Social implicationsRM technologies could impact on society both in ordinary situations, by preventing patient mobility issues and transport costs, and in extraordinary times (such as a pandemic), where telemedicine contributes to supporting hospitals in swapping in-person visits with remote controls, in order to minimize the risk of coronavirus disease (COVID-19) contagion or the spread of the virus.Originality/valueThe study enriches the knowledge and understanding of RM adoption within the healthcare sector. From a theoretical perspective, the authors contribute to the healthcare DT adoption debate by focusing on the main variables contributing to the DT process by considering both medical staff and patient's role. From a managerial perspective, the authors highlight the main issues for RM of chronic disease management to enable the transition toward its adoption. Such issues range from the need for awareness of the medical staff about RM advantages to the need for adapting the organizational structure and the training and education process of the patients.

scholarly journals Home telemonitoring for chronic disease management: Perceptions of users and factors influencing adoption

2021 ◽  
Vol 27 (1) ◽  
pp. 146045822199789
Author(s):  
Jane Li ◽  
Marlien Varnfield ◽  
Rajiv Jayasena ◽  
Branko Celler
Keyword(s):  
Chronic Disease ◽  
Disease Management ◽  
Chronic Disease Management ◽  
Clinical Pathways ◽  
Clinical Care ◽  
Patient Empowerment ◽  
Daily Routine ◽  
Multiple Time ◽  
Care Coordinator ◽  
Home Telemonitoring

Home telemonitoring has been used as a solution to support the care of individuals living with chronic disease. While effectiveness of telemonitoring have been widely studied, more research is needed to understand the perceptions among patients and clinicians in incorporating telemonitoring into their daily routine and practices. This paper presents an investigation of patients’ and clinicians’ experiences in a care augmenting telemonitoring service, their perceived impact delivered through the service, and clinicians’ perceptions on how the service was introduced in their organizations. This work was embedded in a large multi-site trial of home telemonitoring using a mixed method approach for evaluation. Interviews with clinicians involved in the study were conducted at multiple time points during the trial. Questionnaires were administered to clinicians and patients at the end of the trial. Results showed that both patients and clinicians recognized the benefits of patient empowerment through telemonitoring, and patient-clinician interactions. Results identified the needs of a dedicated telemonitoring clinical care coordinator role, guidelines that translate telemonitoring services into clinical pathways and engagement of different healthcare providers, especially general practitioners, to support the integration of telemonitoring into chronic disease management programs and long-term organizational strategic plans.

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