Convergent validity, ceiling, and floor effects of the English-ISYQOL against established quality of life questionnaires (SRS-22r and SAQ) and curve angles in adolescents with idiopathic scoliosis

2021 ◽  
Author(s):  
MH Alanazi ◽  
EC Parent ◽  
J Bettany-Saltikov ◽  
D Hill ◽  
S Southon
Keyword(s):  
Quality Of Life ◽  
Idiopathic Scoliosis ◽  
Cobb Angle ◽  
English Translation ◽  
Convergent Validity ◽  
Score Function ◽  
Scoliosis Research Society ◽  
Quality Of Life Questionnaires ◽  
Floor Effects

Scoliosis significantly impacts Quality of Life (QOL). Current quality of life questionnaires for adolescents with idiopathic scoliosis (AIS) have limitations. A new questionnaire for measuring QOL in AIS called the Italian Spine Youth Quality of Life (ISYQOL) has been developed to address these limitations but the English translation has not yet been validated. To determine the ceiling and floor effects, and the convergent validity of the ISYQOL questionnaire against established QOL questionnaires and Cobb angle in AIS. One hundred consecutive females with AIS, (10–18 years old), treated non-operatively. The English translation of the ISYQOL was compared to the following established questionnaires: Scoliosis Research Society-22r and the Spinal Appearance Questionnaire. The participants were 100 females (13.89+/-1.8 years) with 28.75+/-13.9° curve angles. The convergent validity of the ISYQOL score (60.3+/-12.44) was supported by significant correlation with the SRS-22r total score, function, pain, self-image, and mental health scores (r = 0.70, 0.54, 0.57, 0.52 and 0.50, respectively), and with the SAQ general, waist, and expectations domains (r = -0.6. -.52, and -0.56, respectively). Correlation with the Cobb angle was (r = -.37)(see Table 1). No ceiling effect was observed in the ISYQOL. Ceiling effects were observed for the SRS-22r and the SAQ. The ISYQOL demonstrated evidence of convergent validity. This study supports its suitability for QOL research in AIS. ISYQOL appears more likely to detect changes in evaluative studies than the SRS- 22r and the SAQ.

scholarly journals The Measurement of Health-Related Quality of Life of Girls with Mild to Moderate Idiopathic Scoliosis—Comparison of ISYQOL versus SRS-22 Questionnaire

2021 ◽  
Vol 10 (21) ◽  
pp. 4806
Author(s):  
Edyta Kinel ◽  
Krzysztof Korbel ◽  
Mateusz Kozinoga ◽  
Dariusz Czaprowski ◽  
Łukasz Stępniak ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Idiopathic Scoliosis ◽  
Cobb Angle ◽  
Research Society ◽  
Life Questionnaire ◽  
Curve Pattern ◽  
Scoliosis Research Society ◽  
Related Quality ◽  
Double Curve

This study aimed to compare the Italian Spine Youth Quality of Life Questionnaire (ISYQOL-PL) versus the Scoliosis Research Society-22 (SRS-22) questionnaire scores evaluating the validity of the concurrent and known-groups. Eighty-one girls (mean age 13.5 ± 1.8 years) with idiopathic scoliosis (IS) with a mean Cobb angle of 31.0 (±10.0) degrees were examined, all treated with a corrective TLSO brace for an average duration of 2.6 (±1.9) years. The patients’ scores were compared as follows: (1) age: ≤13 years vs. >13 years); (2) scoliosis severity: mild (Cobb angle 10–30°) vs. moderate (Cobb angle >30°); (3) single curve pattern vs. double curve pattern. Lin’s concordance correlation coefficient was used to evaluate the strength of the association between ISYQOL-PL and SRS-22 scores. T-tests were applied to assess if the ISYQOL-PL measure and SRS-22 total score were significantly different in the different groups of patients. The concurrent validity analysis showed a moderate correlation (Lin pccc = 0.47). The ISYQOL-PL showed a significantly better quality of life in mild than moderate scoliosis. The severity of scoliosis but not the age or the curve pattern demonstrated a direct statistically significant effect on patients’ quality of life only when evaluated using the ISYQOL-PL.

Comparative study of the use of Paediatric Quality Of Life Inventory 4.0 generic core scales in paediatric patients with spine and limb pathologies

2020 ◽  
Vol 102-B (7) ◽  
pp. 890-898
Author(s):  
Prudence W. H. Cheung ◽  
Carlos K. H. Wong ◽  
Jason P. Y. Cheung
Keyword(s):  
Quality Of Life ◽  
Idiopathic Scoliosis ◽  
Psychosocial Health ◽  
Scoliosis Research Society ◽  
Quality Of Life Inventory ◽  
Paediatric Patients ◽  
Pedsql 4.0 ◽  
Paediatric Orthopaedic ◽  
Life Inventory

Aims The health-related quality of life (HRQoL) of paediatric patients with orthopaedic conditions and spinal deformity is important, but existing generic tools have their shortcomings. We aim to evaluate the use of Paediatric Quality of Life Inventory (PedsQL) 4.0 generic core scales in the paediatric population with specific comparisons between those with spinal and limb pathologies, and to explore the feasibility of using PedsQL for studying scoliosis patients’ HRQoL. Methods Paediatric patients attending a speciality outpatient clinic were recruited through consecutive sampling. Two groups of patients were included: idiopathic scoliosis, and paediatric orthopaedic upper and lower limb condition without scoliosis. Patients were asked to complete PedsQL 4.0 generic core scales, Youth version of 5-level EuroQol-5-dimension questionnaire, and Refined Scoliosis Research Society 22-item (SRS-22r) questionnaire. Statistical analyses included scores comparison between scoliosis and limb pathology patients using independent-samples t-test, and correlation tests of PedsQL and SRS-22r. Results A total of 566 paediatric patients were recruited: 357 (63.0%) having idiopathic scoliosis, and 209 (37.0%) with limb conditions. Patients with limb pathology had lower functioning scale, summary, and total scores of PedsQL than scoliosis patients (p < 0.05 to p < 0.001). No floor or ceiling effects (< 15%) were detected for PedsQL Psychosocial Health Summary and total scores in both groups. PedsQL was sensitive in differentiating patients with/without problems in their daily lives (p < 0.05 to p < 0.01). PedsQL summary and total scores correlated with SRS-22r total score. Conclusion PedsQL is an effective HRQoL measure for both paediatric orthopaedic groups with minimal ceiling and floor effects, and is capable of detecting worse HRQoL in patients with limb pathology. The multidimensional PedsQL is sensitive in differentiating among those with daily life problems, especially for scoliosis patients. Cite this article: Bone Joint J 2020;102-B(7):890–898.

scholarly journals Validity, reliability and understanding of the EORTC-C30 and EORTC-BR23, quality of life questionnaires specific for breast cancer

2013 ◽  
Vol 16 (2) ◽  
pp. 352-363 ◽  
Author(s):  
Fernanda Alessandra Silva Michels ◽  
Maria do Rosario Dias de Oliveira Latorre ◽  
Maria do Socorro Maciel
Keyword(s):  
Breast Cancer ◽  
Quality Of Life ◽  
Construct Validity ◽  
Convergent Validity ◽  
Factorial Analysis ◽  
Life Questionnaire ◽  
Symptom Scale ◽  
Validity Analysis ◽  
Quality Of Life Questionnaires

Objective: To validate and assess reliability and understanding of the EORTC–C30 quality of life questionnaire and its breast cancer specific module, the EORTC-BR23. Methods: This study was conducted at the AC Camargo Cancer Hospital, São Paulo, Brazil. A total of 100 women diagnosed with breast cancer were interviewed. Internal consistency, confirmatory factorial analysis, convergent validity, construct validity and degree of understanding were examined. Reliability was assessed by comparison of means at times 1 and 2, inter-class coefficient and Bland-Altman graphics. Results: Cronbach’s alpha ranged from 0.72 to 0.86 for the EORTC-C30 and from 0.78 to 0.83 for the EORTC-BR23 questionnaire. Most questions were confirmed in the confirmatory factorial analysis. In the construct validity analysis, the questionnaires were capable of differentiating patients with or without lymphedema, apart from the symptom scales of both questionnaires. Both questionnaires presented a significant correlation in most domains of the SF-36, in the convergent validity analysis. Only a few criticisms were reported concerning questions, and the mean grade of understanding was high (C30 = 4.91 and BR23 = 4.89). The questionnaires presented good rates of reliability, with the exception of the functional scale of the C30 and the symptom scale of the BR23. Conclusions: The EORTC-C30 and EORTC-BR23 quality of life questionnaires were validated, presented good rates of reliability and are easily understood, allowing them to be used in Brazil to assess quality of life among women with breast cancer.

scholarly journals Patterns of coronal and sagittal deformities in adolescent idiopathic scoliosis

2021 ◽  
Author(s):  
Trixie Mak ◽  
Prudence Wing Hang Cheung ◽  
Teng Zhang ◽  
Jason Pui Yin Cheung
Keyword(s):  
Quality Of Life ◽  
Adolescent Idiopathic Scoliosis ◽  
Idiopathic Scoliosis ◽  
Cobb Angle ◽  
Sagittal Profile ◽  
Sacral Slope ◽  
Pelvic Parameters ◽  
Curve Magnitude ◽  
Sagittal Parameters

Abstract Background: Thoracic scoliosis has been shown to be associated with hypokyphosis in adolescent idiopathic scoliosis (AIS). However, the relationship of sagittal spino-pelvic parameters with different coronal curve patterns and their influence on patient-perceived quality of life is unknown. This study aims to determine the association between coronal and sagittal malalignment in patients with AIS and to determine their effects on SRS-22r scores. Methods: A cross-sectional study was conducted on 1054 consecutive patients with AIS. The coronal Cobb angle, thoracic kyphosis (TK), lumbar lordosis (LL), pelvic incidence (PI), PI-LL mismatch (PI-LL), pelvic tilt (PT), and sacral slope (SS) were measured on standing radiographs. The coronal Cobb angle (mild: 10-20°; moderate: >20-40°; severe: >40°) and PI (low: <35°; average: 35-50°; high: >50°) were divided into 3 sub-groups for comparison. Relationship between coronal curve magnitudes and sagittal parameters was studied as was their association with SRS-22r scores. Results: Low PI had smaller SS (30.1±8.3° vs 44.8±7.7°; p<0.001), PT (-0.3±8.1° vs 14.4±7.5°; p<0.001), and LL (42.0±13.2° vs 55.1±10.6°; p<0.001), negative PI-LL mismatch (-12.1±13.1° vs 4.1±10.5°; p<0.001) as compared to large PI. There were no significant relationships with PI and TK (p=0.905) or curve magnitude (p=0.431). No differences in sagittal parameters were observed for mild, moderate or severe coronal Cobb angles. SRS-22r scores only correlated with coronal Cobb angle and larger Cobb angles were negatively correlated with the function, appearance and pain domains. Conclusions: The sagittal profile for AIS is associated with the pelvic parameters especially PI but not with the coronal curve pattern. All patients have a similar TK regardless of coronal curve type. However, it appears that the coronal deformity is a greater influence on quality of life outcomes especially those >40°.

Body Awareness and its Relation to Quality of Life in Individuals with Idiopathic Scoliosis

2020 ◽  
Vol 127 (5) ◽  
pp. 841-857
Author(s):  
Gozde Yagci ◽  
Merve Karatel ◽  
Yavuz Yakut
Keyword(s):  
Quality Of Life ◽  
Mental Health ◽  
Body Image ◽  
Idiopathic Scoliosis ◽  
Body Awareness ◽  
Research Society ◽  
The Body ◽  
Lumbar Region ◽  
Scoliosis Research Society

An individual’s body awareness depends on the integration of bodily signals from both inside and outside the body. The etiology of idiopathic scoliosis includes a variety of somatosensorial and biomechanical alterations that may affect an individual’s body awareness. In this study, we investigated body awareness and its relation to quality of life among individuals with idiopathic scoliosis. We studied 96 participants with scoliosis and 71 healthy control participants. We evaluated both participant groups’ body awareness using the Awareness-Body-Chart, and we assessed the quality of life of those with scoliosis using the Scoliosis Research Society-22 (SRS-22) questionnaire. The overall body awareness score and the body awareness values for the face, cervical/lumbar region, back, shoulder, upper arm, lower arm/elbow, hand, genital area, thigh/hip, lower leg, and foot were all found to be significantly lower among the participants with scoliosis than among healthy participants. Among participants with scoliosis, the body awareness value for the back region was positively correlated with pain, body image, mental health, and overall quality of life scores on the SRS-22, whereas the pain score on the Awareness-Body-Chart was negatively correlated with the function/activity, pain, mental health, and overall scores for the SRS-22. This study showed that participants with idiopathic scoliosis have poorer body awareness than control participants without scoliosis, and body awareness among participants with scoliosis was correlated with their self-reports of pain, body image, function, and mental health. These findings highlight the particular importance of body awareness to quality of life for individuals with scoliosis.

Self-evaluation of Trunk Aesthetics in Conservatively Treated Children and Adolescents with Idiopathic Scoliosis

2018 ◽  
Vol 20 (5) ◽  
pp. 371-382
Author(s):  
Maciej Lendzion ◽  
Ewa Łukaszewicz ◽  
Jakub Waś ◽  
Dariusz Czaprowski
Keyword(s):  
Quality Of Life ◽  
Idiopathic Scoliosis ◽  
Cobb Angle ◽  
Trunk Rotation ◽  
Self Evaluation ◽  
Trunk Deformity ◽  
Polish Version ◽  
Scoliosis Treatment ◽  
The Impact

Background. Trunk deformity is an important manifestation of idiopathic scoliosis (IS). Patients’ perception of spinal deformity and its impact on their quality of life (QoL) are important aspects of scoliosis treatment. The aim of this study was to determine the correlation between radiographic parameters (Cobb angle), clinical parameters (angle of trunk rotation, ATR), and the type of conservative treatment used vs the perception of trunk aesthetics as well as QoL in IS patients. Material and methods. The study enrolled 90 subjects (68 females, 22 males) diagnosed with IS (age: 9-18 years, 14.3± 2.1; Cobb angle 10-66°, 22.2°±12.2; ATR 2-20°, 7.6°±3.9). The study group was divided into (1) patients treated with bracing and physiotherapy (n=35) and (2) subjects undergoing physiotherapy alone (n=55). The perception of trunk deformity was analysed with the TAPS visual scale. QoL was measured with the Polish version of the SRS-22 questionnaire. Results. The study showed that the patients’ perception of their trunk aesthetics significantly worsened with increasing Cobb angle (TAPS, rS= -0.327, p<0.01) and ATR (TAPS, rS= -0.228, p<0.05) values. Moreover, higher ATR values sig­ni­ficantly decreased the patients’ QoL (SRS-22, rS= -0.232, p<0.05). Bracing significantly worsened the patients’ perception of aesthetics and QoL (TAPS, 3.2±0.8 vs 3.8±0.6, p<0.05; SRS-22, 3.9±0.4 vs 4.0±0.4, p<0.05 for patients treated with bracing and physiotherapy alone, respectively). Conclusions. 1. The magnitude of scoliosis, angle of trunk rotation, and bracing leads to worsen perception of trunk aesthetics and quality of life. 2. The curvature angle, angle of trunk rotation, brac­ing, female sex, and age are all associated with a worse perception of trunk aesthetics and quality of life. Self-evaluation of trunk aesthetics and qua­lity of life do not depend on the type of scoliosis. 3. In planning the management of idiopathic sco­lio­sis, one should take into account the impact of spi­nal deformity on worse patient-rated body aes­thetics.

scholarly journals Patterns of coronal and sagittal deformities in adolescent idiopathic scoliosis

2021 ◽  
Vol 22 (1) ◽  
Author(s):  
Trixie Mak ◽  
Prudence Wing Hang Cheung ◽  
Teng Zhang ◽  
Jason Pui Yin Cheung
Keyword(s):  
Quality Of Life ◽  
Adolescent Idiopathic Scoliosis ◽  
Idiopathic Scoliosis ◽  
Cobb Angle ◽  
Sagittal Profile ◽  
Sacral Slope ◽  
Pelvic Parameters ◽  
Curve Magnitude ◽  
Sagittal Parameters

Abstract Background Thoracic scoliosis has been shown to be associated with hypokyphosis in adolescent idiopathic scoliosis (AIS). However, the relationship of sagittal spino-pelvic parameters with different coronal curve patterns and their influence on patient-perceived quality of life is unknown. This study aims to determine the association between coronal and sagittal malalignment in patients with AIS and to determine their effects on SRS-22r scores. Methods A cross-sectional study was conducted on 1054 consecutive patients with AIS. The coronal Cobb angle, thoracic kyphosis (TK), lumbar lordosis (LL), pelvic incidence (PI), PI-LL mismatch (PI-LL), pelvic tilt (PT), and sacral slope (SS) were measured on standing radiographs. The coronal Cobb angle (mild: 10–20°; moderate: > 20–40°; severe: > 40°) and PI (low: < 35°; average: 35–50°; high: > 50°) were divided into 3 sub-groups for comparison. Relationship between coronal curve magnitudes and sagittal parameters was studied as was their association with SRS-22r scores. Results Low PI had smaller SS (30.1 ± 8.3° vs 44.8 ± 7.7°; p < 0.001), PT (− 0.3 ± 8.1° vs 14.4 ± 7.5°; p < 0.001), and LL (42.0 ± 13.2° vs 55.1 ± 10.6°; p < 0.001), negative PI-LL mismatch (− 12.1 ± 13.1° vs 4.1 ± 10.5°; p < 0.001) as compared to large PI. There were no significant relationships with PI and TK (p = 0.905) or curve magnitude (p = 0.431). No differences in sagittal parameters were observed for mild, moderate or severe coronal Cobb angles. SRS-22r scores only correlated with coronal Cobb angle and larger Cobb angles were negatively correlated with the function, appearance and pain domains. Conclusions The sagittal profile for AIS is associated with the pelvic parameters especially PI but not with the coronal curve pattern. All patients have a similar TK regardless of coronal curve type. However, it appears that the coronal deformity is a greater influence on quality of life outcomes especially those > 40°.

scholarly journals ROLE OF DIFFERENT HORMONES IN THE PATHOGENESIS AND SEVERITY OF ADOLESCENT IDIOPATHIC SCOLIOSIS

2017 ◽  
Vol 25 (1) ◽  
pp. 15-17 ◽  
Author(s):  
RICARDO TEIXEIRA E SILVA ◽  
RENAN JOSE RODRIGUES FERNANDES ◽  
ALLAN HIROSHI DE ARAÚJO ONO ◽  
RAPHAEL MARTUS MARCON ◽  
ALEXANDRE FOGAÇA CRISTANTE ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Adolescent Idiopathic Scoliosis ◽  
Idiopathic Scoliosis ◽  
Cobb Angle ◽  
Inverse Correlation ◽  
Serum Levels ◽  
Diagnostic Study ◽  
Level Of Evidence ◽  
Hydroxyvitamin D

ABSTRACT Objective: To evaluate the hormonal profile of patients with adolescent idiopathic scoliosis (AIS) and its relationship to the severity of the curvature and quality of life . Method: Patients with scoliosis (Cobb angle above 10°), of both genders, diagnosed after 10 years of age were included, excluding those who presented other condition that could lead to scoliosis. Serum levels of 25-hydroxyvitamin D (25-OHD), cortisol and gastrin were correlated with Cobb angle and quality of life, measured by the SRS-30 questionnaire . Results: The levels of 25-OHD decreased in 97% of patients. There was an inverse relationship between gastrin levels and quality of life (p = 0.016). Moreover, there was an inverse correlation between the value of Cobb angle and quality of life (p = 0.036). There were no changes in cortisol levels. There was no correlation between Cobb angle and any of the hormones measured . Conclusion: The patients had levels of 25-OHD diminished, strengthening the hypothesis of its involvement in the development of AIS. This study also suggests that increased gastrin levels may be associated with a worse quality of life in patients with AIS. Level of Evidence II, Diagnostic Study.

scholarly journals EVALUATION OF CERVICAL ALIGNMENT AND ITS RELATIONSHIP WITH THORACIC KYPHOSIS AND SPINOPELVIC PARAMETERS AFTER SCOLIOSIS CORRECTION SURGERY

2017 ◽  
Vol 16 (4) ◽  
pp. 265-269 ◽  
Author(s):  
Murilo Tavares Daher ◽  
José Humberto Pereira Jr ◽  
Vinício Nunes Nascimento ◽  
Nilo Carrijo Melo ◽  
Luiz Carlos Milazzo Netto ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Idiopathic Scoliosis ◽  
Thoracic Kyphosis ◽  
High Density ◽  
Spinopelvic Parameters ◽  
Cervical Alignment ◽  
Radiographic Parameters ◽  
Quality Of Life Questionnaires

ABSTRACT Objectives: To evaluate the cervical alignment after the correction of idiopathic scoliosis using high screw density and direct vertebral derotation (DVD) and to correlate it with thoracic kyphosis, spinopelvic parameters, and quality of life. Methods: Retrospective cohort study. We assessed the medical records and radiographs of patients submitted to idiopathic scoliosis surgery using high density of pedicular screws (80%) and DVD with at least 6 months of follow-up. All the radiographic parameters were evaluated in the preoperative period and in the last postoperative visit. Results: A total of 43 patients were evaluated, of which 35 (81%) were female. The mean age was 15 years (11 to 30 years) with a mean follow-up of one year and four months. Regarding Lenke’s classification, 14 were of group 1, five of group 2, 10 of group 3, eight of group 4, four of group 5 and two of group 6. Only four patients had sagittal modifier (+) and two sagittal modifier (-).There was no significant difference between pre and postoperative thoracic kyphosis. When we evaluated the groups with +, N and - thoracic modifiers, we observed hypokyphotic and normokyphotic patients (- and N) had an increase in kyphosis, whereas hyperkyphotic patients (+)had a decrease. There was no statistical difference in relation to the radiographic parameters of the cervical spine in the pre and postoperative periods. There was a significant improvement in most of the parameters of the quality of life questionnaires, but no correlation with the cervical radiographic parameters. Conclusion: Correction of idiopathic scoliosis using a high density of pedicular screws and a direct vertebral derotation technique failed to improve thoracic kyphosis or change the cervical sagittal alignment, despite promoting a significant improvement in the parameters of quality of life questionnaires.

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