scholarly journals Lived experience of outpatients with Parkinson's disease: an interpretative phenomenological analysis

Kontakt ◽  
2021 ◽  
Author(s):  
Martina Tomagová ◽  
Ivana Bóriková ◽  
Martina Lepiešová ◽  
Jana Nemcová ◽  
Ivan Farský ◽  
...  
Keyword(s):  
Parkinson’S Disease ◽  
Parkinson's Disease ◽  
Lived Experience ◽  
Interpretative Phenomenological Analysis ◽  
Phenomenological Analysis

scholarly journals I’m Losing the ‘Me’: Partners’ Experiences of Engagement with Parkinson's Health Professionals

2015 ◽  
Vol 16 (2) ◽  
pp. 116-130 ◽  
Author(s):  
Meredith Bolland ◽  
Andrew Guilfoyle ◽  
Romola S. Bucks
Keyword(s):  
Parkinson’S Disease ◽  
Parkinson's Disease ◽  
Health Professionals ◽  
Interpretative Phenomenological Analysis ◽  
Process Model ◽  
Phenomenological Analysis ◽  
Primary Data ◽  
Structured Interviews ◽  
Effective Care ◽  
Emerging Themes

Background: Partners of people with Parkinson's disease (PD) have first-hand knowledge relevant to the management of the person with Parkinson's (PwP). If captured, this knowledge may improve effective care for the PwP. However, there is a lack of research focusing primarily on partners’ experiences of engagement with health professionals working in PD (HPPs).Methods: Interpretative Phenomenological Analysis (IPA) was used to investigate the meaning of partners’ experiences of engagement with HPPs. Semi-structured interviews with 15 partners of PwP provided primary data. Each interview was digitally recorded, transcribed verbatim and analysed for emerging themes.Results: Three themes emerged: (i) partners’ lack of entitlement for their own needs to be met; (ii) submersion of self in the partnership and (iii) health professionals as agents of support. Additionally, sub-themes were identified, such as barriers to feeling entitled, setting up a premise for entitlement, and lost identity. Together, these themes highlight the current lack of focus on the partners of PwP. A process model was developed to describe partners’ cyclic progression through the various stages of their experience, and in the process, identifying initiatives for intervention.Conclusion: Given a lack of focus on the needs of partners of PwP, these preliminary insights could inform the delivery of improved services that support partners. This will ultimately benefit the PwP.

scholarly journals The Lived Experiences of Deep Brain Stimulation in Parkinson’s Disease: An Interpretative Phenomenological Analysis

2019 ◽  
Vol 2019 ◽  
pp. 1-7 ◽  
Author(s):  
Suzette Shahmoon ◽  
Jonathan A. Smith ◽  
Marjan Jahanshahi
Keyword(s):  
Parkinson’S Disease ◽  
Parkinson's Disease ◽  
Deep Brain Stimulation ◽  
Brain Stimulation ◽  
Interpretative Phenomenological Analysis ◽  
Family System ◽  
Social Issues ◽  
Phenomenological Analysis ◽  
Stn Dbs ◽  
Deep Brain

Deep brain stimulation of the subthalamic nucleus (STN-DBS) is an effective treatment for Parkinson’s disease (PD). In this study, we used an interpretative phenomenological analysis to explore how 10 male people with PD experienced life after STN-DBS surgery. Two themes emerged. The first, “Healed and relieved: all that glitters is not gold,” highlights the benefits and the personal “costs” of surgery. The second, “The change within: new interpretations of the present and future unfold,” explores how patients reinterpreted their lives as individuals and members of society in the present and as they face their future. Relief, gratitude, disappointment, and the need for social support are expressed as well as a new appraisal of values and the future. STN-DBS alters the life course of people with PD, and this study provides new insight into psychological and social issues that surgery raises for the patient and their family system. These psychosocial issues should be taken into account when preparing the patient and their family for surgery or supporting them postoperatively.

scholarly journals “It’s like having an evil twin”: an interpretative phenomenological analysis of the lifeworld of a person with Parkinson’s disease

2019 ◽  
Vol 24 (1-2) ◽  
pp. 49-58 ◽  
Author(s):  
Virginia Eatough ◽  
Karen Shaw
Keyword(s):  
Parkinson’S Disease ◽  
Parkinson's Disease ◽  
Interpretative Phenomenological Analysis ◽  
Individual Case ◽  
Phenomenological Analysis ◽  
Individual Experience ◽  
General Knowledge ◽  
Idiographic Approach ◽  
The Individual ◽  
Knowledge Claims

Background This paper offers an understanding of the lifeworld of a person with Parkinson’s Disease derived from interpretative phenomenological analysis (IPA). Aims The paper has two main aims: firstly, to demonstrate how a focus on individual experience chimes with and can inform current ideas of a more personalised humanised form of healthcare for people living with Parkinson’s disease; and secondly, to demonstrate how an IPA study can illuminate particularity whilst being able to make, albeit cautiously, more general knowledge claims that can inform wider caring practices. Methods It achieves these aims through the detailed description and interpretation of one person’s experience of living with Parkinson's disease using the IPA approach. Results Three analytic themes point to how the various constituents of the lifeworld, such as embodiment, selfhood, temporality and relationality are made manifest. These enable the IPA researcher to make well-judged inferences, which can have value beyond the individual case. Conclusions A key feature of IPA is its commitment to an idiographic approach that recognises the value of understanding a situated experience from the perspective of a particular person or persons.

Living with Heart Failure during the COVID-19 Pandemic: An Interpretative Phenomenological Analysis

2021 ◽  
pp. 105477382110166
Author(s):  
Alessia Martina Trenta ◽  
Davide Ausili ◽  
Rosario Caruso ◽  
Cristina Arrigoni ◽  
Massimo Moro ◽  
...  
Keyword(s):  
Heart Failure ◽  
Coping Strategies ◽  
Lived Experience ◽  
Interpretative Phenomenological Analysis ◽  
Phenomenological Analysis ◽  
Structured Interviews ◽  
Hospital Organization ◽  
Challenging Situation ◽  
And Coping ◽  
Negative Feelings

This study aimed to explore lived experience of patients with heart failure (HF) during the COVID-19 pandemic. A qualitative study was conducted using an interpretative phenomenological analysis (IPA). Data collection performed in March-May 2020, using in-depth, semi-structured interviews on a purposive sample. Data were analyzed according to the IPA methodology, and triangulation, bracketing, journaling, and member checking were used to assure rigor. 14 patients with HF were enrolled, and three main themes described their lived experience during the COVID-19 pandemic: Vulnerability, Hanging in the balance, and Coping strategies. These people felt particularly vulnerable to the novel virus and experienced uncertainty due to hospital organization changes. Because of this, they felt like they were hanging in the balance, experiencing various negative feelings. Nevertheless, they managed to deal with this challenging situation by implementing some peculiar coping strategies. The COVID-19 represents a significant challenge for patients with HF, impacting significantly on their lives.

Combining interpretative phenomenological analysis and existential hermeneutic phenomenology to reveal critical moments of managerial lived experience: a methodological guide

2021 ◽  
Vol ahead-of-print (ahead-of-print) ◽  
Author(s):  
Lenka Jedličková ◽  
Michal Müller ◽  
Dagmar Halová ◽  
Tereza Cserge
Keyword(s):  
Lived Experience ◽  
Interpersonal Relationships ◽  
Interpretative Phenomenological Analysis ◽  
Qualitative Method ◽  
Hermeneutic Phenomenology ◽  
Phenomenological Analysis ◽  
Content Type ◽  
Managerial Practice ◽  
Interpretative Framework ◽  
Critical Moments

PurposeThe purpose of this paper is to offer a complete guide to a qualitative method for capturing critical moments of managerial practice that combines interpretative phenomenological analysis (IPA) and existential hermeneutic phenomenology (EHP).Design/methodology/approachThis article is based on the findings of extensive research and describes in detail the specific steps that must be taken for complete replication of research. The research uses methods of IPA and critically develops the EHP framework with an emphasis on the analysis of interpersonal relationships.FindingsDepending on the testing of the research method in practice, the article evaluates the IPA-EHP method as suitable for the research on critical moments of managerial lived experience, considering the causes of the crisis.Originality/valueThis article is based on demand from academics who would like to use this method to analyse managerial practice. Especially now, at a time associated with a number of challenging events, such as the ongoing COVID-19 pandemic, qualitative research is gaining in importance, even in management science. The original interpretative framework based on the phenomenology of Fink and Patočka is appropriate in this respect.

scholarly journals Pain in Parkinson's disease: the lived experience

2018 ◽  
Vol 25 (6) ◽  
pp. 301-308
Author(s):  
Doireann Twomey ◽  
Samuel Stuart ◽  
Katherine Baker
Keyword(s):  
Parkinson’S Disease ◽  
Parkinson's Disease ◽  
Lived Experience
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