scholarly journals Overview of Self-Management Skills and Associated Assessment Tools for Children with Inflammatory Bowel Disease

2021 ◽  
Vol 3 (2) ◽  
pp. 61-77
Author(s):  
Angharad Vernon-Roberts ◽  
Richard B. Gearry ◽  
Andrew S. Day
Keyword(s):  
Inflammatory Bowel Disease ◽  
Bowel Disease ◽  
Self Regulation ◽  
Assessment Tools ◽  
Self Management ◽  
Management Skills ◽  
Targeted Interventions ◽  
Treatment Regimens ◽  
Disease Outcomes ◽  
Inflammatory Bowel

Self-management is a multi-modal approach for managing chronic conditions that encompasses a number of different elements; knowledge, adherence, self-regulation, communication, and cognitive factors. Self-management has been shown to be beneficial for adults with inflammatory bowel disease (IBD), and for children with IBD it may help them learn to take control of their complex treatment regimens and lead to positive disease outcomes. The development of self-management skills for children with IBD is vital in order to maximize their potential for health autonomy, but it is still an emergent field in this population. This review provides an over-arching view of the self-management elements specific to children with IBD, and highlights outcome measures that may be used to assess skills within each field as well as the efficacy of targeted interventions.

scholarly journals Health Care Transition Outcomes in Inflammatory Bowel Disease: A Multinational Delphi Study

2019 ◽  
Vol 13 (9) ◽  
pp. 1163-1172 ◽  
Author(s):  
Gertrude van den Brink ◽  
Martha A C van Gaalen ◽  
Lissy de Ridder ◽  
C Janneke van der Woude ◽  
Johanna C Escher
Keyword(s):  
Inflammatory Bowel Disease ◽  
Bowel Disease ◽  
Delphi Study ◽  
Expert Panel ◽  
Self Management ◽  
Management Skills ◽  
Adult Care ◽  
Successful Transition ◽  
Inflammatory Bowel ◽  
Stage 1

Abstract Background Transition programmes are designed to prepare adolescent inflammatory bowel disease [IBD] patients for transfer to adult care. It is still unclear which outcome parameters define ‘successful transition’. Therefore, this study aimed to identify outcomes important for success of transition in IBD. Methods A multinational Delphi study in patients, IBD nurses, and paediatric and adult gastroenterologists was conducted. In stage 1, panellists commented on an outcome list. In stage 2, the refined list was graded from 1 to 9 [least to very important], by an expert and a patient panel. In stage 3, the expert panel ranked important outcomes from 1 to 10 [least to most important]. Descriptive statistics and Mann–Whitney U-tests were performed. Results The final item list developed in stage 1 was tested by the expert [n = 74 participants, 52.7% paediatric] and patient panel [n = 61, aged 16–25 years, 49.2% male]. Respectively, ten and 11 items were found to be important by the expert and patient panel. Both panels agreed on eight of these items, of which six reflected self-management skills. In stage 3, the expert panel formed a top-ten list. The three most important items were: decision-making regarding IBD [mean score 6.7], independent communication [mean score 6.3] and patient satisfaction [mean score 5.8]. Conclusion This is the first study identifying outcomes that IBD healthcare providers and patients deem important factors for successful transition. Self-management skills were considered more important than IBD-specific items. This is a first step to further define success of transition in IBD and subsequently evaluate the efficacy of different transition models.

scholarly journals Systematic Review of Self-Management Assessment Tools for Children With Inflammatory Bowel Disease

JPGN Reports ◽  
2021 ◽  
Vol 2 (3) ◽  
pp. e075
Author(s):  
Angharad Vernon-Roberts ◽  
Emma Rouse ◽  
Richard B. Gearry ◽  
Andrew S. Day
Keyword(s):  
Systematic Review ◽  
Inflammatory Bowel Disease ◽  
Bowel Disease ◽  
Assessment Tools ◽  
Self Management ◽  
Inflammatory Bowel

scholarly journals P704 The impact of travel distance on disease outcomes in inflammatory bowel disease

2017 ◽  
Vol 11 (suppl_1) ◽  
pp. S441-S441
Author(s):  
N. Borren ◽  
W. Tan ◽  
E. Andrews ◽  
H. Khalili ◽  
J. Garber ◽  
...  
Keyword(s):  
Inflammatory Bowel Disease ◽  
Bowel Disease ◽  
Travel Distance ◽  
Disease Outcomes ◽  
Inflammatory Bowel ◽  
The Impact

scholarly journals Nutritional Assessment in Inflammatory Bowel Disease (IBD)—Development of the Groningen IBD Nutritional Questionnaires (GINQ)

Nutrients ◽  
2019 ◽  
Vol 11 (11) ◽  
pp. 2739 ◽  
Author(s):  
Vera Peters ◽  
Behrooz Z Alizadeh ◽  
Jeanne HM de Vries ◽  
Gerard Dijkstra ◽  
Marjo JE Campmans-Kuijpers
Keyword(s):  
Inflammatory Bowel Disease ◽  
Dietary Intake ◽  
Bowel Disease ◽  
Dietary Habits ◽  
Nutritional Assessment ◽  
Dietary Assessment ◽  
Dietary Guidelines ◽  
Assessment Tools ◽  
Dietary Assessment Methods ◽  
Inflammatory Bowel

Diet plays a key role in the complex etiology and treatment of inflammatory bowel disease (IBD). Most existing nutritional assessment tools neglect intake of important foods consumed or omitted specifically by IBD patients or incorporate non-Western dietary habits, making the development of appropriate dietary guidelines for (Western) IBD patients difficult. Hence, we developed a food frequency questionnaire (FFQ), the Groningen IBD Nutritional Questionnaires (GINQ-FFQ); suitable to assess dietary intake in IBD patients. To develop the GINQ-FFQ, multiple steps were taken, including: identification of IBD specific foods, a literature search, and evaluation of current dietary assessment methods. Expert views were collected and in collaboration with Wageningen University, division of Human Nutrition and Health, this semi-quantitative FFQ was developed using standard methods to obtain a valid questionnaire. Next, the GINQ-FFQ was digitized into a secure web-based environment which also embeds additional nutritional and IBD related questions. The GINQ-FFQ is an online self-administered FFQ evaluating dietary intake, taking the previous month as a reference period. It consists of 121 questions on 218 food items. This paper describes the design process of the GINQ-FFQ which assesses dietary intake especially (but not exclusively) in IBD patients. Validation of the GINQ-FFQ is needed and planned in the near future.

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