scholarly journals From Rare to Neglected Diseases: A Sustainable and Inclusive Healthcare Perspective for Reframing the Orphan Drugs Issue

2019 ◽  
Vol 11 (5) ◽  
pp. 1289 ◽  
Author(s):  
Marialuisa Saviano ◽  
Sergio Barile ◽  
Francesco Caputo ◽  
Mattia Lettieri ◽  
Stefania Zanda
Keyword(s):  
Orphan Drugs ◽  
Inclusive Development ◽  
Neglected Diseases ◽  
Sustainable Development Goal ◽  
Social Equality ◽  
Policy Makers ◽  
Development Goal ◽  
The Core ◽  
Development Perspective ◽  
Economic Considerations

This work is about how healthcare issues can be reframed from a sustainable and inclusive development perspective. Focusing on the case of orphan drugs and rare diseases, first, a country-based review of the main regulatory approaches to orphan drugs is conducted; then, the main contributions of the literature are reviewed to identify dominant views and the way the problem is more commonly framed. The main findings reveal that the dominant regulatory approaches and theoretical interpretations of the problem are mainly based on economic considerations. However, this does not seem to have led to very satisfactory results. Reflecting upon what the sustainability perspective can highlight with reference to healthcare, substantial connections between the orphan drugs issue and that of neglected diseases are highlighted. These connections suggest reframing the orphan drugs issue as a social equality and inclusiveness problem, hence the need to adopt a sustainable and inclusive development perspective. As a key sustainable development goal (SGD) to be shared by all nations, healthcare should always be approached by putting the principles of sustainable and inclusive development at the core of policy makers’ regulatory choices. Accordingly, we think that the orphan drugs issue, like that of neglected diseases, could be better faced by adopting a social equality and inclusiveness perspective.

scholarly journals OCTOBER 11, 2016: INTERNATIONAL DAY OF THE GIRL SAVE GIRL CHILD & EDUCATE HER

2016 ◽  
Vol 4 (10) ◽  
pp. 97-106
Author(s):  
Amrit Patel
Keyword(s):  
United Nations ◽  
Millennium Development Goals ◽  
Sustainable Development Goal ◽  
Girl Child ◽  
Development Goal ◽  
Specific Policy ◽  
Development Goals ◽  
Women And Girls ◽  
The United Nations ◽  
Development Perspective

Woman is the procreator and the mother of tomorrow shaping the destiny of civilization. For a woman, pregnancy is the most delighted event but in India in some cases the birth of a girl child is a gloomy and despair event and perhaps the gravest concern facing humanity. The United Nations has been observing each year on 8th March “International Women’s Day since 1975 to achieve specified mandate enshrined in its resolution. Subsequently, in order to focus undivided attention to girl child the United Nations, since 2012, has been observing 11th October each year as “International Day of Girl Child”. Acknowledging the significance of the girl child India went ahead and has been observing 24th January each year since 2008 “National Girl Child Day” & National Nutrition Week from September 1-7 since 1982 . It is against this background, this development perspective article briefly highlights the pathetic scenario of girl child worldwide & in India specifically despite the implementation of specific policy & programs in India and suggests strategy to achieve the goal “ Save the girl child & Educate the girl” as a part of United Nations Sustainable Development Goal-4 [“Achieve gender equality and empower all women and girls “by 2030] when India could not achieve UN Millennium Development Goals by 2015 in this regard.

Public Sector Information and Open Data: A Focus on Sweden

Mousaion ◽  
2021 ◽  
Vol 38 (4) ◽  
Author(s):  
Proscovia Svärd
Keyword(s):  
Sustainable Development ◽  
Good Governance ◽  
Open Data ◽  
Inclusive Development ◽  
Freedom Of Information ◽  
Government Information ◽  
Sustainable Development Goal ◽  
Development Goal ◽  
Data Usage ◽  
Data Flows

Good governance and inclusive development require governments to make their information flows accessible to all citizens. The United Nations Sustainable Development Goal 16 advocates the promotion of peaceful and inclusive societies, with the emphasis being placed on access to government information. Apart from this Sustainable Development Goal, globally, several open-data initiatives and advocates of freedom of information are pushing governments to open up their data flows. Open data are seen as a driver of public service innovation that generates new knowledge and enables the creation of new electronic services. The narrative about open data assumes that the data are within reach of the citizens to explore and to develop new electronic services based on, for example, statistical, mobility, meteorological, judicial and court data to boost national innovation. However, research shows the contrary that open data are still concentrated in the hands of a few people such as politicians, journalists, system developers and data miners. This raises questions about the openness of the data. In Sweden, most of the interactions that citizens have are with the municipalities because they offer a broad range of public services. This is why the researcher argues that to promote awareness and open data usage by ordinary citizens, the Swedish government should work with the municipalities to create platforms for the exploitation of the data and to facilitate the development of technical expertise. If open data are to be inclusive, the data will require the involvement of citizens in the current open-data developments.

scholarly journals OCTOBER 16, WORLD FOOD DAY: MAKING INDIA FREE FROM HUNGER

2016 ◽  
Vol 4 (9) ◽  
pp. 113-123
Author(s):  
Amrit Patel
Keyword(s):  
Sustainable Development ◽  
Unit Area ◽  
Crop Productivity ◽  
World Food ◽  
Sustainable Development Goal ◽  
Development Goal ◽  
Droughts And Floods ◽  
Rural Unemployment ◽  
Development Perspective ◽  
Indian Scenario

Every year some parts of India witness droughts and floods directly impacting on food output. India experienced two drought years [July2014-June15 & 2015-16] impacting on low food output followed by 2016-17, a year of severe floods. As 36th World Food Day (WFD) will be observed on 16th October, 2016 India can size and capitalize this opportunity to redouble its efforts in creating awareness among all stakeholders by mounting a massive campaign to improve crop productivity per unit area and resources and eliminate hunger, poverty and rural unemployment. India could not achieve Millennium Development Goal-1 to half the percentage of hungry people by 2015. It has now committed to achieve the United Nations Sustainable Development Goal-2 target to “end hunger, achieve food security and improved nutrition, and promote sustainable agriculture” by 2030. In this context, this development perspective article highlights the current Indian scenario and suggests specific aspects to achieve the SDG-Goal 2 and make India free from hunger by 2030.

scholarly journals Towards implementation of sustainable development goals (SDG) in developing nations: A useful funding framework

2017 ◽  
Vol 21 (1) ◽  
pp. 3-8 ◽  
Author(s):  
Temidayo Olabode Akenroye ◽  
Håvard Mokleiv Nygård ◽  
Ama Eyo
Keyword(s):  
Sustainable Development ◽  
Sustainable Development Goals ◽  
Developing Nations ◽  
Sustainable Development Goal ◽  
Policy Makers ◽  
Development Goal ◽  
Priority Areas ◽  
2030 Agenda ◽  
Development Goals

The 2030 Agenda for Sustainable Development is impressive in its breadth. However, the extensive nature of the agenda presents countries with a set of challenges. In particular, few if any countries will be able to focus on all goals in parallel, yet the agenda offers little clear guidance on how each country can determine their priority areas of focus and funding arrangements for such priority areas. Presently, few efforts have been made to analyse and examine the significance or importance of each sustainable development goal (SDG) and target for individual countries. More importantly, there is the challenge that governments would need to find the finances to fund the goals. Inevitably, politicians and policy makers in financially constrained countries are asking: what levers can we actually use to implement the SDGs efficiently and effectively? In this paper, we develop a simple framework that can help countries in leveraging existing budget resources to guide funding for the implementation of SDGs.

Assessing social sustainability in the gig economy

2021 ◽  
Author(s):  
Muralidharan Loganathan
Keyword(s):  
Economic Growth ◽  
Social Protection ◽  
Social Sustainability ◽  
Decent Work ◽  
Sustainable Development Goal ◽  
Development Goal ◽  
Country Level ◽  
Gig Economy ◽  
The World ◽  
Sustainable Economic Growth

Sustainable Development Goal 8 to “Promote sustained, inclusive and sustainable economic growth, full and productive employment and decent work for all” necessitates country level measures across the world. We take forward a comparative analysis of India’s SDG 8 indicator list with both the UN and ILO measurements. We note inadequate measurements on social-protection and rights for non-standard forms of employment including gig work, that are intermediated by ICT platforms. From our analysis we identify some levers to broaden the current indicator measurements to include these non-standard workers as well, to improve social sustainability.

Evaluation of Road Utilisation as Space For Holding Social Ceremonies in Indigenous Residential Area of Ogbomoso, Nigeria

2018 ◽  
Vol 1 (March 2018) ◽  
Author(s):  
S.A Okanlawon ◽  
O.O Odunjo ◽  
S.A Olaniyan
Keyword(s):  
Transport Infrastructure ◽  
Noisy Environment ◽  
Policy Makers ◽  
The Core ◽  
Local Roads ◽  
Strict Enforcement ◽  
The Mean ◽  
The One ◽  
The City ◽  
The Town

This study examined Residents’ evaluation of turning transport infrastructure (road) to spaces for holding social ceremonies in the indigenous residential zone of Ogbomoso, Oyo State, Nigeria. Upon stratifying the city into the three identifiable zones, the core, otherwise known as the indigenous residential zone was isolated for study. Of the twenty (20) political wards in the two local government areas of the town, fifteen (15) wards that were located in the indigenous zone constituted the study area. Respondents were selected along one out of every three (33.3%) of the Trunk — C (local) roads being the one mostly used for the purpose in the study area. The respondents were the residents, commercial motorists, commercial motorcyclists, and celebrants. Six hundred and forty-two (642) copies of questionnaire were administered and harvested on the spot. The Mean Analysis generated from the respondents’ rating of twelve perceived hazards listed in the questionnaire were then used to determine respondents’ most highly rated perceived consequences of the practice. These were noisy environment, Blockage of drainage by waste, and Endangering the life of the sick on the way to hospital; the most highly rated reasons why the practice came into being; and level of acceptability of the practice which was found to be very unacceptable in the study area. Policy makers should therefore focus their attention on strict enforcement of the law prohibiting the practice in order to ensure more cordial relationship among the citizenry, seeing citizens’ unacceptability of the practice in the study area.

scholarly journals Migrants’ Narratives on Urban Governance: A Case from Kolkata, a City of the Global South

2021 ◽  
Vol 13 (2) ◽  
pp. 1009
Author(s):  
Anuradha Chakrabarti ◽  
Reena Tiwari ◽  
Haimanti Banerji
Keyword(s):  
Oral History ◽  
Urban Governance ◽  
Governance Structure ◽  
Narrative Approach ◽  
Future Scenarios ◽  
Structured Interviews ◽  
Sustainable Development Goal ◽  
Development Goal ◽  
Ethnographic Methodology ◽  
Thematic Network Analysis

The paper aims to reveal the politics of urban governance and the associated impact on the lives of disenfranchised migrants. It critically explores the urban governance structure and the nature of practices involved in the cycle of settlement, eviction, resistance and resettlement. The case of Nonadanga, located at the urban margin of Kolkata, India, was explored for this purpose. An ethnographic methodology comprising observation, semi-structured interviews and oral history was adopted for the research. Twelve squatter dwellers and four experts working in Nonadanga and Kolkata were interviewed for this purpose. A three-step data analysis comprising a narrative approach, thematic network analysis and validation was adopted. A critical review of inclusive practices, together with ethnographic survey findings, demonstrates that migrants live in a condition the paper calls “partial rights”, which is a manifestation of the dialectics of inclusiveness practiced by the urban governance structure and derived from the interaction between urban governance structure and migrants’ agency. By analyzing past development trends, the paper outlines possible future scenarios for migrants’ living conditions and discusses their impact on achieving the targeted Sustainable Development Goal 11 for inclusive cities by 2030.

Sign in / Sign up

Export Citation Format

Share Document