A Community-Based Participatory Research Model and Web Application for Studying Health Professional Shortage Areas in the United States

2013 ◽  
Vol 8 (3) ◽  
pp. 23-37
Author(s):  
Sonya Zhang ◽  
Bradley Dorn
Keyword(s):  
United States ◽  
Health Professional ◽  
Participatory Research ◽  
Web Application ◽  
Public Awareness ◽  
Community Based Participatory Research ◽  
The United States ◽  
Limited Data ◽  
Community Based ◽  
Related Data

Health Professional Shortage Areas (HPSA) are still associated with “worse general health status and poor physical health” (Jiexin, 2007) in the United States today. Meanwhile, limitations still exist in HPSA studies for multiple reasons, including limited data resources and availability, lack of efficient way to share and collaborate, and lack of community participation and public awareness. To overcome these limitations, we proposed a Community-Based Participatory Research (CBPR) approach for HPSA studies that allows researchers to share and collaborate on HPSA related data, and allows the general public to learn about HPSA and participate in survey and discussions that help supplement researchers’ data. Through CBPR, effective and location-appropriate research, planning, and awareness can be achieved (O'Fallon & Dearry, 2002). We then described a Web application, which was designed based on our CBPR model, through the use of Google Fusion Table and Geocoding.

Institutional Review Board Basics for Pedagogy Research

2018 ◽  
Vol 4 (3) ◽  
pp. 172-177
Author(s):  
Whitney Boling ◽  
Kathryn Berlin ◽  
Rhonda N. Rahn ◽  
Jody L. Vogelzang ◽  
Gayle Walter
Keyword(s):  
United States ◽  
Participatory Research ◽  
Community Based Participatory Research ◽  
The United States ◽  
Institutional Review Board ◽  
Community Based ◽  
Institutional Review ◽  
History Of ◽  
Conducting Research ◽  
Human Participants

The institutional review board (IRB) process is often protracted and can be a source of frustration, especially when you want your research and publications to move apace. However, because of historical events, the IRB is an important requirement for conducting research with human participants and is regulated by federal oversite. When conducting research as part of a pedagogical study, it is important to identify which level of IRB review (exempt, expedited, or full board) is required. The purpose of this article is to highlight IRB basics within the United States for pedagogy research. Although there are guidelines internationally, this article specifically focuses on U.S. IRBs, including a brief history of the IRB, pedagogical and community-based participatory research, IRB review, tips for IRB submissions, and example case studies.

A Contribution to Measure Partnership Trust in Community-Based Participatory Research and Interventions With Latinx Communities in the United States

2021 ◽  
pp. 152483992110046
Author(s):  
Arelis Moore de Peralta ◽  
Victoria Prieto Rosas ◽  
Julie Smithwick ◽  
Shirley M. Timmons ◽  
Myriam E. Torres
Keyword(s):  
United States ◽  
South Carolina ◽  
Participatory Research ◽  
Community Based Participatory Research ◽  
The United States ◽  
Trust Model ◽  
Cross Cultural ◽  
Community Based ◽  
Survey Tool ◽  
Multidimensional Measure

Given the growing diversity in the United States, responsiveness to the needs of diverse communities is paramount. Latinx communities in the United States often state mistrust in outside institutions because of adverse experiences. Community-based participatory research (CBPR) is considered a trust-building process and is one approach to understand disparities. However, the conceptualization and evaluation of trust as a CBPR outcome are understudied. This article summarizes a community-engaged research process conducted for the cultural and linguistic refinement of a partnership trust survey tool to assess partnership trust as an outcome of CBPR (CBPR-PTS), by using Perinatal Awareness for Successful Outcomes (PASOs) as a case study and cross-cultural cognitive interviewing (CCCI) methodology. The participants were 21 diverse stakeholders of PASOs, a community-based health organization that serves the Latinx population in South Carolina. A modified version of the multidimensional measure of trust model informed instrument development. The team analyzed the CCCI data using compiling informal analysis to identify which survey items’ wordings must be changed or adapted based on the participants’ accounts. Sixteen of 28 questions subjected to CCCI required modifications due to translation errors, culturally specific errors, or general cognitive problems. The new survey instrument has 19 scales and 195 items categorized into nine dimensions of the modified multidimensional measure of trust model. CCCI was a useful tool to address the cross-cultural understanding issues of the CBPR-PTS. Measurement instruments should be able to capture the socioeconomic, cultural, and geographic/environmental variability of community stakeholders to help understand the diversity of the comprehension and views of the communities involved in disparities’ reduction efforts.

scholarly journals Diverse community leaders’ perspectives about quality primary healthcare and healthcare measurement: Qualitative community-based participatory research

2021 ◽  
Vol 20 (1) ◽  
Author(s):  
Kathleen A. Culhane-Pera ◽  
Shannon L. Pergament ◽  
Maiyia Y. Kasouaher ◽  
Andrew M. Pattock ◽  
Naima Dhore ◽  
...  
Keyword(s):  
Native American ◽  
Urban Communities ◽  
Participatory Research ◽  
Primary Healthcare ◽  
Healthcare Quality ◽  
Community Based Participatory Research ◽  
The United States ◽  
Community Leaders ◽  
Community Based ◽  
Quality Healthcare

Abstract Background Healthcare quality measurements in the United States illustrate disparities by racial/ethnic group, socio-economic class, and geographic location. Redressing healthcare inequities, including measurement of and reimbursement for healthcare quality, requires partnering with communities historically excluded from decision-making. Quality healthcare is measured according to insurers, professional organizations and government agencies, with little input from diverse communities. This community-based participatory research study aimed to amplify the voices of community leaders from seven diverse urban communities in Minneapolis-Saint Paul Minnesota, view quality healthcare and financial reimbursement based on quality metric scores. Methods A Community Engagement Team consisting of one community member from each of seven urban communities —Black/African American, Lesbian-Gay-Bisexual-Transgender-Queer-Two Spirit, Hmong, Latino/a/x, Native American, Somali, and White—and two community-based researchers conducted listening sessions with 20 community leaders about quality primary healthcare. Transcripts were inductively analyzed and major themes were identified. Results Listening sessions produced three major themes, with recommended actions for primary care clinics. #1: Quality Clinics Utilize Structures and Processes that Support Healthcare Equity. #2: Quality Clinics Offer Effective Relationships, Education, and Health Promotion. #3: Funding Based on Current Quality Measures Perpetuates Health Inequities. Conclusion Community leaders identified ideal characteristics of quality primary healthcare, most of which are not currently measured. They expressed concern that linking clinic payment with quality metrics without considering social and structural determinants of health perpetuates social injustice in healthcare.

scholarly journals Little hearts changing lives no processo de cocriação

2021 ◽  
Vol 12 (01) ◽  
pp. 43-51
Author(s):  
Camila Maciel Oliveira ◽  
Rebeca Simoes Brito ◽  
Mercedes Balcells ◽  
Doris Sommer ◽  
Carlos Eduardo Siqueira ◽  
...  
Keyword(s):  
Participatory Research ◽  
Preventive Medicine ◽  
Community Based Participatory Research ◽  
Well Being ◽  
The United States ◽  
Minas Gerais ◽  
Second Phase ◽  
Community Based ◽  
Heart Study ◽  
Community Environments

O programa Little Hearts Changing Lives (LHCL) é o braço extensionista do primeiro estudo genético e familiar relacionado a doenças cardiovasculares no Brasil - Baependi Heart Study. Traz em seu bojo a pesquisa participativa comunitária, garantindo que a comunidade seja o centro no processo de cocriação de subprojetos desenvolvidos por este programa. O termo cocriação do cuidado, por sua vez, está relacionado à qualidade de interação produtiva entre paciente-profissionais de saúde, e é caracterizado por manter um canal aberto de comunicação, cooperação, apoio à tomada de decisão e aumento do bem-estar social. O programa LHCL, iniciado entre 2014 e 2015, une o lúdico às atividades práticas, com ações em Medicina Preventiva, ampliando o espectro para a reflexão sobre as relações entre discentes, docentes e comunidade. Este programa é constituído por conceitos relacionados à Aprendizagem Criativa. A primeira fase do programa aconteceu nas escolas regulares de Baependi e Juiz de Fora, Minas Gerais, com a participação de 14 discentes e respectivos docentes, alcançando 9.341 espectadores. A segunda fase ocorreu em formato de oficina para professores e educadores, em Curitiba, Paraná, e colaboração com a UFPR no formato à distância. Atualmente, em nova fase (terceira fase) nos Estados Unidos, o programa foi adaptado para a comunidade imigrante brasileira. Observou-se que a ludicidade, como estímulo à aprendizagem em assuntos específicos em sala de aula ou ambientes comunitários, se mostrou significativa e relevante. Palavras-chave: Medicina preventiva; Pesquisa Participativa; Comunidade; Relações Comunidade-Instituição Little hearts changing lives in the co-creation process Abstract: The Little Hearts Changing Lives (LHCL) program is the extension arm of the first genetic and family study related to cardiovascular diseases in Brazil - Baependi Heart Study. It brings with it the community-based participatory research, ensuring that the community is the center in the process of co-creating sub projects developed by this program. The term co-creation of care, in turn, is related to the quality of productive interaction between patient-health professionals and is characterized by maintaining an open channel of communication, cooperation, support for decision-making and increased social well-being. The LHCL program, initiated between 2014 and 2015, joins play with practical activities, with actions in Preventive Medicine, expanding the spectrum for reflection on the relationships between students, teachers and the community. This program consists of concepts related to Creative Learning. The first phase of the program took place in the regular schools of Baependi and Juiz de Fora, Minas Gerais State, Brazil, with the participation of 14 students and their professor, reaching 9,341 spectators. The second phase took place in a workshop format for teachers and educators, in Curitiba, Paraná State and collaboration with UFPR in the distance format. Currently, in a new phase (third phase), the program has been adapted for the Brazilian immigrant community in the United States. It was observed that playfulness, as a stimulus to learning on specific subjects in the classroom or community environments, has proven to be significant and relevant. Keywords: Preventive Medicine; Community-Based Participatory Research; Community-Institutional Relations

Community-Based Participatory Research

2020 ◽  
Author(s):  
Michael Duke
Keyword(s):  
Social Justice ◽  
Participatory Research ◽  
Community Based Participatory Research ◽  
The United States ◽  
Research Process ◽  
Cultural Humility ◽  
Community Members ◽  
Community Based ◽  
Advisory Boards ◽  
Rapport Building

Community-based participatory research (CBPR) refers to a methodological and epistemological approach to applied community projects in which researchers and community members collaborate as equals in the research process. Also known as participatory action research (PAR), CBPR has gained considerable acceptance both as a set of methods for identifying and addressing local issues of concern and as a vehicle for applying the principles of equity, cultural humility, mutual learning, and social justice to the relationships between researchers and communities. Although somewhat distinct from applied anthropology, CBPR shares with ethnography in particular an attentiveness to rapport building and community engagement and an overall validation of local knowledge. There is little consensus regarding the threshold of community participation necessary for a given research project to be considered CBPR. However, at a minimum the approach requires that community members define the problems to be assessed, provide consultation on the cultural and social dimensions of the study population, and serve in an advisory capacity over the entire project. The history of CBPR and its antecedents reflects its twin values as a pragmatic approach to researching and addressing local problems and as an emancipatory social justice project that seeks to diminish the hierarchical relationship between researchers and community members. Specifically, the pragmatic perspective was developed in the United States by social psychologist Kurt Lewin in the 1930s (and subsequently by the anthropologists Laura Thompson and Sol Tax), while the emancipatory approach derives from the work of educational theorist Paulo Freire in Brazil in the 1970s. Community Advisory Boards (CABs) play an outsized role in the success of CBPR projects, since they typically represent the community in these studies, and thus maintain oversight over all aspects of the research process, including the study design, sampling and recruitment protocols, and the dissemination of findings. Accordingly, nurturing and maintaining trust between researchers, the CAB, and the community constitutes a foundational practice for any CBPR study.

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