Saudi experience of adherence with quality indicators of health care for childhood systemic lupus erythematosus

2021 ◽  
Vol 1 (1) ◽  
pp. 2
Author(s):  
SulaimanM Al-Mayouf ◽  
Ghada AlSalmi ◽  
Kawthar AlHusieni
Keyword(s):  
Systemic Lupus Erythematosus ◽  
Health Care ◽  
Quality Indicators ◽  
Lupus Erythematosus ◽  
Systemic Lupus

scholarly journals Health care in systemic lupus erythematosus (SLE): the patient’s perspective

2014 ◽  
Vol 33 (9) ◽  
pp. 1279-1287 ◽  
Author(s):  
E. J. M. Zirkzee ◽  
G. M. Steup-Beekman ◽  
A. A. Schouffoer ◽  
S. M. Henquet ◽  
M. A. A. Caljouw ◽  
...  
Keyword(s):  
Systemic Lupus Erythematosus ◽  
Health Care ◽  
Lupus Erythematosus ◽  
Systemic Lupus ◽  
Patient’S Perspective

scholarly journals Telerheumatology: A Narrative Review

2021 ◽  
Vol 2 (3) ◽  
pp. 139-145
Author(s):  
Wei Tang ◽  
Leila Khalili ◽  
Anca Askanase
Keyword(s):  
Rheumatoid Arthritis ◽  
Systemic Lupus Erythematosus ◽  
Health Care ◽  
Clinical Trials ◽  
Lupus Erythematosus ◽  
Delivery Of Health Care ◽  
Healthcare Professionals ◽  
Direct Consequence ◽  
Systemic Lupus ◽  
Rheumatology Practice

Abstract Telemedicine (TM), the delivery of health care using telecommunication technologies, has been in use in rheumatology practice for over two decades to maximize access and optimize care. As a direct consequence of the Coronavirus disease 2019 (COVID-19) pandemic in March 2020, rheumatology practice shifted from traditional in-person encounters to TM to ensure the safety of both healthcare professionals and patients. However, there is limited literature on the acceptance, feasibility, and effectiveness of TM in the management of rheumatic diseases. Additionally, there is limited guidance on the implementation of telerheumatology (TR) for both patient care and clinical trials. Here we reviewed the most recent publications related to the application of TR, in the management of Rheumatoid Arthritis (RA) and Systemic Lupus Erythematosus (SLE), assessed the perceptions of patients and physicians on TM in rheumatology, and identified several key barriers to TR.

scholarly journals Achieving consensus on quality indicators (QI) for pediatric Systemic Lupus Erythematosus (pSLE)

2011 ◽  
Vol 9 (S1) ◽  
Author(s):  
Joshua Pendl ◽  
Matt Hollander ◽  
Shannen Nelson ◽  
Wajeeha Yousaf ◽  
Nicola Ruperto ◽  
...  
Keyword(s):  
Systemic Lupus Erythematosus ◽  
Quality Indicators ◽  
Lupus Erythematosus ◽  
Systemic Lupus ◽  
Pediatric Systemic Lupus Erythematosus

scholarly journals Patient-reported Satisfaction with Current Clinical Management of Systemic Lupus Erythematosus in Kazakhstan

2020 ◽  
Vol 8 (E) ◽  
pp. 411-418
Author(s):  
Yeldos Khamitov ◽  
Zaituna Khismetova ◽  
Maiya Goremykina ◽  
Sandro Vento ◽  
Arkadiy Kotlyar ◽  
...  
Keyword(s):  
Systemic Lupus Erythematosus ◽  
Health Care ◽  
Lupus Erythematosus ◽  
Clinical Management ◽  
Multiple Logistic Regression Analysis ◽  
Health Care Facilities ◽  
Systemic Lupus ◽  
Patient Dissatisfaction ◽  
Patient Reported

BACKGROUND: Over the past decades, patient satisfaction has been increasingly recognized as a powerful tool to measure the quality of health-care services. AIM: This study evaluated the satisfaction of systemic lupus erythematosus (SLE) patients with current clinical management in Semey, East Kazakhstan, and explored the factors associated with dissatisfaction. METHODS: All adult SLE patients registered at health-care facilities of Semey were enrolled in a cross-sectional study. RESULTS: Out of 67 patients, 66 were females and their mean age was 39 years. Symptoms associated with the musculoskeletal system were the most commonly reported (95.5%), followed by fatigue (88.1%) and neurological symptoms (53.7%). None of the patients were very satisfied or satisfied with current clinical management and the overall rate of patient dissatisfaction was 83.6%. Education (p = 0.04), monthly income (p = 0.01), SLE disease activity index score (p = 0.031), therapy with biologic agents (p = 0.029), immunosuppressants (p = 0.01), and corticosteroids (p = 0.01) were predictors of patient dissatisfaction in multiple logistic regression analysis. CONCLUSION: This real-world study is the first effort to understand the experience of SLE patients within the health-care system of Kazakhstan and the results may facilitate doctor-patient discussions on the initiatives that need to be taken to improve the quality of the medical services provided.

Why health care costs more in the US: Comparing health care expenditures between systemic lupus erythematosus patients in Stanford and Montreal

1996 ◽  
Vol 39 (6) ◽  
pp. 979-987 ◽  
Author(s):  
Gail Gironimi ◽  
Ann E. Clarke ◽  
Vivian H. Hamilton ◽  
Deborah S. Danoff ◽  
Daniel A. Bloch ◽  
...  
Keyword(s):  
Systemic Lupus Erythematosus ◽  
Health Care ◽  
Health Care Costs ◽  
Lupus Erythematosus ◽  
Health Care Expenditures ◽  
Systemic Lupus ◽  
The Us ◽  
Care Costs

The development of quality indicators for systemic lupus erythematosus using electronic health data: A modified RAND appropriateness method

2019 ◽  
Vol 30 (3) ◽  
pp. 525-531 ◽  
Author(s):  
Nobuyuki Yajima ◽  
Yasushi Tsujimoto ◽  
Shingo Fukuma ◽  
Ken-ei Sada ◽  
Sayaka Shimizu ◽  
...  
Keyword(s):  
Systemic Lupus Erythematosus ◽  
Quality Indicators ◽  
Lupus Erythematosus ◽  
Health Data ◽  
Systemic Lupus ◽  
Electronic Health
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