scholarly journals Awareness and attitudes of primary caregivers toward end-of-life care in advanced cancer patients: A cross-sectional study

2021 ◽  
Vol 27 (1) ◽  
pp. 126
Author(s):  
Rakesh Garg ◽  
Sourav Burman ◽  
Sushma Bhatnagar ◽  
Seema Mishra ◽  
Vinod Kumar ◽  
...  
Keyword(s):  
End Of Life ◽  
Cancer Patients ◽  
Advanced Cancer ◽  
End Of Life Care ◽  
Primary Caregivers ◽  
Cross Sectional Study ◽  
Life Care ◽  
Sectional Study ◽  
Advanced Cancer Patients ◽  
Cross Sectional

Advanced gastrointestinal cancer patients' perceptions of prognosis and goals of treatment.

2012 ◽  
Vol 30 (15_suppl) ◽  
pp. 6106-6106
Author(s):  
Areej El-Jawahri ◽  
Lara Traeger ◽  
Elyse R. Park ◽  
Joseph A. Greer ◽  
William F. Pirl ◽  
...  
Keyword(s):  
End Of Life ◽  
Cancer Patients ◽  
Advanced Cancer ◽  
End Of Life Care ◽  
Cross Sectional Study ◽  
Life Care ◽  
Advanced Cancer Patients ◽  
Prognostic Information ◽  
Cross Sectional ◽  
Gi Cancers

6106 Background: Patients with advanced cancer require accurate perception of their illness in order to make informed decisions regarding their care. However, little is known about the accuracy of these patients’ illness and prognostic understanding. The objectives of this study are to 1) examine prognostic understanding in patients with advanced gastrointestinal (GI) cancers, 2) assess patient preferences for prognostic information, and 3) explore associations of perceptions with quality of life (QOL) and mood. Methods: Cross-sectional study of 50 patients within 6-12 weeks post diagnosis of advanced GI cancers (gastric, esophageal, pancreatic, and hepatobiliary). We assessed patients’ perceptions of prognosis with a 15-item questionnaire, the Perception of Treatment and Prognosis Questionnaire. QOL and mood were assessed using the Functional Assessment of Cancer Therapy-General (FACT-G) and hospital anxiety and depression scales (HADS), respectively. Results: We enrolled 50/62 (80%) consecutive eligible patients within an 11-month period. 50% (25/50) of participants responded that the primary goal of their cancer treatment was to “cure their cancer.” Similarly, 54% (27/50) reported that they were “somewhat” to “extremely likely” to be cured from their cancer. Only 22% (10/49) reported having a discussion about their end-of-life care preferences with their oncologist. 76% (38/50) reported wanting to know as many details as possible about their cancer diagnosis and treatment and 64% (32/50) rated this information as “extremely important.” Patients who perceived knowing about their prognosis as “extremely helpful” reported a better QOL (p = 0.009), lower symptoms of anxiety (p = 0.02) and depression (p = 0.02). Conclusions: Although the majority of patients report that they desire detailed information about their prognosis, half incorrectly perceived their cancer as curable and the majority did not discuss their end-of-life care preferences with their oncologist. Patients who found learning about their prognosis to be extremely helpful reported better QOL and mood. Studies of interventions to increase advanced cancer patients’ knowledge of their prognosis and to encourage end-of-life discussions are warranted.

In-advance end-of-life discussions and the quality of inpatient end-of-life care: a pilot study in bereaved primary caregivers of advanced cancer patients

2012 ◽  
Vol 21 (2) ◽  
pp. 629-636 ◽  
Author(s):  
Masanori Mori ◽  
Donna Ellison ◽  
Takamaru Ashikaga ◽  
Ursula McVeigh ◽  
Allan Ramsay ◽  
...  
Keyword(s):  
Pilot Study ◽  
End Of Life ◽  
Cancer Patients ◽  
Advanced Cancer ◽  
End Of Life Care ◽  
Primary Caregivers ◽  
Life Care ◽  
Advanced Cancer Patients

Time Perception of Cancer Patients Without Evidence of Disease and Advanced Cancer Patients in a Palliative, End-of-Life-Care Setting

2011 ◽  
Vol 34 (6) ◽  
pp. 453-463 ◽  
Author(s):  
Hanneke W. M. van Laarhoven ◽  
Johannes Schilderman ◽  
Constans A. H. H. V. M. Verhagen ◽  
Judith B. Prins
Keyword(s):  
End Of Life ◽  
Cancer Patients ◽  
Advanced Cancer ◽  
Time Perception ◽  
End Of Life Care ◽  
Care Setting ◽  
Life Care ◽  
Advanced Cancer Patients

Attitudes about End-of-Life Care: A National Cross-sectional Study

1998 ◽  
Vol 1 (4) ◽  
pp. 347-355 ◽  
Author(s):  
Susan D. Block ◽  
Amy M. Sullivan
Keyword(s):  
End Of Life ◽  
End Of Life Care ◽  
Cross Sectional Study ◽  
Life Care ◽  
Sectional Study ◽  
Cross Sectional

scholarly journals Informal Caregiver Challenges for Advanced Cancer Patients During End-of-Life Care in Johannesburg, South Africa and Distinctions Based on Place of Death

2018 ◽  
Vol 56 (1) ◽  
pp. 98-106 ◽  
Author(s):  
Daniel S. O'Neil ◽  
Holly G. Prigerson ◽  
Keletso Mmoledi ◽  
Mfanelo Sobekwa ◽  
Mpho Ratshikana-Moloko ◽  
...  
Keyword(s):  
South Africa ◽  
End Of Life ◽  
Cancer Patients ◽  
Advanced Cancer ◽  
End Of Life Care ◽  
Informal Caregiver ◽  
Place Of Death ◽  
Life Care ◽  
Advanced Cancer Patients
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