The Irish Health Service’s Expert Advisory Groups: Spaces for Advancing Epistemological Justice?

2013 ◽  
Author(s):  
Orla O’Donovan
Keyword(s):  
Advisory Groups ◽  
Expert Advisory

scholarly journals Expert Advisory Groups: Exploring the Sensemaking Proces s During a Public Health C risis R esponse

2018 ◽  
Author(s):  
Iva Seto ◽  
David Johnstone ◽  
Jennifer Campbell-Meier
Keyword(s):  
Public Health ◽  
Decision Makers ◽  
Process Information ◽  
Unexpected Event ◽  
Health Crisis ◽  
Creation Process ◽  
Public Health Crisis ◽  
Advisory Groups ◽  
Expert Advisory ◽  
Meaning Creation

In a public health crisis, experts (such as epidemiologists, public health officers, physicians and virologists) support key decision  makers with advice in a highly dynamic, pressured,  and time-sensitive context. Experts must process information (to provide advice) as quickly as possible, yet this must be balanced with ensuring the information is credible, reliable,  and relevant. When an unexpected event occurs, it may lead to a gap between what is  experienced and what was expected; sensemaking is a meaning creation process which is engaged to fill the gap. This research explores how experts engage in sensemaking during a  public health crisis.

scholarly journals Reflections on running online expert advisory groups with young people with lived experience of depression

2021 ◽  
Author(s):  
Juliette Westbrook ◽  
Sophie M. Allan ◽  
Brioney Gee ◽  
Faith Orchard
Keyword(s):  
Young People ◽  
Lived Experience ◽  
Service User ◽  
User Involvement ◽  
Healthcare Research ◽  
Online Research ◽  
Service User Involvement ◽  
Advisory Groups ◽  
Study Protocols ◽  
Expert Advisory

Service user involvement is fundamental to healthcare research, including knowledge transfer, advising on study protocols and the development of interventions. However, to date, service user involvement within child and adolescent mental health research is still uncommon and there is limited focus on best practice within the literature. Furthermore, consultations and advisory groups have traditionally been held face-to-face; however, the COVID-19 pandemic has accelerated a shift towards online research involvement as an alternative. This paper will examine our experience of conducting online expert advisory groups with young people (aged 14-24) with lived experience of depression and describe challenges and adaptations that need to be considered in order to make the events safe and accessible. Based on our own reflections of the process and feedback from young people taking part, we highlight the grouping of young people, facilitating pre-session nerves, intergroup communication and accessibility of online engagement. Young peoples’ reflections on the value of the advisory groups are also discussed. We conclude by offering suggestions, based on our reflections, for future online research consultations.

Examining variation in mammography and breast cancer treatment quality.

2012 ◽  
Vol 30 (15_suppl) ◽  
pp. e16531-e16531
Author(s):  
Danielle Dupuy ◽  
Jennifer M. Orsi ◽  
Garth Rauscher ◽  
Anne Marie Murphy ◽  
Christine B. Weldon ◽  
...  
Keyword(s):  
Breast Cancer ◽  
New York ◽  
Black Women ◽  
White Women ◽  
Treatment Quality ◽  
Advisory Groups ◽  
Expert Advisory ◽  
The Us ◽  
Improvement Interventions ◽  
Quality Improvement Interventions

e16531 Background: In Chicago, Illinois, black women are 62% more likely to die from breast cancer (ca) than white women, a disparity exceeding that of the US (41%) and New York City (27%). Geographically disparate rates may suggest health system drivers of the disparity. The Chicago Breast Cancer Quality Consortium was established in 2008 to examine the quality of screening and breast cancer care to answer the question of whether variations in quality contribute to the known disparity while identify opportunities for quality improvement interventions. Methods: Mammography (mammo) screening data was collected from each site. Treatment (tx) data for each woman with a primary breast ca diagnosis who received her first course of tx at that site was collected. Measures, methods and benchmarks were developed using existing guidelines and approved by expert advisory groups. Analysis was performed to determine if sites could demonstrate they met benchmarks. Results: CY2009 aggregate screening and tx data was collected from 52 and 21 sites respectively. Only 61% (32) of sites could demonstrate that they met >50% of the screening mammo benchmarks, while 76% (16) of sites could demonstrate they met >50% of tx benchmarks. Conclusions: A lower proportion of sites could show they meet quality mammo benchmarks as compared to tx benchmarks. There was room for improvement in both. Further site-specific inquiry is underway to determine if results are reflective of data collection issues or actual quality issues. [Table: see text] [Table: see text]

scholarly journals Undisclosed creators of digitalization: A critical analysis of representational practices

2021 ◽  
pp. 1-18
Author(s):  
Katarina L. Gidlund ◽  
Leif Sundberg
Keyword(s):  
Critical Analysis ◽  
Analytical Framework ◽  
Critical Research ◽  
Professional Experiences ◽  
Advisory Groups ◽  
Technological Culture ◽  
Representational Practices ◽  
Education Professional ◽  
Expert Advisory ◽  
Geographical Position

The aim of this paper is to study over- and under representational practices in governmental expert advisory groups on digitalization to open up a dialogue on translations of digitalization. By uncovering how meanings converge and interpretations associated with technology are stabilized or maybe even closed, this research is in positioned within a critical research tradition. The chosen analytical framework stretches from a link between technological culture (i.e., how and where the myths and symbolic narratives are constructed), a focus on the process of interpretation (i.e., the flexibility in how digitalization could be translated and attached to different political goals and values) and a dimension of firstness (addressing education, professional experiences and geographical position to explore dominance and power aspects). The results reveal a homogeneity that is potentially problematic and raises questions about the frames for interpreting what digitalization could and should be and do. We argue that the strong placement of digitalization in the knowledge base disclosed in this study hinders digitalization from being more knowledgeably translated.

Implementation of the Australasian Teletrial Model: Translating idea into action using implementation science frameworks

2021 ◽  
pp. 1357633X2110178
Author(s):  
Sabe Sabesan ◽  
Marie Malica ◽  
Chantal Gebbie ◽  
Clare Scott ◽  
David Thomas ◽  
...  
Keyword(s):  
Implementation Science ◽  
Pilot Project ◽  
Final Report ◽  
Rare Cancer ◽  
Government Investment ◽  
Implementation Framework ◽  
Advisory Groups ◽  
Regulatory Systems ◽  
Key Stakeholders ◽  
Strategic Implementation

Background: Despite Government investment, disparity in access to clinical trials continue between metropolitan and regional & rural sectors (RRR) in Australia and around the world. To improve trial access closer to home for RRR communities and rare cancer patients even in metro settings, the Australasian Teletrial Model (ATM) was developed by Clinical Oncology Society of Australia and implemented in four states. Aim of this paper is to describe the steps and processes involved in the development and implementation of ATM guided by implementation science frameworks. Method: Two implementation science frameworks namely iPARIHS and Strategic Implementation Framework were chosen to guide the project. Details of steps and processes were extracted from COSA final report. Results: ATM met the criteria for worthy innovation. For the development and implementation of the ATM, stakeholders were at national, statewide and clinical levels. A co-design with end-users and inclusion of key stakeholders in steering committees and advisory groups made the implementation smoother. Clinician levers including advocacy were useful to overcome system barriers. During the project, more patients, and clinicians at RRR participated in trials, more primary sites collaborated with RRR sites and more RRR sites gained trial capabilities. Conclusion: Pilot project achieved its objectives including improved access to patients locally, creation of linkages between metro and RRR sites and enhanced capabilities of and access to RRR sites. Implementation science frameworks were useful for identifying the necessary steps and processes at the outset. Ownership by governments and creation of streamlined regulatory systems would enable broader adoption.

scholarly journals Citizen advisory groups for the creation and improvement of decision aids: experience from two Swiss centers for primary care

2021 ◽  
Vol 7 (1) ◽  
Author(s):  
Kevin Selby ◽  
Regula Cardinaux ◽  
Beatrice Metry ◽  
Simone de Rougemont ◽  
Janine Chabloz ◽  
...  
Keyword(s):  
Primary Care ◽  
Decision Aids ◽  
Community Based Participatory Research ◽  
Lung Cancer Screening ◽  
Target Population ◽  
Advisory Groups ◽  
Patient Decision ◽  
The Creation ◽  
Meeting Transcripts ◽  
The University

Abstract Background Guidelines for patient decision aids (DA) recommend target population involvement throughout the development process, but developers may struggle because of limited resources. We sought to develop a feasible means of getting repeated feedback from users. Methods Between 2017 and 2020, two Swiss centers for primary care (Lausanne and Bern) created citizen advisory groups to contribute to multiple improvement cycles for colorectal, prostate and lung cancer screening DAs. Following Community Based Participatory Research principles, we collaborated with local organizations to recruit citizens aged 50 to 75 without previous cancer diagnoses. We remunerated incidental costs and participant time. One center supplemented in-person meetings by mailed paper questionnaires, while the other supplemented meetings using small-group workshops and analyses of meeting transcripts. Results In Lausanne, we received input from 49 participants for three DAs between 2017 and 2020. For each topic, participants gave feedback on the initial draft and 2 subsequent versions during in-person meetings with ~ 8 participants and one round of mailed questionnaires. In Bern, 10 participants were recruited among standardized patients from the university, all of whom attended in-person meetings every three months between 2017 and 2020. At both sites, numerous changes were made to the content, appearance, language, and tone of DAs and outreach materials. Participants reported high levels of satisfaction with the participative process. Conclusions Citizen advisory groups are a feasible means of repeatedly incorporating end-user feedback during the creation of multiple DAs. Methodological differences between the two centers underline the need for a flexible model adapted to local needs.

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