scholarly journals Compassionate Communities - From frailty to community resilience – making a public health approach to end of life care a reality

2017 ◽  
Vol 17 (5) ◽  
pp. 134
Author(s):  
Linda Morris ◽  
Margaret McDaid
Keyword(s):  
Public Health ◽  
End Of Life ◽  
End Of Life Care ◽  
Community Resilience ◽  
Public Health Approach ◽  
Life Care

scholarly journals Using a storytelling intervention in schools to explore death, dying, and loss

2020 ◽  
Vol 19 (3) ◽  
pp. 203-211
Author(s):  
Jessica Blake ◽  
Anda Bayliss ◽  
Bethan Callow ◽  
Grace Futter ◽  
Navaneeth Harikrishnan ◽  
...  
Keyword(s):  
Public Health ◽  
Title I ◽  
End Of Life ◽  
End Of Life Care ◽  
Developmental Trajectories ◽  
Public Health Intervention ◽  
Public Health Approach ◽  
Life Care ◽  
Content Type ◽  
Anchor Institutions

Purpose Experiencing bereavement in childhood can cause profound changes to developmental trajectories. This paper aims to evaluate the feasibility of implementing a public health intervention in schools to encourage pupils aged 12-15 years to independently explore ideas of death, dying, loss and end of life care in a structured and creative format. Design/methodology/approach A co-produced storytelling intervention was implemented in an independent school in Norwich, UK. Pupils wrote up to 1,000 words in response to the title, “I Wish We’d Spoken Earlier”. Their participation was voluntary and extra-curricular. Stakeholder feedback was used in addition to the submissions as a measure of acceptability, appropriateness, adoption and feasibility. Findings In total, 24 entries were submitted. Pupils demonstrated their ability to engage thoughtfully and creatively with the subject matter. Feasibility for the storytelling intervention was demonstrated. Importantly, the intervention also prompted family conversations around preferences and wishes for end of life care. Research limitations/implications To determine whether the intervention has psychological and social benefits will require further study. Practical implications Educational settings can be considered as anchor institutions to support a public health approach to end of life care. Originality/value The positive response from all stakeholders in delivering and supporting the intervention indicates that schools are a community asset that could be further empowered to support children and families affected by death, dying and loss.

scholarly journals Social networks, social capital and end-of-life care for people with dementia: a realist review

BMJ Open ◽  
2019 ◽  
Vol 9 (12) ◽  
pp. e030703 ◽  
Author(s):  
Joseph M Sawyer ◽  
Libby Sallnow ◽  
Nuriye Kupeli ◽  
Patrick Stone ◽  
Elizabeth L Sampson
Keyword(s):  
Public Health ◽  
Social Capital ◽  
Social Networks ◽  
End Of Life ◽  
End Of Life Care ◽  
Realist Review ◽  
Public Health Approach ◽  
Life Care ◽  
People With Dementia ◽  
Person With Dementia

Objectives(1) To develop an understanding of how social capital may be conceptualised within the context of end-of-life care and how it can influence outcomes for people with dementia and their families with specific reference to the context and mechanisms that explain observed outcomes. (2) To produce guidance for healthcare systems and researchers to better structure and design a public health approach to end-of-life care for people with dementia.DesignA realist review.Data sourcesMEDLINE, EMBASE, CINAHL and grey literature.AnalysisWe conceptualised social capital as a complex intervention and, in order to understand how change is generated, used realist evaluation methods to create different configurations of context, mechanism and outcomes. We conducted an iterative search focusing on social capital, social networks and end-of-life care in dementia. All study designs and outcomes were screened and analysed to elicit explanations for a range of outcomes identified. Explanations were consolidated into an overarching programme theory that drew on substantive theory from the social sciences and a public health approach to palliative care.ResultsWe identified 118 articles from 16 countries ranging from 1992 to 2018. A total of 40 context-mechanism-outcome configurations help explain how social capital may influence end-of-life care for people with dementia. Such influence was identified within five key areas. These included: (1) socially orientating a person with dementia following diagnosis; (2) transitions in the physical environment of care; (3) how the caregiving experience is viewed by those directly involved with it; (4) transition of a person with dementia into the fourth age; (5) the decision making processes underpinning such processes.ConclusionThis review contributes to the dispassionate understanding of how complex systems such as community and social capital might be viewed as a tool to improve end-of-life care for people with dementia.PROSPERO registration numberCRD42018084524.

The impact of a new public health approach to end-of-life care: A systematic review

2015 ◽  
Vol 30 (3) ◽  
pp. 200-211 ◽  
Author(s):  
Libby Sallnow ◽  
Heather Richardson ◽  
Scott A Murray ◽  
Allan Kellehear
Keyword(s):  
Public Health ◽  
Systematic Review ◽  
End Of Life ◽  
End Of Life Care ◽  
Public Health Approach ◽  
Life Care ◽  
New Public Health ◽  
New Public ◽  
The Impact

scholarly journals Winners and Losers in Palliative Care Service Delivery: Time for a Public Health Approach to Palliative and End of Life Care

Healthcare ◽  
2021 ◽  
Vol 9 (12) ◽  
pp. 1615
Author(s):  
Samar M. Aoun     ◽  
Robyn Richmond ◽  
Leanne Jiang ◽  
Bruce Rumbold
Keyword(s):  
Public Health ◽  
Palliative Care ◽  
End Of Life ◽  
Cancer Diagnosis ◽  
End Of Life Care ◽  
Palliative Care Service ◽  
Community Services ◽  
Public Health Approach ◽  
Life Care ◽  
Specialist Palliative Care

Background: Consumer experience of palliative care has been inconsistently and selectively investigated. Methods: People in Western Australia who had experienced a life limiting illness in the past five years were recruited via social media and care organisations (2020) and invited to complete a cross sectional consumer survey on their experiences of the care they received. Results: 353 bereaved carers, current carers and patients responded. The winners, those who received the best quality end-of-life care, were those who were aware of palliative care as an end-of-life care (EOLC) option, qualified for admission to and were able to access a specialist palliative care program, and with mainly a cancer diagnosis. The losers, those who received end-of-life care that was adequate rather than best practice, were those who were unaware of palliative care as an EOLC option or did not qualify for or were unable to access specialist palliative care and had mainly a non-cancer diagnosis. Both groups were well supported throughout their illness by family and a wider social network. However, their family carers were not adequately supported by health services during caregiving and bereavement. Conclusions: A public health approach to palliative and end of life care is proposed to integrate tertiary, primary, and community services through active consumer engagement in the design and delivery of care. Therefore, suggested strategies may also have relevance in many other international settings.

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