scholarly journals Subjective Quality of Life of Patients With Duchenne Muscular Dystrophy: Challenges Related to Education and Long-Term Prognosis

2020 ◽  
Vol 58 (1) ◽  
pp. 1-9
Author(s):  
Takeshi YASHIMA ◽  
Toshihiko KIKUCHI ◽  
Yoshinori MURAKAMI ◽  
Kazuhito NOGUCHI
1998 ◽  
Vol 28 (5) ◽  
pp. 1221-1230 ◽  
Author(s):  
A. ZISSI ◽  
M. M. BARRY ◽  
R. COCHRANE

Background. Despite the increasing importance of quality of life in the mental health field, the theoretical conceptualization of the construct remains poorly developed. A proposed mediational model of quality of life, which links subjective quality of life with self-related constructs, is examined with a group of long-term psychiatric hostel residents. The present study aims to develop a measure of quality of life based on the proposed model, to explore the data and their implications for service development and finally to conduct a preliminary analysis of the model's predictions.Method. A cross-sectional research design was employed. Quality of life interviews, using a modified version of Lehman's Quality of Life Interview, were carried out with 54 psychiatric residents in Greece. The model's predictions were examined by using a series of regression analyses.Results. The results indicate that perceived improvements in lifestyle, greater autonomy and positive self-concept are significantly and directly associated with better quality of life. In contrast, a direct relationship between objective indicators and subjective quality of life was not found.Conclusions. The traditional two-part quality of life model that includes objective indicators of life circumstances and subjective indicators is extended to included the constructs of self-concept and perceived autonomy. The present extended mediational model of quality of life for individuals with long-term mental health problems appears to have important implications for the planning and delivery of mental health programmes.


1996 ◽  
Vol 8 (2) ◽  
pp. 63-69
Author(s):  
Hiroyuki Tahara ◽  
Atsuhiro Hashima ◽  
Toshiya Tsurusaki ◽  
Minoru Okita ◽  
Shigeru Inokuchi ◽  
...  

2002 ◽  
Vol 17 (1) ◽  
pp. 33-40 ◽  
Author(s):  
T. Björkman ◽  
L. Hansson

SummaryOne hundred and thirteen long-term mentally ill clients receiving case management were investigated with regard to psychosocial and clinical predictors of changes in subjective quality of life during an 18-month follow-up. Better psychosocial functioning and fewer psychiatric symptoms at baseline predicted a greater improvement in quality of life. A larger decrease in symptom severity and a greater improvement in the social network during the follow-up were identified as the most important predictors of a greater improvement in subjective quality of life. The results of the study suggest that an emphasis should be put on effective symptom management, a reduction of needs for care and social support in order to fulfill the aims of improving subjective quality of life in patients receiving case management.


2019 ◽  
Vol 29 (8) ◽  
pp. 569-575 ◽  
Author(s):  
Grazia Crescimanno ◽  
Francesca Greco ◽  
Rosaria D'Alia ◽  
Luigi Messina ◽  
Oreste Marrone

2014 ◽  
Vol 19 (5) ◽  
pp. 1093-1099 ◽  
Author(s):  
Michael Schüller ◽  
Martin Gosau ◽  
Steffen Müller ◽  
Michael Gerken ◽  
Christian Rohrmeier ◽  
...  

The Lancet ◽  
2018 ◽  
Vol 391 (10119) ◽  
pp. 451-461 ◽  
Author(s):  
Craig M McDonald ◽  
Erik K Henricson ◽  
Richard T Abresch ◽  
Tina Duong ◽  
Nanette C Joyce ◽  
...  

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