scholarly journals ”Hvis man havde set mig som menneske fremfor bare min skade” – Indefra-perspektiver på dansk neurorehabilitering

Author(s):  
Chalotte Glintborg

Øvrig forfatter: Dorthe Birkmose, cand.psych., selvstændig psykolog og kursusleder.  ResuméFormålet med denne artikel er at se nærmere på, hvordan mennesker oplever at blive mødt i hjerneskaderehabiliteringen i Danmark. Empirisk trækkes der på interviews med de 82 personer, der indgik i ph.d.-afhandlingen ”Grib mennesket” (Glintborg, 2015) samt et opfølgningsstudie efter 5 år. Analyserne trækker på diskurspsykologi og narrativ teori til at udforske fortællinger og diskurser om personer med erhvervede hjerneskader. Analyserne viser, at det individuelle aspekt kan blive skubbet til side af et for stort fokus på hjerneskaden. Konklusionen er, at der er et behov for en professionalisme, der i højere grad balancerer den neurofaglige viden med indefra-perspektivet hos det enkelte menneske.AbstraktThe aim of this study was to explore how Danish adults with an acquired brain injury (ABI) experience encounters with professionals during their rehabilitation process. The study draws on empirical data from 82 adults with moderate to severe ABI collected as part of a Ph.D. project (Glintborg, 2015) and a 5-year follow up study. Analysis reveal that once diagnosed with ABI, this label can take a master status in encounters with professionals. Professionals' reification of the diagnosis of brain injury can be oppressive because it subjugates humanity such that everything a person does can be interpreted as part of the neurological disability. We conclude that there is a need for a new kind of professionalism that balance the diagnostic lens with a lens on the person as a human being.

2017 ◽  
Vol 40 (4) ◽  
pp. 509-517 ◽  
Author(s):  
Alex Lopez-Rolon ◽  
Jana Vogler ◽  
Kaitlen Howell ◽  
Jonathan Shock ◽  
Stefan Czermak ◽  
...  

2017 ◽  
Vol 08 (03) ◽  
pp. 357-363 ◽  
Author(s):  
Maitreyi Patil ◽  
Anupam Gupta ◽  
Meeka Khanna ◽  
Arun B. Taly ◽  
Amit Soni ◽  
...  

ABSTRACT Objectives: To study the effects of cognitive retraining and inpatient rehabilitation to study the effects of cognitive retraining and inpatient rehabilitation in patients with acquired brain injury (ABI). Design and Setting: This was a prospective follow-up study in a neurological rehabilitation department of quaternary research hospital. Patients and Methods: Thirty patients with ABI, mean age 36.43 years (standard deviation [SD] 12.6, range 18–60), mean duration of illness 77.87 days (SD 91.78, range 21–300 days) with cognitive, physical, and motor-sensory deficits underwent inpatient rehabilitation for minimum of 14 sessions over a period of 3 weeks. Nineteen patients (63%) reported in the follow-up of minimum 3 months after discharge. Type of ABI, cognitive status (using Montreal Cognitive assessment scale [MoCA] and cognitive Functional Independence Measure [Cog FIM]®), and functional status (motor FIM®) were noted at admission, discharge, and follow-up and scores were compared. Results: Patients received inpatient rehabilitation addressing cognitive and functional impairments. Baseline MoCA, motor FIM, and Cog FIM scores were 15.27 (SD = 7.2, range 3–30), 31.57 (SD = 15.6, range 12–63), and 23.47 (SD = 9.7, range 5–35), respectively. All the parameters improved significantly at the time of discharge (MoCA = 19.6 ± 7.4 range 3–30, motor FIM® = 61.33 ± 18.7 range 12–89, Cog FIM® =27.23 – 8.10 range 9–35). Patients were discharged with home-based programs. Nineteen patients reported in follow-up and observed to have maintained cognition on MoCA (18.8 ± 6.8 range 6–27), significantly improved (P < 0.01) on Cog FIM® (28.0 ± 7.7 range 14–35) and motor FIM® =72.89 ± 16.2 range 40–96) as compare to discharge scores. Conclusions: Cognitive and functional outcomes improve significantly with dedicated and specialized inpatient rehabilitation in ABI patients, which is sustainable over a period.


Brain Injury ◽  
2021 ◽  
pp. 1-9
Author(s):  
Deirdre M. Twomey ◽  
Niamh Allen ◽  
Maria L. F. Agan ◽  
Aoife M. Hayes ◽  
Andrea Higgins ◽  
...  

1995 ◽  
Vol 1 (1) ◽  
pp. 23-32 ◽  
Author(s):  
Ross Crisp

Recent rehabilitation counselling literature has pointed to major developments in the contribution of rehabilitation counsellors to acquired brain injury (ABI) rehabilitation. Rehabilitation counsellors have widened their skill base in case management, vocational evaluation, and in the therapeutic relationship between counsellor and client. It is evident, however, that better methods of ABI rehabilitation service delivery, including those services provided by rehabilitation counsellors, continue to be sought. Strategies needed to ensure the advancement of rehabilitation counselling practice and research in ABI rehabilitation are discussed, and involve the adoption of a systems approach, a shift away from dominant clinical psychological analyses in favour of psychosocial frameworks, and the co-participation of persons with ABI in the rehabilitation process.


2012 ◽  
Vol 93 (5) ◽  
pp. 908-911 ◽  
Author(s):  
Gert J. Geurtsen ◽  
Caroline M. van Heugten ◽  
Juan D. Martina ◽  
Antonius C. Rietveld ◽  
Ron Meijer ◽  
...  

Brain Injury ◽  
2011 ◽  
Vol 25 (5) ◽  
pp. 443-452 ◽  
Author(s):  
Leena Himanen ◽  
Raija Portin ◽  
Päivi Hämäläinen ◽  
Saija Hurme ◽  
Heli Hiekkanen ◽  
...  

Author(s):  
Jessica Salley Riccardi ◽  
Libby Crook ◽  
Brenda Eagan-Johnson ◽  
Monica Vaccaro ◽  
Angela H. Ciccia

Purpose: The purpose of this study was to inform school-based services for children with acquired brain injury (ABI) by describing and analyzing functional student-outcome data from a state-wide, school-based, school re-entry consultation program, BrainSTEPS (Strategies Teaching Educators, Parents, and Students), in Pennsylvania. Method: A nonexperimental, retrospective analysis was conducted with data collected during a pilot follow-up survey for BrainSTEPS. Caregivers reported on 337 students with ABI participating in BrainSTEPS. Results: Most students post-ABI who were participating in BrainSTEPS were enrolled in regular education and reported no ongoing symptoms, as well as no parent perception of need for additional BrainSTEPS consultation during the time period of the follow-up survey. Current receipt of therapy was significantly associated with injury type, χ 2 (1, n = 329) = 16.72, p < .001. A multiple logistic regression was significant ( p < .001) in predicting the need for additional BrainSTEPS consultation. More severe injuries, educational placement postinjury of regular education with a 504 plan (compared to regular education), and current receipt of therapy significantly increased the odds of need for consultation. Conclusions: Due to the wide range of experiences of students in this sample, hospital-to-school transition services, educational supports and services, and long-term follow-up must be individualized for children with ABI. Speech-language pathologists are critical members of the school-based academic team for students with ABI to decrease long-term unmet needs.


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