Well-Being Programme for Caregivers of Persons with Spinal Cord Injury

Background: SCI is a high-cost chronic disability, and it is a life-changing experience for family members and societies. For families, the unpredictable nature of the injury leads some of the members into an 'unexpected career' as family caregivers, the caregiver’s have to put enormous efforts, to provide continuous full-time caregiving for the recovery of Person with Spinal cord injury, which will affect the caregiver's physical and mental health. The current study aims to develop and test the feasibility of a well-being programme for caregivers of persons with spinal cord injury. Methods/Design: The current study adopts a Quasi-experimental study design, which have three phases; the first phase is to explore the needs of the caregivers by conducting in-depth interviews with different stakeholders. The second phase is to develop a well-being programme, and checking the feasibility of the programme is the third phase by recruiting 24 caregivers. Qualitative data will be analyzed using thematic analysis, whereas quantitative data will be analyzed using appropriate parametric or non- parametric tests upon confirming normality of data distribution. Discussion: This study would help us to understand the psycho-social issues and unique needs of the caregivers at different time periods. It also gives information about psycho-social interventions and outcome measures for the well-being of the caregivers.

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Early vocational rehabilitation for people with spinal cord injury: a research protocol using realist synthesis and interviews to understand how and why it works

BMJ Open ◽

10.1136/bmjopen-2021-048753 ◽

2021 ◽

Vol 11 (5) ◽

pp. e048753

Author(s):

Jennifer Dunn ◽

Rachelle A Martin ◽

Jonathan J Hackney ◽

Joanne L Nunnerley ◽

Deborah Snell ◽

...

Keyword(s):

Spinal Cord ◽

Spinal Cord Injury ◽

Return To Work ◽

Vocational Rehabilitation ◽

Evidence Synthesis ◽

Grey Literature ◽

Well Being ◽

Realist Synthesis ◽

Physical And Mental Health ◽

Cord Injury

IntroductionReturn to work after spinal cord injury (SCI) is linked to well-being and better physical and mental health outcomes. In New Zealand, work rates after SCI are lower than the general population. Vocational rehabilitation is one method of supporting return to work. Although the best model has not been determined, there is evidence supporting early intervention. However, most vocational rehabilitation research focuses on return to work outcomes without considering why vocational rehabilitation works, for whom and under what circumstances. Given this knowledge gap, we detail a realist synthesis protocol aiming to explain how contextual factors trigger relevant mechanisms to facilitate return to work after SCI.Methods and analysisThis study will use a realist synthesis approach, following Realist And MEta-narrative Evidence Synthesis: Evolving Standards (RAMESES) guidelines. First, we will undertake a realist review of existing published and grey literature. Second, to assist with theoretical conceptualisation, we will interview people with SCI who have received vocational rehabilitation. Finally, we will survey people with SCI who received early vocational rehabilitation for theoretical testing and refinement.Ethics and disseminationUniversity of Otago Ethics Committee (Reference H19/170) has been obtained. A knowledge translation event will address issues relevant to wider implementation of the intervention and study findings. Findings will be also be disseminated through peer reviewed journals, conference presentations and formal reports.

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The SCIRehab project: analyzing multidisciplinary inpatient spinal cord injury rehabilitation treatment — second phase

Journal of Spinal Cord Medicine ◽

10.1179/107902611x12971826987977 ◽

2011 ◽

Vol 34 (2) ◽

pp. 131-132 ◽

Cited By ~ 4

Author(s):

Gale Whiteneck ◽

Julie Gassaway ◽

Marcel P. Dijkers ◽

Flora M. Hammond ◽

Daniel P. Lammertse

Keyword(s):

Spinal Cord ◽

Spinal Cord Injury ◽

Second Phase ◽

Injury Rehabilitation ◽

Rehabilitation Treatment ◽

Cord Injury

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Goal Striving and Maladaptive Coping in Adults Living With Spinal Cord Injury: Associations With Affective Well-Being

Journal of Aging and Health ◽

10.1177/0898264310382039 ◽

2010 ◽

Vol 23 (1) ◽

pp. 158-176 ◽

Cited By ~ 9

Author(s):

James Mackay ◽

Susan T. Charles ◽

Bryan Kemp ◽

Jutta Heckhausen

Keyword(s):

Spinal Cord ◽

Spinal Cord Injury ◽

Well Being ◽

Maladaptive Coping ◽

Goal Striving ◽

Cord Injury

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Greener on the other side? an analysis of the association between residential greenspace and psychological well-being among people living with spinal cord injury in the United States

Spinal Cord ◽

10.1038/s41393-021-00736-z ◽

2022 ◽

Author(s):

Lauren F. Murphy ◽

Claire Kalpakjian ◽

Susan Charlifue ◽

Allen W. Heinemann ◽

Mary Slavin ◽

...

Keyword(s):

United States ◽

Spinal Cord ◽

Spinal Cord Injury ◽

Well Being ◽

The United States ◽

The Other ◽

Psychological Well Being ◽

Cord Injury

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Artistic activities and psychological well-being perceived by patients with spinal cord injury

The Arts in Psychotherapy ◽

10.1016/j.aip.2017.02.003 ◽

2017 ◽

Vol 54 ◽

pp. 1-6 ◽

Cited By ~ 1

Author(s):

Emanuela Macrì ◽

Costanzo Limoni

Keyword(s):

Spinal Cord ◽

Spinal Cord Injury ◽

Well Being ◽

Psychological Well Being ◽

Cord Injury

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(486) Pain acceptance predicts indicators of distress, well-being and functioning in spinal cord injury

Journal of Pain ◽

10.1016/j.jpain.2015.01.406 ◽

2015 ◽

Vol 16 (4) ◽

pp. S97

Author(s):

A. Kratz ◽

R. Hanks ◽

C. Kalpakjian ◽

C. Bombardier ◽

D. Ehde

Keyword(s):

Spinal Cord ◽

Spinal Cord Injury ◽

Well Being ◽

Pain Acceptance ◽

Cord Injury

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When a romantic partner has a spinal cord injury: Caregiving tasks and resilience as moderators of support quality on psychosocial distress and relational closeness

Journal of Social and Personal Relationships ◽

10.1177/0265407520929761 ◽

2020 ◽

Vol 37 (8-9) ◽

pp. 2551-2577

Author(s):

Andrew M. Ledbetter ◽

Kristen Carr ◽

Gentry Lynn

Keyword(s):

Spinal Cord ◽

Spinal Cord Injury ◽

Romantic Relationship ◽

Well Being ◽

Psychosocial Distress ◽

Support Providers ◽

Beneficial Effects ◽

Relationship Closeness ◽

Cord Injury ◽

Relational Closeness

Using a sample of 312 people in a romantic relationship with a partner who has a spinal cord injury (SCI), this study examined the separate and combined effects of caregiving tasks, resilience, and received support on the participant’s level of psychosocial distress. We also tested whether such distress might mediate the effect of the predictors on romantic relationship closeness. Results supported the beneficial effects of both resilience and receiving high-quality support, although the timing of the injury moderated these effects. Injuries sustained after relationship initiation particularly threaten well-being and closeness and, along with the burden of caregiving tasks, alter the extent to which received support and resilience are associated with health and relationship benefits. These results suggest that support providers should be sensitive to the context of the SCI and, for scholars, indicate the importance of further theorizing context in the theory of resilience and relational load.

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