scholarly journals The impact of urinary stone disease and their treatment on patients’ quality of life: a qualitative study

Urolithiasis ◽  
2019 ◽  
Vol 48 (3) ◽  
pp. 227-234 ◽  
Author(s):  
Aditya Raja ◽  
Fiona Wood ◽  
Hrishi B. Joshi
2021 ◽  
Vol 8 ◽  
pp. 2333794X2110123
Author(s):  
Inese Stars ◽  
Liene Smane ◽  
Zanda Pucuka ◽  
Ieva Roge ◽  
Jana Pavare

Information on family health-related quality of life (FHRQoL) among families of children with the coronavirus disease 2019 (COVID-19) is limited. This qualitative study explores the impact of pediatric COVID-19 on FHRQoL from the parents’ perspective. Semi-structured interviews were conducted with parents (n = 20) whose children had tested positive for the severe acute respiratory syndrome coronavirus 2 (SARS-CoV-2). Inductive thematic analysis revealed the following 10 themes that represented parents’ perception of FHRQoL while taking care of a child with COVID-19: pediatric COVID-19 as a disease with many unknowns; emotional saturation; internal family relationships in the context of “a new experience”; routine household activities and daily regimen while family is in lockdown; plenty of free time; a wide social support network; social stigma associated with COVID-19; different options for work; savings and debts; challenges with family housing and transport availability. Our results show that parents experience multiple effects of pediatric COVID-19 with regard to FHRQoL.


2021 ◽  
Vol 6 (1) ◽  
pp. 151-162
Author(s):  
Steffany M. Chleboun ◽  
Kathryn Brady ◽  
Jennie Zelenak

Much of what we know about stroke is limited to the first 5 years postinjury; however, the effects of having a stroke remain several years, even decades, postinjury, and the impact this has on an individual's quality of life over a long period of time is not completely understood. Purpose The purpose of this study was to understand one woman's experience living with the effects of stroke over multiple decades postinjury and to explore factors that affected her quality of life during this time. Method Using Grounded Theory methodology, data were drawn from 28 years of journals kept by the participant and from semistructured family interviews. Results Four major interacting themes emerged from the data: family support, faith, personality, and journaling. Findings are discussed in the context of resilience theory.


2020 ◽  
Vol 721 ◽  
pp. 137769
Author(s):  
Yanxin Wang ◽  
Quanrong Wang ◽  
Yamin Deng ◽  
Zhao Chen ◽  
Philippe Van Cappellen ◽  
...  

BMJ Open ◽  
2016 ◽  
Vol 6 (11) ◽  
pp. e011616 ◽  
Author(s):  
Samuel Robert Bennett ◽  
Garth Cruickshank ◽  
Antje Lindenmeyer ◽  
Simon Rhys Morris

2020 ◽  
Vol 24 (1) ◽  
pp. 77-83 ◽  
Author(s):  
Young Eun Yoon ◽  
Sung Yong Cho

Purpose: Although cure rate and efficacy of treatment for urinary stone disease have been improved, clinicians have been indifferent to the quality of life (QoL) of stone patients in Korea. The objective of this study was to develop a Korean version of Wisconsin questionnaire about quality of life questionnaire (K-WISQOL) of stone patients for use in Korea.Methods: Linguistic validation was permitted for translation by its developers. Three bilingual nonspecialists and 11 panels who were actively involved in treating urinary stone patients performed the translation and linguistic validations. A trained interviewer and 5 Korean patients carried out cognitive debriefing.Results: Noun words such as “energy” and “responsibilities” were very difficult to translate to Korean. They were substituted by more comprehensive words. After backward translation, translated sentences showed a good agreement with the original WISQOL. During backward translation and the second reconciliation, previously translated Korean version was revised in 5 sentences. In the cognitive debriefing process, all 5 patients thought that these questions explained the patient’s situation well. Most of these respondents answered that explanatory notes of questionnaire were well written and the format of the questionnaire was easy to follow.Conclusions: The present study demonstrated that, despite language differences, translation and linguistic validation of the KWISQOL were successfully performed. This K-WISQOL could be useful tools for treatment plan and patient care.


2014 ◽  
Vol 191 (4S) ◽  
Author(s):  
Matthew Resnick ◽  
Amy Graves ◽  
Shenghua Ni ◽  
W. Stuart Reynolds ◽  
Daniel Barocas ◽  
...  

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