scholarly journals 03 / The impact of post intubation laryngotracheal stenosis on quality of life: a qualitative study

2018 ◽  
Author(s):  
Veronika Majcher ◽  
Andrew Norris
Keyword(s):  
Quality Of Life ◽  
Qualitative Study ◽  
Laryngotracheal Stenosis ◽  
Post Intubation ◽  
The Impact

scholarly journals Impact of Pediatric COVID-19 on Family Health-Related Quality of Life: A Qualitative Study from Latvia

2021 ◽  
Vol 8 ◽  
pp. 2333794X2110123
Author(s):  
Inese Stars ◽  
Liene Smane ◽  
Zanda Pucuka ◽  
Ieva Roge ◽  
Jana Pavare
Keyword(s):  
Quality Of Life ◽  
Qualitative Study ◽  
Family Relationships ◽  
Family Health ◽  
Support Network ◽  
Health Related Quality ◽  
Related Quality ◽  
Health Related ◽  
The Impact

Information on family health-related quality of life (FHRQoL) among families of children with the coronavirus disease 2019 (COVID-19) is limited. This qualitative study explores the impact of pediatric COVID-19 on FHRQoL from the parents’ perspective. Semi-structured interviews were conducted with parents (n = 20) whose children had tested positive for the severe acute respiratory syndrome coronavirus 2 (SARS-CoV-2). Inductive thematic analysis revealed the following 10 themes that represented parents’ perception of FHRQoL while taking care of a child with COVID-19: pediatric COVID-19 as a disease with many unknowns; emotional saturation; internal family relationships in the context of “a new experience”; routine household activities and daily regimen while family is in lockdown; plenty of free time; a wide social support network; social stigma associated with COVID-19; different options for work; savings and debts; challenges with family housing and transport availability. Our results show that parents experience multiple effects of pediatric COVID-19 with regard to FHRQoL.

Quality of Life Following Stroke: A Qualitative Study Across 30 Years

2021 ◽  
Vol 6 (1) ◽  
pp. 151-162
Author(s):  
Steffany M. Chleboun ◽  
Kathryn Brady ◽  
Jennie Zelenak
Keyword(s):  
Quality Of Life ◽  
Grounded Theory ◽  
Qualitative Study ◽  
Family Support ◽  
Resilience Theory ◽  
Grounded Theory Methodology ◽  
Long Period ◽  
The Impact

Much of what we know about stroke is limited to the first 5 years postinjury; however, the effects of having a stroke remain several years, even decades, postinjury, and the impact this has on an individual's quality of life over a long period of time is not completely understood. Purpose The purpose of this study was to understand one woman's experience living with the effects of stroke over multiple decades postinjury and to explore factors that affected her quality of life during this time. Method Using Grounded Theory methodology, data were drawn from 28 years of journals kept by the participant and from semistructured family interviews. Results Four major interacting themes emerged from the data: family support, faith, personality, and journaling. Findings are discussed in the context of resilience theory.

scholarly journals Investigating the impact of headaches on the quality of life of patients with glioblastoma multiforme: a qualitative study

BMJ Open ◽  
2016 ◽  
Vol 6 (11) ◽  
pp. e011616 ◽  
Author(s):  
Samuel Robert Bennett ◽  
Garth Cruickshank ◽  
Antje Lindenmeyer ◽  
Simon Rhys Morris
Keyword(s):  
Quality Of Life ◽  
Glioblastoma Multiforme ◽  
Qualitative Study ◽  
The Impact

Qualitative study of patient perspectives on B-cell non-Hodgkin lymphoma: Impact of patient education.

2017 ◽  
Vol 35 (15_suppl) ◽  
pp. e18109-e18109
Author(s):  
Anne Roc ◽  
Alexandra Howson ◽  
Wendy Turell ◽  
Matthew Alexander Lunning
Keyword(s):  
Quality Of Life ◽  
Qualitative Study ◽  
B Cell ◽  
Treatment Options ◽  
B Cell Lymphoma ◽  
Cell Transplant ◽  
Good Recall ◽  
Education Activity ◽  
The Impact

e18109 Background: This qualitative study explored the impact of an online, patient-focused education activity on B-cell NHL ( http://www.cancercoachlive.com/ ), developed by the Leukemia and Lymphoma Society, University of Nebraska, and PlatformQ Health, to improve patient knowledge on B-cell NHL and offer strategies to enhance quality of life through better disease and side effect management. Methods: 12 qualitative interviews were conducted using a semi-structured interview guide. Questions focused on knowledge of B-cell NHL epidemiology, prognosis, and typical presentation; diagnostic and imaging tests; efficacy and side effects of treatments used to treat B-cell NHLs; and actions to improve quality of life and overall health. Interviews were recorded and transcribed verbatim, and analyzed using constant comparative method with software support (NVivo 11, QSR International). Results: Participants, aged 43-78 (mean 60 years, 8 female), were diagnosed with a B-cell NHL 2-24 years prior to interview. Participants demonstrated understanding of B-cell NHL, with good recall on typical presentation of B-cell lymphoma, the importance of blood tests and laboratory/diagnostic procedures and what to expect during these tests. Six participants recalled traumatic experiences with bone marrow biopsy and suggest additional education for newly diagnosed patients. Participants were knowledgeable about treatment options covered by the program (i.e. active surveillance, chemotherapy, radiation therapy, stem cell transplant), and were interested in more information on treatment options across the B-cell disease trajectory. Not all participants could recall information on targeted therapies from the program, and there was low awareness about clinical trials as a treatment option, indicating need for further education. Conclusions: Overall, participants had a positive impression of the education activity. They judged the content to be comprehensive, accurate, and realistic. Participant descriptions suggest that education continues to play a role in allaying fears and anxieties even among patients who have learned to live with B-cell NHL and who have been managing their disease for several years.

scholarly journals Elicitation of Health-related Quality-of-life Concepts Associated with Overactive Bladder: A Qualitative Study

10.36469/9816 ◽  
2016 ◽  
Vol 4 (2) ◽  
pp. 127-140 ◽  
Author(s):  
Natalia Hawken ◽  
Zalmai Hakimi ◽  
Samuel Aballéa ◽  
Jameel Nazir ◽  
Isaac A. O. Odeyemi ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Qualitative Study ◽  
Overactive Bladder ◽  
Conceptual Framework ◽  
Health Related Quality ◽  
Mental Functioning ◽  
Related Quality ◽  
Health Related ◽  
The Impact

Background: Overactive bladder (OAB) is a symptom-defined disorder. A range of instruments are available for assessing OAB symptom bother, urinary urgency and the effects of symptoms on health-related quality of life (HRQoL), but few have been specifically designed and validated for this condition. HRQoL instruments should capture the concepts that are most relevant to patients. To our knowledge, there is no existing published conceptual framework for OAB. Objectives: We performed a qualitative study to explore the impact of symptoms of OAB on affected patients and to develop a conceptual framework for OAB. Methods: Patients diagnosed with OAB living in the United Kingdom were interviewed on the telephone by a trained psychologist using an interview discussion guide. Interview transcripts were analyzed thematically by two psychologists. Data collection and analysis was completed when data saturation, i.e. when little or no new information was obtained, was achieved. Results: A total of 30 patients were interviewed. Fifteen patients (50%) had urge incontinence (i.e. OAB-wet). Interview data showed that OAB affected role functioning, sleep quality, social functioning, and emotional/mental functioning. In addition, patients often adopted non-medical coping strategies to manage their symptoms (e.g. planning activities). Factors which affected more than 50% of patients were going for a short walk, waking up at night, travelling/holidays, socializing/going out, embarrassment/shame, need to plan activities, and restriction of places visited. More patients with OAB-wet reported impairment of social and emotional/mental functioning than patients with OAB-dry. A conceptual framework for adults with OAB depicting the relationships between OAB concepts (or outcomes) was developed. Conclusions: OAB has a profound effect on patient HRQoL and negatively affects a broad range of functions, including daily and work activities, leisure and social activities, psychological well-being, and sleep capacity. The conceptual framework emerging from this study supports the utilization of existing disease-specific HRQoL instruments, but identifies that work-related effects, which are relevant for OAB patients, are missing from currently available measures.

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