A survey of National Cancer Institute-designated comprehensive cancer centers’ oral health supportive care practices and resources in the USA

2007 ◽  
Vol 15 (4) ◽  
pp. 357-362 ◽  
Author(s):  
Joel B. Epstein ◽  
Ira R. Parker ◽  
Matthew S. Epstein ◽  
Anurag Gupta ◽  
Susan Kutis ◽  
...  
Keyword(s):  
Oral Health ◽  
Supportive Care ◽  
National Cancer Institute ◽  
Cancer Centers ◽  
Comprehensive Cancer Centers ◽  
The Usa ◽  
Care Practices

Seventeen years of progress for supportive care services: A resurvey of National Cancer Institute–designated comprehensive cancer centers

2014 ◽  
Vol 13 (4) ◽  
pp. 917-925 ◽  
Author(s):  
Sheila L. Hammer ◽  
Karen Clark ◽  
Marcia Grant ◽  
Matthew J. Loscalzo
Keyword(s):  
Palliative Care ◽  
Supportive Care ◽  
National Cancer Institute ◽  
Advisory Council ◽  
Current Status ◽  
Distress Screening ◽  
Cancer Centers ◽  
Care Services ◽  
Comprehensive Cancer Centers ◽  
Question Survey

AbstractObjective:We replicated a 1994 study that surveyed the state of supportive care services due to changes in the field and the increased need for such services. We provide an updated assessment, comparing the changes that have occurred and describing the current status of supportive care services in comprehensive cancer settings.Method:We used Coluzzi and colleague's 60-question survey from their 1995 Journal of Clinical Oncology article to frame the 98-question survey employed in the current study. Medical and palliative care directors for the 2011 National Cancer Institute (NCI) comprehensive cancer centers were surveyed regarding their supportive care services and their subjective review of the overall effectiveness of the services provided.Results:We achieved a 76% response rate (n = 31). The data revealed increases in the number of cancer beds in the hospitals, the degree of integration of supportive care services, the availability of complementary services, and the number of pain and palliative care services offered. There was also an overall shift toward centers becoming more patient centered, as 65% reported now having a patient and family advisory council. Our findings revealed a growing trend to offer distress screening for both outpatients and inpatients. Medical and palliative care directors' evaluations of the supportive care services they offered also significantly improved. However, the results revealed an ongoing gap in services for end-of-life care and timely referrals for hospice services.Significance of results:Overall, both the quantity and quality of supportive care services in the surveyed NCI-designated cancer centers has improved.

Supportive care in cancer organization in France: State of the art.

2012 ◽  
Vol 30 (15_suppl) ◽  
pp. e19640-e19640
Author(s):  
Florian Scotte ◽  
Christian Herve ◽  
Roland Bugat ◽  
Fadila Farsi ◽  
Moise Namer ◽  
...  
Keyword(s):  
Palliative Care ◽  
Supportive Care ◽  
Cancer Centers ◽  
Treatment Side Effects ◽  
Comprehensive Cancer Centers ◽  
Medical Oncologists ◽  
French Speaking ◽  
The Mean ◽  
Pain Care ◽  
Mean Time

e19640 Background: Second Cancer Act was defined in France in December 2009 including enhancement of supportive care in Cancer (SCC). How are supportive care organized in France? Are patients informed about supportive treatment side effects? Methods: The AFSOS (French Speaking Association for Supportive Care in Cancer) conducted this observational study to evaluate practices, organizations and informations given to patients (pts) about SCC. Among 1621 french medical doctors (MD) caring cancer pts who were sent an adhoc questionnaire, 20% (330 MD including 44% medical oncologists) answered. Results: Three different organizations were described: Single MD, transversal team and specific structure specialized in global care (specifically developed in comprehensive cancer centers-CCC). Psycho-oncology, palliative care, nutrition and pain care were the four main items considered as supportive care. During their disease, 68% of pts are receiving SCC, presented by their MD (88%) or nurse devoted to announcement of disease and SCC information (57%). Supportive care is more dispensed during palliative period (90%) than at diagnosis (44%). Patients information is rather supplied during palliative care (85%) than at diagnosis (52%) using a specific questionnaire for outpatient (20%) or specific supportive care session (17%). 71% of cancer department have a cross team to provide supportive care, with specific SCC team particularly in CCC (62%; p=0.01)). 37% have inpatient specific units. Only 40% have a specific organization in home care connection, more in CCC than in public or private centers (respectively 69%, 45%, 20%; p=0.01). 73% use specific financial valorization of CSC activity. Adverse events information is dispensed to 54% of the pts for erythropoiesis stimulating agents (ASE), 74% for biphosphonates and 94% for opioids treatments, rather by medical oncologist than other specialists (p=0.01). Conclusions: Specific organization developed especially in comprehensive cancer centers seems to facilitate SCC organization and information to pts. In the mean time, recommendations include this information, involvement in supportive care team and methods have to be enhanced. Further results compared with patient point of views are expected.

Accessibility and Barriers to Oncology Appointments at 40 National Cancer Institute–Designated Comprehensive Cancer Centers: Results of a Mystery Shopper Project

2016 ◽  
Vol 12 (10) ◽  
pp. e884-e900 ◽  
Author(s):  
Geoffrey S. Hamlyn ◽  
Kathryn E. Hutchins ◽  
Abby L. Johnston ◽  
Rishonda T. Thomas ◽  
James Tian ◽  
...  
Keyword(s):  
National Cancer Institute ◽  
Small Sample Size ◽  
Private Insurance ◽  
Small Sample ◽  
Cancer Centers ◽  
Comprehensive Cancer Centers ◽  
Timely Access ◽  
Mystery Shopper ◽  
Appointment Availability ◽  
Mystery Shoppers

Purpose: Patients turn to National Cancer Institute (NCI) –designated comprehensive cancer centers because of perceived better quality and more timely access to care. However, recent studies have found that patients at various institutions may struggle to gain access to an appointment or obtain consistent information from attendants. Our study employs a mystery shopper format to identify and quantify barriers faced by patients seeking to make a first consultation appointment across a homogenous sample of 40 NCI-designated comprehensive cancer centers. Methods: Five mystery shoppers used a standardized call script to inquire about first available appointment times and service offerings. Results: When inquiring about a date for a first available appointment, 29% of callers were unable to secure an estimated date without registering into the center’s database, 51% were able to secure an estimated date, and 20% were provided with an actual date. Of estimated or actual dates for a first available appointment, 74% were greater than 1 week away. There was no statistically significant variation between appointment availability across insurance type or US region. Conclusion: Our study highlights the difficulty of accessing information about appointment availability. Although not statistically significant, inquiries regarding first available appointments for Medicaid patients resulted in longer estimated or actual wait times than those for patients with private insurance, and Medicaid shoppers noted qualitative differences. Although our study was limited by small sample size and imperfect analytic methods, our results suggest the need for more efficient and accessible care for patients at our nation’s top cancer centers.

scholarly journals Adherence to postresection colorectal cancer surveillance at National Cancer Institute-designated Comprehensive Cancer Centers

2018 ◽  
Vol 7 (11) ◽  
pp. 5351-5358 ◽  
Author(s):  
Sonia S. Kupfer ◽  
Sam Lubner ◽  
Emmanuel Coronel ◽  
Perry J. Pickhardt ◽  
Matthew Tipping ◽  
...  
Keyword(s):  
Colorectal Cancer ◽  
National Cancer Institute ◽  
Cancer Surveillance ◽  
Cancer Centers ◽  
Comprehensive Cancer Centers ◽  
Colorectal Cancer Surveillance

Survey of the provision of supportive care services at National Cancer Institute-designated cancer centers.

1995 ◽  
Vol 13 (3) ◽  
pp. 756-764 ◽  
Author(s):  
P H Coluzzi ◽  
M Grant ◽  
J H Doroshow ◽  
M Rhiner ◽  
B Ferrell ◽  
...  
Keyword(s):  
Supportive Care ◽  
National Cancer Institute ◽  
Cancer Control ◽  
The United States ◽  
Cancer Therapies ◽  
Industry Funding ◽  
Private Industry ◽  
Cancer Society ◽  
Cancer Centers ◽  
Care Services

PURPOSE The purpose of this survey was to determine the scope of supportive care services (SCS) designed to promote quality of life during cancer therapies at National Cancer Institute (NCI)-designated cancer centers. METHODS A survey was mailed to the medical directors and nursing directors of 52 NCI-designated comprehensive (n = 26), clinical (n = 11), and planning cancer centers (n = 15) in the United States. Only one survey was completed from each institution. Survey questions identified services provided such as pain management, terminal care, psychosocial programs, and spiritual care. RESULTS Thirty-nine questionnaires were received for a total response rate of 75%. Of the respondents, 45% were comprehensive cancer centers, 24% clinical cancer centers, and 29% planning centers. One center did not identify their NCI designation. Sixty-one percent of the centers reported research programs in supportive care. Outside funding was reported in 51% of the respondents, with 39% having American Cancer Society (ACS) or National Institutes of Health (NIH) funding and 28% having private industry funding. Overall SCS self-ratings improved from a 21% rating of excellent to very good 5 years ago to the current 54% rating. CONCLUSION Survey results provide data on SCS across a representative sample of NCI cancer centers and can be used to develop standards for future cancer control programs.

scholarly journals Special Convening and Listening Session on Health Equity and Community Outreach and Engagement at National Cancer Institute-Designated Comprehensive Cancer Centers

Health Equity ◽  
2021 ◽  
Vol 5 (1) ◽  
pp. 84-90
Author(s):  
Patricia M. Doykos ◽  
Moon S. Chen ◽  
Karriem Watson ◽  
Vida Henderson ◽  
Monica L. Baskin ◽  
...  
Keyword(s):  
Health Equity ◽  
National Cancer Institute ◽  
Community Outreach ◽  
Cancer Centers ◽  
Comprehensive Cancer Centers

scholarly journals National Survey of Oncologists at National Cancer Institute–Designated Comprehensive Cancer Centers: Attitudes, Knowledge, and Practice Behaviors About LGBTQ Patients With Cancer

2019 ◽  
Vol 37 (7) ◽  
pp. 547-558 ◽  
Author(s):  
Matthew B. Schabath ◽  
Catherine A. Blackburn ◽  
Megan E. Sutter ◽  
Peter A. Kanetsky ◽  
Susan T. Vadaparampil ◽  
...  
Keyword(s):  
National Survey ◽  
National Cancer Institute ◽  
Health Needs ◽  
Institutional Practices ◽  
Cancer Centers ◽  
Patients With Cancer ◽  
High Interest ◽  
Comprehensive Cancer Centers ◽  
Lgbtq Health ◽  
Attitudes And Knowledge

PURPOSE To identify potential gaps in attitudes, knowledge, and institutional practices toward lesbian, gay, bisexual, transgender, and queer/questioning (LGBTQ) patients, a national survey of oncologists at National Cancer Institute–Designated Comprehensive Cancer Centers was conducted to measure these attributes related to LGBTQ patients and desire for future training and education. METHODS A random sample of 450 oncologists from 45 cancer centers was selected from the American Medical Association’s Physician Masterfile to complete a survey measuring attitudes and knowledge about LGBTQ health and institutional practices. Results were quantified using descriptive and stratified analyses and by a novel attitude summary measure. RESULTS Of the 149 respondents, there was high agreement (65.8%) regarding the importance of knowing the gender identity of patients, which was contrasted by low agreement (39.6%) regarding the importance of knowing sexual orientation. There was high interest in receiving education regarding the unique health needs of LGBTQ patients (70.4%), and knowledge questions yielded high percentages of “neutral” and “do not know or prefer not to answer” responses. After completing the survey, there was a significant decrease ( P < .001) in confidence in knowledge of health needs for LGB (53.1% agreed they were confident during survey assessment v 38.9% postsurvey) and transgender patients (36.9% v 19.5% postsurvey). Stratified analyses revealed some but limited influence on attitudes and knowledge by having LGBTQ friends and/or family members, political affiliation, oncology specialty, years since graduation, and respondents’ region of the country. CONCLUSION This was the first nationwide study, to our knowledge, of oncologists assessing attitudes, knowledge, and institutional practices of LGBTQ patients with cancer. Overall, there was limited knowledge about LGBTQ health and cancer needs but a high interest in receiving education regarding this community.

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