scholarly journals The unfulfilled promise: a systematic review of interventions to reduce the unmet supportive care needs of cancer patients

2011 ◽  
Vol 20 (2) ◽  
pp. 207-219 ◽  
Author(s):  
Mariko Carey ◽  
Sylvie Lambert ◽  
Rochelle Smits ◽  
Chris Paul ◽  
Rob Sanson-Fisher ◽  
...  
Keyword(s):  
Systematic Review ◽  
Supportive Care ◽  
Cancer Patients ◽  
Supportive Care Needs ◽  
Care Needs

scholarly journals Psychosocial well-being and supportive care needs of cancer patients living in urban and rural/regional areas: a systematic review

2011 ◽  
Vol 20 (1) ◽  
pp. 1-22 ◽  
Author(s):  
Phyllis N. Butow ◽  
◽  
Fiona Phillips ◽  
Janine Schweder ◽  
Kate White ◽  
...  
Keyword(s):  
Systematic Review ◽  
Supportive Care ◽  
Cancer Patients ◽  
Well Being ◽  
Supportive Care Needs ◽  
Care Needs

scholarly journals A qualitative approach in determining the patient-centered information and supportive care needs of cancer patients in Singapore

BMJ Open ◽  
2020 ◽  
Vol 10 (2) ◽  
pp. e034178
Author(s):  
Gek Phin Chua ◽  
Hiang Khoon Tan
Keyword(s):  
Supportive Care ◽  
Cancer Patients ◽  
Quantitative Study ◽  
Information Needs ◽  
Supportive Care Needs ◽  
Research Approach ◽  
Detailed Knowledge ◽  
Care Needs ◽  
Treatment Unit ◽  
Ambulatory Treatment

ObjectivesTo qualitatively interpret the information and supportive care needs perceived by cancer patients undergoing treatment in order to get a deeper appreciation of patients’ needs and concerns. The intended outcome is to provide baseline knowledge for improving patient-centred strategies to better meet the information and supportive needs of patients.DesignA qualitative research approach, based on conventional content analysis, was used throughout the research process. The three open-ended questions obtained from a previous quantitative study guided the researchers to explore the information and supportive care needs of patients. Data from patients’ responses were analysed and coded in themes.Participants and settingPatients attending the Ambulatory Treatment Unit of the National Cancer Centre Singapore were invited to participate in the study. We determined from these subjects the type of information that cancer patients need, and to measure the extent to which these information needs are met by measuring patients’ level of satisfaction. Included in the quantitative study were three open-ended questions designed to gain a deeper understanding of their needs and concerns. All subjects were aged 21 years and above and able to understand and communicate in English/Mandarin. They were also aware of their diagnosis, they were not cognitively impaired and were not at the end-of-life situation.ResultsA variety of information and supportive care needs were identified, and three specific areas of concerns were identified: (1) psychosocial and supportive care needs, (2) information needs and (3) information delivery by professionals.ConclusionThe information and supportive care needs expressed were consistent with issues of cancer patients undergoing treatment. The strategies to improve patients’ coping abilities through patient-centred care are discussed. Further studies assessing the barriers of information provision by healthcare professionals should provide more detailed knowledge about unmet information needs.

scholarly journals Psychosocial Distress of Patients with Psoriasis: Protocol for an Assessment of Care Needs and the Development of a Supportive Intervention (Preprint)

2017 ◽  
Author(s):  
Jördis Maria Zill ◽  
Jörg Dirmaier ◽  
Matthias Augustin ◽  
Sarah Dwinger ◽  
Eva Christalle ◽  
...  
Keyword(s):  
Systematic Review ◽  
Supportive Care ◽  
Psychosocial Support ◽  
Meta Analysis ◽  
Phase 1 ◽  
Psychosocial Distress ◽  
Supportive Care Needs ◽  
Phase 2 ◽  
Care Needs ◽  
Supportive Intervention

BACKGROUND Psoriasis is a chronic inflammatory disease that is often associated with a number of somatic and mental comorbidity. Patients with psoriasis show an increased risk of depression and (social) anxiety. OBJECTIVE The aims of this study are 1) to explore the psychosocial distress of patients with psoriasis and to assess their care needs; and 2) to develop a supportive intervention based on the prior results. METHODS A multi-stage design with four phases combining quantitative and qualitative methodology will be used and conducted in two centers. 1) A scoping review and focus groups will be used to design a questionnaire to assess the psychosocial distress and care needs of the patients. 2) The questionnaire developed in phase 1 will be used in a cross-sectional survey to assess the extent of psychosocial distress and supportive care needs in 400 patients with psoriasis. 3) A systematic review and meta-analysis will be conducted to identify psychosocial and psychoeducational interventions for patients with psoriasis and to describe their effectiveness. 4) Based on the results of the phases 2 and 3 a manualized supportive intervention will be developed and the feasibility and acceptance of the intervention will be assessed. RESULTS Currently, phase 1 of the project has been completed and the recruitment for phase 2 has been started. The systematic review and meta-analysis of phase 3 are conducted simultaneously to phase 2 and results are expected soon. Phase 4 has not been started yet. CONCLUSIONS The expected results of this study will show the extent of psychosocial distress of patients with psoriasis in Germany and supplement previous research with findings about the supportive care needs of this patient group. Moreover, the developed intervention will help to address the psychosocial support needs of patients with psoriasis. Research shows that psychosocial support is strongly needed.

scholarly journals Course and predictors of supportive care needs among Mexican breast cancer patients: A longitudinal study

2018 ◽  
Vol 27 (9) ◽  
pp. 2132-2140 ◽  
Author(s):  
Adriana Pérez-Fortis ◽  
Joke Fleer ◽  
Maya J. Schroevers ◽  
Patricia Alanís López ◽  
Juan José Sánchez Sosa ◽  
...  
Keyword(s):  
Breast Cancer ◽  
Longitudinal Study ◽  
Supportive Care ◽  
Cancer Patients ◽  
Supportive Care Needs ◽  
Breast Cancer Patients ◽  
Care Needs

Unmet supportive care needs and predictor of breast cancer patients in Bangladesh: A cross-sectional study

2021 ◽  
pp. 107815522110391
Author(s):  
Sujana H Chowdhury ◽  
Bilkis Banu ◽  
Nasrin Akter ◽  
Sarder M Hossain
Keyword(s):  
Breast Cancer ◽  
Supportive Care ◽  
Cancer Patients ◽  
Unmet Needs ◽  
Cross Sectional Study ◽  
Supportive Care Needs ◽  
Breast Cancer Patients ◽  
Sectional Study ◽  
Care Needs ◽  
Cross Sectional

Background Breast cancer survivor goes through a period of needs in their post-treatment daily life. Relatively few studies have been conducted to understand the unmet needs among breast cancer survivors in Bangladesh. Recognize and measure patterns and predictors of unmet needs of breast cancer patients was the aim of the study. Objective To identify and measure patterns and predictors of unmet needs of breast cancer patients in Bangladesh. Method A cross-sectional study among 138 breast cancer patients; conveniently selected from two public and two private cancer institutes. Face-to-face interview for data collection and medical record review for checklist was done. Unmet needs have been determined by the supportive care needs survey short form 34 scale. Logistic regression analyses were performed to identify the predictors of unmet needs. Results The study indicated the top 10 moderate-to-high needs; among which the top five needs were from the information need domain. Surprisingly, private cancer treatment centers were identified as a significant predictor for unmet needs. Patients from private cancer institutes reported more explanation needs as well as needs with their physical and daily living and sexuality. Furthermore, the type of treatment like patient receiving combine treatment therapy reported more need for help compared to the patient receiving chemotherapy alone. Moreover, housewives reported the low need for patient care and support systems as a result of their reluctant behavior towards their health. Conclusion Individual’s unmet need assessment should be a part of every treatment protocol of breast cancer for a better treatment outcome.

scholarly journals ‘Haematological cancers, they’re a funny bunch’: A qualitative study of non-Hodgkin’s lymphoma patient experiences of unmet supportive care needs

2016 ◽  
Vol 23 (11) ◽  
pp. 1464-1475 ◽  
Author(s):  
Brooke Swash ◽  
Nick Hulbert-Williams ◽  
Ros Bramwell
Keyword(s):  
Qualitative Study ◽  
Supportive Care ◽  
Cancer Patients ◽  
Hodgkin’S Lymphoma ◽  
Information Needs ◽  
Supportive Care Needs ◽  
Hodgkin's Lymphoma ◽  
Care Needs ◽  
Non Hodgkin’S Lymphoma ◽  
Non Hodgkin's Lymphoma

Despite high levels of psychological distress, there is a scarcity of research on unmet supportive care needs in haematological cancer patients. This qualitative study used an in-depth interpretative phenomenological approach to investigate the needs reported by six non-Hodgkin’s lymphoma patients and explored how these needs consequently shaped the patient experience. Emergent themes included the following: concerns for family, information needs and the need for psychological support. Participants reported feeling different to other cancer patients. Lack of understanding of their diagnosis by friends and family and lack of access to relevant support services are notable unmet needs that differ from previous findings.

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