Barriers to seeking psychosocial support among adult patients with hematologic neoplasms: a qualitative study

Author(s):  
Mengting Xie ◽  
Chunfeng Wang ◽  
Jingyi Chen ◽  
Ying Wang ◽  
Xiaoxia Wu ◽  
...  
2021 ◽  
pp. 026921632110002
Author(s):  
Ping Guo ◽  
Sawsan Alajarmeh ◽  
Ghadeer Alarja ◽  
Waleed Alrjoub ◽  
Ayman Al-Essa ◽  
...  

Background: Although palliative care is now an essential health service under Universal Health Coverage, ensuring access and appropriate care for refugees is a specific challenge for this large population. Aim: To identify the needs and experiences of adult refugees in Jordan with advanced cancer and informal caregivers. Design: A qualitative study using semi-structured interviews. Setting/participants: Participants were purposively sampled at two Jordanian hospitals to achieve heterogeneity by age, gender, country of origin, and primary diagnosis. Results: Twenty-nine refugees (22 patients, 7 caregivers) participated, and four themes were generated: (1) Psychological distress and sustaining social support. Refugees often experienced unmet psychosocial needs. However, psychosocial support was reported either absent or limited. (2) Knowledge and uncertainty. Lack of information and poor communication between healthcare providers and patients caused significant distress due to uncertainty. (3) Family anxiety and support roles. Being away from the home country cut patients and caregivers off from their wider social support network, which added increased anxiety and responsibilities to caregivers. (4) Compounded trauma and poverty. Many refugees have experienced trauma related to war that may affect their physical and mental health. They faced serious financial crises caused by the rising cost of medicines and treatment. Conclusions: This study reveals the impact of fractured families and networks on social support in advanced cancer, and the compounding trauma of the disease for refugees. Detailed person-centred assessment and emphasis on psychosocial support is essential, and home-based care should not presume community support for patients to remain at home.


Author(s):  
Clare E. Brown ◽  
Christina J. Jones ◽  
Laura Stuttaford ◽  
Annalee Robertson ◽  
Rabia S. Rashid ◽  
...  

2014 ◽  
Vol 21 (1) ◽  
pp. 16-27 ◽  
Author(s):  
Vivien Smith ◽  
Zoe Chouliara ◽  
Paul G Morris ◽  
Paula Collin ◽  
Kevin Power ◽  
...  

Injury ◽  
2019 ◽  
Vol 50 (5) ◽  
pp. 1082-1088
Author(s):  
Kim Foster ◽  
Rebecca Mitchell ◽  
Alexandra Young ◽  
Connie Van ◽  
Kate Curtis

Salud Mental ◽  
2021 ◽  
Vol 44 (4) ◽  
pp. 167-175
Author(s):  
Ietza Bojórquez ◽  
Olga Odgers-Ortiz ◽  
Olga L. Olivas-Hernández

Introduction. Migrants could be at increased risk of the psychosocial and mental health consequences of the COVID-19 pandemic. Research is needed to assess their needs and the most useful interventions in this regard. Objective. To describe the mental health consequences of the pandemic and lockdown measures among migrants living in shelters in Tijuana, Mexico, during the COVID-19 pandemic, barriers to mental healthcare during this period, and the key elements of psychosocial support provided by civil society organizations (CSOs), as described by shelters’ staff. Method. In April-May 2020, we conducted a rapid qualitative study through interviews with persons providing services at eight migrant shelters, complementing the information with data from an ongoing ethnographic project. We situated the results within the levels of the United Nations’ Inter-Agency Standing Committee (IASC) pyramid of psychosocial and mental health support. Results. In addition to fear of contagion and economic insecurity, migrants experienced emotional distress associated with hardening migration policies, and the difficulties of having to find shelter in place in non-private spaces. Some CSOs continued or adapted previous psychosocial support activities, helping migrants navigate these issues, but other activities stopped amidst physical distancing measures and because of limited resources. Migrants themselves implemented some group activities. There was a surge of civil society initiatives of online support, but some shelters laeked the technological and other resources to benefit from them. Discussion and conclusion. Migrants require a tailor made response to their mental health needs in the COVID-19 pandemic, such as the one provided by CSOs.


2015 ◽  
Vol 74 (Suppl 2) ◽  
pp. 1327.2-1327
Author(s):  
L.W. Poh ◽  
S. W.-C. Chan ◽  
C.S.C. Lee ◽  
M. Lahiri ◽  
A. Mak ◽  
...  

2019 ◽  
Vol 19 (1) ◽  
Author(s):  
Nicola Gailits ◽  
Kaaren Mathias ◽  
Elysée Nouvet ◽  
Pooja Pillai ◽  
Lisa Schwartz

Sign in / Sign up

Export Citation Format

Share Document