“A gift from heaven” or “This was not for me”. A mixed methods approach to describe experiences of participation in an outsourced physical activity program for persons with rheumatoid arthritis

2014 ◽  
Vol 34 (3) ◽  
pp. 429-439 ◽  
Author(s):  
Ingrid Demmelmaier ◽  
Åsa Lindkvist ◽  
Birgitta Nordgren ◽  
Christina H. Opava
2020 ◽  
Vol 17 ◽  
Author(s):  
Rachel C. Whooten ◽  
Christine Horan ◽  
Jack Cordes ◽  
Anna Nicole Dartley ◽  
Annabelle Aguirre ◽  
...  

2021 ◽  
Vol 8 ◽  
Author(s):  
David Hupin ◽  
Philip Sarajlic ◽  
Ashwin Venkateshvaran ◽  
Cecilia Fridén ◽  
Birgitta Nordgren ◽  
...  

Background: Chronic inflammation leads to autonomic dysfunction, which may contribute to the increased risk of cardiovascular diseases (CVD) in patients with rheumatoid arthritis (RA). Exercise is known to restore autonomic nervous system (ANS) activity and particularly its parasympathetic component. A practical clinical tool to assess autonomic function, and in particular parasympathetic tone, is heart rate recovery (HRR). The aim of this substudy from the prospective PARA 2010 study was to determine changes in HRR post-maximal exercise electrocardiogram (ECG) after a 2-year physical activity program and to determine the main predictive factors associated with effects on HRR in RA.Methods: Twenty-five participants performed physiotherapist-guided aerobic and muscle-strengthening exercises for 1 year and were instructed to continue the unsupervised physical activity program autonomously in the next year. All participants were examined at baseline and at years 1 and 2 with a maximal exercise ECG on a cycle ergometer. HRR was measured at 1, 2, 3, 4, and 5 min following peak heart rate during exercise. Machine-learning algorithms with the elastic net linear regression models were performed to predict changes in HRR1 and HRR2 at 1 year and 2 years of the PARA program.Results: Mean age was 60 years, range of 41–73 years (88% women). Both HRR1 and HRR2 increased significantly from baseline to year 1 with guided physical activity and decreased significantly from year 1 to year 2 with unsupervised physical activity. Blood pressure response to exercise, low BMI, and muscular strength were the best predictors of HRR1/HRR2 increase during the first year and HRR1/HRR2 decrease during the second year of the PARA program.Conclusion: ANS activity in RA assessed by HRR was improved by guided physical activity, and machine learning allowed to identify predictors of the HRR response at the different time points. HRR could be a relevant marker of the effectiveness of physical activity recommended in patients with RA at high risk of CVD. Very inactive and/or high CVD risk RA patients may get substantial benefits from a physical activity program.


2021 ◽  
Vol 5 (1) ◽  
pp. 428
Author(s):  
Yeni Elviani ◽  
Zuraidah S. ◽  
Wahyu Dwi Ari Wibowo

ABSTRAKRheumatoid arthritis (RA) merupakan permasalahan sistem muskuloskeletal yang paling banyak terjadi di seluruh dunia, dampak dari RA menyebabkan gangguan kenyamanan, nyeri, keterbatasan mobilitas sampai dengan resiko kecacatan dan kelumpuhan. Program aktifitas fisik yang efektif sangat direkomendasikan bagi penderita RA adalah senam rematik yang sudah terbukti mampu mengurangi skala nyeri bagi para penderita RA. Berdasarkan studi pendahuluan ternyata penderita RA belum mengetahui cara melakukan senam rematik untuk mengurangi nyeri sendi. Sehingga pengenalan dan pemeberian senam rematik bagi para penderita RA wilayah kerja Puskesmas Pulau Pinang perlu untuk dilakukan sebagai program aktifitas fisik yang diharapkan mampu menurungkan skala nyeri bagi para penderita RA. Metode yang dilakukkan adalah melakukan studi pendahuluan, bekerjasama dengan tenaga kesehatan, tokoh masyarakat dan kader yang ada di wilayah Puskesmas Pulau Pinang, pelaksanaan kegiatan dengan memberikan pelatihan dengan cara menonton video dan praktek secara langsung senam rematik, selanjutnya dlakukan pemantaun sebelum dan sesudah intervensi dengan menggunakan lembar observasi Numerical Rating scale (NRS). Hasilnya setelah diberikan senam rematik selama 1 bulan, dengan 1x kegiatan setiap minggu dengan durasi 8 menit, terjadi penurunan skala nyeri 15 orang peserta yang mengalami nyeri sedang menjadi nyeri ringan. Senam rematik mampu mempengaruhi kerja cerebral cortex meliputi aspek kognitif maupun emosi, sehingga dapat memberikan persepsi positif dan relaksasi, yang berdampak pada perasaan bahagia dan mengurangi nyeri. Kata Kunci : senam rematik; rheumatoid arthritis; nyeri; komunitas. ABSTRACT Rheumatoid arthritis (RA) is the most common musculoskeletal system problem worldwide, the impact of RA causing discomfort, pain, limited mobility, and the risk of disability and paralysis. An effective physical activity program highly recommended for RA sufferers is rheumatic gymnastics, which has been proven to reduce pain scales for RA sufferers. Based on preliminary studies, RA patients do not know how to do rheumatic gymnastics to reduce joint pain. The introduction and intervention of rheumatic gymnastics for patients with RA in the Pulau Pinang Health Center need to be carried out as a physical activity program to reducing the pain scale for the sufferer of RA. The method used is conducting a preliminary study, collaboration with health workers, community leaders, and cadres in the Pulau Pinang Health Center area, implementing activities by providing training by watching videos and practicing rheumatic gymnastic, and then monitoring before and after the intervention using Numerical Rating scale (NRS) observation. The result was that after being given rheumatic exercise for one month, with one activity per week in 8 minutes duration, there was a decrease in the pain scale of 15 participants who experienced moderate pain to mild pain. Rheumatic gymnastics can affect the work of the cerebral cortex, including cognitive and emotional aspects, providing positive perceptions and relaxation, which has an impact on feelings of happiness and reduces pain. Keywords: rheumatic gymnastics; rheumatoid arthritis; pain; community. 


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