scholarly journals To which extent do breast cancer survivors feel well informed about disease and treatment 5 years after diagnosis?

2020 ◽  
Author(s):  
S. L. Herbert ◽  
◽  
A. Wöckel ◽  
R. Kreienberg ◽  
T. Kühn ◽  
...  
Keyword(s):  
Breast Cancer ◽  
Health Care Providers ◽  
Information Needs ◽  
Breast Cancer Survivors ◽  
General Information ◽  
Care Providers ◽  
Breast Cancer Patients ◽  
Linear Regression Models ◽  
Written Information ◽  
Medical Tests

Abstract Objective In this study, we investigated to which extent patients feel well informed about their disease and treatment, which areas they wish more or less information and which variables are associated with a need for information about the disease, medical tests and treatment. Methods In a German multi-centre prospective study, we enrolled 759 female breast cancer patients at the time of cancer diagnosis (baseline). Data on information were captured at 5 years after diagnosis with the European Organisation for Research and Treatment of Cancer (EORTC) Information Module (EORTC QLQ-INFO24). Good information predictors were analysed using linear regression models. Results There were 456 patients who participated at the 5-year follow-up. They reported to feel well informed about medical tests (mean score 78.5) and the disease itself (69.3) but relatively poorly about other services (44.3) and about different places of care (31.3). The survivors expressed a need for more information concerning: side effects and long-term consequences of therapy, more information in general, information about aftercare, prognosis, complementary medicine, disease and therapy. Patients with higher incomes were better informed about medical tests (β 0.26, p 0.04) and worse informed with increasing levels of fear of treatment (β − 0.11, p 0.02). Information about treatment was reported to be worse by survivors > 70 years old (β -0.34, p 0.03) and by immigrants (β -0.11, p 0.02). Survivors who had received additional written information felt better informed about disease, medical tests, treatment and other services (β 0.19/0.19/0.20/0.25; each p < 0.01). Conclusion Health care providers have to reconsider how and what kind of information they provide. Providing written information, in addition to oral information, may improve meeting those information needs.

Development of a decision aid for young canadians diagnosed with breast cancer who are at risk of infertility following cancer treatment.

2017 ◽  
Vol 35 (5_suppl) ◽  
pp. 108-108
Author(s):  
Brittany Speller ◽  
Marcia Facey ◽  
Amanda Sissons ◽  
Corinne Daly ◽  
Erin Diane Kennedy ◽  
...  
Keyword(s):  
Breast Cancer ◽  
Decision Support ◽  
Cancer Patients ◽  
Health Care Providers ◽  
Decision Aid ◽  
Breast Cancer Survivors ◽  
Care Providers ◽  
Breast Cancer Patients ◽  
Support Resources ◽  
Young Breast Cancer

108 Background: Young breast cancer patients are at risk of temporary or permanent infertility following the administration of gonadotoxic cancer treatments. Currently patients do not feel they receive enough information to make informed fertility decisions before treatment. We aim to determine the fertility-related information health care providers and breast cancer survivors consider valuable to include in a Canadian decision aid (Can-DA) for young breast cancer patients by reviewing existing decision support resources. Methods: A qualitative descriptive approach was used to evaluate 6 decision support resources created in other jurisdictions. Using purposeful sampling, 8 multi-disciplinary health care providers and 8 breast cancer survivors from across Canada evaluated 1 to 2 decision support resources in structured interviews. Interviews were conducted in-person and by telephone from March to June 2016 and ranged in length from 30 to 90 minutes. Interviews were transcribed verbatim, organized in NVivo, and analyzed deductively using the pre-defined sections of the interview guide as a framework. Results: Each decision support resource had valuable components to adapt for the Can-DA. Participants valued the inclusion of Canadian-specific and accurate information on resources for additional support and the success rates and cost ranges of fertility preservation procedures. There were mixed views on the impact and value of including in-depth fertility information such as adoption and other fertility-related options after treatment. Discrepancies were also seen on the value of personal stories and an explicit values clarification exercise. There was consensus on the inclusion of only pertinent fertility-related information that does not replicate information in supplementary patient education material to avoid overwhelming patients. Conclusions: The evaluation provided valuable insight on the information and design features to consider for the Can-DA. Findings will be used in combination with the International Patient Decision Aid Standards criteria to ensure the Can-DA meets the fertility information needs of young breast cancer patients in Canada.

scholarly journals Perceived Barriers to Early Diagnosis of Breast Cancer in South and South Western Ethiopia: a qualitative study

2019 ◽  
Author(s):  
Sefonias Getachew ◽  
Aragaw Tesfaw ◽  
Mirgissa Kaba ◽  
Andreas Wienke ◽  
Lesley Taylor ◽  
...  
Keyword(s):  
Breast Cancer ◽  
Health Care ◽  
Early Diagnosis ◽  
Health Care Providers ◽  
Rural Areas ◽  
Diagnostic Tests ◽  
Perceived Barriers ◽  
Care Providers ◽  
Breast Cancer Patients ◽  
Southwestern Ethiopia

Abstract Background Early diagnosis is a key determinant of breast cancer prognosis and survival. More than half of breast cancer cases are diagnosed at an advanced stage in Ethiopia, and the barriers to early diagnosis in this country are not well understood. We aimed to identify the perceived barriers to early diagnosis of breast cancer from the perspective of patients and health care providers in south and southwestern Ethiopia. Methods A qualitative study was conducted from March to April 2018 using in-depth interviews of breast cancer patients and breast cancer health care providers from six public hospitals located in urban and rural areas of south and southwestern Ethiopia. All participants proved verbal consent before participating. A thematic analysis was performed using Open Code 4.02. Results Twelve breast cancer patients and thirteen health care providers were included in the study. Patient and health-system related barriers to early diagnosis of breast cancer were identified. Patient-related barriers were lack of knowledge and awareness of breast cancer, belief in traditional medicine and religious practices for treatment, and lack of social and financial support to seek care at a medical facility. Health-system related barriers were misdiagnosis of breast cancer, long distance to referral facilities, high cost of diagnostic services, long waiting time for diagnostic tests, and lack of screening and diagnostic tests in local facilities. Conclusions Early diagnosis of breast cancer is affected by multiple barriers in south and southwestern Ethiopia. Awareness campaigns and education about the disease, prevention, and early detection are needed to increase early diagnosis of breast cancer. Opportunities exist to improve early diagnosis and timely treatment in rural areas.

scholarly journals Perceived Barriers to Early Diagnosis of Breast Cancer in South and South Western Ethiopia: a qualitative study

2019 ◽  
Author(s):  
Sefonias Getachew ◽  
Aragaw Tesfaw ◽  
Mirgissa Kaba ◽  
Andreas Wienke ◽  
Lesley Taylor ◽  
...  
Keyword(s):  
Breast Cancer ◽  
Health Care ◽  
Early Diagnosis ◽  
Health Care Providers ◽  
Rural Areas ◽  
Diagnostic Tests ◽  
Perceived Barriers ◽  
Care Providers ◽  
Breast Cancer Patients ◽  
Southwestern Ethiopia

Abstract Background Early diagnosis is a key determinant of breast cancer prognosis and survival. More than half of breast cancer cases are diagnosed at an advanced stage in Ethiopia, and the barriers to early diagnosis in this country are not well understood. We aimed to identify the perceived barriers to early diagnosis of breast cancer from the perspective of patients and health care providers in south and southwestern Ethiopia. Methods A qualitative study was conducted from March to April 2018 using in-depth interviews of breast cancer patients and breast cancer health care providers from six public hospitals located in urban and rural areas of south and southwestern Ethiopia. All participants proved verbal consent before participating. A thematic analysis was performed using Open Code 4.02. Results Twelve breast cancer patients and thirteen health care providers were included in the study. Patient and health-system related barriers to early diagnosis of breast cancer were identified. Patient-related barriers were lack of knowledge and awareness of breast cancer, belief in traditional medicine and religious practices for treatment, and lack of social and financial support to seek care at a medical facility. Health-system related barriers were misdiagnosis of breast cancer, long distance to referral facilities, high cost of diagnostic services, long waiting time for diagnostic tests, and lack of screening and diagnostic tests in local facilities. Conclusions Early diagnosis of breast cancer is affected by multiple barriers in south and southwestern Ethiopia. Awareness campaigns and education about the disease, prevention, and early detection are needed to increase early diagnosis of breast cancer. Opportunities exist to improve early diagnosis and timely treatment in rural areas.

scholarly journals Social Relationships and Its Association With Affective Symptoms of Women With Breast Cancer: a Scoping Review

2021 ◽  
Author(s):  
Yesol Yang ◽  
Yufen Lin ◽  
Grace Sikapokoo ◽  
Se Hee Min ◽  
Nicole Caviness-Ashe ◽  
...  
Keyword(s):  
Breast Cancer ◽  
Cancer Patients ◽  
Social Relationships ◽  
Health Care Providers ◽  
Scoping Review ◽  
Sample Type ◽  
Cognitive Symptoms ◽  
Care Providers ◽  
Breast Cancer Patients ◽  
Affective Symptoms

Abstract Background: Problems in affective and cognitive functioning are among the most common concurrent symptoms that breast cancer patients report. Social relationships may provide some explanations of the clinical variability in affective-cognitive symptoms. Evidence suggests that social relationships (functional and structural aspects) can be associated with patients’ affective-cognitive symptoms; however, such an association has not been well studied in the context of breast cancer. The purpose of this scoping review was to address the following question: What social relationships are associated with affective-cognitive symptoms of women with breast cancer? This scoping review used the framework proposed by Arksey and O’Malley and PRISMA-Sc. Extracted data included research aims, design, sample, type and measures of social relationships (functional and structural), and the association between social relationships and affective-cognitive symptoms. Results: Of sixty-five included studies, none of them focused on cognitive symptoms of breast cancer patients; thus, in this review, we focused on only the affective symptoms of breast cancer patients and their association with patients’ both aspects of social relationships. Conclusion: Our findings reveal that positive social relationships benefit in mitigating affective symptoms of women with breast cancer. Thus, health care providers need to educate patients about the importance of building solid social relationships and encourage them to participate in a supportive network of friends and family members.

Discrimination and quality of life among breast cancer survivors.

2016 ◽  
Vol 34 (3_suppl) ◽  
pp. 250-250 ◽  
Author(s):  
Scarlett Lin Gomez ◽  
Felisa A Gonzales ◽  
Salma Shariff-Marco ◽  
Laura A Dwyer ◽  
Amani Nuru-Jeter
Keyword(s):  
Breast Cancer ◽  
Quality Of Life ◽  
Breast Cancer Survivors ◽  
White Women ◽  
Summary Score ◽  
Breast Cancer Patients ◽  
Linear Regression Models ◽  
Race Ethnicity ◽  
Education Groups

250 Background: We examined the role of race/ethnicity, education, and medical discrimination on global and breast cancer-specific (BCS) quality of life (QoL). Methods: Telephone interviews were administered to 536 Asian, Black, Hispanic and White women identified through the Greater Bay Area Cancer Registry who were aged 20+ when diagnosed with a first invasive primary breast cancer between 2006 and 2009. Women reported perceptions of discriminatory experiences while receiving breast cancer care. QoL was assessed with a single item asking about global QoL over the past 4 weeks ( “excellent” vs “less than excellent”) and a summary score for the 6-item breast cancer subscale of the FACT-B (higher scores indicated more concerns (or worse QoL)). Race/ethnicity and education were combined into an 8-category variable (4 race/ethnic groups x 2 education groups). Psychometric analyses was used to create a summed medical discrimination score using 7 items that comprised a single factor, and split into tertiles to indicate no, low, and moderate/high levels of discrimination. Main effects for race/ethnicity x education and medical discrimination were identified using logistic and linear regression models. Adjusted analyses controlled for age, marital status, health insurance, stage, histology, and tumor size. Results: In adjusted analyses, disparities across combined race/ethnicity x education groups were observed for global QoL (Wald χ2(7) = 23.32, p < 0.01) but not for BCS QoL (F= 0.78, p= 0.60). Black and Asian women reported lower global QoL than college-educated White women. Medical discrimination was related to global (Wald χ2(2) = 6.98, p= 0.03) and BCS QoL (F= 6.14, p< 0.01). Women reporting moderate/high levels of medical discrimination had significantly lower odds of excellent QoL (OR= 0.416, p< 0.01) and more breast cancer concerns (β= 1.19, t= 3.50, p< 0.001) than women reporting no discrimination. Conclusions: Medical discrimination was associated with lower global and BCS QoL. More research is needed to identify specific factors at the individual, provider, and organizational levels that contribute to perceptions of medical discrimination so that they can be addressed and QoL can be improved for breast cancer patients.

Physical Activity and Breast Cancer Survivorship

2011 ◽  
Vol 6 (3) ◽  
pp. 224-240 ◽  
Author(s):  
Jennifer Brunet ◽  
Catherine M. Sabiston ◽  
Sarkis Meterissian
Keyword(s):  
Breast Cancer ◽  
Physical Activity ◽  
Health Care ◽  
Cancer Survivors ◽  
Health Care Providers ◽  
Breast Cancer Survivors ◽  
Health Behavior Change ◽  
Care Providers ◽  
Physical Activity Counseling ◽  
Activity Counseling

The completion of primary treatment for breast cancer has been referred to as a “teachable moment” for health behavior change, suggesting that women are receptive to receiving physical activity counseling. However, the majority of breast cancer survivors are not sufficiently active. Health care providers may play a pivotal role in increasing patients’ physical activity behavior, yet physician counseling for physical activity is not done regularly. One reason for this failure may relate to the limited guidelines put forward to assist health care providers in how best to optimize the benefits of physical activity among breast cancer survivors. To help provide guidelines for physical activity counseling with breast cancer survivors, the authors synthesized evidence-based recommendations based on a review of 30 intervention studies. The evidence on (1) type, (2) intensity, and (3) frequency and duration of physical activity for this population was examined. On the basis of the reviewed studies, the authors find that physical activity programs for breast cancer survivors should include aerobic training at least 3 times/wk for 30 minutes, resistance training 2 to 3 times/wk (6-12 exercises), and flexibility training 3 times/wk for 50 to 60 minutes to obtain health benefits. The provision of these recommendations may facilitate effective and consistent delivery of physical activity counseling to breast cancer survivors.

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