Lived Experiences of Diagnostic Shifts in Child and Adolescent Mental Health Contexts: a Qualitative Interview Study with Young People and Parents

ObjectivesTo explore the perceptions of Aboriginal Community Controlled Health Service (ACCHS) staff involved in providing mental healthcare to Aboriginal young people of the current and ideal pathways to mental healthcare for urban Aboriginal young people attending ACCHSs, and to identify what additional supports staff may need to provide optimal mental healthcare to Aboriginal young people.DesignQualitative interview study conducted during May 2016–2017.SettingPrimary care, at two ACCHSs participating in the Study of Environment on Aboriginal Resilience and Child Health in New South Wales.ParticipantsPurposive sampling of staff involved in mental healthcare pathways of Aboriginal young people, including general practitioners (GPs), nurses and Aboriginal Health Workers (AHWs).ResultsAll individuals approached for interview (n=21) participated in the study. Four overarching themes and seven sub-themes were identified: availability and use of tools in practice (valuing training and desire for tools and established pathways), targeting the ideal care pathway (initiating care and guiding young people through care), influencing the care pathway (adversities affecting access to care and adapting the care pathway) and assessing future need (appraising service availability).ConclusionsParticipants desired screening tools, flexible guidelines and training for healthcare providers to support pathways to mental healthcare for Aboriginal young people. Both GPs and AHWs were considered key in identifying children at risk and putting young people onto a pathway to receive appropriate mental healthcare. AHWs were deemed important in keeping young people on the care pathway, and participants felt care pathways could be improved with the addition of dedicated child and adolescent AHWs. The ACCHSs were highlighted as essential to providing culturally appropriate care for Aboriginal young people experiencing mental health problems, and funding for mental health specialists to be based at the ACCHSs was considered a priority.

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How has the COVID‐19 pandemic affected eczema self‐management and help seeking? A qualitative interview study with young people and parents/carers of children with eczema

Skin Health and Disease ◽

10.1002/ski2.59 ◽

2021 ◽

Author(s):

M. Steele ◽

L. Howells ◽

M. Santer ◽

K. Sivyer ◽

S. Lawton ◽

...

Keyword(s):

Young People ◽

Help Seeking ◽

Qualitative Interview ◽

Interview Study ◽

Self Management ◽

Qualitative Interview Study

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Therapeutic relationships within child and adolescent mental health inpatient services: A qualitative exploration of the experiences of young people, family members and nursing staff

PLoS ONE ◽

10.1371/journal.pone.0262070 ◽

2022 ◽

Vol 17 (1) ◽

pp. e0262070

Author(s):

Samantha Hartley ◽

Tomos Redmond ◽

Katherine Berry

Keyword(s):

Mental Health ◽

Young People ◽

Nursing Staff ◽

Family Members ◽

Adolescent Mental Health ◽

Child And Adolescent ◽

Therapeutic Relationships ◽

Staff Support ◽

Inpatient Services ◽

Qualitative Exploration

Child and adolescent mental health services (CAMHS), especially inpatient units, have arguably never been more in demand and yet more in need of reform. Progress in psychotherapy and more broadly in mental health care is strongly predicted by the therapeutic relationship between professional and service user. This link is particularly pertinent in child and adolescent mental health inpatient services where relationships are especially complex and difficult to develop and maintain. This article describes a qualitative exploration of the lived experienced of 24 participants (8 young people, 8 family members/carers and 8 nursing staff) within inpatient CAMHS across four sites in the UK. We interviewed participants individually and analysed the transcripts using thematic analysis within a critical realist framework. We synthesised data across groups and present six themes, encapsulating the intricacies and impact of therapeutic relationships; their development and maintenance: Therapeutic relationships are the treatment, Cultivating connection, Knowledge is power, Being human, The dance, and It’s tough for all of us in here. We hope these findings can be used to improve quality of care by providing a blueprint for policy, training, systemic structures and staff support.

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How Do Young People with Cystic Fibrosis Conceptualize the Distinction Between Research and Treatment? A Qualitative Interview Study

AJOB Empirical Bioethics ◽

10.1080/23294515.2014.997898 ◽

2015 ◽

Vol 6 (4) ◽

pp. 1-11 ◽

Cited By ~ 5

Author(s):

Jennifer A. Dobson ◽

Emily Christofides ◽

Melinda Solomon ◽

Valerie Waters ◽

Kieran O’Doherty

Keyword(s):

Cystic Fibrosis ◽

Young People ◽

Qualitative Interview ◽

Interview Study ◽

Qualitative Interview Study

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Incidence of anorexia nervosa in young people in the UK and Ireland: a national surveillance study

BMJ Open ◽

10.1136/bmjopen-2018-027339 ◽

2019 ◽

Vol 9 (10) ◽

pp. e027339 ◽

Cited By ~ 2

Author(s):

Hristina Petkova ◽

Mima Simic ◽

Dasha Nicholls ◽

Tamsin Ford ◽

A Matthew Prina ◽

...

Keyword(s):

Mental Health ◽

Anorexia Nervosa ◽

Mental Health Services ◽

Young People ◽

Health Services ◽

Young Women ◽

Adolescent Mental Health ◽

Child And Adolescent ◽

Surveillance Study ◽

The Uk

ObjectivesThis study aimed to estimate the incidence of DSM5 anorexia nervosa in young people in contact with child and adolescent mental health services in the UK and Ireland.DesignObservational, surveillance study, using the Child and Adolescent Psychiatry Surveillance System, involving monthly reporting by child and adolescent psychiatrists between 1st February 2015 and 30th September 2015.SettingThe study was based in the UK and Ireland.ParticipantsClinician-reported data on young people aged 8–17 in contact with child and adolescent mental health services for a first episode of anorexia nervosa.Main outcome measuresAnnual incidence rates (IRs) estimated as confirmed new cases per 100 000 population at risk.Results305 incident cases of anorexia nervosa were reported over the 8-month surveillance period and assessed as eligible for inclusion. The majority were young women (91%), from England (70%) and of white ethnicity (92%). Mean age was 14.6 years (±1.66) and mean percentage of median expected body mass index for age and sex was 83.23% (±10.99%). The overall IR, adjusted for missing data, was estimated to be 13.68 per 100 000 population (95% CI 12.88 to 14.52), with rates of 25.66 (95% CI 24.09 to 27.30) for young women and 2.28 (95% CI 1.84 to 2.79) for young men. Incidence increased steadily with age, peaking at 15 (57.77, 95% CI 50.41 to 65.90) for young women and 16 (5.14, 95% CI 3.20 to 7.83) for young men. Comparison with earlier estimates suggests IRs for children aged 12 and under have increased over the last 10 years.ConclusionThese results provide new estimates of the incidence of anorexia nervosa in young people. Service providers and commissioners should consider evidence to suggest an increase in incidence in younger children.Trial registration numberISRCTN12676087.

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