scholarly journals The Role of Moderators and Mediators in Implementing and Evaluating Intellectual and Developmental Disabilities-Related Policies and Practices

2019 ◽  
Vol 32 (3) ◽  
pp. 375-393 ◽  
Author(s):  
Laura E. Gómez ◽  
Robert L. Schalock ◽  
Miguel A. Verdugo
Keyword(s):  
Developmental Disabilities ◽  
Intellectual And Developmental Disabilities ◽  
Policies And Practices

scholarly journals ‘She misses the subtleties and I have to help – help to make the invisible visible’: parents’ role in supporting adults with intellectual and developmental disabilities with intimate relationships

2021 ◽  
Author(s):  
Claire Bates ◽  
Michelle McCarthy ◽  
Karen Milne Skillman ◽  
Nicola Elson ◽  
Siobhan Hunt ◽  
...  
Keyword(s):  
Developmental Disabilities ◽  
Intimate Relationships ◽  
Family Members ◽  
Support Staff ◽  
Intellectual And Developmental Disabilities ◽  
Family Carers ◽  
Potential Partner ◽  
Need Support ◽  
The Family

People with intellectual and developmental disabilities often need support to develop and maintain intimate relationships; however, little is known regarding the role of family carers in this area. Focus groups were conducted with 19 family members to explore the support they provide to people with intellectual and developmental disabilities to find a potential partner and any support they may have to provide to support/develop an existing relationship. Family members provided similar support in this area as support staff, including both practical and emotional support. More needs to be done to support the family members providing this support, such as access to specialist resources and advice, as well as facilitated opportunities to discuss concerns.

Supporting Families Through the Charting the LifeCourse Framework

2019 ◽  
Vol 57 (1) ◽  
pp. 56-65 ◽  
Author(s):  
George S. Gotto ◽  
Michelle C. Reynolds ◽  
Susan B. Palmer ◽  
Danielle F. Chiang
Keyword(s):  
Developmental Disabilities ◽  
Family Member ◽  
Family Support ◽  
Family Members ◽  
Intellectual And Developmental Disabilities ◽  
The Family ◽  
Services And Supports ◽  
Parents And Caregivers ◽  
At Home

Abstract Supporting families who have family members with intellectual and developmental disabilities (IDD) as they move through life is a critical need (Reynolds, Palmer, & Gotto, 2018). The phrase, supporting families, juxtaposes the typical family support paradigm in response to the ongoing shrinkage of federal and state dollars and the recognition that parents and caregivers need services and supports to support their family member with IDD at home (Amado, Stancliffe, McCarron, & McCallion, 2013). Within the family support movement, families are defined in the broadest terms, including those living in the same household, people who are affiliated by birth or choice, and others in the role of helping individuals with IDD succeed in life (Reynolds et al., 2015; Turnbull, Turnbull, Erwin, Soodak, & Shogren, 2015).

The Role of Community Rehabilitation Providers in Employment for Persons With Intellectual and Developmental Disabilities: Results of the 2010–2011 National Survey

2013 ◽  
Vol 51 (4) ◽  
pp. 215-225 ◽  
Author(s):  
Daria Domin ◽  
John Butterworth
Keyword(s):  
Developmental Disabilities ◽  
National Survey ◽  
Supported Employment ◽  
Intellectual And Developmental Disabilities ◽  
Employment Services ◽  
Integrated Employment ◽  
Community Rehabilitation ◽  
Employment Supports ◽  
To Receive

Abstract Based on the 2010–2011 National Survey of Community Rehabilitation Providers, findings are presented on people with all disabilities and people with intellectual and developmental disabilities (IDD) who are served in employment and nonwork settings by community rehabilitation providers. Findings suggest little change over the past eight years in participation in integrated employment. Overall, 28% of all individuals and 19% of individuals with IDD were reported to receive individual integrated employment services. The results suggest that 15% of individuals with IDD work in individual integrated jobs for pay. Group supported employment continues to play a smaller but significant role in employment supports, with almost 10% of individuals with IDD participating in enclaves or mobile work crews. Data do reflect a decline in participation in facility-based work for individuals with IDD, from 41% to 27.5% and a concurrent growth in participation in nonwork services to 43% of all purchased services.

State Policies and Practices in Behavior Supports for Persons With Intellectual and Developmental Disabilities in the United States: A National Survey

2013 ◽  
Vol 51 (6) ◽  
pp. 433-445 ◽  
Author(s):  
David A. Rotholz ◽  
Charles R. Moseley ◽  
Kinsey B. Carlson
Keyword(s):  
United States ◽  
Developmental Disabilities ◽  
Challenging Behavior ◽  
The United States ◽  
State Policies ◽  
National Standard ◽  
Intellectual And Developmental Disabilities ◽  
Behavior Support ◽  
Starting Point ◽  
Policies And Practices

Abstract Providing effective behavioral supports to decrease challenging behavior and replace it with appropriate alternative skills is essential to meeting the needs of many individuals with intellectual and developmental disabilities (IDD). It is also necessary for fulfilling the requirements of Medicaid-funded individual support plans and is important for moral, ethical, and societal reasons. Unfortunately, there is no national standard for behavioral support practices or source of information on the status of behavior support policies, practices, and services for adults with IDD at either state or national levels. The collection of comprehensive data on state behavior support definitions, provider qualifications, training, and oversight requirements is a necessary starting point for the development of plans to address needed policy and practice changes. This survey is the first national assessment of state policies and practices regarding the definition and delivery of behavior support services to people with intellectual and developmental disabilities receiving publicly financed supports in the United States.

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