scholarly journals “Always trying to walk a bit of a tightrope”: The role of social care staff in supporting adults with intellectual and developmental disabilities to develop and maintain loving relationships

2020 ◽  
Vol 48 (4) ◽  
pp. 261-268
Author(s):  
Claire Bates ◽  
Michelle McCarthy ◽  
Karen Milne Skillman ◽  
Nicola Elson ◽  
Rachel Forrester‐Jones ◽  
...  
Keyword(s):  
Developmental Disabilities ◽  
Social Care ◽  
Care Staff ◽  
Intellectual And Developmental Disabilities

Humanising health and social care support for people with intellectual and developmental disabilities: Protocol for a scoping review (Preprint)

2021 ◽  
Author(s):  
Madison Milne-Ives ◽  
Rohit Shankar ◽  
Daniel Goodley ◽  
Kristen Lamb ◽  
Richard Laugharne ◽  
...  
Keyword(s):  
Developmental Disabilities ◽  
Scoping Review ◽  
Social Care ◽  
Care Practice ◽  
Intellectual And Developmental Disabilities ◽  
Eligibility Criteria ◽  
Health And Social Care ◽  
Scoping Reviews ◽  
Care Practices ◽  
Improve Health

BACKGROUND Healthcare is shifting towards a more person-centred model, however, people with intellectual and developmental disabilities can still experience difficulties in accessing equitable healthcare. Given these difficulties, it is important to consider how principles such as empathy and respect can be best incorporated into health and social care practices for people with intellectual and developmental disabilities, to ensure they are receiving humanising and equitable treatment and support. OBJECTIVE The purpose of this scoping review is to provide an overview of the current research landscape and knowledge gaps regarding the development and implementation of interventions based on humanising principles that aim to improve health and social care practices for people with intellectual and developmental disabilities. METHODS The Preferred Reporting Items for Systematic Reviews and Meta-Analyses extension for Scoping Reviews (PRISMA-ScR) and Population, Intervention, Comparator, Outcome, and Study (PICOS) frameworks will be used to structure the review. Six databases (PubMed, MEDLINE, Embase, CINAHL, PsycInfo, and Web of Science) will be searched for articles published in English in the previous 10 years that describe or evaluate health and social care practice interventions under-pinned by humanising principles of empathy, compassion, dignity, and respect. Two reviewers will collaboratively screen and select references based on the eligibility criteria and extract the data into a predetermined form. A descriptive analysis will be conducted to summarise the results and provide an overview of interventions in three main care areas: health care, social care, and informal social support. RESULTS Results will be included in the scoping review, which will be submitted for publication by December 2021. CONCLUSIONS This scoping review will summarize the state of the field of interventions that are using humanising principles to improve health and social care for adults with intellectual and developmental disabilities.

scholarly journals Exploring the role of volunteers in social care for older adults

2020 ◽  
Vol 21 (2) ◽  
pp. 129-139 ◽  
Author(s):  
Ailsa Cameron ◽  
Eleanor K. Johnson ◽  
Paul B. Willis ◽  
Liz Lloyd ◽  
Randall Smith
Keyword(s):  
Older Adults ◽  
Older People ◽  
Social Care ◽  
Evidence Base ◽  
Care Staff ◽  
Small Scale ◽  
The South ◽  
Content Type ◽  
South West

Purpose This paper aims to report the findings of a study that explores the contribution volunteers make to social care for older adults, identifying lessons for the social care sector and policymakers. Design/methodology/approach An exploratory multiple case study design was used to capture the perspectives and experiences of managers of services, volunteer co-ordinators, volunteers, paid care staff and older people. Seven diverse social care organisations took part in the study drawn from three locations in the South West of England. Findings This study identified three distinct models of volunteer contribution to social care services for older people. Although the contributions made by volunteers to services are valued, the study drew attention to some of the challenges related to their involvement. Research limitations/implications The organisations taking part in this small-scale study were all based in the South West of England, and the findings are therefore not generalisable but contribute to the growing evidence base related to this important field. Practical implications This study demonstrates the importance of the volunteer co-ordinator role and suggests that it is properly funded and resourced. It also confirms the importance of volunteers receiving appropriate training and support. Originality/value Given the increasing involvement of volunteers in the provision of social care, this paper provides lessons to ensure the role of volunteers in social care enhances rather than diminishes the quality of care provided.

Falling Through the Cracks: Caregivers’ Experiences With Choice of Providers

2016 ◽  
Vol 30 (4) ◽  
pp. 338-352
Author(s):  
Susan Neely-Barnes ◽  
Stephen Zanskas ◽  
Daniel Lustig ◽  
Rachel Duerr ◽  
Minna Zhao
Keyword(s):  
Developmental Disabilities ◽  
Focus Groups ◽  
Independent Living ◽  
Direct Care ◽  
Care Staff ◽  
Intellectual And Developmental Disabilities ◽  
Direct Care Staff ◽  
Lack Of Information ◽  
Caregiver Needs ◽  
Interpretive Method

Purpose:We sought to understand the experiences of family members and direct care staff of adults with intellectual and developmental disabilities in a private pay day program focused on socialization and recreational skills.Method:Two focus groups were held with parents/caregivers and one with staff. Using an interpretive method, two investigators independently coded the transcripts and arrived at themes.Results:Themes identified included transition, lack of information, lack of resources, caregiver needs, independence, employment, and education.Conclusion:Families and staff experienced frustration with service fragmentation/access to alternative programming. Families and staff wanted opportunities for employment and independent living programming but lacked resources. Implications for practice and policy are discussed.

scholarly journals Supporting ex-service personnel moving to social care work with older people: a systematic rapid review of the role of education

2019 ◽  
Vol 23 (3) ◽  
pp. 127-141 ◽  
Author(s):  
Jill Manthorpe ◽  
Stephanie Bramley
Keyword(s):  
Older People ◽  
Social Care ◽  
Grey Literature ◽  
Care Work ◽  
Care Staff ◽  
Rapid Review ◽  
Content Type ◽  
Service Personnel ◽  
Health And Social Care

Purpose The purpose of this paper is to review evidence about the role of education in supporting ex-service personnel to move to social care work with older people. Social care has long-standing, well-recognised problems of staff recruitment and retention in many jurisdictions. Within ageing societies, the need for more social care staff is predicted to rise. Therefore, policy makers and employers are exploring if there are untapped sources of potential employees. Some ex-service personnel may be interested in exploring a move to social care work with older people but may need to gain additional qualifications. Design/methodology/approach Databases and grey literature were searched systematically to provide an overview of the evidence on this topic. Six articles were included in the review. Findings A narrative analysis revealed two themes: preparing ex-service personnel for enrolment onto health and social care programmes, and supporting ex-service personnel during health and social care programmes. Research limitations/implications This review was confined to English language studies published between 2008 and 2018. Few mentioned specific user or client groups. Originality/value This review identified evidence gaps relating to whether the skills, education, training and experience gained in the armed services are transferable to civilian social care work with older people; the types of support which are offered to ex-service personnel who are interested in completing qualifications necessary for social care roles and the views of ex-service personnel about their experiences of completing educational courses to facilitate a transition into social care work with older people.

scholarly journals ‘She misses the subtleties and I have to help – help to make the invisible visible’: parents’ role in supporting adults with intellectual and developmental disabilities with intimate relationships

2021 ◽  
Author(s):  
Claire Bates ◽  
Michelle McCarthy ◽  
Karen Milne Skillman ◽  
Nicola Elson ◽  
Siobhan Hunt ◽  
...  
Keyword(s):  
Developmental Disabilities ◽  
Intimate Relationships ◽  
Family Members ◽  
Support Staff ◽  
Intellectual And Developmental Disabilities ◽  
Family Carers ◽  
Potential Partner ◽  
Need Support ◽  
The Family

People with intellectual and developmental disabilities often need support to develop and maintain intimate relationships; however, little is known regarding the role of family carers in this area. Focus groups were conducted with 19 family members to explore the support they provide to people with intellectual and developmental disabilities to find a potential partner and any support they may have to provide to support/develop an existing relationship. Family members provided similar support in this area as support staff, including both practical and emotional support. More needs to be done to support the family members providing this support, such as access to specialist resources and advice, as well as facilitated opportunities to discuss concerns.

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