scholarly journals Passing Strategies and Performative Identities: Coping with (In)Visible Chronic Diseases

Author(s):  
Tanisha Jemma Rose Spratt

AbstractIn this article I consider the role of passing and performance in the everyday lives of alkaptonuria (AKU) and vitiligo patients. Race, LGBTQ, gender and disability scholars have long used the term passing to describe sub-groups of people within marginal populations who intentionally manipulate their bodies or alter their behaviour in order to claim identities that are not socially assigned to them at birth. In this paper I demonstrate the effectiveness of the passing strategies that patients use in order to mitigate their disease symptoms and render them invisible, thus enabling them to pass as “healthy” or unaffected by their condition. I further consider how patients who choose not to pass utilise resistance strategies in order to generate awareness of their disease and encourage funding for it. I conclude by assessing the effectiveness of these strategies in determining whether or not patients can pass, and the ways in which this is aided or hindered by their social and economic status.

2021 ◽  
pp. 0308518X2110680
Author(s):  
Priti Narayan ◽  
Emily Rosenman

This commentary explores the politics of writing about the economy in a culture, society, and discipline that tends to prioritize masculinist (and white) theories and definitions of economy over embodied experiences of people living their everyday lives. Inspired by Timothy Mitchell's problematization of the economy as an object of analysis, we press further on the seemingly singular unit of “the” economy and who is allowed to define it as such. We are animated by questions of who is considered an expert on the economy and how, or by whom, crises in the economy are recognized. Drawing from our own writing experiences during the pandemic and from social movements we research, we argue for alternate ways of thinking about experiences of and expertise on the economy. In reckoning with how social movements speak to power in a bid to transform economies, we consider the role of economic geography in the economy of writing and knowledge production surrounding “the economy” itself. We make the case for a more public economic geography grounded in the social and economic embeddedness of knowledge production, the material consequences of who gets to define what is economically “important,” and the potential for this expertise to be located anywhere.


2019 ◽  
Vol 1 (1) ◽  
pp. 49-58
Author(s):  
Evy Nazon ◽  
Amelie Peron ◽  
Thomas Foth

The history of nursing is often perceived as the history of a profession with charitable and philanthropic objectives of helping others live a healthy life. Many historians have celebrated the major role played by charitable women in nursing. Moving beyond this charitable and dedicated image of nurses, we argue that nursing, through “the social,” became a pivotal component of the governance of the everyday lives of populations. As such, nursing became part of the evolving idea that all areas of life must be managed through a process of normalization that seeks to maximize the life of both the individual and the population. Populations thus became the focus of governmental projects. Jacques Donzelot’s notion of invention of the social and Michel Foucault’s concept of govenmentality make possible a reassessment of the conventional image of nurses, and in particular, that of charitable nurses.


2016 ◽  
Vol 63 ◽  
pp. 68-77 ◽  
Author(s):  
Susanne Fischer ◽  
Johanna M. Doerr ◽  
Jana Strahler ◽  
Ricarda Mewes ◽  
Kati Thieme ◽  
...  

2020 ◽  
Vol 11 (0) ◽  
pp. 1
Author(s):  
Joëlle Klein ◽  
Kamrul Hossain

The following article revisits existing scholarship on human-centric approaches to security in cyberspace and argues that a holistic understanding of cyber security in the Arctic must include discussion of the use of cyber technology in the everyday lives of individuals and communities, addressing both the ways such tools enable and undermine human security. Simultaneously, the article contextualises the Arctic as a region undergoing rapid change as a result of climate change and increased digitalisation and seeks to understand the consequent implications for human security. In light of these considerations, the article analyses the existing constraints and possibilities that cyber security and digitalisation pose for human security and revisits them from a humancentric perspective of cyber security. It also seeks to contextualise such security influences in relation to the role of climate change and its influence on the region. Finally, several examples are discussed to underline the interdependent implications of digitalisation and climate change from a human-centric perspective of cyber security in the Arctic.


Author(s):  
Nina Rusinova ◽  
Saniya Boyarkina

Psychological resources of the individual are an important factor of keeping health. Having such psychological features as awareness of their ability to control the life circumstances, a positive perception of themselves and belief in their own strength, self-esteem, optimistic view in the future, have a direct positive impact on the physical and psychological state of a person, promote healthy lifestyles, equip with the ability to cope struggles and reduce stress influence to health. The availability of such psychological resources and their reserve is especially important for people suffering from socially significant chronic diseases accompanied by physical and functional limitations, violations of psychological and social adaptation. However, according to numerous studies, in socially disadvantaged groups of the population – poorly educated, employed in the least prestigious and low-paid jobs with low incomes, together with high risks of morbidity and premature mortality from chronic diseases, there are low rates of psychological resistance due to a shortage of psychological resources. The study of the relationship between social status and individual psychological resources, which affect the health of different social strata’s representatives, allowed us to identify two main approaches. Within the framework of one approach, psychological features are considered to be a product of the structural conditions that determine the inequalities of their distribution in society. The deficit of psychological resources that experienced by representatives of socially vulnerable groups is consider to be contributing the negative impact of low socio-economic status on health and acts as one of the mediating mechanism for the transformation of socio-economic differences into inequalities in health. Another approach emphasizes the role of the person in changing the life circumstances, including those of them that are caused by the adverse effects of low socio-economic status. In this case, attention is focused not so much on the differences in the psychological reserves of individuals who occupy different positions in the socio-economic stratification, as on their variability within one social level. Empirical studies confirm that especially among the socially disadvantaged groups, individuals characterized by greater reserve of positive psychological properties, demonstrate significantly better health compared to those fellow citizens who are deprived of this reserve. In the literature, this phenomenon designates as a" buffer" effect, contributing to the reduction of negative health consequences of low status, and, consequently, to the reduction of socio-structural inequalities in health. In developed European countries, where government guarantees allow lower social strata to maintain self-esteem, confidence in the future and optimism, psychological resources lose their role as a mediator between socio-economic status and health and can lead to a buffer reduction of structural inequalities. In the less developed countries of Europe and in Russia, where public health and education programs do not allow people from the lower strata to maintain psychological stability, structural differences in the risks of chronic diseases and premature mortality persist.


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