Engaging a Community Advisory Board to Inform an Exercise Intervention in Older African-American Couples

2020 ◽  
Vol 41 (3) ◽  
pp. 261-278
Author(s):  
Lyndsey M. Hornbuckle ◽  
Amy Rauer
2020 ◽  
Vol 4 (Supplement_1) ◽  
pp. 844-844
Author(s):  
Jamie Mitchell ◽  
Tam Perry ◽  
Vicki Johnson-Lawrence ◽  
Vanessa Rorai

Abstract Older African Americans’ (AA) participation in health-related research is severely limited; they are not involved in sufficient numbers and for sufficient duration to ensure the applicability of advancements in medical and behavioral health. This research participation gap exacerbates older AAs vulnerability to poor health outcomes and disparities. The Michigan Center for Urban African American Aging Research employs a progressive community-based participatory model that utilizes a structured community advisory board (CAB) of older AAs in metro Detroit to oversee the research recruitment and retention of fellow AA older adult research participants. CAB members are provided ongoing training on social and behavioral health research, supported in acting as a consultancy to outside researchers where they can be compensated for their expertise and engagement, and empowered as gatekeepers of a participant research registry of over 1000 AA older adults. This model has broad potential for advancing community engaged research with AA older adults.


2020 ◽  
Vol 30 (Suppl) ◽  
pp. 755-764
Author(s):  
Jamie Mitchell ◽  
Tam Perry ◽  
Vanessa Rorai ◽  
Joan Ilardo ◽  
Peter Lichtenberg ◽  
...  

Older African Americans’ participation in health-related research is severely limited; they are not involved in sufficient numbers to ensure the applicability of advance­ments in medical and behavioral health. This research participation gap exacerbates older African Americans’ vulnerability to poor health outcomes and disparities. The Michigan Center for Urban African Ameri­can Aging Research employs a progressive community-based participatory model that utilizes a structured community advisory board (CAB) of African American older adults in metro Detroit, Michigan to oversee the research recruitment and retention of fellow minority older adult research partici­pants. CAB members develop and support community health programming that provides free resources to older adults and also serves as fertile ground for recruiting participants in a volunteer research registry. CAB members are also provided ongoing training on social and behavioral health research and are supported in acting as a consultancy to outside researchers where they can be compensated for their expertise and engagement. This community-engaged model of sustaining a CAB of African Ameri­can older adults offers key lessons learned on building relationships and trust, valuing and leveraging community members’ exper­tise and time, sharing decision-making, and fostering genuine community all while pro­moting research recruitment and retention among underserved populations.Ethn Dis. 2020;30(Suppl 2):755-764; doi:10.18865/ed.30.S2.755


Circulation ◽  
2020 ◽  
Vol 141 (Suppl_1) ◽  
Author(s):  
Lyndsey M Hornbuckle ◽  
Amy Rauer

Introduction: Older African-Americans (AA) are vulnerable to cardiometabolic health disparities. As physical inactivity is highly prevalent in this population and regular exercise can help mitigate cardiometabolic disease, collaborations between the local community and academic researchers are needed to create sustainable exercise interventions. To this end, the current investigators formed a community advisory board (CAB) to consult on an interdisciplinary pilot intervention study that would examine the effects of couples-based resistance training plus walking on: 1) exercise adherence; 2) cardiometabolic risk factors (abdominal obesity, blood pressure, insulin resistance, hemoglobin A1c, high-density lipoprotein and total cholesterol, triglycerides, C-reactive protein, fibrinogen); and 3) the provision of partner support and receptivity to partner health influence in older AA romantic couples. Hypothesis: CAB consultation would enhance the proposed pilot study methods and facilitate community engagement. Methods: Seven local community members/leaders with a stake in the health of the AA community were invited to participate in two CAB meetings. In the meetings, investigators proposed ideas to pilot a novel exercise intervention in older AA couples and solicited input in four key areas: 1) priority health concerns of the target population; 2) the proposed study protocol; 3) cultural relevance; 4) and sustainability. Recorded responses were summarized and coded using a qualitative thematic analysis approach. Results: Multiple themes surfaced within each of the four focus areas including confirmation of the need to study cardiometabolic disease risk (e.g. hypertension, diabetes) in this population, potential recruitment challenges and suggestions to relax exclusion criteria, exclusion of potentially beneficial program components (e.g. flexibility training, education), the need for culturally-specific adaptations (e.g. incorporating music, providing AA role models), and long-term community engagement (i.e. future efforts to launch the intervention at the community level). Investigators made multiple study modifications per CAB recommendations. Conclusions: CAB feedback suggested the proposed intervention would be well-received and considered both beneficial and relevant by the community. CAB-recommended study modifications underscore the value of a community-partnered approach to intervention design that promotes cultural relevance and sustainability. These characteristics support the ultimate goal of reducing cardiometabolic health disparities in AA communities. Although the investigators recognize the current method deviates from true community-based participatory research that originates within a community, the model presented is beneficial as it engages the community in the developmental stage of evidence-based research.


Author(s):  
Jan Kretzschmar ◽  
Dianne M. Babbitt ◽  
Keith M. Diaz ◽  
Deborah L. Feairheller ◽  
Kathleen M. Sturgeon ◽  
...  

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