Validation of a new quality of life scale related to multiple sclerosis and relapses

2012 ◽  
Vol 22 (8) ◽  
pp. 1943-1954 ◽  
Author(s):  
Antoine Baroin ◽  
Gilles Chopard ◽  
Gaye Siliman ◽  
Clément Michoudet ◽  
Aurore Vivot ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Multiple Sclerosis ◽  
Quality Of Life Scale ◽  
Life Scale

Short Quality of Life Scale: A Cross-Cultural Validation in Iranian Patients with Multiple Sclerosis

2021 ◽  
pp. 103411
Author(s):  
Samira Zarrabi-Ajami ◽  
Hadi Zamanian ◽  
Mohammadali Amini-Tehrani ◽  
Zahra Farhadidanaloo ◽  
Razieh Janati Razavi ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Multiple Sclerosis ◽  
Cross Cultural ◽  
Quality Of Life Scale ◽  
Life Scale ◽  
Iranian Patients ◽  
Cultural Validation

The validity and test–retest reliability of the Leeds Multiple Sclerosis Quality of Life scale in Turkish patients

2009 ◽  
Vol 32 (2) ◽  
pp. 162-166 ◽  
Author(s):  
Derya Iren Akbiyik ◽  
Vildan Sumbuloglu ◽  
Zafer Guney ◽  
Kadriye Armutlu ◽  
Nilufer Korkmaz ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Multiple Sclerosis ◽  
Retest Reliability ◽  
Quality Of Life Scale ◽  
Life Scale ◽  
Test Retest Reliability ◽  
Turkish Patients

The reliability and validity of the Nottingham Extended Activities of Daily Living Scale in patients with multiple sclerosis

2002 ◽  
Vol 8 (5) ◽  
pp. 372-376 ◽  
Author(s):  
C R Nicholl ◽  
N B Lincoln ◽  
E D Playford
Keyword(s):  
Quality Of Life ◽  
Multiple Sclerosis ◽  
Activities Of Daily Living ◽  
Daily Living ◽  
Controlled Trial ◽  
Reliability And Validity ◽  
Quality Of Life Scale ◽  
Assessment And Treatment ◽  
Life Scale

Objective: To investigate whether the Nottingham Extended Activities of Daily Living Scale (EADL) is reliable and valid for the assessment of disability in patients with multiple sclerosis (MS). Design: Questionnaire measures were administered on two occasions four months apart. Subjects: A total of 240 patients recruited through a randomized controlled trial of cognitive assessment and treatment in MS. Measures: The Nottingham EADL, Guys Neurological Disability Scale (GNDS) and SF-36 quality of life scale. Results: The EADL items did not form a Guttman Scale (CR 0.8, CS 0.3). The EADL and its four subscales all had high internal consistency (α 0.72-0.94). Test-retest reliability was satisfactory (rs 0.81-0.90) with a mean difference in scores on the two occasions of 0.29. Factor analysis generally supported the subscale structure. There were significant but weak correlations with quality of life measures. Conclusions: The EADL shows promise for the assessment of disability in MS, but the range of items needs to be extended. Further evaluation of the scale seems warranted.

Examining the Factor Structure and Psychometric Properties of the Quality of Life Scale Among People With Multiple Sclerosis

2015 ◽  
Vol 29 (2) ◽  
pp. 165-182
Author(s):  
Shawn M. Fitzgerald ◽  
Jian Li ◽  
Phillip D. Rumrill ◽  
Malachy Bishop ◽  
William R. Merchant
Keyword(s):  
Quality Of Life ◽  
Multiple Sclerosis ◽  
Factor Structure ◽  
Factor Model ◽  
Psychosocial Adaptation ◽  
Single Factor ◽  
Quality Of Life Scale ◽  
Life Scale ◽  
The Impact

Rehabilitation counseling researchers seeking to more fully understand the phenomenon of psychosocial adaptation to disability are devoting increased attention to the impact of disability on quality of life (QOL). This impact has been of particular interest among multiple sclerosis (MS) researchers. The complex etiology, unpredictable nature, and the multiple functional limitations attendant to MS have been identified as major impediments in research efforts to develop psychometrically sound and clinically sensitive tools to evaluate the impact of MS on QOL. This article presents the results of a confirmatory factor analysis of the factor structure of the Quality of Life Scale (QOLS), which has been used in several studies to evaluate the impact of MS on QOL. The QOLS was developed to assess the self-reported QOL of people with chronic pain and evaluates the degree of satisfaction with 7 distinct domains of personal and social activity. The developers’ original principal component analysis revealed a single-factor model with high levels of internal consistency reliability. It is not clear, however, how the 1-factor model fits the population of individuals with MS and how the 7 items perform in terms of their measurement of the single factor. The 1-factor structure of the QOLS did not fit the data well in this sample of individuals with MS. Subsequent model iterations that incorporated 3 error covariances provided increasingly better fit and resulted in a reasonable model fit to the data.

Fatigue and quality of life in pediatric multiple sclerosis

2009 ◽  
Vol 15 (12) ◽  
pp. 1502-1508 ◽  
Author(s):  
William S MacAllister ◽  
Christopher Christodoulou ◽  
Regina Troxell ◽  
Maria Milazzo ◽  
Pamela Block ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Multiple Sclerosis ◽  
Pearson Correlation ◽  
Parent Report ◽  
Published Data ◽  
Clinical Factors ◽  
Quality Of Life Scale ◽  
Life Scale ◽  
Cognitive Problems

Fatigue and quality of life are significant concerns in adult multiple sclerosis (MS) but little is known about these factors in pediatric MS. The present investigation evaluates fatigue and quality of life in 51 pediatric MS patients to determine the rate of fatigue and reduced quality of life and assesses the relations between these variables and clinical factors. Fatigue and quality of life were assessed by self- and parent-report via the PedsQL Multidimensional Fatigue Scale and the PedsQL Quality of Life Scale. One-sample t-tests determined if scores were below published data for healthy individuals. Moreover, scores falling one standard deviation from norms were considered mildly affected, with severe difficulties being defined as scores falling two or more standard deviations from norms. Associations between self- and parent-reported difficulties and clinical factors were examined via Pearson correlation analyses. In comparison with healthy samples, pediatric MS patients reported greater difficulties with respect to fatigue, sleep, cognition, physical limitations, and academics. In addition to significant difficulties on these factors, parents reported problems with respect to emotional functioning, and tended to report greater fatigue, sleep, and cognitive difficulties than were self-reported. Expanded Disability Status Scale score was the only neurologic variable significantly related to fatigue or quality of life scores. Fatigue was significantly correlated with reports of sleep difficulties, cognitive problems, and quality of life variables. These findings suggest that fatigue and poorer quality of life is a clear concern in pediatric MS, and is related to overall physical disability.

Multiple Sclerosis Health-Related Quality of Life Scale

2013 ◽  
Author(s):  
R. Devy ◽  
P. Lehert ◽  
E. Varlan ◽  
M. Genty ◽  
G. Edan
Keyword(s):  
Quality Of Life ◽  
Multiple Sclerosis ◽  
Health Related Quality ◽  
Quality Of Life Scale ◽  
Life Scale ◽  
Related Quality ◽  
Health Related
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