Development and usability of a feedback tool, “My Personal Brain Health Dashboard”, to improve setting of self-management goals among people living with HIV in Canada

2020 ◽  
Author(s):  
Maryam Mozafarinia ◽  
Fateme Rajabiyazdi ◽  
Marie-Josee Brouillette ◽  
Lesley K. Fellows ◽  
Nancy E. Mayo
Keyword(s):  
Self Management ◽  
People Living With Hiv ◽  
Brain Health ◽  
Living With Hiv

scholarly journals Effectiveness of a personalized health profile on specificity of self-management goals among people living with HIV in Canada: a protocol for a blinded pragmatic randomized controlled trial

2020 ◽  
Vol 4 ◽  
pp. 1
Author(s):  
Maryam Mozafarinia ◽  
Fateme Rajabiyazdi ◽  
Marie-Josée Brouillette ◽  
Lesley Fellows ◽  
Bärbel Knäuper ◽  
...  
Keyword(s):  
Health Outcome ◽  
Text Mining ◽  
Health Outcomes ◽  
Goal Setting ◽  
Rate Ratio ◽  
Self Management ◽  
People Living With Hiv ◽  
Brain Health ◽  
Personalized Health ◽  
Living With Hiv

Background: Goal setting is a crucial element in self-management of chronic diseases. Personalized outcome feedback is needed for goal setting, a requirement for behavior change. This study contributes to the understanding of the specificity of patient-formulated self-management goals by testing the effectiveness of a personalized health outcome profile. Objective: To estimate among people living with HIV, to what extent providing feedback on their health outcomes, compared to no feedback, will affect number and specificity of patient-formulated self-management goals. Methods: A personalized health outcome profile has been produced for individuals enrolled in a Canadian HIV Brain Health Now cohort study at cohort entry and at the last recorded visit. Participants will be randomized to receive or not “My Personal Brain Health Dashboard” prior to a goal setting exercise. Self-defined goals in free text will be collected through an online platform. Intervention and control groups will receive instructions on goal setting and tips to improve brain health. A total of 420 participants are needed to detect a rate ratio (number of specific words/numbers of person-goals, intervention:control) of 1.5. Text mining techniques will be used to quantify goal specificity based on word matches with a goal-setting lexicon. The expectation is that the intervention group will set more goals and have more words matching the developed lexical than the control group. The total number of words per person-goals will be calculated for each group and Poisson regression will be used to estimate the rate ratio and 95% confidence intervals and compare rate ratios between men and women using an interaction term. Conclusions: This study will contribute to growing evidence for the value of person-reported health outcomes in tailoring interventions, and will provide a thorough understanding of the quality of person-defined goals using text mining. Trial registration: Clinical Trials NCT04175795, registered on 25th November 2019.

scholarly journals Self-management Interventions for Pain and Physical Symptoms Among People Living With HIV

2018 ◽  
Vol 79 (2) ◽  
pp. 206-225 ◽  
Author(s):  
Kennedy Nkhoma ◽  
Christine Norton ◽  
Caroline Sabin ◽  
Alan Winston ◽  
Jessica Merlin ◽  
...  
Keyword(s):  
Physical Symptoms ◽  
Self Management ◽  
People Living With Hiv ◽  
Management Interventions ◽  
Living With Hiv

Counting, Coping, and Navigating the Flux: A Focused Ethnographic Study of HIV and Diabetes Self-Management

2021 ◽  
pp. 104973232110642
Author(s):  
Chelsi W Ohueri ◽  
Alexandra A. García ◽  
Julie A. Zuñiga
Keyword(s):  
Management Practices ◽  
Participant Observation ◽  
Ethnographic Study ◽  
Self Management ◽  
People Living With Hiv ◽  
Structured Interviews ◽  
Familial Support ◽  
Multiple Observations ◽  
Dual Diagnoses ◽  
Living With Hiv

Approximately 10–15% of people living with HIV are also diagnosed with diabetes. To manage their two chronic conditions, people must undertake certain activities and adopt behaviors. Due to overlapping symptoms, complex medication regimens, and heavy patient workloads, implementing these self-management practices can be difficult. In this focused ethnography, data were collected from semi-structured interviews and limited participant-observation with a selected subset of participants to gain insight into self-management challenges and facilitators. We conducted interviews and multiple observations with 22 participants with HIV+T2DM over the period of 9 months. Participants experienced numerous barriers to self-management in the areas of diet, medication adherence, and mental health. Social and familial support, as well as consistent access to care, were facilitators for optimal self-management. At the same time participants’ lives were in a unique flux shaped by the dual diagnoses, and therefore, required constant mental and physical adjustments, thus illustrating challenges of managing chronicity.

scholarly journals Evaluation of a Community-Based Self-Management Program to Increase Access to Rehabilitation for People Living with HIV

2019 ◽  
Vol 18 ◽  
pp. 232595821988333 ◽  
Author(s):  
Patricia Solomon ◽  
Nancy Margaret Salbach ◽  
Kelly Kathleen O’Brien ◽  
Stephanie Nixon ◽  
Larry Baxter ◽  
...  
Keyword(s):  
Peer Education ◽  
Management Program ◽  
Self Management ◽  
Rehabilitation Services ◽  
People Living With Hiv ◽  
Community Based ◽  
Centered Care ◽  
Living With Hiv ◽  
Future Work

We qualitatively evaluated a novel educational program to help people living with HIV understand the role of rehabilitation, facilitate access to rehabilitation, and promote self-management of chronic disease in Canada. The program incorporated components of self-efficacy, client-centered care, peer education, and problem-based learning. Delivery of the community-engaged program was viewed as feasible and acceptable; however, a flexible delivery model was deemed important. Perceived learning was related to rehabilitation, advocacy, and taking responsibility for one’s health. A co-leader model and access to online resources were strengths. Future work should assess the ability to apply advocacy knowledge and skills to access rehabilitation services.

scholarly journals Bioenergetic adaptations to HIV infection. Could modulation of energy substrate utilization improve brain health in people living with HIV-1?

2020 ◽  
Vol 327 ◽  
pp. 113181 ◽  
Author(s):  
Pragney Deme ◽  
Camilo Rojas ◽  
Barbara S. Slusher ◽  
Raina Rais ◽  
Zahra Afghah ◽  
...  
Keyword(s):  
Hiv Infection ◽  
Substrate Utilization ◽  
People Living With Hiv ◽  
Brain Health ◽  
Energy Substrate ◽  
Living With Hiv ◽  
Hiv 1

scholarly journals Virtual Intervention to Support Self-Management of Antiretroviral Therapy Among People Living With HIV

2015 ◽  
Vol 17 (1) ◽  
pp. e6 ◽  
Author(s):  
José Côté ◽  
Gaston Godin ◽  
Pilar Ramirez-Garcia ◽  
Geneviève Rouleau ◽  
Anne Bourbonnais ◽  
...  
Keyword(s):  
Antiretroviral Therapy ◽  
Self Management ◽  
People Living With Hiv ◽  
Living With Hiv

scholarly journals Common elements and features of a mobile-based self-management system for people living with HIV

10.19082/6655 ◽  
2018 ◽  
Vol 10 (4) ◽  
pp. 6655-6662 ◽  
Author(s):  
Esmaeil Mehraeen ◽  
Reza Safdari ◽  
SeyedAhmad SeyedAlinaghi ◽  
Niloofar Mohammadzadeh ◽  
Minoo Mohraz
Keyword(s):  
Management System ◽  
Self Management ◽  
People Living With Hiv ◽  
Common Elements ◽  
Living With Hiv
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