Participation in a Self-management Intervention for People Living With HIV

2016 ◽  
Vol 27 (4) ◽  
pp. 530-537
Author(s):  
Matthew B. Feldman ◽  
Lola S. Arakaki ◽  
Amanda R. Raker
Keyword(s):  
Self Management ◽  
People Living With Hiv ◽  
Management Intervention ◽  
Living With Hiv

scholarly journals The Effect of an HIV Self-Management Intervention on Neurocognitive Behavioral Processing

2019 ◽  
Vol 41 (7) ◽  
pp. 990-1008
Author(s):  
Allison R. Webel ◽  
Nathaniel Schreiner ◽  
Robert A. Salata ◽  
Jared Friedman ◽  
Anthony I. Jack ◽  
...  
Keyword(s):  
Self Management ◽  
People Living With Hiv ◽  
Management Intervention ◽  
Network Analyses ◽  
Mixed Effects Modeling ◽  
Management Interventions ◽  
Random Intercept ◽  
Trial Testing ◽  
Task Positive Network ◽  
Living With Hiv

People living with HIV (PLHIV) are increasingly diagnosed with comorbidities which require increasing self-management. We examined the effect of a self-management intervention on neurocognitive behavioral processing. Twenty-nine PLHIV completed a two-group, 3-month randomized clinical trial testing a self-management intervention to improve physical activity and dietary intake. At baseline and 3 months later, everyone completed validated assessments of physical, diet, and neurocognitive processing (functional magnetic resonance imaging [fMRI]–derived network analyses). We used linear mixed effects modeling with a random intercept to examine the effect of the intervention. The intervention improved healthy eating ( p = .08) but did not improve other self-management behaviors. There was a significant effect of the intervention on several aspects of neurocognitive processing including in the task positive network (TPN) differentiation ( p = .047) and an increase in the default mode network (DMN) differentiation ( p = .10). Self-management interventions may influence neurocognitive processing in PLHIV, but those changes were not associated with positive changes in self-management behavior.

scholarly journals Self-management Interventions for Pain and Physical Symptoms Among People Living With HIV

2018 ◽  
Vol 79 (2) ◽  
pp. 206-225 ◽  
Author(s):  
Kennedy Nkhoma ◽  
Christine Norton ◽  
Caroline Sabin ◽  
Alan Winston ◽  
Jessica Merlin ◽  
...  
Keyword(s):  
Physical Symptoms ◽  
Self Management ◽  
People Living With Hiv ◽  
Management Interventions ◽  
Living With Hiv

scholarly journals Effectiveness of a personalized health profile on specificity of self-management goals among people living with HIV in Canada: a protocol for a blinded pragmatic randomized controlled trial

2020 ◽  
Vol 4 ◽  
pp. 1
Author(s):  
Maryam Mozafarinia ◽  
Fateme Rajabiyazdi ◽  
Marie-Josée Brouillette ◽  
Lesley Fellows ◽  
Bärbel Knäuper ◽  
...  
Keyword(s):  
Health Outcome ◽  
Text Mining ◽  
Health Outcomes ◽  
Goal Setting ◽  
Rate Ratio ◽  
Self Management ◽  
People Living With Hiv ◽  
Brain Health ◽  
Personalized Health ◽  
Living With Hiv

Background: Goal setting is a crucial element in self-management of chronic diseases. Personalized outcome feedback is needed for goal setting, a requirement for behavior change. This study contributes to the understanding of the specificity of patient-formulated self-management goals by testing the effectiveness of a personalized health outcome profile. Objective: To estimate among people living with HIV, to what extent providing feedback on their health outcomes, compared to no feedback, will affect number and specificity of patient-formulated self-management goals. Methods: A personalized health outcome profile has been produced for individuals enrolled in a Canadian HIV Brain Health Now cohort study at cohort entry and at the last recorded visit. Participants will be randomized to receive or not “My Personal Brain Health Dashboard” prior to a goal setting exercise. Self-defined goals in free text will be collected through an online platform. Intervention and control groups will receive instructions on goal setting and tips to improve brain health. A total of 420 participants are needed to detect a rate ratio (number of specific words/numbers of person-goals, intervention:control) of 1.5. Text mining techniques will be used to quantify goal specificity based on word matches with a goal-setting lexicon. The expectation is that the intervention group will set more goals and have more words matching the developed lexical than the control group. The total number of words per person-goals will be calculated for each group and Poisson regression will be used to estimate the rate ratio and 95% confidence intervals and compare rate ratios between men and women using an interaction term. Conclusions: This study will contribute to growing evidence for the value of person-reported health outcomes in tailoring interventions, and will provide a thorough understanding of the quality of person-defined goals using text mining. Trial registration: Clinical Trials NCT04175795, registered on 25th November 2019.

Counting, Coping, and Navigating the Flux: A Focused Ethnographic Study of HIV and Diabetes Self-Management

2021 ◽  
pp. 104973232110642
Author(s):  
Chelsi W Ohueri ◽  
Alexandra A. García ◽  
Julie A. Zuñiga
Keyword(s):  
Management Practices ◽  
Participant Observation ◽  
Ethnographic Study ◽  
Self Management ◽  
People Living With Hiv ◽  
Structured Interviews ◽  
Familial Support ◽  
Multiple Observations ◽  
Dual Diagnoses ◽  
Living With Hiv

Approximately 10–15% of people living with HIV are also diagnosed with diabetes. To manage their two chronic conditions, people must undertake certain activities and adopt behaviors. Due to overlapping symptoms, complex medication regimens, and heavy patient workloads, implementing these self-management practices can be difficult. In this focused ethnography, data were collected from semi-structured interviews and limited participant-observation with a selected subset of participants to gain insight into self-management challenges and facilitators. We conducted interviews and multiple observations with 22 participants with HIV+T2DM over the period of 9 months. Participants experienced numerous barriers to self-management in the areas of diet, medication adherence, and mental health. Social and familial support, as well as consistent access to care, were facilitators for optimal self-management. At the same time participants’ lives were in a unique flux shaped by the dual diagnoses, and therefore, required constant mental and physical adjustments, thus illustrating challenges of managing chronicity.

scholarly journals Perceptions of Strategies and Intervention Approaches for HIV Self-Management among Ugandan Adolescents: A Qualitative Study

2019 ◽  
Vol 18 ◽  
pp. 232595821882324 ◽  
Author(s):  
Massy Mutumba ◽  
Henry Mugerwa ◽  
Victor Musiime ◽  
Anudeeta Gautam ◽  
Hellen Nakyambadde ◽  
...  
Keyword(s):  
Healthcare Providers ◽  
Self Care ◽  
Hiv Care ◽  
Self Management ◽  
Care Needs ◽  
Behavioral Skills ◽  
Social Challenges ◽  
Management Intervention ◽  
Care Outcomes ◽  
Living With Hiv

The heightened vulnerability of adolescents to poor HIV care outcomes underscores the need for interventions that create and promote HIV self-management behavioral skills. Adolescents living with HIV (ALHIV) experience a complex array of physical, emotional, and social challenges that constrain their self-care, but the majority of existing psychosocial programs focus primarily on medication adherence. Understanding adolescents’ self-care needs, challenges, and preferences is necessary for developing effective culturally relevant interventions. The involvement of caregivers and stakeholders is also critical to realizing positive self-care outcomes. This article presents the findings from focus group discussions with ALHIV, caregivers, and healthcare providers on self-care. The data were collected as part of formative research in the development of a self-management intervention for Ugandan ALHIV. Participants’ discussions on self-care strategies and intervention approaches provide valuable insights to guide the development of interventions to promote positive HIV care outcomes among Ugandan ALHIV.

scholarly journals Evaluation of a Community-Based Self-Management Program to Increase Access to Rehabilitation for People Living with HIV

2019 ◽  
Vol 18 ◽  
pp. 232595821988333 ◽  
Author(s):  
Patricia Solomon ◽  
Nancy Margaret Salbach ◽  
Kelly Kathleen O’Brien ◽  
Stephanie Nixon ◽  
Larry Baxter ◽  
...  
Keyword(s):  
Peer Education ◽  
Management Program ◽  
Self Management ◽  
Rehabilitation Services ◽  
People Living With Hiv ◽  
Community Based ◽  
Centered Care ◽  
Living With Hiv ◽  
Future Work

We qualitatively evaluated a novel educational program to help people living with HIV understand the role of rehabilitation, facilitate access to rehabilitation, and promote self-management of chronic disease in Canada. The program incorporated components of self-efficacy, client-centered care, peer education, and problem-based learning. Delivery of the community-engaged program was viewed as feasible and acceptable; however, a flexible delivery model was deemed important. Perceived learning was related to rehabilitation, advocacy, and taking responsibility for one’s health. A co-leader model and access to online resources were strengths. Future work should assess the ability to apply advocacy knowledge and skills to access rehabilitation services.

Identifying Key Elements to Inform the Development of an HIV Health Behavior Maintenance Intervention

2016 ◽  
Vol 32 (1) ◽  
pp. 48-58 ◽  
Author(s):  
Stephen J. Hile ◽  
Matthew B. Feldman ◽  
Amanda R. Raker ◽  
Mary K. Irvine
Keyword(s):  
New York ◽  
Low Income ◽  
Self Management ◽  
People Living With Hiv ◽  
Health Promoting Behaviors ◽  
Management Intervention ◽  
Management Interventions ◽  
Health Promoting ◽  
Maintenance Intervention ◽  
Behavior Maintenance

Purpose: To collect information that will inform the development of an intervention to support the maintenance of HIV-related health-promoting behaviors. Design: Focused, in-depth individual and group interviews. Setting: The New York City (NYC) Department of Health and Mental Hygiene (DOHMH) and DOHMH-funded community-based organizations that primarily serve low-income people living with HIV within the five boroughs of NYC. Participants: A total of 42 individuals who had participated in The Positive Life Workshop—an HIV self-management intervention adapted and implemented by the NYC DOHMH. Method: Purposive sampling was used to recruit study participants. Five 60- to 90-minute focus groups (n = 38) and 4 individual interviews were conducted to assess motivations for and barriers to maintaining HIV-related health-promoting behaviors and to elicit feedback on the content and format for the proposed maintenance intervention. Thematic analysis was used to summarize the data. Results: Participants reported that relationships with family, a responsibility to protect others from HIV, and faith/spirituality supported the maintenance of health-promoting behaviors. Barriers to behavior maintenance included substance use and mental health issues. Meeting in small groups was also highlighted as a motivator to sustaining health behaviors, particularly in decreasing isolation and receiving affirmation from others. Conclusion: Participants identified several factors that could be incorporated into an intervention to support HIV-related health-promoting behavior maintenance that could supplement existing HIV self-management interventions.

scholarly journals Virtual Intervention to Support Self-Management of Antiretroviral Therapy Among People Living With HIV

2015 ◽  
Vol 17 (1) ◽  
pp. e6 ◽  
Author(s):  
José Côté ◽  
Gaston Godin ◽  
Pilar Ramirez-Garcia ◽  
Geneviève Rouleau ◽  
Anne Bourbonnais ◽  
...  
Keyword(s):  
Antiretroviral Therapy ◽  
Self Management ◽  
People Living With Hiv ◽  
Living With Hiv
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