scholarly journals Evaluation of a Community-Based Self-Management Program to Increase Access to Rehabilitation for People Living with HIV

2019 ◽  
Vol 18 ◽  
pp. 232595821988333 ◽  
Author(s):  
Patricia Solomon ◽  
Nancy Margaret Salbach ◽  
Kelly Kathleen O’Brien ◽  
Stephanie Nixon ◽  
Larry Baxter ◽  
...  
Keyword(s):  
Peer Education ◽  
Management Program ◽  
Self Management ◽  
Rehabilitation Services ◽  
People Living With Hiv ◽  
Community Based ◽  
Centered Care ◽  
Living With Hiv ◽  
Future Work

We qualitatively evaluated a novel educational program to help people living with HIV understand the role of rehabilitation, facilitate access to rehabilitation, and promote self-management of chronic disease in Canada. The program incorporated components of self-efficacy, client-centered care, peer education, and problem-based learning. Delivery of the community-engaged program was viewed as feasible and acceptable; however, a flexible delivery model was deemed important. Perceived learning was related to rehabilitation, advocacy, and taking responsibility for one’s health. A co-leader model and access to online resources were strengths. Future work should assess the ability to apply advocacy knowledge and skills to access rehabilitation services.

scholarly journals Experiences of People Living With HIV in Community Based Exercise: A Qualitative Longitudinal Study

2021 ◽  
Vol 20 ◽  
pp. 232595822199534
Author(s):  
Patricia Solomon ◽  
Soo Chan Carusone ◽  
Aileen M. Davis ◽  
Rachel Aubry ◽  
Kelly K. O’Brien
Keyword(s):  
Longitudinal Study ◽  
Self Management ◽  
People Living With Hiv ◽  
Health Providers ◽  
Structured Interviews ◽  
Community Based ◽  
Weekly Session ◽  
Living With Hiv ◽  
Over Time

This qualitative longitudinal study examined the experiences of people living with HIV who engaged in a structured community-based exercise (CBE) program under the supervision of a fitness coach. Twenty people living with HIV were invited to participate in 3 semi-structured interviews over time. Participants engaged in exercise 3 times per week for 6 months with one weekly session supervised by a coach. Interviews were audio-recorded, transcribed verbatim and underwent longitudinal thematic analyses. Eleven participants were included representing a total of 30 interviews. Participants valued their experiences with the CBE program, particularly the motivation provided by the coach. Concerns about the environment, stigma and episodic health challenges affected their overall experience. To foster independence and promote self-management, health providers should consider these findings when encouraging CBE with people living with HIV. It is important to understand their goals and offer a variety of exercise options to meet their needs.

scholarly journals Self-management: A comprehensive approach to improve quality of life among people living with HIV in Indonesia

2021 ◽  
Author(s):  
Achmad Fauzi ◽  
Nofa Anggraini ◽  
Novy Fatkhurohman
Keyword(s):  
Quality Of Life ◽  
Comparison Group ◽  
Management Program ◽  
The Self ◽  
World Health ◽  
Self Management ◽  
People Living With Hiv ◽  
Post Test ◽  
Living With Hiv

Background: People living with HIV (PLWH) today have to deal with a chronic condition that requires efficient self-management due to increased longevity. Self-management interventions have been shown to improve physical and psychological symptoms as well as clinical results in chronic diseases. However, few studies have investigated the effect of self-management on quality of life (QOL) among PLWH in Indonesia. Objective: To examine the effect of a self-management program on QOL among PLWH in Indonesia. Methods: This was a quasi-experiment design with a pre-post-test study with a comparison group in a general hospital in Jakarta. Of the 114 recruited PLWH, 57 were assigned to the intervention group and 57 to the comparison group. The self-management group attended a four-week program workshop. The intervention consisted of five sessions: need assessment and goal setting, maintaining a healthy lifestyle, educational participation to increase communication and self-esteem, and evaluation. The comparison group received standard educational material throughout the leaflet regarding HIV prevention. The post-test assessment was conducted immediately after intervention (T1) and two months (T2) after the intervention in both groups. QoL was measured using the World Health Organization Quality of Life (WHOQOL)-HIV brief Bahasa version. The estimations were obtained using fixed-effect regressions. The differences between T0, T1, and T2 for the intervention and comparison groups were evaluated and compared using the DI Differences method (DID). Results: The self-management program improved outcomes relative to the control at T1 across four outcomes: 1) overall QOL score increased 8.7% (95% CI 0.021–0.149), 2) physical domain saw a modest increased 8.8% (95% CI 0.017–0.125), 3) psychological domain increased 23.5 % (95% CI 0.085–0.689), environmental domain saw a modest increase of 18.7% (95% CI 0.053–0.371). At T2, the total QOL score and the physical, psychological, and environmental dimensions significantly improved compared to the comparison group. Conclusion: The self-management program appears to improve the QOL of the life of PLWH. Nurses are advised to provide PLWH with self-management training. Future research on self-management intervention would need to be refined further to ensure that each community achieves consistent intervention outcomes. Funding: This study was funded by STIKes Abdi Nusantara, Indonesia.

scholarly journals Physiotherapy Intervention in Palliative Care for HIV Comorbidities: Can it be a Best Practice for Public Policy for Palliative Care in Zambia?

2020 ◽  
Vol 2 (1) ◽  
pp. 92-104
Author(s):  
Esther Munalula Nkandu ◽  
◽  
Micah Mutuna Simpamba ◽  
Hastings Kachingwe Shula ◽  
Theresa Lesa Chisoso ◽  
...  
Keyword(s):  
Palliative Care ◽  
Community Health ◽  
Community Health Workers ◽  
Quantitative Data ◽  
Health Workers ◽  
Rehabilitation Services ◽  
People Living With Hiv ◽  
Community Based ◽  
Physiotherapy Intervention ◽  
Living With Hiv

Introduction:The prolonged life expectancy for people living with HIV has led to an increase in the prevalence of people living with HIV and AIDS.Most of these patients are experiencing episodes of wellness and illness with related disability. In Zambia, many HIV patients who required rehabilitation services were not able to access these services.A community based physiotherapy intervention programme using Community Health Workers who were equipped with basic physiotherapy skills was set up in Mtendere and Chawama Townships of Lusaka, Zambia from 2008 to 2015.This study set out to assess the intervention output in relation to patients’ trends, process of the intervention and challenges experienced for the period October, 2012 to September, 2014.Methods: This evaluation reviewed monthly and annual reports of the programme from October, 2012 to September, 2014.A desk review of palliative care related reports and policy was also reviewed. Both qualitative and quantitative data was extracted from these reports, with quantitative data being analyzed using excel while qualitative data was analysed usingQSR NVIVO 10 after being transcribed and translated from texts.Results: The patients’ trends during this period showed a steady increase in the proportion of new patients being enrolled onto the programme compared to those who were being lost to follow up, death, discharge or other loss such as transfers and many others. Themes under qualitative analysis were Community Health Workers, procurements, service delivery programme challenges and palliative care policy.The programme planned to conduct two trainings for each of the years under review but only managed one in each year. There were many challenges identified under this programme and all of them bordered on inconsistencies in the release of funds.Conclusion: This evaluation shows that the prevalence of HIV patients presenting with disabling conditions has been increasing and there is need to provide the needed rehabilitation services through the community based programme. Using Community Health Workers to provide physiotherapy services in the community enables many patients to access these services and hence a policy that supports this would be ideal. Keywords:palliative care; physiotherapy; HIV comorbidity; public policy

scholarly journals Community-based model for the delivery of antiretroviral therapy in Cambodia: a quasi-experimental study protocol

2021 ◽  
Vol 21 (1) ◽  
Author(s):  
Sovannary Tuot ◽  
Alvin Kuo Jing Teo ◽  
Kiesha Prem ◽  
Pheak Chhoun ◽  
Chamroen Pall ◽  
...  
Keyword(s):  
Experimental Study ◽  
Antiretroviral Therapy ◽  
Scale Up ◽  
Economic Evaluations ◽  
People Living With Hiv ◽  
Cad Model ◽  
Community Based ◽  
Quasi Experimental ◽  
Living With Hiv ◽  
Art Delivery

Abstract Background Multi-month dispensing (MMD) is the mainstay mechanism for clinically stable people living with HIV in Cambodia to refill antiretroviral therapy (ART) every 3-6 months. However, less frequent ART dispensing through the community-based ART delivery (CAD) model could further reduce the clients’ and health facilities’ burden. While community-based services have been recognized as an integral component of HIV response in Cambodia, their role and effectiveness in ART delivery have yet to be systematically assessed. This study aims to evaluate the CAD model’s effectiveness on the continuum of care and treatment outcomes for stable people living with HIV in Cambodia. Methods We will conduct this quasi-experimental study in 20 ART clinics across the capital city and nine provinces between May 2021 and April 2023. Study sites were purposively selected based on the availability of implementing partners, the number of people living with HIV each clinic serves, and the accessibility of the clinics. In the intervention arm, approximately 2000 stable people living with HIV will receive ART and services from the CAD model. Another 2000 stable people living with HIV in the control arm will receive MMD—a standard care model for stable people living with HIV. The primary outcomes will be retention in care, viral load suppression, and adherence to ART. The secondary endpoints will include health providers’ work burden, the model’s cost-effectiveness, quality of life, mental health, social support, stigma, and discrimination. We will compare the outcome indicators within each arm at baseline, midline, and endline using descriptive and inferential statistics. We will evaluate the differences between the intervention and control arms using the difference-in-differences method. We will perform economic evaluations to determine if the intervention is cost-effective. Discussion This study will build the evidence base for future implementation and scale-up of CAD model in Cambodia and other similar settings. Furthermore, it will strengthen engagements with community stakeholders and further improve community mobilization, a vital pillar of the Cambodian HIV response. Trial registration ClinicalTrials.gov, NCT04766710. Registered 23 February 2021, Version 1.

The role of cannabis in pain management among people living with HIV who use drugs: A qualitative study

2021 ◽  
Author(s):  
Koharu Loulou Chayama ◽  
Jenna Valleriani ◽  
Cara Ng ◽  
Rebecca Haines‐Saah ◽  
Rielle Capler ◽  
...  
Keyword(s):  
Pain Management ◽  
Qualitative Study ◽  
People Living With Hiv ◽  
Living With Hiv
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