Attitudes toward Technology-Based Cancer Support Programs Among Korean American Breast Cancer Survivors

2020 ◽  
pp. 019394592097402
Author(s):  
Eun-Ok Im ◽  
Sangmi Kim ◽  
Mia Jang ◽  
Wonshik Chee
Keyword(s):  
Cancer Survivors ◽  
Support Groups ◽  
Breast Cancer Survivors ◽  
Korean American ◽  
Support Programs ◽  
Attitudes Toward Technology ◽  
Specific Information ◽  
Future Technology ◽  
Cancer Support ◽  
Group Interviews

Despite the increasing usages of technology-based programs, few technology-based support programs are currently available for racial/ethnic minority cancer survivors including Korean-American cancer survivors. The purpose of this study was to explore the attitudes toward technology-based cancer support programs among Korean-American cancer survivors from a feminist perspective. In-person focus group interviews were held with 17 Korean-American cancer survivors. All the interviews were recorded by writing memos. Then, the written memos were analyzed using a content analysis. Four major themes reflecting their attitudes toward technology-based cancer-support programs were identified: (a) “easy to access”; (b) “good for peer and family support,” (c) “overcoming language barriers,” and (d) “providing Korean-specific and personalized trustable information.” Future technology-based cancer support groups for this specific population need to incorporate peer support, support for family members, Korean language, and Korea-specific information and intervention components.

Use of cancer support groups among Latina breast cancer survivors

2007 ◽  
Vol 1 (3) ◽  
pp. 193-204 ◽  
Author(s):  
Anna M. Nápoles-Springer ◽  
Carmen Ortíz ◽  
Helen O’Brien ◽  
Marynieves Díaz-Méndez ◽  
Eliseo J. Pérez-Stable
Keyword(s):  
Breast Cancer ◽  
Cancer Survivors ◽  
Support Groups ◽  
Breast Cancer Survivors ◽  
Cancer Support ◽  
Cancer Support Groups

scholarly journals Empowering Cancer Survivors to Become Mentors, and Leaders Through Various Workshops and Programs

2018 ◽  
Vol 4 (Supplement 2) ◽  
pp. 174s-174s ◽  
Author(s):  
A. Mohamed
Keyword(s):  
Cancer Survivors ◽  
Cancer Patients ◽  
Support Groups ◽  
Support Program ◽  
Support Programs ◽  
Positive Outcomes ◽  
Cancer Support ◽  
Program Policy ◽  
Hospital Visits ◽  
Selection Of

Background and context: Friends of Cancer Patients UAE conducts various moral support programs for cancer patients, one of which is the “Color My World” program, which focuses on provide moral support to predominantly men and women, who have undergone, or are currently undergoing treatment of cancer. Aim: The aim is to empower cancer survivors to become leaders and mentors to other ladies/men currently undergoing treatment, and to establish a survivor led support program, as a result of these various programs and workshops. Strategy/Tactics: We believe that to for such a program to be a success, you need to understand your target group, their interests, as well as their backgrounds. A needs assessment needs to be conducted prior to the selection of workshops, whether through direct interviews with the patients, or internally by examining the different support programs available in the country, and what is available/not available. Program/Policy process: There are numerous workshops that take place throughout the year, and they are divided as follows: - There are workshops that focus on healthy living, and the importance of a healthy diet, which involves numerous cooking workshops, and educational sessions. - There are workshops that focus on skin care and make-up, where the ladies are taught how to take care of themselves by certified stylists and makeup artists. - Those who are interested in crochet and handicrafts, have the chance to take part in group workshops, or in focused 1 to 1 sessions. Outcomes: There are a number of positive outcomes that came about from our attempts to empower cancer survivors, the ones we believe are worth of being highlighted are: - A group of survivors are now leading, and running a cancer support program, that visits hospitals within the UAE, to visit those currently undergoing treatment, to provide support, and assist those still undergoing treatment in any way possible. - Many of the ladies, who attended previous workshops, will now start to lead similar workshops during hospital visits to children and women with cancer. What was learned: Cancer survivors must be the driving force in providing support to other cancer patients, and the existing model of the support groups can be linked with the educational workshops, to not only provide moral support, but also social support to the cancer patient.

Exercise and Self-Esteem in Breast Cancer Survivors: An Application of the Exercise and Self-Esteem Model

1997 ◽  
Vol 19 (4) ◽  
pp. 347-358 ◽  
Author(s):  
M. Kjerstin Baldwin ◽  
Kerry S. Courneya
Keyword(s):  
Breast Cancer ◽  
Physical Exercise ◽  
Cancer Survivors ◽  
Support Groups ◽  
Breast Cancer Survivors ◽  
Pearson Correlation ◽  
Self Esteem ◽  
Physical Competence ◽  
Exercise Participation ◽  
Cancer Support

The purpose of this study was to examine the relationship between physical exercise and self-esteem in breast cancer survivors using Sonstroem and Morgan’s (1989) exercise and self-esteem model (EXSEM). Participants were 64 women from four breast cancer support groups. Each participant completed a battery of self-administered questionnaires that assessed exercise participation, physical competence, physical acceptance, and global self-esteem. Pearson correlation analyses demonstrated that physical acceptance, physical competence, and exercise participation each had significant zero-order relationships with global self-esteem. Multiple regression analysis determined that these three constructs together explained 46% of the variance in global self-esteem. Consistent with hypotheses, path analysis showed that the significant relationship between exercise participation and global self-esteem was mediated entirely by physical competence. It was concluded that the EXSEM may be a viable framework for examining the mechanisms by which physical exercise may influence self-esteem in breast cancer survivors.

scholarly journals A culturally tailored Internet cancer support group for Asian American breast cancer survivors: A randomized controlled pilot intervention study

2016 ◽  
Vol 23 (6) ◽  
pp. 618-626 ◽  
Author(s):  
Wonshik Chee ◽  
Yaelim Lee ◽  
Eun-Ok Im ◽  
Eunice Chee ◽  
Hsiu-Min Tsai ◽  
...  
Keyword(s):  
Breast Cancer ◽  
Cancer Survivors ◽  
Asian American ◽  
Breast Cancer Survivors ◽  
Intervention Study ◽  
Intervention Group ◽  
Control Group ◽  
Randomized Controlled ◽  
Cancer Support ◽  
Pilot Intervention

Introduction The necessity of culturally competent Internet Cancer Support Groups (ICSGs) for ethnic minorities has recently been highlighted in order to increase its attractiveness and usage. The purpose of this study was to determine the preliminary efficacy of a culturally tailored registered-nurse-moderated ICSG for Asian American breast cancer survivors in enhancing the women’s breast cancer survivorship experience. Methods The study included two phases: (a) a usability test and an expert review; and (b) a randomized controlled pilot intervention study. The usability test was conducted among five Asian American breast cancer survivors using a one-month online forum, and the expert review was conducted among five experts using the Cognitive Walkthrough method. The randomized controlled pilot intervention study (a pre-test and post-test design) was conducted among 65 Asian American breast cancer survivors. The data were analysed using content analysis and descriptive and inferential statistics including the repeated ANOVA. Results All users and experts positively evaluated the program and provided their suggestions for the display, educational contents, and user-friendly structure. There were significant positive changes in the support care needs and physical and psychological symptoms ( p < 0.05) of the control group. There were significant negative changes in the uncertainty level of the intervention group ( p < 0.10). Controlling for background and disease factors, the intervention group showed significantly greater improvements than the control group in physical and psychological symptoms and quality of life ( p < 0.10). Discussion The findings supported the positive effects of ICSGs on support care needs, psychological and physical symptoms, and quality of life.

Long-term cancer survivorship care: On the radar screen?

2013 ◽  
Vol 31 (15_suppl) ◽  
pp. e20567-e20567
Author(s):  
Rutika Mehta ◽  
Rohit Jain ◽  
Lori Rhodes ◽  
Joseph Abraham ◽  
Kenneth David Miller
Keyword(s):  
Cancer Survivors ◽  
Cancer Treatment ◽  
Breast Cancer Survivors ◽  
Demographic Data ◽  
Cancer Center ◽  
Specific Information ◽  
Survivorship Care ◽  
Coordination Of Care ◽  
Long Term Effects

e20567 Background: Long-term cancer survivors require comprehensive care. The purpose of this study was to describe how survivorship care fits into oncologists’ clinical time, and characterize long-term cancer survivors’ problems and oncology follow-up care. Methods: We abstracted 18,882 medical records of unique cancer patient visits during 2010 at a major NCI-designated cancer center and then evaluated survivor care for one week in April, 2010 to characterize how oncologists spend their clinical time. Finally, we selected three subgroups from the survivor population (n≈100 each) of survivors at 1-5 years, 6-10 years, and >10 years after diagnosis. We collected demographic data, purpose of visit, cancer-specific information, late and long-term effects, and type of care delivered, including surveillance for recurrence, intervention, prevention, and coordination of care. Results: In the larger group of 18,882, only 14% of survivors were more than 10 years post-diagnosis. Approximately two-thirds of the survivors were women. Breast cancer survivors comprised 38%, and survivors of hematologic malignancies accounted for 21% of the population. During the one week studied, the majority of oncologists' patients (74%) were actively receiving treatment; only 5% of their patients were 5 or more years post-diagnosis. Second or secondary malignancies were noted in 8% of patients. Late and long-term effects were uncommon. Approximately 25% of survivors beyond five years were observed to have late effects due to cancer treatment, most common being fatigue, neurological endocrine, and cardiac. Of the 300 selected survivors, sixty-two percent received only surveillance care during their visit. Only 3% of these patients received an entire array of survivorship care that included surveillance, intervention, co-ordination and prevention. Conclusions: A small proportion of oncologists’ visits were with long-term cancer survivors (5-14%) of whom only 25% had late or long-term effects of cancer treatment so overall very few of office visits were with long-term survivors who had late and long-term complications. All visits involved surveillance for cancer recurrence but there was little focus on prevention, intervention, and coordination of care for cancer survivors.

scholarly journals Why Don’t Cancer Survivors Attend Cancer Support Groups in Toronto

2019 ◽  
pp. 1-8
Author(s):  
Tsorng-Yeh Lee ◽  
Beryl Pilkington ◽  
Grace Ho
Keyword(s):  
Cancer Survivors ◽  
Support Groups ◽  
Support Group ◽  
Health Care Providers ◽  
Normal Person ◽  
Care Providers ◽  
Cancer Support ◽  
Cancer Support Groups ◽  
Chinese Cancer Survivors ◽  
Depth Interviews

Background: Cancer is the leading cause of death for both men and women in Canada. Professionally or nonprofessionally led support groups have been recognized as a significant source of psychosocial support for cancer survivors. However, the participation rate was low and reasons for leaving a support group were not explored fully. Purpose: To explore the reasons why Chinese cancer survivors left or did not attend a cancer support group in Toronto. Methods: In-depth individual qualitative interviews were conducted. Five Chinese cancer survivors participated in in-depth interviews. Colaizzi’s phenomenological method was used to analyze the interview data. Results: Four themes were extracted from the in-depth interviews: “not fit in”, “not satisfied with the information provided”, “tried to be a normal person”, and “lack reliable transportation and convenient scheduling”. Conclusion: Cancer support groups can improve cancer survivors’ physical and psychosocial outcomes. The services can also help cancer survivors to obtain health related information and connect with professionals and peers. In recognizing the reasons why cancer survivors left support groups, health-care providers need to evaluate and be aware of the needs and difficulties for cancer survivors to attend support groups. They should match cancer survivors with appropriate groups. More language-friendly groups need to be launched, so cancer patients can easily find a suitable one from their neighborhood. 

scholarly journals Breast Cancer Support Group at Ocean Road Cancer Institute in Dar es Salaam

2018 ◽  
Vol 4 (Supplement 2) ◽  
pp. 178s-178s
Author(s):  
S. Nyagabona ◽  
F. Rubagumya ◽  
A. Longombe ◽  
A. Manirakiza ◽  
T. Maniragaba ◽  
...  
Keyword(s):  
Breast Cancer ◽  
Cancer Survivors ◽  
Cancer Patients ◽  
Support Group ◽  
Breast Cancer Survivors ◽  
Psychosocial Support ◽  
Cancer Education ◽  
Developed Countries ◽  
Breast Cancer Patients ◽  
Cancer Support

Background and context: Breast cancer is a common type of cancer among women worldwide, with about 2 million new cases diagnosed in the yearly. It is the second common cancer and leading cause of cancer mortality among women in Tanzania, after cervical cancer. More than 70% of breast cancer patients in developed countries are diagnosed at early stages, whereas in low and middle-income countries, only 20%–60% of patients are diagnosed early. Physician in developed countries consults on average 15-20 breast cancer patients daily, while in developing countries the number triples. This high load does not allow a treating physician to spend ample time with patients explaining hence leaving patients not informed about their diagnosis, side effects of treatments and even living with the physical, emotional and psychological challenges of their disease. Residents at the Ocean Road Cancer Institute (ORCI), initiated a patient support group targeting breast cancer patients for feasibility. Aim: Provide forum for patients with same diagnosis to share common challenges Provide peer emotional, psychosocial support and cancer education Organize activities that will help to spread awareness to the community Initiate projects to improve socioeconomic status of breast cancer survivors in Tanzania Strategy/Tactics: Involved the ORCI administration from the beginning Involved the academic and research unit of ORCI Residents prepared session curriculum and teaching materials Sessions took place once a month Sessions were two hours long divided into three components, where the first is introduction of participants, then survivors led discussions or lectures prepared by an expert in the topic and lastly closing remarks by a physician Breakfast was provided Program/Policy process: Open membership for all breast cancer patients Physician lead face to face peer discussions Institutional acknowledgment of the support group Provision of primary registry of patients for follow-up Provision of a link to other social organizations Outcomes: Increase knowledge of cancer in general and breast cancer in particular A total of seven sessions were held to date For each session, participation ranged from 30-50 breast cancer survivors, and on average attendance was 4 sessions out of 7 Topics covered over a period of seven months included Coping with a cancer diagnosis and treatment Living with cancer and its changes to daily life Exercise Nutrition Breast cancer general knowledge Collaboration with other stake holders including IST secondary school students who initiated breast prosthesis knitting club What was learned: A need to reach out and give psycho-social support to ORCI patients Through education we can improve treatment adherence Possible partners are available if we reach out Exist a need to address misconceptions in the community so as to avoid stigma to patients.

Sign in / Sign up

Export Citation Format

Share Document