scholarly journals Cochlear Implantation in Children with Usher’s Syndrome: A South Asian Experience

2019 ◽  
Vol 72 (1) ◽  
pp. 140-144 ◽  
Author(s):  
Geetha Nair ◽  
Ruchima Dham ◽  
Arpana Sekhar ◽  
Raghunandhan Sampath Kumar ◽  
Mohan Kameswaran
2000 ◽  
Vol 43 (6) ◽  
pp. 633-637
Author(s):  
Ikue Miyamoto ◽  
Yukihiko Kanda ◽  
Kouichiro Shigeno ◽  
Misato Shiromaru ◽  
Toshimitsu Kobayashi ◽  
...  

1995 ◽  
Vol 104 (9_suppl2) ◽  
pp. 342-345 ◽  
Author(s):  
N. M. Young ◽  
J. C. Johnson ◽  
M. B. Mets ◽  
T. C. Hain

Usher's syndrome (US) is an autosomal recessive disorder characterized by congenital sensorineural hearing loss and retinitis pigmentosa. The majority of affected individuals have severe to profound sensorineural hearing loss and are therefore potential cochlear implant candidates. A goal of our otology program has been early identification and implantation of children with US. At our center, early diagnosis of US has been achieved by comprehensive ophthalmologic evaluation including electroretinography. Four of our 19 pediatric cochlear implant recipients with congenital sensorineural hearing loss were identified with US and implanted prior to the onset of signs or symptoms of visual loss. All children have received measurable benefit from cochlear implantation. In light of the dual sensory deficits present in US, the need for early diagnosis and cochlear implantation is of special importance in this population.


Author(s):  
Nidhi Mahendra

This article details the experience of two South Asian individuals with family members who had communication disorders. I provide information on intrinsic and extrinsic barriers reported by these clients in responses to a survey and during individual ethnographic interviews. These data are part of a larger study and provide empirical support of cultural and linguistic barriers that may impede timely access to and utilization of speech-language pathology (SLP) services. The purpose of this article is to shed light on barriers and facilitators that influence South Asian clients' access to SLP services. I provide and briefly analyze two case vignettes to provide readers a phenomenological perspective on client experiences. Data about barriers limiting access to SLP services were obtained via client surveys and individual interviews. These two clients' data were extracted from a larger study (Mahendra, Scullion, Hamerschlag, Cooper, & La, 2011) in which 52 racially/ethnically diverse clients participated. Survey items and interview questions were designed to elicit information about client experiences when accessing SLP services. Results reveal specific intrinsic and extrinsic barriers that affected two South Asian clients' access to SLP services and have important implications for all providers.


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