Use of a Social Robot in the Implementation of a Narrative Intervention for Young People with Cystic Fibrosis: A Feasibility Study

Author(s):  
Jeremy K. Russell ◽  
Esben Strodl ◽  
David Kavanagh
2019 ◽  
pp. 135910531987633
Author(s):  
Jeremy K Russell ◽  
Esben Strodl ◽  
Jennifer Connolly ◽  
David J Kavanagh

Cystic fibrosis and its treatment can have substantial functional and emotional impacts on patients and their families. This feasibility study assessed a new cystic fibrosis treatment, Metacognitive Intervention of Narrative Imagery, integrating narrative and meta-cognitive therapies with mental imagery. A total of 13 patients, aged 10–17 years, received three 1-hour sessions and were assessed on emotional functioning, anxiety, and depression at baseline and 4 and 8 weeks post-baseline. Participants had significant improvements in anxiety, and changes in emotional functioning and anxiety had a medium effect size. Participants and parents rated Metacognitive Intervention of Narrative Imagery highly on usability and favourability. Further clinical trials are indicated.


2021 ◽  
pp. 1357633X2199820
Author(s):  
Cloe Benz ◽  
Anna Middleton ◽  
Alison Elliott ◽  
Adrienne Harvey

Introduction The demand for Hospital in the Home has increased, especially as an avenue for treatment of respiratory exacerbations. However, a limiting factor of Hospital in the Home efficiency is excess travel. Telehealth can potentially increase in-home access to specialist care such as physiotherapy. This study examined clinical outcomes achieved with a hybrid telehealth model and assessed safety and efficiency. Method This study was an observational benchmarking study of Hospital in the Home physiotherapy episodes of care during respiratory exacerbations between January 2017–June 2019. The participants were young people aged 8–18 years, with cystic fibrosis receiving intravenous antibiotics and bi-daily physiotherapy. The intervention was physiotherapy via either a hybrid model (1× telehealth, 1× face-to-face session) or standard care (2× face-to-face sessions). The outcomes were frequency of return to at least 95% of baseline percentage predicted forced expiratory volume in the first second (ppFEV1), ppFEV1 change, adverse events, travel time and distance saved. Results There were 82 episodes of Hospital in the Home; 41 hybrid and 41 standard care. Return to at least 95% of baseline was achieved in 49% of the hybrid group and 32% of standard care. Median ppFEV1 change was +6% for the hybrid group and +2% standard care. There were no adverse events. Estimated travel time and distance saved was 16,520 min and 12,301.2 km. Conclusion Preliminary information supports a hybrid telehealth physiotherapy model as an alternative to standard care for young people with cystic fibrosis during an exacerbation. Safety of telehealth in conjunction with home visits favoured its use to improve efficiency and capacity without added risk.


Author(s):  
Bernadka Dubicka ◽  
Susanne Marwedel ◽  
Sabah Banares ◽  
Amy McCulloch ◽  
Taghrid Tahoun ◽  
...  

2015 ◽  
Vol 6 (4) ◽  
pp. 1-11 ◽  
Author(s):  
Jennifer A. Dobson ◽  
Emily Christofides ◽  
Melinda Solomon ◽  
Valerie Waters ◽  
Kieran O’Doherty

2018 ◽  
Vol 22 (4) ◽  
pp. 646-657 ◽  
Author(s):  
Imelda Coyne ◽  
Helen Malone ◽  
Emma Chubb ◽  
Alison E While

Parents of young people with cystic fibrosis (YPWCF) play an important role during the transition from paediatric to adult health services. There is limited evidence on parental information needs and the extent to which they are met. An online survey was conducted targeting a finite population of 190 parents of YPWCF in Ireland. Fifty-nine parents responded (31% response rate). Parents reported the need for more general preparation and timing of the transfer, more information regarding the differences between adult and child health services and how their child will self-manage his/her illness in the future. Most parents received information on the timing of transfer and new healthcare providers but reported being insufficiently informed about their legal status relating to medical confidentiality for their adult child and community resources available for their child after transition to adult health services. The findings highlight the importance of information and preparation for caregivers as well as young people to promote successful transition to adult healthcare. Providing parents with clear information and anticipatory guidance are simple changes in practice that may lead to improvements in transition experiences.


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