1116 Palliative care is a matter of details: The importance of mouth care for the quality of life of a palliative patient cared for at home

1995 ◽  
Vol 31 ◽  
pp. S233
Author(s):  
B. Van den Eynden ◽  
A. Van Oosterom
Keyword(s):  
Quality Of Life ◽  
Palliative Care ◽  
Mouth Care ◽  
Palliative Patient ◽  
At Home

Palliative Care Unit at Home: Impact on Quality of Life in Cancer Patients at the End of Life in a Rural Environment

2021 ◽  
pp. 104990912110383
Author(s):  
Maria Elena Iriarte Moncho ◽  
Vicente Palomar-Abril ◽  
Teresa Soria-Comes
Keyword(s):  
Quality Of Life ◽  
Palliative Care ◽  
End Of Life ◽  
Cancer Patients ◽  
Hospital Admissions ◽  
Cox Regression ◽  
Medical Department ◽  
The Impact ◽  
At Home

Introduction: Advanced cancer is accompanied by a substantial burden of symptoms, and palliative care (PC) plays an essential role, especially at the end of life (EOL). In fact, a comprehensive PC through Home Palliative Care Units (HPCU) has been associated with reducing potentially aggressive care at the EOL. We aim to study the impact of HPCU on the quality of assistance of cancer patients at Alcoy Health Department. Methods: A retrospective study was conducted including patients diagnosed with terminal cancer at the Medical Department of Hospital Virgen de los Lirios who died between January 2017 and December 2018. The Multivariate Cox regression model was used to assess the impact of HPCU assistance on the quality of life indicators. Results: 388 patients were included. The median age was 71 years; 65% patients were male, and 68% presented with a 0-2 score on the ECOG scale. On the multivariate analysis, a lack of assistance by HPCU was associated with a higher risk of consulting in the emergency department (OR = 1.29, 95% CI: 1.02-1.67), of hospital admissions (OR = 4.72, 95% CI: 2.45-9.09), a higher probability of continuing active treatment (OR = 2.59, 95% CI: 1.44-4.67), and a greater probability of dying in hospital (OR = 6.52, 95% CI: 3.78-11.27). Conclusions: Patients receiving HPCU assistance have a lower number of emergency room visits and hospital admissions, and are more likely to die at home. Taken together, these results support the relevance of HPCU providing a high quality attention of cancer patients.

scholarly journals Patients’ Experiences of Telehealth in Palliative Home Care: Scoping Review

10.2196/16218 ◽  
2020 ◽  
Vol 22 (5) ◽  
pp. e16218 ◽  
Author(s):  
Simen A Steindal ◽  
Andréa Aparecida Goncalves Nes ◽  
Tove E Godskesen ◽  
Alfhild Dihle ◽  
Susanne Lind ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Health Care ◽  
Palliative Care ◽  
Home Care ◽  
Scoping Review ◽  
Health Care Professionals ◽  
Visual Features ◽  
Palliative Home Care ◽  
At Home

Background Telehealth is increasingly being used in home care and could be one measure to support the needs of home-based patients receiving palliative care. However, no previous scoping review has mapped existing studies on the use of telehealth for patients in palliative home care. Objective The aim of this study was to map and assess published studies on the use of telehealth for patients in palliative home care. Methods A scoping review was conducted using the methodological framework of Arksey and O’Malley. Reporting was guided by Preferred Reporting Items for Systematic Reviews and Meta-Analyses extension for Scoping Reviews. A systematic and comprehensive search of Medical Literature Analysis and Retrieval System Online, EMBASE, PsycINFO, and Cumulative Index to Nursing and Allied Health was performed for studies published between January 2000 and October 2018. Two authors independently assessed eligibility and extracted data. Results The review included 22 papers from 19 studies. Four thematic groupings were identified among the included papers: easy and effortless use of telehealth regardless of the current health condition, visual features that enhance communication and care via telehealth, symptom management and self-management promotion by telehealth, and perceptions of improved palliative care at home. Conclusions The use of telehealth in palliative home care seems to be feasible, improving access to health care professionals at home and enhancing feelings of security and safety. The visual features of telehealth seem to allow a genuine relationship with health care professionals. However, there are contradicting results on whether the use of telehealth improves burdensome symptoms and quality of life. Future research should investigate the experiences of using telehealth among patients with life-limiting illness other than cancer and patients aged 85 years or older. More research is needed to increase the body of knowledge regarding the effectiveness of telehealth on symptoms and quality of life.

scholarly journals SPIRITUAL PASIEN PALIATIF DI RUMAH SAKIT, YOGYAKARTA SPIRITUALITY OF PALLIATIVE PATIENT IN HOSPITAL, YOGYAKARTA Milatul

2019 ◽  
Vol 7 (3) ◽  
pp. 265-271
Author(s):  
Milatul Afifah ◽  
Arianti
Keyword(s):  
Quality Of Life ◽  
Palliative Care ◽  
Univariate Analysis ◽  
Sampling Technique ◽  
Mean Values ◽  
Palliative Patient ◽  
The Mean ◽  
Descriptive Survey ◽  
Palliative Patients

Background: Palliative care goal is to improve the quality of life of the patient. Spiritual is believed can improve the quality of life in palliative patients. Objective: The purpose of this research is to identify the spiritual status of palliative patients in PKU Muhammadiyah Gamping Yogyakarta Hospital. Methods: This study is a non-experiment research. It used descriptive survey research method with 100 subjects which used total sampling technique. FACIT-Sp is choosen based on this validity(r=0,5) dan realibity (r=0,768) to get the spiritual status of the sample. Results: The result of univariate analysis showed that the spiritual level of palliative patients in PKU Muhammadiyah Gamping Hospital with the mean values of 36,79 (0-48) and the spiritual component consisted of mean is 12,26 (0-16), faith is 12,85 (0-16) and peace 68 (0-16). Conclusion: The spiritual status of palliative patients at Muhammadiyah Gamping Yogyakarta Hospital in the categories of meaning, faith, peace and spiritual level most have passed the cut of point, it showed that the palliative patient is headed to the good spiritual. Keyword : Palliative care, spiritual, mean, faith, peace

scholarly journals Gastrointestinal obstruction in palliative care: a review

2015 ◽  
Vol 6 (1) ◽  
pp. 1-5
Author(s):  
Amrallah A. Mohammed ◽  
Hafez M. Ghanem ◽  
Amr M. El Saify
Keyword(s):  
Quality Of Life ◽  
Palliative Care ◽  
Intestinal Obstruction ◽  
Bowel Obstruction ◽  
Multidisciplinary Teams ◽  
Gastrointestinal Obstruction ◽  
Dying Patients ◽  
At Home

Abstract Many symptoms are experienced by dying patients. Any symptom can be debilitating and affect the patient’s and the family’s quality of life. Symptom research is complicated, especially in patients receiving palliative care because the studies needed are methodologically challenging. Symptoms management is the essential goal in palliative care. Many people rate this as one of the most important issues whether they are at home, in a hospital or at other assisted care. Bowel obstruction is rarely an emergency, and usually evaluated by multidisciplinary teams. Tailored management is based on the underlying aetiology and pathophysiology. When several symptoms occur together, they can be interrelated and management can be complex. This article discusses the management of intestinal obstruction experienced by palliative care patients

scholarly journals SPIRITUAL PASIEN PALIATIF DI RUMAH SAKIT, YOGYAKARTA

2019 ◽  
Vol 7 (3) ◽  
pp. 265-271
Author(s):  
Milatul Afifah ◽  
Arianti Arianti
Keyword(s):  
Quality Of Life ◽  
Palliative Care ◽  
Univariate Analysis ◽  
Sampling Technique ◽  
Mean Values ◽  
Palliative Patient ◽  
The Mean ◽  
Descriptive Survey ◽  
Palliative Patients

Background: Palliative care goal is to improve the quality of life of the patient. Spiritual is believed can improve the quality of life in palliative patients. Objective: The purpose of this research is to identify the spiritual status of palliative patients in PKU Muhammadiyah Gamping Yogyakarta Hospital. Methods: This study is a non-experiment research. It used descriptive survey research method with 100 subjects which used total sampling technique. FACIT-Sp is choosen based on this validity(r=0,5) dan realibity (r=0,768) to get the spiritual status of the sample. Results: The result of univariate analysis showed that the spiritual level of palliative patients in PKU Muhammadiyah Gamping Hospital with the mean values of 36,79 (0-48) and the spiritual component consisted of mean is 12,26 (0-16), faith is 12,85 (0-16) and peace 68 (0-16). Conclusion: The spiritual status of palliative patients at Muhammadiyah Gamping Yogyakarta Hospital in the categories of meaning, faith, peace and spiritual level most  have passed the cut of point, it showed that the palliative patient is headed to the good spiritual.   Keyword : Palliative care, spiritual, mean, faith, peace

Survey of satisfaction regarding palliative care provided to patients who died at home or in a hospital

2020 ◽  
Vol 26 (6) ◽  
pp. 272-277
Author(s):  
Masaaki Katsuki ◽  
Momoka Nakamata ◽  
Arisa Ezaki ◽  
Sayaka Yamanaka ◽  
Sakiko Imamura ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Palliative Care ◽  
Good Death ◽  
Hospital Patients ◽  
Satisfactory Answer ◽  
Bereaved Family ◽  
At Home

Background: Improvement in quality of life (QoL) of patients is one of the most important goals of palliative care, but evaluation of QoL of patients is difficult. Aim: To evaluate QoL of patients who died at home or in a hospital. Methods: We administered the Good Death Inventory (10 core and 8 optional domains) to the bereaved families of patients who died at home or in a hospital. A total of 107 bereaved families undertook a survey. Findings: If a bereaved family chose ‘somewhat agree’, ‘agree’ or ‘absolutely agree’, the answer was regarded as a ‘satisfactory answer’. Regarding the 10 core domains, of patients who died in a hospital, <50% respondents gave a ‘satisfactory answer’ to three questions, whereas of patients who died at home, >60% of respondents gave a ‘satisfactory answer’ to seven questions. Regarding the eight optional domains, of patients who died in a hospital, <50% respondents gave a ‘satisfactory answer’ to five questions, whereas of patients who died at home, >60% of respondents gave a ‘satisfactory answer’ to four questions. Conclusions: QoL of patients who died at home appeared higher than that of those who died in a hospital. Patients prefer to remain at home rather than in a hospital, probably because at home they are surrounded by familiar things and can live according to their usual habits.

Quality of Life in Patients With Advanced Lung Cancer Treated at Home and at a Palliative Care Unit

2011 ◽  
Vol 29 (5) ◽  
pp. 379-387 ◽  
Author(s):  
Wojciech Leppert ◽  
Anna Turska ◽  
Mikolaj Majkowicz ◽  
Sylwia Dziegielewska ◽  
Piotr Pankiewicz ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Lung Cancer ◽  
Palliative Care ◽  
Palliative Care Unit ◽  
Advanced Lung Cancer ◽  
Lung Cancer Patients ◽  
Assess Quality ◽  
Eortc Qlq ◽  
At Home

Background: To assess quality of life (QOL) in patients with advanced lung cancer. Patients and Methods: A prospective study of 78 patients cared at home and at a palliative care unit (PCU) with 2 QOL assessments was conducted. Results: Fifty patients completed the study. In the EORTC QLQ-C30 role, cognitive, social functioning, global QOL, fatigue, pain, dyspnea, and appetite deteriorated; nausea/vomiting improved; dyspnea was more intense in the case of in-home patients. In the EORTC QLQ-LC13 hemoptysis improved; pain in other parts was more intense in the PCU patients. Pain (Visual Analogue scale) was more intense in the PCU patients; the level of activity (Karnofsky) decreased in the case of patients treated at home. Conclusions: QOL deteriorated with few differences between home and the PCU patients.

scholarly journals Patients’ Experiences of Telehealth in Palliative Home Care: Scoping Review (Preprint)

2019 ◽  
Author(s):  
Simen A Steindal ◽  
Andréa Aparecida Goncalves Nes ◽  
Tove E Godskesen ◽  
Alfhild Dihle ◽  
Susanne Lind ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Health Care ◽  
Palliative Care ◽  
Home Care ◽  
Scoping Review ◽  
Health Care Professionals ◽  
Visual Features ◽  
Palliative Home Care ◽  
At Home

BACKGROUND Telehealth is increasingly being used in home care and could be one measure to support the needs of home-based patients receiving palliative care. However, no previous scoping review has mapped existing studies on the use of telehealth for patients in palliative home care. OBJECTIVE The aim of this study was to map and assess published studies on the use of telehealth for patients in palliative home care. METHODS A scoping review was conducted using the methodological framework of Arksey and O’Malley. Reporting was guided by Preferred Reporting Items for Systematic Reviews and Meta-Analyses extension for Scoping Reviews. A systematic and comprehensive search of Medical Literature Analysis and Retrieval System Online, EMBASE, PsycINFO, and Cumulative Index to Nursing and Allied Health was performed for studies published between January 2000 and October 2018. Two authors independently assessed eligibility and extracted data. RESULTS The review included 22 papers from 19 studies. Four thematic groupings were identified among the included papers: easy and effortless use of telehealth regardless of the current health condition, visual features that enhance communication and care via telehealth, symptom management and self-management promotion by telehealth, and perceptions of improved palliative care at home. CONCLUSIONS The use of telehealth in palliative home care seems to be feasible, improving access to health care professionals at home and enhancing feelings of security and safety. The visual features of telehealth seem to allow a genuine relationship with health care professionals. However, there are contradicting results on whether the use of telehealth improves burdensome symptoms and quality of life. Future research should investigate the experiences of using telehealth among patients with life-limiting illness other than cancer and patients aged 85 years or older. More research is needed to increase the body of knowledge regarding the effectiveness of telehealth on symptoms and quality of life.

Sign in / Sign up

Export Citation Format

Share Document