Is there a need for clinical guidelines in the United States for the diagnosis of hereditary angioedema and the screening of family members of affected patients?

There are close to seven million people under correctional supervision in the United States, both in prison and in the community. The US criminal justice system is widely regarded as an inherently unmerciful institution by scholars and policymakers but also by people who have spent time in prison and their family members; it is deeply punitive, racist, expansive and damaging in its reach. In this article, we probe the meanings of mercy for the institution of parole.

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Shame and blame: Secondary stigma among families of convicted sex offenders

Criminology & Criminal Justice ◽

10.1177/17488958211017391 ◽

2021 ◽

pp. 174889582110173

Author(s):

Douglas Evans ◽

Adam Trahan ◽

Kaleigh Laird

Keyword(s):

United States ◽

Criminal Justice ◽

Sex Offenders ◽

Justice System ◽

Sex Offender ◽

Family Members ◽

The United States ◽

Formerly Incarcerated ◽

Research Attention ◽

Sex Offender Registry

The detriment of incarceration experienced by the formerly incarcerated has been increasingly explored in the literature on reentry. A tangential but equally concerning issue that has recently received more research attention is the effect on family members of the incarcerated. The stigma of a criminal conviction is most apparent among families of convicted sex offenders, who experience consequences parallel to those of their convicted relative. Drawing from interviews with 30 individuals with a family member incarcerated for a sex offence in the United States, this study explores manifestations of stigma due to familial association. The findings suggest that families face negative treatment from social networks and criminal justice officials, engage in self-blame and that the media’s control over the narrative exacerbates family members’ experiences. Given the pervasiveness of criminal justice system contact, the rapid growth of the sex offender registry in the United States, and the millions of family members peripherally affected by one or both, justice system reforms are needed to ensure that family members are shielded from the harms of incarceration and registration.

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Racial and Ethnic Disparities in the Research and Care of Hereditary Angioedema Patients in the United States

The Journal of Allergy and Clinical Immunology In Practice ◽

10.1016/j.jaip.2021.08.019 ◽

2021 ◽

Author(s):

Sebastian Sylvestre ◽

Timothy Craig ◽

Oyindamola Ajewole ◽

Sansanee Craig ◽

Sundeep Kaur ◽

...

Keyword(s):

United States ◽

Hereditary Angioedema ◽

Ethnic Disparities ◽

The United States ◽

Racial And Ethnic Disparities

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Assessing Chronic Pain Treatment Practices and Evaluating Adherence to Chronic Pain Clinical Guidelines in Outpatient Practices in the United States

Journal of Pain ◽

10.1016/j.jpain.2013.01.425 ◽

2013 ◽

Vol 14 (6) ◽

pp. 568-578 ◽

Cited By ~ 24

Author(s):

Rafia S. Rasu ◽

Rose Sohraby ◽

Lindsay Cunningham ◽

Maureen E. Knell

Keyword(s):

United States ◽

Chronic Pain ◽

Clinical Guidelines ◽

Pain Treatment ◽

The United States ◽

Treatment Practices ◽

Chronic Pain Treatment

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Family Separation and the Impact of Digital Technology on the Mental Health of Refugee Families in the United States: Qualitative Study

Journal of Medical Internet Research ◽

10.2196/14171 ◽

2019 ◽

Vol 21 (9) ◽

pp. e14171 ◽

Cited By ~ 2

Author(s):

Sayyed Fawad Ali Shah ◽

Julia Meredith Hess ◽

Jessica R Goodkind

Keyword(s):

Mental Health ◽

United States ◽

Digital Technology ◽

Family Members ◽

The United States ◽

Theory Approach ◽

Financial Barriers ◽

Family Separation ◽

Ict Use ◽

The Impact

BackgroundConflicts around the world have resulted in a record high number of refugees. Family separation is a critical factor that impacts refugee mental health. Thus, it is important to explore refugees’ ability to maintain contact with family members across the globe and the ways in which they attempt to do so. It is increasingly common for refugees to use information and communication technologies (ICTs), which include mobile phones, the internet, and social media sites, such as Facebook, WhatsApp, Skype, and Viber, for these purposes.ObjectiveThe aim of this study was to explore refugees’ perceptions of the impact of communication through ICTs on their mental health, the exercise of agency by refugees within the context of ICT use, especially their communication with their families, and logistical issues that affect their access to ICTs in the United States.MethodsWe used a constructivist grounded theory approach to analyze in-depth interviews of 290 adult refugee participants from different countries, who were enrolled in a randomized controlled trial of a community-based mental health intervention.ResultsAnalyses showed that communication through ICTs had differing impacts on the mental health of refugee participants. ICTs, as channels of communication between separated families, were a major source of emotional and mental well-being for a large number of refugee participants. However, for some participants, the communication process with separated family members through digital technology was mentally and emotionally difficult. The participants also discussed ways in which they hide adversities from their families through selective use of different ICTs. Several participants noted logistical and financial barriers to communicating with their families through ICTs.ConclusionsThese findings are important in elucidating aspects of refugee agency and environmental constraints that need to be further explicated in theories related to ICT use as well as in providing insight for researchers and practitioners involved in efforts related to migration and mental health.

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Identifying Current Driver Rehabilitation Practices for Clients With Physical Impairments

American Journal of Occupational Therapy ◽

10.5014/ajot.2021.75s2-rp346 ◽

2021 ◽

Vol 75 (Supplement_2) ◽

pp. 7512515346p1-7512515346p1

Author(s):

W. Ben Mortenson ◽

Brittany Langereis ◽

Sarah Semeniuk ◽

Lisa Kristalovich

Keyword(s):

United States ◽

Clinical Guidelines ◽

The United States ◽

Physical Impairments ◽

Levels Of Evidence ◽

Low Levels ◽

Primary Author

Abstract Date Presented Accepted for AOTA INSPIRE 2021 but unable to be presented due to online event limitations. Currently, there is a lack of clinical guidelines to support clinicians working in driver rehabilitation. This study aimed to identify intervention practices and factors that influence driver rehabilitation recommendations by surveying driver rehabilitation specialists practicing across the United States and Canada. Results revealed both consistencies and inconsistencies in practice, which may be related to jurisdictional differences and relatively low levels of evidence in this area. Primary Author and Speaker: W. Ben Mortenson Contributing Authors: Brittany Langereis, Sarah Semeniuk, and Lisa Kristalovich

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Trauma Patients’ Attitudes toward Organ Donation at an Urban Level I Trauma Center

The American Surgeon ◽

10.1177/000313481808400957 ◽

2018 ◽

Vol 84 (9) ◽

pp. 1493-1497

Author(s):

John D. Cull ◽

Katarina Ivkovic ◽

Benjamin Manning ◽

Edie Y. Chan

Keyword(s):

United States ◽

Organ Donation ◽

Trauma Center ◽

Family Members ◽

Organ Donor ◽

The United States ◽

Trauma Patients ◽

Willingness To Donate ◽

Patient Responses ◽

Level I

Many health-care workers (HCWs) surveyed at a trauma center believed their patients distrusted the organ allocation system. This study compares urban trauma patients’ (TPs) attitudes toward organ donation with attitudes from the 2012 National Survey of Organ Donation Attitudes (NSODA). TPs presenting to the trauma clinic between September 2014 and August 2015 were surveyed. Patient responses were compared with the 2012 NSODA. One hundred and thirty-three TPs (95.0%) responded to the survey. Compared with the 2012 NSODA, groups were similar with regard to a patient's desire for OD after death (Trauma: 62.4% [Confidence interval [CI]: 53.6–70.7] vs NSODA: 59.3% [CI: 56.6–61.8]) and the belief that doctors are less likely to save their life if they are an organ donor (24.8% [CI: 17.7–33.0] vs 19.6% [CI: 18.3–21.0]). Approximately, 30 per cent of patients believed discrimination prevented minority patients from receiving transplants (27.1 [CI: 19.7–35.5] vs 30.3 [CI: 28.8–31.9]). TPs were less likely than the NSODA group to donate a family members’ organs, if they did not know the family members’ wishes (56.4% [CI: 47.5–65.0] vs 75.6% [CI: 68.7–71.8]); TPs were less likely to believe the United States transplant system uses a fair approach to distribute organs (47.4% [38.7–56.2] vs 64.6% [CI: 63.0–66.2]). Adjusting for race, both groups were similar in their willingness to donate a family members’ organs; black TPs were less likely to believe the United States transplant system, which follows a fair approach in distributing organs (43.0% [CI: 32.4–54.2] vs 63.7% [59.7–67.6]). Despite HCWs perceptions, TPs had a positive view of OD. Educating HCWs on patient attitudes toward OD may decrease institutional barriers to OD.

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