scholarly journals Using cognitive interviews to improve a Psychological-Social-Spiritual Healing instrument: Voices of aging African Americans with serious illness

2018 ◽  
Vol 39 ◽  
pp. 109-114
Author(s):  
Heather Coats ◽  
Anne G. Rosenfeld ◽  
Janice D. Crist ◽  
Esther Sternberg ◽  
Ann Berger
Keyword(s):  
African Americans ◽  
Spiritual Healing ◽  
Cognitive Interviews ◽  
Serious Illness

The acceptability to African-Americans of a structured conversation guide to improve advance care planning in the setting of cancer: A focus-group study.

2015 ◽  
Vol 33 (29_suppl) ◽  
pp. 11-11 ◽  
Author(s):  
Justin J Sanders ◽  
Katherine W. Sterba ◽  
Dee Ford ◽  
Susan Block
Keyword(s):  
African Americans ◽  
Advance Care Planning ◽  
Community Outreach ◽  
Care Planning ◽  
Focus Group Study ◽  
Serious Illness ◽  
Patient Goals ◽  
Advance Care ◽  
The Individual ◽  
The Impact

11 Background: African-Americans are less likely than whites to participate in advance care planning (ACP), which may contribute to disparities in the receipt of goal-concordant care. Literature points to multiple factors: the impact of religion, mistrust, different preferences for life-sustaining measures, family-decision making styles and poor knowledge about ACP. Early ACP conversations are associated with improved outcomes at the end of life, including goal-concordant care. A systematically-developed, serious illness conversation guide (“guide”) for oncologists, embedded in a systems-based approach to improving illness care, has demonstrated more frequent, higher-quality, and earlier ACP conversations in a predominantly white and middle class cohort of cancer patients. This study aimed to explore the acceptability and need for modification of the guide in more diverse populations. Methods: We conducted a series of focus groups with panels of clinicians and researchers, African-American church members, and seriously ill patients and their caregivers to assess barriers to ACP and preferences concerning modifications to the guide. We used template analysis to code themes at the individual, interpersonal and systems levels. Results: At the individual level, participants confirmed the importance of religion and the impact of perceived discrimination (e.g., receipt of inferior care) and superstition (e.g., talking about death may make it happen). Interpersonal-level factors influencing ACP included family, trust, and concerns about provider abandonment. Participants confirmed systems-level barriers of access and mistrust in the healthcare system and highlighted community outreach as a key part of the process. Participants reported positive responses to the tone and content of the guide and found the guide to be acceptable when it included a question that elicited coping mechanisms, including religion. Conclusions: Participants in our study found the use of a serious illness conversation guide to identify patient goals and priorities acceptable, and emphasized the importance of adding a question focused on coping and religion.

Opening the Gates

2021 ◽  
pp. 155-199
Author(s):  
Larry Abbott Golemon
Keyword(s):  
African Americans ◽  
Liberal Arts ◽  
Theological Education ◽  
Basic Education ◽  
Spiritual Healing ◽  
Wilberforce University ◽  
Hampton Institute ◽  
Working People ◽  
Black Pastors ◽  
Religious Training

The fifth chapter explores how theological education was opened to women, African Americans, and working class whites. Congregationalist Mary Lyon founded Mt. Holyoke Female Seminary (1837) to provide a rigorous education built on the liberal arts, theology, personal discipline, and domestic work—all designed to produce independent women for missions. Other women, like Methodist Lucy Rider, founded religious training schools for women in their denominations. For African Americans, pioneers like AME Bishop Daniel Payne, who revived Wilberforce University (1856), developed a blend of liberal arts and theological education. W. E. B. Dubois fought for this model as the way to educate “the talented tenth” needed for racial uplift. The other model, pioneered by Samuel Armstrong at the Hampton Institute (VA) and Booker T. Washington at Tuskegee (Alabama), combined a religious training school with industrial work so that black pastors and teachers could be self-supporting. Finally, Bible colleges, like that of Dwight Moody, opened theological studies to working people with only a basic education. Emma Dryer brought practical, normal school approaches to the beginnings of the Moody Bible Institute (MBI) in Chicago. Under Dr. R. A. Torrey, MBI combined a literal reading of Scripture with experiential holiness, spiritual healing, end-times prophecy, and practical business methods—all of which marked the future fundamentalist movement.

scholarly journals African American Elders’ Serious Illness Experiences

2016 ◽  
Vol 27 (5) ◽  
pp. 634-648 ◽  
Author(s):  
Heather Coats ◽  
Janice D. Crist ◽  
Ann Berger ◽  
Esther Sternberg ◽  
Anne G. Rosenfeld
Keyword(s):  
African American ◽  
Narrative Analysis ◽  
Spiritual Healing ◽  
Patient Centered ◽  
Future Expectations ◽  
Serious Illness ◽  
Analysis Methodology ◽  
Illness Experiences ◽  
Prior Experiences ◽  
Seriously Ill

The foundation of culturally sensitive patient-centered palliative care is formed from one’s social, spiritual, psychological, and physical experiences of serious illness. The purpose of this study was to describe categories and patterns of psychological, social, and spiritual healing from the perspectives of aging seriously ill African American (AA) elders. Using narrative analysis methodology, 13 open-ended interviews were collected. Three main patterns were “prior experiences,” “I changed,” and “across past, present experiences and future expectations.” Themes were categorized within each pattern: been through it . . . made me strong, I thought about . . . others, went down little hills . . . got me down, I grew stronger, changed priorities, do things I never would have done, quit doing, God did and will take care of me, close-knit relationships, and life is better. “Faith” in God helped the aging seriously ill AA elders “overcome things,” whether their current illness or other life difficulties.

scholarly journals END-OF-LIFE DECISION-MAKING AMONG AFRICAN AMERICANS WITH SERIOUS ILLNESS

2017 ◽  
Vol 1 (suppl_1) ◽  
pp. 113-114 ◽  
Author(s):  
E.R. Smith-Howell ◽  
S.H. Meghani ◽  
S. Hickman
Keyword(s):  
Decision Making ◽  
African Americans ◽  
End Of Life ◽  
Serious Illness ◽  
End Of Life Decision ◽  
Life Decision

scholarly journals Goals-of-Care Consultations Are Associated with Lower Costs and Less Acute Care Use among Propensity-Matched Cohorts of African Americans and Whites with Serious Illness

2020 ◽  
Vol 23 (9) ◽  
pp. 1204-1213 ◽  
Author(s):  
Lauren T. Starr ◽  
Connie M. Ulrich ◽  
Scott M. Appel ◽  
Paul Junker ◽  
Nina R. O'Connor ◽  
...  
Keyword(s):  
African Americans ◽  
Acute Care ◽  
Goals Of Care ◽  
Serious Illness

scholarly journals Preparation and Planning for Future Care in the Deep South: Adapting a Validated Tool for Cultural Sensitivity

2018 ◽  
Vol 59 (6) ◽  
pp. e643-e652 ◽  
Author(s):  
Rebecca S Allen ◽  
JoAnn S Oliver ◽  
Morgan K Eichorst ◽  
Lisa Mieskowski ◽  
Pamela Payne-Foster ◽  
...  
Keyword(s):  
Health Care ◽  
African American ◽  
African Americans ◽  
Health Care Professionals ◽  
African American Men ◽  
Cognitive Interviews ◽  
Care Providers ◽  
Care Needs ◽  
Response Options ◽  
Future Care

Abstract Background and Objectives This study describes the adaptation and validation of Sörensen et al. (2017)’s preparation for future care (PFC) scale with diverse samples including rural dwelling African Americans and certified nursing assistants (CNAs), and subsequent psychometric development. Research Design and Methods Responses to the five-subscale PFC survey from 33 rural African American men across 12 months and cognitive interviews with a subset of 12 of these men are described. Psychometric refinement included descriptive qualitative analyses of consultations with experienced lay research advisors (N = 4 and N = 7) regarding potential changes to the PFC and a confirmatory factor analysis of the resultant scale (N = 138). Results Cognitive interviews with rural African American men revealed difficulty understanding Eurocentric questions. Emergent themes included emotional avoidance of planning, considerations of nursing homes and possible care providers, and coping strategies. In two consultation meetings, trained lay research advisors recommended language modifications to the original questions and response options. Factor analyzing the resultant scale revealed support for the original subscale constructs (acceptable fit: χ2 = 205.03, df = 124, p < .001; root mean square error of approximation = .069 [.052–.085]; comparative fit index = .93; Tucker–Lewis index = .91). Discussion and Implications PFC and engagement in advance care planning is uncommon among African Americans, possibly due to distrust of and lack of cultural competency among health care professionals. The resulting tool and response options may be used as an interview guide/survey with African Americans to gain understanding about their preparation for future health care needs.

scholarly journals End-of-Life Decision Making and Communication of Bereaved Family Members of African Americans with Serious Illness

2016 ◽  
Vol 19 (2) ◽  
pp. 174-182 ◽  
Author(s):  
Esther R. Smith-Howell ◽  
Susan E. Hickman ◽  
Salimah H. Meghani ◽  
Susan M. Perkins ◽  
Susan M. Rawl
Keyword(s):  
Decision Making ◽  
African Americans ◽  
End Of Life ◽  
Family Members ◽  
Serious Illness ◽  
Bereaved Family ◽  
End Of Life Decision ◽  
Life Decision

Spiritual Healing, Sick Kids and the Law: Inequities in the American Healthcare System

2003 ◽  
Vol 29 (2-3) ◽  
pp. 269-299
Author(s):  
Janna C. Merrick
Keyword(s):  
Medical Science ◽  
Spiritual Healing ◽  
Best Interests ◽  
Legal Rights ◽  
High Tech ◽  
Divine Love ◽  
Religious Minority ◽  
Human Need ◽  
East End ◽  
The Church

Main Street in Sarasota, Florida. A high-tech medical arts building rises from the east end, the county's historic three-story courthouse is two blocks to the west and sandwiched in between is the First Church of Christ, Scientist. A verse inscribed on the wall behind the pulpit of the church reads: “Divine Love Always Has Met and Always Will Meet Every Human Need.” This is the church where William and Christine Hermanson worshipped. It is just a few steps away from the courthouse where they were convicted of child abuse and third-degree murder for failing to provide conventional medical care for their seven-year-old daughter.This Article is about the intersection of “divine love” and “the best interests of the child.” It is about a pluralistic society where the dominant culture reveres medical science, but where a religious minority shuns and perhaps fears that same medical science. It is also about the struggle among different religious interests to define the legal rights of the citizenry.

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