Living with cancer and multimorbidity: A qualitative study of self-management experiences of older adults with cancer

Author(s):  
Kristen R. Haase ◽  
Steven Hall ◽  
Schroder Sattar ◽  
Shahid Ahmed
2017 ◽  
Vol Volume 10 ◽  
pp. 167-177 ◽  
Author(s):  
Robin Jacobs ◽  
Raymond L Ownby ◽  
Amarilis Acevedo ◽  
Drenna Waldrop-Valverde

2019 ◽  
Vol 28 (1) ◽  
pp. 195-203
Author(s):  
Marian J. T. Bolscher‐Niehuis ◽  
Madeleen J. Uitdehaag ◽  
Anneke L. Francke

2020 ◽  
Vol 9 (4) ◽  
pp. 304-310
Author(s):  
Kavita Radhakrishnan ◽  
Thomas Baranowski ◽  
Matthew O'Hair ◽  
Catherine A. Fournier ◽  
Cathy B. Spranger ◽  
...  

2021 ◽  
pp. 026921632110494
Author(s):  
Eloise Radcliffe ◽  
Aysha Khan ◽  
David Wright ◽  
Richard Berman ◽  
Sara Demain ◽  
...  

Background: People living with cancer that is treatable but not curable have complex needs, often managing health at home, supported by those close to them. Challenges are likely to be exacerbated during the COVID-19 pandemic and the risk-reducing measures introduced in response. The impact of COVID-19 on those living with incurable, life-threatening conditions is little understood. Aim: To investigate the experiences and identify the impact of the COVID-19 pandemic for people living with treatable not curable cancer and their informal carers. Design: Qualitative semi-structured phone interviews were conducted with 21 patients living with cancer that is treatable but not curable and 14 carers. Setting/ participants: Participants were part of a larger longitudinal qualitative study (ENABLE) on supported self-management for people living with cancer that is treatable but not curable. Results: The COVID-19 pandemic magnified uncertainty and anxiety and led to loss of opportunities to do things important to patients in the limited time they have left to live. Lack of face-to-face contact with loved ones had a significant impact on patients’ and carers’ emotional wellbeing. Carers experienced increased responsibilities but less access to formal and informal support and respite. While changes to treatment led to some concern about longer-term impact on health, most patients felt well-supported by healthcare teams. Conclusion: The study provides rich insights into the nature of challenges, uncertainty and lost opportunities resulting from the COVID-19 pandemic for patients and carers living with cancer that is treatable but not curable, which has wider resonance for people living with other life-limiting conditions.


BMJ Open ◽  
2016 ◽  
Vol 6 (11) ◽  
pp. e013122 ◽  
Author(s):  
Lieve M Roets-Merken ◽  
Myrra J F J Vernooij-Dassen ◽  
Sytse U Zuidema ◽  
Marianne K Dees ◽  
Pieter G J M Hermsen ◽  
...  

2020 ◽  
Vol 9 (1) ◽  
Author(s):  
Kristen R. Haase ◽  
Martine Puts ◽  
Schroder Sattar ◽  
Mikaela Gray ◽  
Cindy Kenis ◽  
...  

2020 ◽  
Vol 35 (4) ◽  
pp. 389-408
Author(s):  
F. Shiraz ◽  
Z. L. J. Hildon ◽  
H. J. M. Vrijhoef

Abstract Understanding older adults perceptions of health and adaptation processes to ageing can allow for more culturally aligned services and better targeted care. The aim of this exploratory qualitative study was to examine older adults perceptions of physical, psychological and social health and further understand the processes of adaptation and self-management of these health perceptions. Semi-structured in depth interviews (IDI) were conducted with ethnically diverse older adults in Singapore, aged 60 and above. Participants were asked open ended questions about their physical health, psychological health and their current social health and relationships. They were also asked methods of adaptation to these age related changes. In total, forty participants were interviewed. A thematic analysis identified five main themes when exploring perceptions of physical, psychological and social health. These included; 1) Slowing down 2) Relationship harmony 3) Financial harmony 4) Social connectedness and 5) Eating together. Adaptation and self-management of these health perceptions included six additional themes; 1) Keep moving 2) Keep learning; where continued self-determination and resilience was a key method in adapting to negative thoughts about declining physical health 3) Adopting avoidant coping behaviours 4) ‘It feels good to do good’; where finding meaning in life was to help others 5) ‘Power of Prayer’; which highlighted how older adults relegated responsibilities to a higher spiritual power 6) Social participation; which included engaging in community and religious social activities that all contributed to self-management of older adults psychological health and social health. In conclusion, our study highlighted specific cultural nuances in older adults perceptions of health, particularly psychological and social health. These findings can help develop more targeted intervention programmes and better methods of measuring older adults health, which can assist with the global ageing phenomena.


PLoS ONE ◽  
2020 ◽  
Vol 15 (3) ◽  
pp. e0230318
Author(s):  
Siti Salwana Kamsan ◽  
Devinder Kaur Ajit Singh ◽  
Maw Pin Tan ◽  
Saravana Kumar

PLoS ONE ◽  
2017 ◽  
Vol 12 (3) ◽  
pp. e0173601 ◽  
Author(s):  
Lieve Roets-Merken ◽  
Sytse Zuidema ◽  
Myrra Vernooij-Dassen ◽  
Marianne Dees ◽  
Pieter Hermsen ◽  
...  

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