scholarly journals Quality of life in adults with facial port-wine stains

2017 ◽  
Vol 76 (4) ◽  
pp. 695-702 ◽  
Author(s):  
Solveig L. Hagen ◽  
Katherine R. Grey ◽  
Dorota Z. Korta ◽  
Kristen M. Kelly
Keyword(s):  
Quality Of Life ◽  
Port Wine ◽  
Port Wine Stains

scholarly journals Prenatal diagnosis of Klippel–Trenaunay syndrome: Series of four cases and review of the literature

Ultrasound ◽  
2019 ◽  
Vol 28 (2) ◽  
pp. 91-102
Author(s):  
Olga Ivanitskaya ◽  
Elena Andreeva ◽  
Natalia Odegova
Keyword(s):  
Quality Of Life ◽  
Prenatal Diagnosis ◽  
Soft Tissue ◽  
Varicose Veins ◽  
Port Wine ◽  
Review Of The Literature ◽  
Unique Case ◽  
Port Wine Stains ◽  
Klippel Trenaunay Syndrome

Klippel–Trenaunay syndrome is a rare disease with a classic triad of port wine stains, varicose veins, and bony and soft tissue hypertrophy of an extremity. The quality of life in these patients is significantly affected, making the prenatal diagnosis of Klippel–Trenaunay syndrome important. We present four prenatally diagnosed cases of this anomaly with a unique case of ectrodactyly of the hand in foetus with Klippel–Trenaunay syndrome. Such a combination has not been previously reported prenatally. A review of the literature for similar cases is also presented.

scholarly journals Influence of Port-wine Stains on Quality of Life of Children and Their Parents

2021 ◽  
pp. 0
Author(s):  
F Jiang ◽  
J Shao ◽  
L Chen ◽  
N Yang ◽  
J Liu ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Port Wine ◽  
Port Wine Stains

scholarly journals Analysis of quality of life and influencing factors in 197 Chinese patients with port-wine stains

Medicine ◽  
2017 ◽  
Vol 96 (51) ◽  
pp. e9446 ◽  
Author(s):  
Juan Wang ◽  
Yu-you Zhu ◽  
Zhong-ying Wang ◽  
Xiu-hua Yao ◽  
Lan-fang Zhang ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Influencing Factors ◽  
Chinese Patients ◽  
Port Wine ◽  
Port Wine Stains

Quality of Life of People with Capillary Malformation of Port Wine Stain (PWS)

2017 ◽  
Vol 1 (1) ◽  
pp. 75-85
Author(s):  
Kinga Polek
Keyword(s):  
Quality Of Life ◽  
Social Problems ◽  
Self Esteem ◽  
Port Wine Stain ◽  
Port Wine ◽  
Psychological Care ◽  
Skin Changes ◽  
Capillary Malformation ◽  
Positive Attitudes

<b>Aims:</b> The aims of this work were to analyze and assess the quality of life of people with capillary malformation as well as to check if they experience mental and social problems in everyday life. <br/><b>Materials and methods:</b> A diagnostic survey, a questionnaire prepared for this particular study, was used as a data collection method. The sample consisted of 10 people, both men and women, aged 19-56. The participants were all suffering from port-wine stain. <br/><b>Results:</b> The results showed that 90% of the respondents (9 people) believed that because of capillary malformation their lives are different comparing to those of healthy people. 60% (6 people) did not come to terms with the affliction and 80% (8 people) had an impression of being different, meaning worse, because of the skin marks. 90% admitted that PWS contributed to their depressive state. 80% declared having problems with establishing new contacts. 50% believed finding a job was negatively influenced by the disease and their different look. 40% claimed to have a lower self-esteem because of port-wine stains. <br/><b>Conlusions:</b> The study provided evidence to a claim that people with capillary malformation may experience both mental and social problems. Thus, psychological care is crucial for people with PWS. Furthermore, laser therapy should be introduced among children as it would diminish their chances of having such problems in the future. As far as environment is concerned, there should be an educational program established which would act against marginalization of those suffering from not only capillary malformation but also other types of diseases causing skin changes. Moreover, such programs could help to build positive attitudes towards those people.

scholarly journals Quality of Life and Psychological Effects of Port-Wine Stain: A Review of Literature

2021 ◽  
Vol Volume 14 ◽  
pp. 681-690
Author(s):  
Rungsima Wanitphakdeedecha ◽  
Janice Natasha C Ng ◽  
Chadakan Yan ◽  
Woraphong Manuskiatti ◽  
Tatchalerm Sudhipongpracha ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Psychological Effects ◽  
Port Wine Stain ◽  
Port Wine ◽  
Review Of Literature

Self-Compassion and Quality of Life in Adults Who Stutter

2020 ◽  
Vol 29 (4) ◽  
pp. 2097-2108
Author(s):  
Robyn L. Croft ◽  
Courtney T. Byrd
Keyword(s):  
Quality Of Life ◽  
Social Connectedness ◽  
The Self ◽  
Future Research ◽  
Self Compassion ◽  
Adults Who Stutter ◽  
And Gender ◽  
Relationship Of ◽  
The Impact

Purpose The purpose of this study was to identify levels of self-compassion in adults who do and do not stutter and to determine whether self-compassion predicts the impact of stuttering on quality of life in adults who stutter. Method Participants included 140 adults who do and do not stutter matched for age and gender. All participants completed the Self-Compassion Scale. Adults who stutter also completed the Overall Assessment of the Speaker's Experience of Stuttering. Data were analyzed for self-compassion differences between and within adults who do and do not stutter and to predict self-compassion on quality of life in adults who stutter. Results Adults who do and do not stutter exhibited no significant differences in total self-compassion, regardless of participant gender. A simple linear regression of the total self-compassion score and total Overall Assessment of the Speaker's Experience of Stuttering score showed a significant, negative linear relationship of self-compassion predicting the impact of stuttering on quality of life. Conclusions Data suggest that higher levels of self-kindness, mindfulness, and social connectedness (i.e., self-compassion) are related to reduced negative reactions to stuttering, an increased participation in daily communication situations, and an improved overall quality of life. Future research should replicate current findings and identify moderators of the self-compassion–quality of life relationship.

Misophonia: An Evidence-Based Case Report

2020 ◽  
Vol 29 (4) ◽  
pp. 685-690
Author(s):  
C. S. Vanaja ◽  
Miriam Soni Abigail
Keyword(s):  
Quality Of Life ◽  
Case Report ◽  
Case History ◽  
Pure Tone ◽  
Physiological Responses ◽  
Evidence Based ◽  
Management Option ◽  
Pure Tone Audiogram

Purpose Misophonia is a sound tolerance disorder condition in certain sounds that trigger intense emotional or physiological responses. While some persons may experience misophonia, a few patients suffer from misophonia. However, there is a dearth of literature on audiological assessment and management of persons with misophonia. The purpose of this report is to discuss the assessment of misophonia and highlight the management option that helped a patient with misophonia. Method A case study of a 26-year-old woman with the complaint of decreased tolerance to specific sounds affecting quality of life is reported. Audiological assessment differentiated misophonia from hyperacusis. Management included retraining counseling as well as desensitization and habituation therapy based on the principles described by P. J. Jastreboff and Jastreboff (2014). A misophonia questionnaire was administered at regular intervals to monitor the effectiveness of therapy. Results A detailed case history and audiological evaluations including pure-tone audiogram and Johnson Hyperacusis Index revealed the presence of misophonia. The patient benefitted from intervention, and the scores of the misophonia questionnaire indicated a decrease in the severity of the problem. Conclusions It is important to differentially diagnose misophonia and hyperacusis in persons with sound tolerance disorders. Retraining counseling as well as desensitization and habituation therapy can help patients who suffer from misophonia.

Quality of Life of Youth With Hearing Loss

ASHA Leader ◽  
2010 ◽  
Vol 15 (15) ◽  
pp. 5-6
Author(s):  
Anne Skalicky ◽  
Brenda Schick ◽  
Donald Patrick
Keyword(s):  
Quality Of Life ◽  
Hearing Loss
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