What Is the Time Burden Associated with Completion of Health-Related Quality of Life Questionnaires after Cancer Treatment?

2019 ◽  
Vol 229 (4) ◽  
pp. S275
Author(s):  
Fredrik Klevebro ◽  
Piers R. Boshier ◽  
Wesley Jenq ◽  
Donald E. Low
Keyword(s):  
Quality Of Life ◽  
Cancer Treatment ◽  
Health Related Quality ◽  
Quality Of Life Questionnaires ◽  
Time Burden ◽  
Related Quality ◽  
Health Related ◽  
After Cancer

P216 WHAT IS THE TIME BURDEN AND RESPONSE RATE ASSOCIATED WITH WRITTEN OR ONLINE COMPLETION OF HEALTH-RELATED QUALITY OF LIFE QUESTIONNAIRES AFTER CANCER TREATMENT?

2019 ◽  
Vol 32 (Supplement_2) ◽  
Author(s):  
F Klevebro ◽  
P Boshier ◽  
W Jenq ◽  
D Low
Keyword(s):  
Quality Of Life ◽  
Cancer Treatment ◽  
Health Related Quality ◽  
Time Burden ◽  
Related Quality ◽  
Health Related ◽  
After Cancer ◽  
Eortc Qlq ◽  
Online Group

Abstract Background Patient reported outcomes are increasingly important assessments to be applied in the follow-up of patients after cancer treatment. The primary aim of this study was to clarify the patient related time burden associated with completing these questionnaires. Secondary aims was to assess completion rates, and to investigate how symptomatic outcome differs according to the response time. Method Patients who had undergone surgical management of esophageal cancer (1991-2018) and were disease-free at the time of assessment were asked to complete a total of six questionnaires: SF36, EORTC-QLQ-C30, EORTC-QLQ-OG25, EuroQol 5D, Digestive Symptom Questionnaire, and Dumping Syndrome Rating Scale. Patients were offered either paper or online questionnaires that were completed consecutively allowing for accurate quantification of the time taken to complete each online questionnaire. Results In total, 117 of 147 eligible patients (79.6%) responded to the questionnaires. In the online group 60 (90.9%) responded compared to 57 (70.4%) in the paper group (P=0.002). The median age was 74.5 years in the online group compared to 70.9 years in the paper group (P=0.022). In the patients completing their questionnaires online, the six questionnaires took on average 26.4 (range 10-55) minutes to complete. The fastest quartile of patients completed the six questionnaires in 17 minutes or less (N=14). There was no significant association between time to complete the questionnaires and age, gender, time from surgery or health-related quality of life scores. Conclusions The results of the study demonstrates that online questionnaires in some ways might be superior to paper questionnaires, and that patients are willing and able to complete online questionnaires irrespective of age. Time to complete questionnaires was not associated with level of health-related quality of life.

scholarly journals Racial and Ethnic Variation in Health-Related Quality of Life Scores Prior to Prostate Cancer Treatment

2017 ◽  
Vol 5 (4) ◽  
pp. e219-e228 ◽  
Author(s):  
Stephanie R. Reading ◽  
Kimberly R. Porter ◽  
Jeffrey M. Slezak ◽  
Teresa N. Harrison ◽  
Joy S. Gelfond ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Prostate Cancer ◽  
Cancer Treatment ◽  
Ethnic Variation ◽  
Health Related Quality ◽  
Prostate Cancer Treatment ◽  
Related Quality ◽  
Health Related

scholarly journals The impact of lymphedema on health-related quality of life up to 10 years after breast cancer treatment

2021 ◽  
Vol 7 (1) ◽  
Author(s):  
Mads G. Jørgensen ◽  
Navid M. Toyserkani ◽  
Frederik G. Hansen ◽  
Anette Bygum ◽  
Jens A. Sørensen
Keyword(s):  
Breast Cancer ◽  
Quality Of Life ◽  
Cancer Treatment ◽  
Breast Cancer Treatment ◽  
Health Related Quality ◽  
Related Quality ◽  
Health Related ◽  
The Impact

AbstractThe impact of breast cancer-related lymphedema (BCRL) on long-term quality of life is unknown. The aim of this study was to investigate the impact of BCRL on health-related quality of life (HRQoL) up to 10 years after breast cancer treatment. This regional population-based study enrolled patients treated for breast cancer with axillary lymph node dissection between January 1st 2007 and December 31th 2017. Follow up and assessments of the included patients were conducted between January 2019 and May 2020. The study outcome was HRQoL, evaluated with the Lymphedema Functioning, Disability and Health Questionnaire, the Disabilities of the Arm, Shoulder and Hand Questionnaire and the Short Form (36) Health Survey Questionnaire. Multivariate linear logistic regression models adjusted for confounders provided mean score differences (MDs) with 95% confidence intervals in each HRQoL scale and item. This study enrolled 244 patients with BCRL and 823 patients without BCRL. Patients with BCRL had significantly poorer HRQoL than patients without BCRL in 16 out of 18 HRQoL subscales, for example, in physical function (MDs 27, 95%CI: 24; 30), mental health (MDs 24, 95%CI: 21; 27) and social role functioning (MDs 20, 95%CI: 17; 23). Age, BMI, BCRL severity, hand and dominant arm affection had only minor impact on HRQoL (MDs < 5), suggesting a high degree of inter-individual variation in coping with lymphedema. This study showed that BCRL is associated with long-term impairments in HRQoL, especially affecting the physical and psychosocial domains. Surprisingly, BCRL diagnosis rather than clinical severity drove the largest impairments in HRQoL.

scholarly journals Correlation between functional capacity and health-related quality of life in COPD: a case series

2014 ◽  
Vol 27 (4) ◽  
pp. 505-514 ◽  
Author(s):  
Karina Maria Cancelliero-Gaiad ◽  
Daniela Ike ◽  
Liliana Soave ◽  
Evelim Leal de Freitas Dantas Gomes ◽  
Fernanda Dultra Dias ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Functional Capacity ◽  
Case Series ◽  
Health Related Quality ◽  
Quality Of Life Questionnaires ◽  
Parametric Data ◽  
Sf 36 ◽  
Related Quality ◽  
Health Related

Objective To correlate functional capacity test scores from chronic obstructive pulmonary disease (COPD) subjects with their functional state as assessed by health-related quality of life questionnaires (one respiratory disease-specific [SGRQ] and one generic [SF-36] questionnaire). Materials and methods Study of a case series of 8 COPD patients. The following tests were performed: 1) Six-minute walk test (6-MWT); 2) Shuttle walking test (SWT); 3) Six-minute step test (6-MST); 4) Two-minute sit-to-stand test (STST); and 5) Pegboard and ring test (PBRT). Besides these tests, two health-related quality of life questionnaires were administered: The St George's Respiratory Questionnaire (SGRQ) and the Short Form 36 (SF-36) health survey questionnaire. The statistical analysis was carried out by using the Shapiro-Wilk normality test, while correlations were assessed using Pearson's (parametric data) or Spearman's (non-parametric data) rank tests, with p < 0.05. Results The 6-MWT showed strong correlation with the SF-36 scales of physical functioning, general health, vitality, social functioning and mental health. Conversely, the other functional capacity tests showed no correlation with this questionnaire. The SGRQ showed no correlation with any of the tests. Conclusions The 6-MWT may be a good test to reflect the health-related quality of life of COPD subjects.

Patients’ Trust in Physician, Patient Enablement, and Health-Related Quality of Life During Colon Cancer Treatment

2017 ◽  
Vol 32 (3) ◽  
pp. 571-579 ◽  
Author(s):  
Nicole Ernstmann ◽  
Markus Wirtz ◽  
Anika Nitzsche ◽  
Sophie E. Gross ◽  
Lena Ansmann ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Colon Cancer ◽  
Cancer Treatment ◽  
Health Related Quality ◽  
Related Quality ◽  
Health Related ◽  
Patient Enablement ◽  
Physician Patient
Sign in / Sign up

Export Citation Format

Share Document