The use of telemedicine for home-based palliative care for children with serious illness: a scoping review

2020 ◽  
Author(s):  
Kimberly A. Miller ◽  
Jennifer Baird ◽  
Jessica Lira ◽  
Josseline Herrera Eguizabal ◽  
Shangnon Fei ◽  
...  
Keyword(s):  
Palliative Care ◽  
Scoping Review ◽  
Serious Illness ◽  
Home Based

scholarly journals Trends in Pediatric Palliative Care Research (TPPCR) 2021; Issue #2: Commentary on Miller et al.

2021 ◽  
Author(s):  
Arshia Madni ◽  
TPPCR
Keyword(s):  
Palliative Care ◽  
Scoping Review ◽  
Symptom Management ◽  
Pediatric Palliative Care ◽  
Serious Illness ◽  
Care Research ◽  
Home Based

This TPPCR commentary discusses the 2020 paper by Miller et al., “The use of telemedicine for home-based palliative care for children with serious illness: a scoping review” published in Journal of Pain and Symptom Management

Identifying Patients with Serious Illness within a Health System to Maximize the Value of Home Based Palliative Care (GP763)

2020 ◽  
Vol 60 (1) ◽  
pp. 283
Author(s):  
Harriet Mather ◽  
Nathan Goldstein ◽  
Mohammed Husain ◽  
Linda Decherrie ◽  
R Sean Morrison ◽  
...  
Keyword(s):  
Palliative Care ◽  
Health System ◽  
Serious Illness ◽  
Home Based

Healthcare professionals’ experiences and perspectives on using telehealth for home-based palliative care: a scoping review protocol (Preprint)

2021 ◽  
Author(s):  
Elias David Lundereng ◽  
Andrea Aparecida Goncalves Nes ◽  
Heidi Holmen ◽  
Anette Winger ◽  
Hilde Thygesen ◽  
...  
Keyword(s):  
Systematic Review ◽  
Palliative Care ◽  
Scoping Review ◽  
Healthcare Professionals ◽  
Meta Analysis ◽  
Eligibility Criteria ◽  
Hand Search ◽  
Home Based ◽  
Review Protocol ◽  
Analysis Protocol

BACKGROUND Telehealth seems feasible for use in home-based palliative care. However, acceptance among healthcare professionals is essential for the successful delivery of telehealth in practice. No scoping review has mapped the experiences and perspectives of healthcare professionals on the use of telehealth for home-based palliative care. OBJECTIVE To systematically map published studies on healthcare professionals’ experiences and perspectives on the use of telehealth in home-based palliative care. METHODS The proposed scoping review will employ the methodology of Arksey and O’Malley. This protocol is guided by the Preferred Reporting Items for Systematic review and Meta-Analysis Protocol (PRISMA-P). A systematic search was performed in Medical Literature Analysis and Retrieval System Online (MEDLINE), PsycINFO, Excerpta Medica Database (EMBASE), Cumulative Index to Nursing and Allied Health (CINAHL), Allied and Complementary Medicine (AMED) and Web of Science (WoS) for studies published between January 2000 to July 5, 2021. We will also hand search the reference lists of included papers to identify additional studies of relevance. The search will be updated in 2022. Pairs of authors will independently assess eligibility of studies and extract data. The two first stages of thematic synthesis will be used to thematically organize the data material. Since the scoping review methodology consists of reviewing and collecting data from publicly available materials, this study does not require ethics approval. RESULTS The database searches were performed on July 5, 2021 and the eligibility criteria were tested in July-August 2021. After removal of 2364 duplicates, the search yielded 2420 citations.We will screen titles, abstracts and full-text papers by fall 2021. Results are anticipated by September 2022. CONCLUSIONS A mapping of studies could identify research gaps regarding healthcare professionals’ experiences and perspectives on the use of telehealth in home-based palliative care and may determine the value and feasibility of conducting a full systematic review.

scholarly journals Expanding the Palliative Care Domains to Meet the Needs of a Community-Based Supportive Care Model

2017 ◽  
Vol 35 (2) ◽  
pp. 258-265 ◽  
Author(s):  
Eric W. Anderson ◽  
Monica S. Frazer ◽  
Sandra E. Schellinger
Keyword(s):  
Palliative Care ◽  
Supportive Care ◽  
Family Caregiver ◽  
Course Of Illness ◽  
Serious Illness ◽  
Home Based ◽  
The Family ◽  
Financial Domain ◽  
Care Family ◽  
Group Interviews

Background: Whole person care is appropriate for seriously ill persons. The current framework of palliative care domains in the National Consensus Project (NCP) Guidelines for Quality Palliative Care offers an opportunity to reassess the domains of care delivered at home, earlier in the course of illness. Objective: This qualitative study was used to test the applicability of a proposed, expanded set of domains. The results were used to inform a home-based, upstream model of supportive care for serious illness. Methods: Quotes relating to the experience of late-life serious illness were derived from transcripts of 12 semi-structured group interviews conducted with patients, family, and professionals. Quotes originally coded to the NCP domains of palliative care were then coded to the proposed domain set, which included new categories of family/caregiver, legal/financial, and legacy/bereavement domains. Results: A total of 489 quotes were assigned to the proposed expanded set of domains. One hundred one (19%) coded to the family/caregiver domain, 28 (5%) to the legacy/bereavement domain, and 27 (5%) to the legal/financial domain. Ninety-seven (87%) of the 111 quotes coded to family/caregiver had been initially coded to the NCP social aspects of care. Family/caregiver themes included challenges, rewards, insights, and family growth. Conclusion: The preponderance of family-related issues suggests that including the family domain may promote recognition and support of family caregivers and the services they provide. Although this study provides some support for including the legacy/bereavement and legal/financial domains, additional research is needed to determine whether there is a basis for including them in the domain structure.

Adapting the serious illness conversation guide for use in the emergency department by social workers

2021 ◽  
pp. 1-5
Author(s):  
Emily Loving Aaronson ◽  
Jeffrey L. Greenwald ◽  
Lindsey R. Krenzel ◽  
Angelina M. Rogers ◽  
Lauren LaPointe ◽  
...  
Keyword(s):  
Emergency Department ◽  
Palliative Care ◽  
Social Workers ◽  
Pilot Testing ◽  
Serious Illness ◽  
Home Based ◽  
Treatment Plans ◽  
Phase Process ◽  
Made In

Abstract Objective Although important treatment decisions are made in the Emergency Department (ED), conversations about patients’ goals and values and priorities often do not occur. There is a critical need to improve the frequency of these conversations, so that ED providers can align treatment plans with these goals, values, and priorities. The Serious Illness Conversation Guide has been used in other care settings and has been demonstrated to improve the frequency, quality, and timing of conversations, but it has not been used in the ED setting. Additionally, ED social workers, although integrated into hospital and home-based palliative care, have not been engaged in programs to advance serious illness conversations in the ED. We set out to adapt the Serious Illness Conversation Guide for use in the ED by social workers. Methods We undertook a four-phase process for the adaptation of the Serious Illness Conversation Guide for use in the ED by social workers. This included simulated testing exercises, pilot testing, and deployment with patients in the ED. Results During each phase of the Guide's adaptation, changes were made to reflect both the environment of care (ED) and the clinicians (social workers) that would be using the Guide. A final guide is presented. Significance of results This report presents an adapted Serious Illness Conversation Guide for use in the ED by social workers. This Guide may provide a tool that can be used to increase the frequency and quality of serious illness conversations in the ED.

Female Veteran Use of Palliative and Hospice Care: A Scoping Review

2021 ◽  
Author(s):  
Brandon M Varilek ◽  
Mary J Isaacson
Keyword(s):  
Palliative Care ◽  
End Of Life ◽  
Scoping Review ◽  
End Of Life Care ◽  
Hospice Care ◽  
Healthcare Providers ◽  
Female Veterans ◽  
Life Care ◽  
Serious Illness ◽  
Female Veteran

ABSTRACT Introduction The number of female veterans in the USA in the age range of 55-64 years increased 7-fold from 2000 to 2015. Female veterans are more likely to suffer from certain mental health disorders, respiratory diseases, neurologic diseases, and some forms of cancer when compared to their male counterparts. Veterans Affairs (VA) healthcare providers need to be prepared to care for this growth of female veterans with serious illness. These serious illnesses require appropriate medical management, which often includes palliative care. It is imperative to determine how VA healthcare providers integrate palliative and hospice care for this population. The purpose of our scoping review was to explore the palliative and hospice care literature specific to female veterans to learn: (1) what evidence is available regarding female veterans’ use of palliative and hospice care? (2) To meet the needs of this growing population, what gaps exist specific to female veterans’ use of palliative and hospice care? Methods A scoping review methodology was employed following the nine-step process described by the Joanna Briggs Institute for conducting scoping reviews. Results Nineteen articles met the inclusion criteria. Fourteen quantitative articles were included which comprised 10 retrospective chart reviews, one randomized controlled trial, one correlation, one quality improvement, and one cross-sectional. The remaining five were qualitative studies. The sample populations within the articles were overwhelmingly male and white. Content analysis of the articles revealed three themes: quality of end of life care, distress, and palliative care consult. Conclusions The female veteran population is increasing and becoming more ethnically diverse. Female veterans are not well represented in the literature. Our review also uncovered a significant gap in the study methodologies. We found that retrospective chart reviews dominated the palliative and hospice care literature specific to veterans. More prospective study designs are needed that explore the veteran and family experience while receiving end of life care. With the rising number of older female veterans and their risk for serious illness, it is imperative that research studies purposefully recruit, retain, analyze, and report female veteran statistics along with their male counterparts. We can no longer afford to disregard the value of the female veterans’ perspective.

scholarly journals Healthcare professionals’ experiences and perspectives on using telehealth for home-based palliative care: a scoping review protocol (Preprint)

10.2196/33305 ◽  
2021 ◽  
Author(s):  
Elias David Lundereng ◽  
Andrea Aparecida Goncalves Nes ◽  
Heidi Holmen ◽  
Anette Winger ◽  
Hilde Thygesen ◽  
...  
Keyword(s):  
Palliative Care ◽  
Scoping Review ◽  
Healthcare Professionals ◽  
Home Based ◽  
Review Protocol

The support needs of parent caregivers of children with a life-limiting illness and approaches used to meet their needs: A scoping review

2020 ◽  
pp. 026921632096759
Author(s):  
Fenella J Gill ◽  
Zahraa Hashem ◽  
Roswitha Stegmann ◽  
Samar M Aoun
Keyword(s):  
Palliative Care ◽  
Scoping Review ◽  
English Language ◽  
Support Needs ◽  
Care Needs ◽  
Caregiver Support ◽  
Paediatric Palliative Care ◽  
Heterogenous Population ◽  
Parent Caregivers ◽  
The Individual

Background: Provision of paediatric palliative care is complex and optimally covers meeting the individual needs of a heterogenous population of children and their parent caregivers throughout a life-limiting illness. It is unclear whether existing approaches comprehensively address parent caregivers’ needs. Aim: To examine support needs of parents caring for children with life limiting illnesses and identify specific approaches used to identify and address needs. Design: A scoping review Data sources: MEDLINE, EMBASE, PsycINFO, CINAHL and ProQuest Central, were searched for peer reviewed English language full text research published from 2008 to 2019. Study quality appraisal was undertaken. Fourteen quantitative, 18 qualitative and 12 mixed methods studies were synthesised and themed using summative content analysis and mapped to the Parent Supportive Care Needs Framework (PSCNF). Results: Themes were communication, choice, information, practical, social, psychological, emotional and physical. Communication and choice were central and additional to domains of the PSCNF. Unmet were needs for supporting siblings, for respite care, out of hours, psychological, home and educational support. Six articles reported using instruments to identify parent carer support needs. Conclusion: Support needs of parent caregivers of children with life limiting illnesses are substantial and heterogenous. While studies report evidence of burden and distress in parent caregivers, this rarely translates into improvements in practice through the development of interventions. A systematic and regular assessment of individual parent caregiver support needs is required by using instruments appropriate to use in clinical practice to move the focus to palliative care interventions and improved services for parents.

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