scholarly journals The Role of Patients in Clinical Research and Evidence Based Decision Making as Reported Via A Survey of Patient Advocates

2014 ◽  
Vol 17 (7) ◽  
pp. A435
Author(s):  
A.P. Holtorf ◽  
D. Palacios ◽  
D. Brixner
2019 ◽  
Vol 94 ◽  
pp. 123-134 ◽  
Author(s):  
Hanspeter Liniger ◽  
Nicole Harari ◽  
Godert van Lynden ◽  
Renate Fleiner ◽  
Jan de Leeuw ◽  
...  

2019 ◽  
Vol 73 (sup1) ◽  
pp. 56-68 ◽  
Author(s):  
Naomi C. Brownstein ◽  
Thomas A. Louis ◽  
Anthony O’Hagan ◽  
Jane Pendergast

2011 ◽  
Vol 34 (108) ◽  
pp. 33-44 ◽  
Author(s):  
Gaby Haddow

Effective communication of research to practice should facilitate evidence based decision-making by library and information professionals. One way this may be achieved is through the publications distributed by library associations to their members. This paper reports on a study that explored the role of library associations' publications in communicating research information. Firstly, the reading habits of practitioners from a range of disciplines are discussed, finding support for making research information accessible through library associations' publications. Using content analysis, the extent and subject of research information published in two associations' publications was examined. Research information comprised a small proportion of the publications' content and much of the research information is presented as a brief mention only. The largest proportion of research information in both publications focuses on content about 'information behaviour, user needs/services'. The paper concludes by suggesting initiatives to improve practitioner access to research information in association publications.


2014 ◽  
Vol 5 (3) ◽  
pp. 303-308 ◽  
Author(s):  
Marie–Valentine Florin

Collection and provision of scientific information for policy and decision-making is particularly important during emergencies or when uncertainty and ambiguity creates situation of fear and anxiety. This article offers two suggestions for addressing natural or technology risks, leveraging research by the International Risk Governance Council (IRGC) and project contributors. The first advice is that concepts and instruments for risk governance be recognised and used as intermediation between evidence and policy. The second is that the role of the Chief Scientific Adviser in public sector organisations includes those of the Chief Risk Officer. These suggestions could help address the challenge for policymakers to deal with uncertainty and emergency, when little or contradictory evidence is available.


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